Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 In a message dated 8/5/2005 12:37:43 AM Eastern Daylight Time, JPopplewell@... writes: The number means that you are producing slightly less thyroid stimulating hormone than is normally seen in that laboratory. Many labs arbitrarily cut off normal just before the highest and lowest 5% of results. Presumably, since you are not making very much thyroid stimulating hormone, your pituitary gland believes that you have enough or more than enough thyroid hormone. That means that your thyroid is either OK or slightly toward the hyperthyroid side. If you truly have symptoms of hypothyroidism (low body temp, slow pulse, wt gain, menstrual irregularity) then you could in fact have secondary hypothyroidism due to failure of the pituitary to produce enough TSH. It is more possible, however, that your thyroid is fine, you happened to fall just outside the normal range on the lab test, and your symptoms are nonspecific. Consider repeating the test before getting too excited about the result. Also remember that a TSH is only one piece of clinical information that must be taken into account along with any other available data before making a diagnosis. The body is a wonderful machine, but it is not always consistent from day to day. Lab tests can sometimes be misleading even when done absolutely correctly. Jim Hi Jim, thank you for responding so quickly. Well, this has been going on a few years, since around 2001. I have had three tests come back abnormal. I had lost my medical insurance twice, so that is why this has gone on for a long time without being treated. I am extremely tired, not just tired, exhausted every day. My blood pressure seems to come up low on the blood pressure machines in the pharmacy, I have thinning hair and brittle hair, I have gained 30 lbs in the last five years and cannot lose weight, I have tried everything. My eyebrows have even thinned out. My menstrual cycle is messed up, I am currently 11 days late. Aren't these signs of an underactive thryoid? What is secondary hypothyroidism? Is it serious? Can it be taken care of with thyroid medicine? Thanks Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 In a message dated 8/5/2005 1:04:06 AM Eastern Daylight Time, JPopplewell@... writes: In this case you want to measure thyroid hormone directly, with either a free thyroxine index or a T4. If the thyroid hormone is low, you may well have secondary hypothyroidism. If it is normal your symptoms are more than likely not related to your thyroid gland. Actually, the menstrual abnormality most often associated with hypothyroidism is shorter cycles with longer periods. Jim Would these results be on my paperwork that I have right now? I am so confused, I have no idea what is going on. Here I have been thinking all along that my thyroid is messed up and I do have so many symptoms, I even have the " foggy brain " where I can't remember things and I never forgot things ever! I feel sick, not myself for a few years now. Does it possibly sound like secondary hypothyroidism? How is that treated? Thank you so much! Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 The number means that you are producing slightly less thyroid stimulating hormone than is normally seen in that laboratory. Many labs arbitrarily cut off normal just before the highest and lowest 5% of results. Presumably, since you are not making very much thyroid stimulating hormone, your pituitary gland believes that you have enough or more than enough thyroid hormone. That means that your thyroid is either OK or slightly toward the hyperthyroid side. If you truly have symptoms of hypothyroidism (low body temp, slow pulse, wt gain, menstrual irregularity) then you could in fact have secondary hypothyroidism due to failure of the pituitary to produce enough TSH. It is more possible, however, that your thyroid is fine, you happened to fall just outside the normal range on the lab test, and your symptoms are nonspecific. Consider repeating the test before getting too excited about the result. Also remember that a TSH is only one piece of clinical information that must be taken into account along with any other available data before making a diagnosis. The body is a wonderful machine, but it is not always consistent from day to day. Lab tests can sometimes be misleading even when done absolutely correctly. Jim ________________________________ From: [mailto: ] On Behalf Of BSL1229@... Sent: Thursday, August 04, 2005 9:18 PM Subject: [ ] These are my thyroid test results, can someone help? Hi, I wrote in about two weeks ago and I think I typed in my thyroid test results incorrectly. I am sending another email now because I went on vacation and my emails were bouncing so I dont know if anyone responded to me or not? I am just wondering if this number means over or underactive thyroid? I was told it was overactive BUT I have all of the underactive thyroid signs for the last few years. I am not being treated as of yet, I am looking for a good endocronologist. Here are my results:TSH 0.26 L 0.40-5.5 mIU/L If I am understanding it correctly, it is giving an L for low? I am thinking it should be higher than 0.40-5.5 correct? I know nothing about these numbers and my doctor seems clueless himself! He just referred me to go to a endocronologist. I have had THREE thyroid test results in the last four years come back abnormal. Any help will be so appreciated. Thanks, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 In this case you want to measure thyroid hormone directly, with either a free thyroxine index or a T4. If the thyroid hormone is low, you may well have secondary hypothyroidism. If it is normal your symptoms are more than likely not related to your thyroid gland. Actually, the menstrual abnormality most often associated with hypothyroidism is shorter cycles with longer periods. Jim ________________________________ From: [mailto: ] On Behalf Of BSL1229@... Sent: Thursday, August 04, 2005 9:51 PM Subject: Re: [ ] These are my thyroid test results, can someone help? In a message dated 8/5/2005 12:37:43 AM Eastern Daylight Time, JPopplewell@... writes: The number means that you are producing slightly less thyroid stimulating hormone than is normally seen in that laboratory. Many labs arbitrarily cut off normal just before the highest and lowest 5% of results. Presumably, since you are not making very much thyroid stimulating hormone, your pituitary gland believes that you have enough or more than enough thyroid hormone. That means that your thyroid is either OK or slightly toward the hyperthyroid side. If you truly have symptoms of hypothyroidism (low body temp, slow pulse, wt gain, menstrual irregularity) then you could in fact have secondary hypothyroidism due to failure of the pituitary to produce enough TSH. It is more possible, however, that your thyroid is fine, you happened to fall just outside the normal range on the lab test, and your symptoms are nonspecific. Consider repeating the test before getting too excited about the result. Also remember that a TSH is only one piece of clinical information that must be taken into account along with any other available data before making a diagnosis. The body is a wonderful machine, but it is not always consistent from day to day. Lab tests can sometimes be misleading even when done absolutely correctly. Jim Hi Jim, thank you for responding so quickly. Well, this has been going on a few years, since around 2001. I have had three tests come back abnormal. I had lost my medical insurance twice, so that is why this has gone on for a long time without being treated. I am extremely tired, not just tired, exhausted every day. My blood pressure seems to come up low on the blood pressure machines in the pharmacy, I have thinning hair and brittle hair, I have gained 30 lbs in the last five years and cannot lose weight, I have tried everything. My eyebrows have even thinned out. My menstrual cycle is messed up, I am currently 11 days late. Aren't these signs of an underactive thryoid? What is secondary hypothyroidism? Is it serious? Can it be taken care of with thyroid medicine? Thanks Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Go to 's Thyroid Syndrome on the internet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 In a message dated 8/5/2005 9:39:22 AM Eastern Daylight Time, bizzymama@... writes: Hi Vicki, there's a good list on where you can post your thyroid results and get some answers, hope this helps! Carol Thank you very much Carol, I appreciate it. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 In a message dated 8/5/2005 11:55:53 AM Eastern Daylight Time, joyfulmelody5@... writes: Go to 's Thyroid Syndrome on the internet. Thank you, I will search right now, I appreciate your help. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 It's now called 's Temperature Syndrome. So you can look it up on the Internet that way also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Hi Vicki, there's a good list on where you can post your thyroid results and get some answers, hope this helps! Carol Here's their links from when I was on it: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 In a message dated 8/5/2005 7:45:10 PM Eastern Daylight Time, JPopplewell@... writes: By the way, I'm curious: have you had this chat with your doctor? As medicine goes, this is not brain surgery, so I'm a little surpirsed to see you searching an autism website for answers that you should be able to get from your doctor. Jim Hi Jim, since I have medicaid, my doctors are limited and I found a doctor around my neighborhood by he seemed clueless about thyroid issues and just said I am referring you to a thyroid doctor. But of course I have to find one from the book that I have on my own. I am awaiting a number from my Aunt that said she knows of a good endocronologist around my area that might take my medicaid. Sorry to be asking so many questions but I trust my email group alot more than this doctor I saw, who didn't have a clue. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Some of your symptoms could be related to estrogen and progesterone imbalance. If you suspect you have low thyroid try taking minerals to help support the function. That helped me. I had used progesterone cream, (natural) when my doctor tested me and found that my estrogen was too high. This helped allot. Consider too you have adrenal issues. Liz D. > > > Hi Jim, thank you for responding so quickly. Well, this has been going on a > few years, since around 2001. I have had three tests come back abnormal. I > had lost my medical insurance twice, so that is why this has gone on for a long > time without being treated. I am extremely tired, not just tired, exhausted > every day. My blood pressure seems to come up low on the blood pressure > machines in the pharmacy, I have thinning hair and brittle hair, I have gained 30 > lbs in the last five years and cannot lose weight, I have tried everything. > My eyebrows have even thinned out. My menstrual cycle is messed up, I am > currently 11 days late. Aren't these signs of an underactive thryoid? > What is secondary hypothyroidism? Is it serious? Can it be taken care of > with thyroid medicine? > Thanks > Vicki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Vicki, I'm not sure exactly what you mean by 'my paperwork that I have right now' If you mean lab results, it will only be there if it was ordered. If you mean a lab requisition, then probably it is on the paper somewhere near where TSH is. Look to see if there is a 'thyroid profile' or 'thyroid panel'. If you have secondary hypothyroidism, it is no more serious than primary hypothyroidism, treated with the same thyroid supplements (Synthroid, Levothroid, Armour thyroid, etc). In the case of secondary hypothyroidism, though, it is sometimes helpful to look for an additional, arcane hormone called TRH to see if this is related to the failure of TSH production. By the way, I'm curious: have you had this chat with your doctor? As medicine goes, this is not brain surgery, so I'm a little surpirsed to see you searching an autism website for answers that you should be able to get from your doctor. Jim ________________________________ From: [mailto: ] On Behalf Of BSL1229@... Sent: Friday, August 05, 2005 12:00 AM Subject: Re: [ ] These are my thyroid test results, can someone help? In a message dated 8/5/2005 1:04:06 AM Eastern Daylight Time, JPopplewell@... writes: In this case you want to measure thyroid hormone directly, with either a free thyroxine index or a T4. If the thyroid hormone is low, you may well have secondary hypothyroidism. If it is normal your symptoms are more than likely not related to your thyroid gland. Actually, the menstrual abnormality most often associated with hypothyroidism is shorter cycles with longer periods. Jim Would these results be on my paperwork that I have right now? I am so confused, I have no idea what is going on. Here I have been thinking all along that my thyroid is messed up and I do have so many symptoms, I even have the " foggy brain " where I can't remember things and I never forgot things ever! I feel sick, not myself for a few years now. Does it possibly sound like secondary hypothyroidism? How is that treated? Thank you so much! Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 In a message dated 8/5/2005 9:43:00 PM Eastern Daylight Time, watchingamiracle@... writes: Just my experience, I've been a thyroid patient since 1988 and I had a partial thyroidectomy in 1993. The TSH number you listed, by itself does mean an overactive thyroid. Except, you need additional tests T3 and T4 easpecially to determine why. You can feel incredibly rotten when you're overactive as well. ( I gained almost 40 pounds at one point - " overactive " ) Do yourself a favor, look hard for an endorinologist who can look past the reference range. I feel horrible with a TSH over .1 Its all about your own body. I read two good books a few years ago. One was " The Thyroid Source Book " and the other " The Thyroid Solution " I would try to remember the authors, but I can't remember the last time I read about anything besides autism. I'm sure many people have answered you already. Hope I was able to help. Hang in there! Hi Lori, thank you so much, I feel better that other people understand how sick I feel and what I am going through. The other thyroid numbers seem normal except that one number which is showing overactive. It's weird because I was thinking how in the world do I have an overactive thyroid with all of the UNDER active symptoms! I am going to make sure I get a very good endocronologist because I cannot stand feeling this sick and tired anymore. My mentrual cycle is messed up, currently I am going on 11 days late and I am not pregnant. I don't know what to do but at least I know I am not going crazy. These are the results I am copying them from my lab results. TSH 0 Thank you so much, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 In a message dated 8/5/2005 9:43:00 PM Eastern Daylight Time, watchingamiracle@... writes: Just my experience, I've been a thyroid patient since 1988 and I had a partial thyroidectomy in 1993. The TSH number you listed, by itself does mean an overactive thyroid. Except, you need additional tests T3 and T4 easpecially to determine why. You can feel incredibly rotten when you're overactive as well. ( I gained almost 40 pounds at one point - " overactive " ) Do yourself a favor, look hard for an endorinologist who can look past the reference range. I feel horrible with a TSH over .1 Its all about your own body. I read two good books a few years ago. One was " The Thyroid Source Book " and the other " The Thyroid Solution " I would try to remember the authors, but I can't remember the last time I read about anything besides autism. I'm sure many people have answered you already. Hope I was able to help. Hang in there! Sorry, I hit send without finishing the test results. TSH 0.26 T4, Free 1.5 T4, Total 8.3 T3 Total 166 I had a low number for my HDL Cholesterol that I was told I need to bring the number up. I was asked if I do exercise everyday and I almost fell over laughing because I am telling the doctor I am SO exhausted, I am lucky I am functioning at all!!!! Exercise! Yeah right! When I feel better but I can't exercise right now, I am lucky I can get out of bed, run errands, clean my house, cook and take care of my 8 year old Autistic son. And my triglycerides were high, I don't know if that is connected with the thyroid or not? Meaning, I don't know if it is effecting that also. Thanks Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 In a message dated 8/5/2005 8:33:19 PM Eastern Daylight Time, JPopplewell@... writes: If I may ask, where do you live? I might know someone near you. Is medicaid in your area a closed panel, HMO model? Jim Hi Jim, I am in Queens New York. I have HIP/Medicaid. Thanks Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 If I may ask, where do you live? I might know someone near you. Is medicaid in your area a closed panel, HMO model? Jim ________________________________ From: [mailto: ] On Behalf Of BSL1229@... Sent: Friday, August 05, 2005 5:28 PM Subject: Re: [ ] These are my thyroid test results, can someone help? In a message dated 8/5/2005 7:45:10 PM Eastern Daylight Time, JPopplewell@... writes: By the way, I'm curious: have you had this chat with your doctor? As medicine goes, this is not brain surgery, so I'm a little surpirsed to see you searching an autism website for answers that you should be able to get from your doctor. Jim Hi Jim, since I have medicaid, my doctors are limited and I found a doctor around my neighborhood by he seemed clueless about thyroid issues and just said I am referring you to a thyroid doctor. But of course I have to find one from the book that I have on my own. I am awaiting a number from my Aunt that said she knows of a good endocronologist around my area that might take my medicaid. Sorry to be asking so many questions but I trust my email group alot more than this doctor I saw, who didn't have a clue. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Vicki- Just my experience, I've been a thyroid patient since 1988 and I had a partial thyroidectomy in 1993. The TSH number you listed, by itself does mean an overactive thyroid. Except, you need additional tests T3 and T4 easpecially to determine why. You can feel incredibly rotten when you're overactive as well. ( I gained almost 40 pounds at one point - " overactive " ) Do yourself a favor, look hard for an endorinologist who can look past the reference range. I feel horrible with a TSH over .1 Its all about your own body. I read two good books a few years ago. One was " The Thyroid Source Book " and the other " The Thyroid Solution " I would try to remember the authors, but I can't remember the last time I read about anything besides autism. I'm sure many people have answered you already. Hope I was able to help. Hang in there! Lori bizzymama@... wrote: Hi Vicki, there's a good list on where you can post your thyroid results and get some answers, hope this helps! Carol Here's their links from when I was on it: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 Vicki, My TSH was lower than the normal range every time it was measured for many years. It turns out that I am hypothyroid and have been for a very long time. I think I must have secondary hypothyroidism, but I don't really have a diagnosis. Ever since I started to take thyroid hormone, about 3 years ago, I feel way better. Try taking your temperature in the morning before rising. If it is low that is another clue. Mine was about 36.2 C, but went even lower in the middle of the night. I think free T4 and free T3 tests might help. Mine were in the normal range. One doctor did find that I have anti thyroid antibodies. It is not easy to find doctors who understand how to treat the hypothyroid symptoms instead of the blood tests. Don't be surprised if the endocrinologist doesn't understand. Mine didn't. > > Hi, I wrote in about two weeks ago and I think I typed in my thyroid test > results incorrectly. I am sending another email now because I went on vacation > and my emails were bouncing so I dont know if anyone responded to me or not? > I am just wondering if this number means over or underactive thyroid? I was > told it was overactive BUT I have all of the underactive thyroid signs for the > last few years. I am not being treated as of yet, I am looking for a good > endocronologist. Here are my results:TSH 0.26 L 0.40-5.5 mIU/L > If I am understanding it correctly, it is giving an L for low? I am > thinking it should be higher than 0.40-5.5 correct? I know nothing about these > numbers and my doctor seems clueless himself! He just referred me to go to a > endocronologist. I have had THREE thyroid test results in the last four years come > back abnormal. > Any help will be so appreciated. > Thanks, > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 > Sorry, I hit send without finishing the test results. > > TSH 0.26 > T4, Free 1.5 > T4, Total 8.3 > T3 Total 166 Vicki, What are the numbers for the normal range for these tests (should be on the report)? > I had a low number for my HDL Cholesterol My cholesterol is always low on tests. I think it has to do with the mercury. > that I was told I need to bring > the number up. I was asked if I do exercise everyday and I almost fell over > laughing because I am telling the doctor I am SO exhausted, I am lucky I am > functioning at all!!!! That's EXACTLY how I felt before I got treated with hormones. >Exercise! Yeah right! When I feel better but I can't > exercise right now, I am lucky I can get out of bed, run errands, clean my house, > cook and take care of my 8 year old Autistic son. And my triglycerides were > high, I don't know if that is connected with the thyroid or not? Meaning, I > don't know if it is effecting that also. > Thanks > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 In a message dated 8/6/2005 12:01:24 PM Eastern Daylight Time, lindajaytee@... writes: Vicki, What are the numbers for the normal range for these tests (should be on the report)? Hi , all of the other three tests seem to be in the normal range, it was that one TSH that was not normal. Let me type them out as I see them on the lab results. T4, Free 1.5 Reference Range 0.8-1.8 ng/dL T4, Total 8.3 Reference Range 4.5-12.0 ug/dL T3, Total 166 Reference Range 60-181 ng/dL The out of range one was TSH 0.26 Reference Range 0.40-5.50 mIU/L Thanks Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 In a message dated 8/6/2005 12:01:24 PM Eastern Daylight Time, lindajaytee@... writes: My cholesterol is always low on tests. I think it has to do with the mercury. I believe that I am mercury Poisoned also. I had 4 big amalgams put in my mouth in August 2000! That is before of course I knew of the Mercury Poisoning or I would have NEVER put them in, EVER! Vicki So do you think it's from the mercury? Is your HDL low? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 In a message dated 8/6/2005 12:01:24 PM Eastern Daylight Time, lindajaytee@... writes: That's EXACTLY how I felt before I got treated with hormones. What are you being treated with now? What were you diagnosed as officially? Under or Over active thyroid? Thanks so much! Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 > > Hi , all of the other three tests seem to be in the normal range, it > was that one TSH that was not normal. > Let me type them out as I see them on the lab results. > > T4, Free 1.5 Reference Range 0.8-1.8 ng/dL > T4, Total 8.3 Reference Range 4.5-12.0 ug/dL > T3, Total 166 Reference Range 60-181 ng/dL > > The out of range one was TSH 0.26 Reference Range 0.40-5.50 mIU/L Hi Vicki, These are the test results I got just BEFORE I got thyroid hormone: Free T4, 13.4 (range 9.0 - 19.0 pmol/L) Free T3, 3.90 (range 2.63 - 5.70 pmol/L) TSH, 0.27 LOW (range 0.3 -5.50 mIU/L) I think that I am living proof that it is best to treat the patient instead of the blood test. I got thyroid hormone and cortef (from an exceptional doctor!) based on symptoms. At a later date another doctor gave me a list of hypothyroid symptoms and I checked off 75% of them or more. He also tested antithyroid peroxidase and mine is higher than the normal range. No one has ever actually told me what my official thyroid diagnosis is. First I was on Synthroid, then something similiar to armour, and now I am on a combination of Synthroid (synthetic T4) and slow release synthetic T3. For years every time I went swimming I would get so cold that I couldn't get warmed up. That completely turned around after I started thyroid hormone. It's a good thing because I love swimming and now I am finally able to do what I enjoy. I even tolerate heat way, way better now. Good thing, because now I am doing long hot saunas. Lots of other good things happen when a person feels better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Vicki, do you have access to the Institute for Urban Family Health? This is a series of outpatient clinics associated with Beth Israel Hospital with several sites in Manhattan and the Bronx. I don't know anyone there personally, but the Institute has a fine reputation and every resource you might eventually need. I do know an endocrinologist who was formerly at Columbia-Presbyterian, but he is now here in California. He told me Beth Israel is more accessible from Queens than Columbia would be. By the way, on a separate post you listed your T3 and T4 results. It does not appear to me that your thyroid is abnormal. If you need another resource let me know. Jim ________________________________ From: [mailto: ] On Behalf Of BSL1229@... Sent: Friday, August 05, 2005 9:17 PM Subject: Re: [ ] These are my thyroid test results, can someone help? In a message dated 8/5/2005 8:33:19 PM Eastern Daylight Time, JPopplewell@... writes: If I may ask, where do you live? I might know someone near you. Is medicaid in your area a closed panel, HMO model? Jim Hi Jim, I am in Queens New York. I have HIP/Medicaid. Thanks Vicki Quote Link to comment Share on other sites More sharing options...
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