Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Donna would be interested to hear how it goes without the lutein, I spoke to the author about the diet and she was really nice and helpful, they live in South Africa now, please let us know what results you see - Cheers mary H Lutein?? > My son is 3.6, ASD, PST. He's on no-fenol (this is brilliant for us) > and peptizyde. My son has no apparent reactions to gluten/casein and > is on peptizyde just in case. We were on the GFCF diet for ages and > it did not help. > > Anyway, today I've decided I will give Sara's Diet > (http://www.saras-autism-diet.freeservers.com/diet.html) > a go. I have no idea if lutein is the answer for us (I really doubt > it) but anyway, I will give it a try. It can't hurt. Results come > in about 2 weeks or so if you are going to get results, so I wont > have to do it for long if it doesn't work. > > Devin, I just wanted to know if it was possible to invent an enzyme > to help with lutein? This is obviously a problem for some ASD kids. > > Donna & 3.6 ASD > Brisbane, Australia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 > Anyway, today I've decided I will give Sara's Diet > (http://www.saras-autism-diet.freeservers.com/diet.html) > a go. I have no idea if lutein is the answer for us (I really doubt > it) but anyway, I will give it a try. It can't hurt. Even with enzymes, my son had problems with *most* [but not all] of the foods which are excluded on the no-lutein diet. I have noticed however, that this is reducing with chelation. He now tolerates many of the foods he did not tolerate before. So you can consider that at some point for your child also. http://www.danasview.net/chelate.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 In a message dated 1/1/2003 6:31:21 PM Eastern Standard Time, alexandradonna@... writes: > Devin, I just wanted to know if it was possible to invent an enzyme > to help with lutein? This is obviously a problem for some ASD kids. > Hi Donna, We have used No-fenol to help with Lutein infractions (that stuff is all over the place, lol), and have never seen a negative reaction from it. If we don't use the NF and have an infraction....we get serious regression in language and sensory issues. So for us, NF does great with the lutein, but I haven't tested it on a full time basis yet. I suspect after a year of " gut healing " , we'll do a challenge and see. Liane (de-lurking!) Liane Gentry Skye author <A HREF= " http://www.amazon.com/exec/obidos/search-handle-url/index=books & field-auth\ or=Skye%2C%20Liane%20Gentry/103-0462897-9459854 " >Turn Around, Bright Eyes - Snapshots from a Voyage Out of Autism's Silence</A> <A HREF= " http://talkingwithpictures.com/ " >Talking With Pictures</A> " nonverbal " does not have to mean " unable to communicate " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Thanks Dana, yes I will begin chelating this year some time. We've found a good doctor who knows all about PST, chelating, etc - keeps up with all the autism biomedical info on the internet. We are waiting for test results, and want to get my son's hair analysis levels to a more normal level (his molybdemin is way low, boron too high) - once they are more evened out and once we've tried some natural forms of chelation first (this is what the doctor said when I asked about chelation) we'll try the real thing. I've been trying to make him eat coriander but it's not easy LOL! I offered him a coriander bunch once and he said " no tree " LOL!! Donna & 3.6 ASD Brisbane, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Thanks for the info Liane. I'm feel a bit lost now, so if no-fenol helps with lutein, and I give him no-fenol with everything anyway, then going on a lutein free diet is not going to help much. I must have the only ASD child that doesn't obviously react to dietary changes. Donna > > Hi Donna, > > We have used No-fenol to help with Lutein infractions (that stuff is all over > the place, lol), and have never seen a negative reaction from it. If we > don't use the NF and have an infraction....we get serious regression in > language and sensory issues. So for us, NF does great with the lutein, but I > haven't tested it on a full time basis yet. I suspect after a year of " gut > healing " , we'll do a challenge and see. > > Liane (de-lurking!) > Liane Gentry Skye > author Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 You could still try limiting lutein for 4 months and then giving no phenol when you add it back in. We're approaching our 4th month avoiding lutein and our son has made some great progress. We haven't tried no phenol yet, but I have some and plan on trying it maybe in a month or so. I think says that it takes 4 months for the immune cells to die off, so if you're going to try Sara's diet then you need to do it for 4 months to see full response. On another note, because we are avoiding lutein, papaya and papain are a no no. I had asked Devin a while back if he would make Zyme Prime without the papain and he mentioned he was thinking about it. Anyone know if that's going to happen? Sharon > Thanks for the info Liane. I'm feel a bit lost now, so if no-fenol > helps with lutein, and I give him no-fenol with everything anyway, > then going on a lutein free diet is not going to help much. > > I must have the only ASD child that doesn't obviously react to > dietary changes. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 > Thanks for the info Liane. I'm feel a bit lost now, so if no-fenol > helps with lutein, and I give him no-fenol with everything anyway, > then going on a lutein free diet is not going to help much. I am not Liane, but for my son, I had to remove most lutein foods for a few months. Now I can give many of them in small quantities with enzymes, and my son has no effects. I think Liane said she can allow " infractions " with no effects, but she might be at the same point as I am, and might need to keep the majority of it away from her son for now. Hopefully she will reply to you and give you her info. > > I must have the only ASD child that doesn't obviously react to > dietary changes. My son did not at first, but now that he is healing and the metals are coming out, he shows more of a reaction [and also less of a reaction] than he did before. For example, when he ate corn every day, I did not notice much effect. I had removed it and added it back in, with no noticeable effect. But a few months ago I removed it for a week and noticed a dramatic effect. And then when he would eat even a small amount, he was VERY HYPER. But now after many more rounds of chelation [and gut healing], he can have small amounts with only a small amount of hyper. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Sharon, can you be specific about the progress your child has made - isn't that wonderful Cheers H Re: Lutein?? > You could still try limiting lutein for 4 months and then giving no > phenol when you add it back in. We're approaching our 4th month > avoiding lutein and our son has made some great progress. We haven't > tried no phenol yet, but I have some and plan on trying it maybe in a > month or so. > I think says that it takes 4 months for the immune cells to > die off, so if you're going to try Sara's diet then you need to do it > for 4 months to see full response. > > On another note, because we are avoiding lutein, papaya and papain > are a no no. I had asked Devin a while back if he would make Zyme > Prime without the papain and he mentioned he was thinking about it. > Anyone know if that's going to happen? > > Sharon > > > > > > Thanks for the info Liane. I'm feel a bit lost now, so if no-fenol > > helps with lutein, and I give him no-fenol with everything anyway, > > then going on a lutein free diet is not going to help much. > > > > I must have the only ASD child that doesn't obviously react to > > dietary changes. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Thanks Sharon. Yes that is what we will do. We're lutein free now. I'm quite excited about it again. My son has been eating shredded fresh cabbage (he really likes fruit and vegetables, not many left for him now). Do you have weblinks or groups you know of in regards to lutein? The only food list I could find was at http://www.saras-autism-diet.freeservers.com/Diet/salycilates.html and I'd like more information. Thanks so much :-) Donna > You could still try limiting lutein for 4 months and then giving no > phenol when you add it back in. We're approaching our 4th month > avoiding lutein and our son has made some great progress. We haven't > tried no phenol yet, but I have some and plan on trying it maybe in a > month or so. > I think says that it takes 4 months for the immune cells to > die off, so if you're going to try Sara's diet then you need to do it > for 4 months to see full response. > > On another note, because we are avoiding lutein, papaya and papain > are a no no. I had asked Devin a while back if he would make Zyme > Prime without the papain and he mentioned he was thinking about it. > Anyone know if that's going to happen? > > Sharon > > Quote Link to comment Share on other sites More sharing options...
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