Re: Jumping in here to ask for advice - no idea what to do next!

[Guest guest]

well with the mmr you can also get a low level viral infection

which makes things very difficult.

retinyl(non carotene) vitamin a.... see andy cutlers recommendation

on autism treatment. may help with the measles virus.

chelators have to be given every four hours or so to keep the blood

level up so the emrcury doesn't fall back, again see the files or

search on autism mercury.

nz is short of selenium , .75mcg/lb of selenomethionine works wonders.

you have to be careful with multivitamins that there are no mega

doses in it that he can't tolerate. look and see how the quantities

relate to the rda.

olive leaf may not be as effective as gse or oregano oil with yeast.

[Guest guest]

Hello,

FIrst I want to ask what your son weighs and what dose and chelator

are you using and how often? If you are following DAN! protocal I am

assuming yuou are giving it every 8 hours. Are you a member of the

autism mercury list? It is a list just like this one for parents

chelating their children. I will provide the link just in case you are

not a member:

/

We follow an alternative protocal for my son suggested on the mercury

list of 1/2mg per pound of body weight of child and we dose it on a

3-4 hour scedule rather than an 8 hour. This scedule is much better

for the body to handle and kids are improving more with less negative

side effects. If you have not please go to the files section on this

list and read them thoroughly and you will learn a lot.

We also use all 3 HNI enzymes and they have helped my son greatly. We

use them with all food. He got so much better on them after 6 months

and treating yeast that we were able to go off the diet last April.

Are you treating yeast? Yeast can cause some pretty bad behavior

problems and regression and often flares when chelating.

Hope this helps,

Patti

[Guest guest]

HI and welcome.

Just ask whatever you need to. With enzymes there are two main

considerations. You need to take the enzymes that are appropriate to

break down the food you are eating. Certain enzymes break down

proteins, certain ones breakdown starch, certain ones breakdown

fats, etc.

The second key to success is to make sure the enzymes get in contact

with the food (they must be touching in order to work). This is

simply a matter of swallowing the capsules before meals, mixing the

enzymes in something you can eat or drink and taking this right at

the beginning of a meal or snack. So it isn't something you take

once a day.

We use the Houston ones, www.houstonni.com. These may be a good

first choice because you can use them on a diet or off and therefore

you get more flexibility. Just so you know, roughly about 50% of the

people who do not seem any or much improvement with the GFCF diet do

see improvement with Houston enzymes. The Peptizyde is for

casein/gluten/soy and other proteins (can be used instead of GFCF

diet). The Zyme Prime is a general all-purpose type product. These

would be good to start with. The No-Fenol is really most helpful if

you know you have a yeast problem or phenol intolerance. Otherwise,

try this later.

So plan on giving enzymes before each meal or snack. I will send you

some 'starter' files on enzymes. One is on mixing suggestions in

case your child doesn't swallow capsules. Another is on what to

expect. There may be some adjustment effects with any enzymes

depending on the person. These are usually short-lived and end by

the first week, maybe two or three weeks. The body is getting

cleaned out and adjusting to processing food better and absorbing

more nutrients. So you may see loose stools (not diarrhea) for a

couple days, or a bit of hyperness, or increased thirst.

Sorry the chelation isn't working out. It would seem that your son

did follow the pattern for that. However, if you are following the 8

hour dosing, this is not as effective for many as the 4-hour dosing.

A lot of kids regress or get really sick on the 8-hour DAN protocol

and do much better on the 4-hour. If you are not doing 4-hour, you

can join the autism treatment group and post a message to Andy Cutler.

He is about the best resource for chelation needs there is (and he

will give you suggestions for free).

What brand or type of probiotics are you giving?

.

[Guest guest]

Hi

I remeber being where you are, doing all the stuff and getting little by way

of returns - keep your chin up!

FWIW I would stop chelation for 6 weeks, stick with diet, and introduce

digestive enzymes, I use HNI from www.houstonni.com. And the hardest of all,

cut sugar big time. This may cause some withdrawal, hyper, mushy poops and

stuff - I suspect your boy has problems with yeast/bacteria. If you are using

8 hour protocol at doses greater then 1mg per pound per dose then check out

Autism Mercury list files on why changing to 4 hourly low dosing may reduce

side effects. You may also need to add/rotate/pulse dose other yeast & bug

busters like GSE, Oregano Oil and experiment with probiotics if you don't see

any changes with one type, for example many swear by Probiogold, 4 months

worth and we still had no good gut bugs, you have to find products to suit

your child and their particular problems.

Enzymes help by addressing many issues simaltaneously, very good value

supplement. You will find this book an invaluable resource

> www.thundersnow.com/enzymebook.htm

Do I remember right you are in NZ? (your part of the world) would say

that would likely equal Selenium deficiency because the soils and stuff are

depleted also can help a lot during chelation, he'll probably pipe up!

Good luck

MAndi in UK

> I am at a loss as to what to do next, and so desperate for my boy to

> recover that I will try ANYTHING.

>

> My son is a typical case of vaccine induced ASD. Normal babyhood,

> started regressing following MMR at 15 months, non verbal and pretty

> autistic like by 2 years. He is 3 and a half now.

>

> We have been doing therapy, not great but all that is available

> where

> I live.

>

> We took him off gluten, caesin and a few other foods that he showed

> up as allergic to. Perhaps there was a slight improvement but

> nothing too dramatic. He is still on the gf/cf diet.

>

>

> We had him tested for heavy metal poisoning which found all sorts of

> elevated levels of metals especially mercury. So we began chelation

> therapy with DMSA-DAN protocol. I had such high hopes, because

> seemed such a typical case and he was already showing improvements

> and learning language (albeit slowly) before we began. We have done

> about 8 rounds now and I don't think there has been too much

> improvement. He does continue to learn slowly, but no faster than

> before the DMSA. He still lacks interest and is quite difficult to

> engage. Tantrums have increased and become completely out of

> control, using up several hours a day.

>

> In addition to the DMSA and gf/cf diet he takes multivitamin, zinc,

> probiotics and olive leaf extract.

>

> I am looking into starting on enzymes, manganese and magnesium.

> I have no idea where to start with enzymes, there seems so many

> possiblities. My doctor doesnt know anything about it.

>

> Can anyone with a similar story tell me what worked for them, or

> suggest what to try first?

>

> Thank you so much!

>

[Guest guest]

> We had him tested for heavy metal poisoning which found all sorts of

> elevated levels of metals especially mercury. So we began chelation

> therapy with DMSA-DAN protocol.

Two things. First, DMSA only clears metals from the body, so you

might not see any " brain-related " improvements until you add ALA.

Second, many kids don't do well on the DAN protocol because they need

the chelator every 4 hours instead of every 8 hours. Are you giving

it every 8 hours [the DAN recommendation]? If you are, consider

reducing the dose to something like 25 mg DMSA, and give it every 4

hours, even thru the night. I have more info here

http://www.danasview.net/chelate.htm

>>Tantrums have increased and become completely out of

> control, using up several hours a day.

This sounds like the DMSA has aggravated a yeast condition, which it

is notorious for doing

http://www.danasview.net/yeast.htm

You might need a more active yeast protocol, like GSE or other

similar.

> I am looking into starting on enzymes, manganese and magnesium.

> I have no idea where to start with enzymes, there seems so many

> possiblities. My doctor doesnt know anything about it.

Here are the two main suppliers

http://www.houstonni.com/

http://www.kirkmanlabs.com/

I use HNI and they work very well for my family.

>

> Can anyone with a similar story tell me what worked for them, or

> suggest what to try first?

Get yeast under control and add ALA to your chelation protocol.

Dana

[Guest guest]

We are using Metagenics Ultra Probioplex (colostrum with

Arabinogalactans) and Metagenics Ultra Flora plus. I have no idea

how well they work.

We have just finished (yesterday) a two month treatment for yeast

with Sporonox. I don't know if it got rid of the yeast or not.

> HI and welcome.

>

> Just ask whatever you need to. With enzymes there are two main

> considerations. You need to take the enzymes that are appropriate

to

> break down the food you are eating. Certain enzymes break down

> proteins, certain ones breakdown starch, certain ones breakdown

> fats, etc.

>

> The second key to success is to make sure the enzymes get in

contact

> with the food (they must be touching in order to work). This is

> simply a matter of swallowing the capsules before meals, mixing

the

> enzymes in something you can eat or drink and taking this right at

> the beginning of a meal or snack. So it isn't something you take

> once a day.

>

> We use the Houston ones, www.houstonni.com. These may be a good

> first choice because you can use them on a diet or off and

therefore

> you get more flexibility. Just so you know, roughly about 50% of

the

> people who do not seem any or much improvement with the GFCF diet

do

> see improvement with Houston enzymes. The Peptizyde is for

> casein/gluten/soy and other proteins (can be used instead of GFCF

> diet). The Zyme Prime is a general all-purpose type product. These

> would be good to start with. The No-Fenol is really most helpful

if

> you know you have a yeast problem or phenol intolerance.

Otherwise,

> try this later.

>

> So plan on giving enzymes before each meal or snack. I will send

you

> some 'starter' files on enzymes. One is on mixing suggestions in

> case your child doesn't swallow capsules. Another is on what to

> expect. There may be some adjustment effects with any enzymes

> depending on the person. These are usually short-lived and end by

> the first week, maybe two or three weeks. The body is getting

> cleaned out and adjusting to processing food better and absorbing

> more nutrients. So you may see loose stools (not diarrhea) for a

> couple days, or a bit of hyperness, or increased thirst.

>

> Sorry the chelation isn't working out. It would seem that your son

> did follow the pattern for that. However, if you are following the

8

> hour dosing, this is not as effective for many as the 4-hour

dosing.

> A lot of kids regress or get really sick on the 8-hour DAN

protocol

> and do much better on the 4-hour. If you are not doing 4-hour, you

> can join the autism treatment group and post a message to Andy

Cutler.

> He is about the best resource for chelation needs there is (and he

> will give you suggestions for free).

>

>

>

> What brand or type of probiotics are you giving?

>

> .

[Guest guest]

We are doing the 10mg/kg 8 hourly, so he takes 150mg 8 hourly.

We have been treating for yeast with Sporonox and just finished a

two month treatment yeasterday, so I assmume he hasn't got yeast

right at the moment.

I think we may try Andy Cutler's protocol.

Thank you!

> Hello,

> FIrst I want to ask what your son weighs and what dose and chelator

> are you using and how often? If you are following DAN! protocal I

am

> assuming yuou are giving it every 8 hours. Are you a member of the

> autism mercury list? It is a list just like this one for parents

> chelating their children. I will provide the link just in case you

are

> not a member:

>

> /

>

> We follow an alternative protocal for my son suggested on the

mercury

> list of 1/2mg per pound of body weight of child and we dose it on a

> 3-4 hour scedule rather than an 8 hour. This scedule is much

better

> for the body to handle and kids are improving more with less

negative

> side effects. If you have not please go to the files section on

this

> list and read them thoroughly and you will learn a lot.

>

> We also use all 3 HNI enzymes and they have helped my son greatly.

We

> use them with all food. He got so much better on them after 6

months

> and treating yeast that we were able to go off the diet last April.

>

> Are you treating yeast? Yeast can cause some pretty bad behavior

> problems and regression and often flares when chelating.

>

> Hope this helps,

> Patti

[Guest guest]

You have gotten alot of good ideas. I wanted to say I stopped

chelation for almost a year to get some other issuse under control

with my son read the files at the mercuryautism group they are

great. Also read a paper on line Understanding Autism by

Jepson MD at cbcutah.com. Order the emzymes for gluten and milk

these seem to be able to stop my son meltdowns in there tracks and

are easy to use they are give with meals and snacks, I mix mine

with a little honey and give with eye dropper-- My 2 cents. Ann

> > Hello,

> > FIrst I want to ask what your son weighs and what dose and

chelator

> > are you using and how often? If you are following DAN! protocal

I

> am

> > assuming yuou are giving it every 8 hours. Are you a member of

the

> > autism mercury list? It is a list just like this one for parents

> > chelating their children. I will provide the link just in case

you

> are

> > not a member:

> >

> > /

> >

> > We follow an alternative protocal for my son suggested on the

> mercury

> > list of 1/2mg per pound of body weight of child and we dose it

on a

> > 3-4 hour scedule rather than an 8 hour. This scedule is much

> better

> > for the body to handle and kids are improving more with less

> negative

> > side effects. If you have not please go to the files section on

> this

> > list and read them thoroughly and you will learn a lot.

> >

> > We also use all 3 HNI enzymes and they have helped my son

greatly.

> We

> > use them with all food. He got so much better on them after 6

> months

> > and treating yeast that we were able to go off the diet last

April.

> >

> > Are you treating yeast? Yeast can cause some pretty bad behavior

> > problems and regression and often flares when chelating.

> >

> > Hope this helps,

> > Patti