Re: Digest Number 460

[Guest guest]

> rparker@... wrote:

>

> From: rparker@...

>

> In just a few days of reading the comments on this list, it's obvious

that a fair number of people are seeing no results or minimal results

with antibiotics. I am having a hard time reconciling that with what I

read in " The New Arthritis Breakthrough. "

> Dr. Brown never told anybody they MIGHT get better, or that they would

get better as long as their disease was caused by an infection and not a

virus. The whole theory about viruses was not even mentioned in the

book, as I recall.

> Dr. Brown always told patients they WOULD get better, but it could

take some time. Since he treated thousands of people over many, many

years, it seems like he would know if antibiotics just didn't work for

some people. Yet that wasn't mentioned in the book.

> I'm very curious as to what others think about this.

> Rhonda

Rhonda,

What you'll find is that in general, people come to the list when they

are in desperate straits. When things turn around, they tend to

participate less but lurk awhile. When things " really " get better, they

quit the list as they now have a " real life " and are eager to resume it.

Some people will stay with the list either due to extended disease

problems (say long-term serious disease prior to joining) or because

they find some degree of personal fulfillment in it, perhaps by helping

others who _are_ where they _were_.

This is not peculiar to this list, but is common to the " support group "

phenomenon, health care, etc., in general. People go for help when they

are in need and once the need has either been met or passed, they move

on.

Regards,

Geoff Crenshaw, ACC -----------------------

Captain Cook's Cruise Center ** Usual Disclaimers **

-----------------------

Religion: Man's attempt to discover God

Christianity: God's offer to save humankind

[Guest guest]

Jane,

You mentioned not being able to eat. One of the more serious

complications of CFS can be gastric paresis. This is when your entire GI

system is partly paralized. This happened to me at the sudden onset of my

illness and landed me in the hospital. I continue to have to take a lot

of drugs in order to be able to eat. If your symtpoms don't clear up on

their own you can actually have a medical test called a " gastric emptying

test " where they actually measure how well your stomach muscle is

working. When it the stomach muscle gets weak or paralizes it stops

moving and thus can not break down the food and get it into the lower

intestines. This also slows down the entire rest of the GI system,

sometimes bringing it to a complete stop.

There is now one excellent drug for this problem with little or no side

effects. It is called Cissapride or Propulsit and your doctor would be

familiar with it. Because of my ongoing GI paralysis the Mayo clinic and

a gastric paresis specialist at the Universtiy of Michigan both put me on

routine daily laxatives (Surfak & a very small amount of Philips MofM.

Part of the GI paraylsis problem may be due to my reduced blood volume.

Since I am missing about 1/3 of my blood volume and digestion uses about

that much just to digest food...or it may simply be because of the

autonomic dysfunction and neuropathy or because of unknown CFS causes

such as the particular brain dysfunction that occurs from the illness in

individuals.

If you actually start losing weight than you need to take the situation

seriously and get treatment. Please feel free to e-mail me directly if

you have questions. It has always been upsetting to me that this serious

complication of the illness has never been written up in the medical

literature though it is a condition Dr. Bell and many others see and

treat. best, E

>Message: 2

> Date: Thu, 25 Nov 1999 07:03:59 EST

> From: SlvrMoon2@...

>Subject: Re: Severe Digestive troubles anyone?/Ken

>

>

>Has anyone on this list been in that position, of not being able to eat

>anything? I have been thinking of just trying the whey products, but wonder

>if I should straighten out my stomach first, or if the whey product might be

>the best way to accomplish that. Any opinions appreciated.

>

>Ken, as soon as I can get my stomach back on track, I really want to try

>some

>of these suggestions.

>

>Thanks very much for your kind concern,

>Jane

>

>

>

>

[Guest guest]

___________________________

> ________________________________________________________________________

>

> Message: 7

> Date: Tue, 15 Aug 2000 07:27:28 -0700

> From: " Patty " <faussettdp@...>

> Subject: Re: Arterial and Urinary System Cleansing

>

> > what is oral kelation?

>

> Oral chelation refers to taking chelating substances by mouth. There are

> about a dozen effective chelating substances, but most are taken by

> injection. Only a couple are normally taken by mouth, and the ones that I

> am aware of are DMSA and DMPS, with DMSA being the safer of the two.

>

> Chelation therapy is used to remove heavy metals from our system that

> normally are not removeable. This would include things like aluminum, lead,

> arsenic, mercury and cadmium.

>

> EDTA chelation is often used today for those with heart disease as a means

> of avoiding bypass surgery. It is the chelation therapy most referred to,

> and does its work by cleaning arterial walls of calcium deposits and plaque.

>

> Other companies have hoped to jump on the chelation bandwagon by suggesting

> that they have created an oral chelator supplement. These are really not

> effective and are misleading. All chelating substances require a

> prescription, as they are regulated.

>

> There are some substances that work like mild chelators that are

> supplements. This would include Vitamin C and Alpha Lipoic Acid. However,

> they are weak at best. The herb " cilantro " is also reputed to have mild

> chelating capabilities.

>

> Patty

I am diagnosed with mercury toxicity and also high cadmium. I

subbed to two metals lists and the information is huge and very

scarey. I wanted everyone here to be very careful with self

chelating, it should not be done without much study and not if you

still have mercury amalgam fillings or other metals in your mouth.

DMPS and DMSA need much knowledge, there are many testimonies of

DMPS doing unbelievable damage to some using it. I know myself

that just using some over the counter chelators such as Alpha

Lipoic Acid can make you crazy and or suicidal by moving so much

metal. I have had a recent horror just with getting a new multi

vitamin mineral complex. It has copper in it and the copper moved

mercury enough to give me horrible TJM symptoms and high anxiety ,

enough to make me house bound for over two weeks. This is serious

stuff. Cilantro is not a mild chelator in that my specialist

doctor told me NOT TO USE it till several months after amalgam

removal. Cilantro can cross the blood brain barrier and it can put

mercury INTO your brain. There are protocols to follow for doing

any kind of chelating. I have even read that doing EDTA can cause

problems with mercury toxic individuals and my friend would appear

to have been so affected but I am less well read on this. So the

point is, LEARN all you can so your life is not ruined. You can go

here to sub to a good metals list. You will not be sold any

products, the list owner is a great person. The link to sub is on

the left side of the page

http://www.cfsn.com

hope that is right, Deb

Also, if you start moving metal around and you have a sluggish

bowel, you will just reabsorb all that metal when it goes through

the colon and you can become a serious mess very fast. If you have

not lived in neuro hell as I have, don't try to go there!!!

[Guest guest]

Herbal chelation apparently can be effected by taking the herb/spice called

Cilantro (Coriandum sativum) also known as Chinese parsley. The basis for

this treatment is attributed to Dr. Y. Omura's accidental discovery of heavy

metals like aliminuim and mercury in the urine after consumption of a

Vietnamese soup where cilantro was used liberally as a garnish.

Fresh cilantro (leaves and stem) are used for chelation treatment. I believe

some health stores carry cilantro pills or drops, but there's nothing like

experimenting ways of taking this herb/spice. Due to the plant's affinity

for heavy metals, it would seem wise to obtain your fresh cilantro from

organic source as the plant would be able to draw the heavy metal from the

ground it is grown in.

Information concerning the medicinal aspect of cilantro can be easily

obtained from the web by a simple search for Dr. Omura or cilantro. Happy

surfing..

I have visited a few and I am looking for the journal, if any, where I

assume Dr Omura would have published this amazing way of oral chelation. I

would appreciate if anyone coming across it email me, thanks. The web is a

wonderful tool and a double edged sword. Claims can be made in the web and

is circulated as the gospel truth. To quote an example .. the proposed US

Postal surcharge on emails that went round which turn out to be a hoax.

However what I have seen in the web seems to bear out the claims of

cilantro's chelation properties.

i

-----

[Guest guest]

> I saw on the news last night that Bill Gates has made 1/2 billion $

> available for humanitarian purposes, and that a large chunk of this is

> allocated for vaccine program in third world countries. Any opinions

about

> this? Would these be Mercury Free Vaccines?

Definately not. There is no way they are going to use individual viles for

third world vaccine programs. But the mercury isn't even the worst part of

this deal. The tetanus vaccine that is given to the 'women' (starting with

12 yr old girls) is made with hcg so that when they become pregnant, they

will miscarry, everytime. Bill Gates used to be very against 'population

control', but has recently been convinced that it is a good thing, so

good, in fact, that he will pay for it in people who have no knowledge of

what is about to happen to them. They are just told it is a tetanus

vaccine. There is more info about this at the American Life League website

here http://www.billgateseducate.com/ .

Opinions? Sick doesn't even BEGIN to describe how I feel about this.

rochester@...

--------

" " The right to be let alone is indeed the beginning of all freedom. "

-- Justice O.

--------

[Guest guest]

---So, here I am scrambling...looking for ways out. I REFUSE TO DO IT

AGAIN. He has worked so hard since that 16 mos MMR " slip into his

world " stint we did.

so...I found some sites that I figured I would share, since I know I

will not be the only parent going through this..

www.909shots.com/insight Article on Should Parents be allowed to

opt out of vaccinating their kids?

www.gval.com/exempt GVAL US State Exemption Information

Medical, Religious & Philisophical Exempt---

Here is another great site that has the exact exemption laws in each

state. I love it!

http://www.access1.net/via/STATES/allstates.htm

rochester@...

--------

" " The right to be let alone is indeed the beginning of all freedom. "

-- Justice O.

--------

[Guest guest]

The attachment had the main information in it. I have copied & pasted it in

this message.

Geraldine

FOR IMMEDIATE RELEASE For further information contact:

Believe in Health (303) 575-1303

CANCER: WHY WE’RE STILL DYING TO KNOW THE TRUTH

For the past four weeks, the US federal Food and Drug Administration has

been enforcing restraining orders on companies in the United States who sell

the controversial cancer treatment laetrile. FDA attorneys and agents claim

that laetrile (Vitamin B17), which is an extract of apricot kernel oil,

contains cyanide and is dangerous to the health of those duped by cancer

‘quacks’ into foregoing ‘proven’ conventional therapies in favour of the

much maligned substance.

UK researcher Day, speaking this weekend in Exeter, is not

surprised. The author of the internationally acclaimed book Cancer: Why We’

re Still Dying to Know the Truth has repeatedly stated that the medical and

chemical industries have no interest in ending their longstanding and highly

lucrative monopoly on state-sanctioned cancer treatments. “Laetrile was

tested in the 1970s by top biochemists and a leading government cancer

scientist, Dr Kanematsu Sugiura. Their conclusions stated that Vitamin B17’s

ability selectively to kill cancer cells and even prevent them from

spreading to their deadly secondary state was pronounced and statistically

very significant. Yet the authorities were guilty of a cover-up over these

findings and reported to the public that laetrile was useless, and even

dangerous.”

Day explains in his controversial book that vested interests in America are

fighting hard to prevent a commercially useless, unpatentable substance,

available at any grocer’s store, from wrecking a $200 billion a year cancer

industry. “What’s even more unconscionable is that it has long been known

that existing chemotherapy and radiotherapy treatments are not halting

cancer, do not extend life in the major cancers and even contribute to the

patient’s early death.” Incredibly though, as Day reports, even as the Food

& Drug Administration shuts down vitamin companies and continues its

demonisation of Vitamin B17 as a cancer treatment, excited scientists have

been meeting at Imperial College, London to discuss the cyanide defence

system used by the B17-rich cassava plant and its possibilities in

selectively killing cancer cells using cyanide! (Telegraph, 07/09/00, p.14)

“This situation would be funny, were it not for the fact that cancer

patients are dying at an ever increasing rate, all the while lies and greed

proliferate. Those guilty of continuing to withhold this original and valid

life-saving information on B17 must be called to account over an issue so

vital to the health of the general public.”

Day’s Straight Talk Tour” will be in Denver, Colorado, on Monday

evening, 10/16/00.

He also will be available for interviews prior to that time.

>

>Message: 6

> Date: Tue, 26 Sep 2000 21:55:26 -0600

> From: " Geraldine " <acorn@...>

>Subject: Fw:

>

>

> Cancer

>

>As a member of the Cancer Prevention Coalition, it is a privilege to invite

our community to hear international medical journalist, Day (from

Great Britain) speak in Denver on his books Cancer, Why We Are Still Dying

to Know the Truth, and World Without Aids.”

>

>He will speak IN DENVER on October 16, 2000, 7-9p.m.

>Embassy Suites DIA Hotel

>4444 N Havana (I-70 at Havana).

>(303) 375-0400

>

>

>For further information, visit web sites:

>www.crowndiamond.net Margie Aliprandi's web site (see Day Tour)

>www.Credence.org Day’s web site

>www.PreventCancer.com-Cancer Prevention Coalition,

> renowned toxicologist and author, Epstein, M.D.

>

>Beverly Eves (303) 680-1390 email: believeinhealth@...

>

>

>

>[This message contained attachments]

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>

[Guest guest]

Ann,

I'm 52 and had a complete hysterectomy 3 years ago. I used Premarin until

MGB surgery, then switched to the patch. During a move last Nov. I forgot to

change the darned patch for a month. I had no adverse side effects, so

consulted with my PCP. As there were no side effects, bone density scan was

fine, and there is some breast cancer in my Mom's family, we decided to try

it without HRT. I'm still doing fine, losing slowly, but still losing after

17 months. I do have plateaus now which I didn't have before the 12 month

mark. I didn't notice weight gain with either Premarin or the patch. But

then I was MO while taking Premarin, and losing steadily from the MGB while

on the patch. Hope this is of some help,

in Chapel Hill

3-6-00

304-161

[Guest guest]

Hello Sunshine,are you there??

[Guest guest]

Hi--

Sorry about posting the same thing twice. Sometimes my computer freezes,

and it looks as if something didn't get sent. I had to delete and then write

the post a second time, sending it in the belief that the first one didn't

go out.

Gene

From: " Gene " <genedoug@...>

Subject: Re: Digest Number 459

From: " lynn_gibbons " <pgibbons@...>

Subject: Judging Improvements in Inattentive ADD

(...)

Even when school and sports start it will be very hard to see

[Guest guest]

Hi,

I am writing the group again b/c I feel that you are warm and supportive of

one another. I had written about what has happened to me over the past few

years in dealing with one misdiagnosis after another and no one responded.

Maybe, I just wrote too much.

Now, only 1 month and 3 days after anterior fusing of L5-6, L6-7 with plating.

I had 2 donor disc's put in. I am still in severe pain. I started PT yesterday

and was told that my pain could well be related to the pain that I have

experienced over the past 5 years instead of the recent cervical surgery itself.

I was also told to take my dilaudid 15 - 30 minutes b/f coming to PT next time.

(That is tomorrow). I'm confused.

My question is, if someone would be kind enough to respond, Is this pain that

I am feeling b/c of the surgery or the pain from the past. I feel as if what I

have gone through in the past has yet, once again come back to haunt me and what

I now feel has, once again, been downplayed b/c of that. How much should I be

hurting or is this, as they imply, all in my head and I should not be

experiencing much pain at all?

I read of others in pain and the healing process and I find it hard to believe

that I would be written off as not having " real " pain b/c of the past that they

have NO idea of.

Hugs & Warm Fuzzies,

Deborah aka Tenacity

[Guest guest]

Hi Deborah...and welcome to the group. Sorry that no one responded to your

earlier email. Sometimes life gets busy or painful, and we mean to come back,

but never do. I remember seeing your post on a day that I was hurting and

depressed. Meant to come back when I was feeling better, but forgot. Short term

memory is awful when on drugs.

You have to remember that you have had MAJOR surgery...and it takes awhile to

heal. I had a L4/5 fusion in May and was told that it can take up to a year to

heal.

Don't let anyone imply that this is " all in your head " . They do not feel what

you are feeling, and therefore have no understanding of it.

Sometimes, I have found that you bluntly ask the person " you think I am

lying...because that is the impression I am getting from you " will stop them in

their tracks. Also, telling your PT that there are other PT's and you would be

happy to go someplace else where you are treated with respect.

We are in enough physical pain...and we don't need anyone adding to our mental

pain and depression.

Good luck!

[Guest guest]

Does anyone know about other yogurts? I usually eat Clover or Brown Cow... wrote: There is 1 message in this issue.Topics in this digest:1. Re: Dannon yogurts are NOT gluten-free From: dgreenhbs99Message________________________________________________________________________1. Re: Dannon yogurts are NOT gluten-free Posted by: "dgreenhbs99" dgreenhbs99@... dgreenhbs99 Date: Fri Aug 4, 2006 4:56 pm (PDT)According to the Dannon website, none of it is, because of stabilizersthey use in the manufacture. I just got violently ill off the Dannonlite Vanilla. I eat Mt. High all the time without problems...it's fine. I alsorecommend Lucerne (the Safeway brand), most of which is gluten-freeaccording to Safeway's

Celiac list -- request the list from Safeway.> > > Not even plain, unflavored Dannon yogurt? Even that's not GF?> > H.> > I can't remember. I just know I can't eat any of the flavored ones.> > My favorite plain youghurt is Mountain High. The container is blue.> It says "gluten free" right on the container. If I want flavoring, I> just mix it in myself.> > --Ruth Anne>Messages in this topic (4)________________________________________________________________________________________________________________________________________________------------------------------------------------------------------------

[Guest guest]

If you can eat dairy and have the time,

kefir made at home with real kefir grains is an excellent substitution.  Or buy

plain yogurt of whatever kind that does not list stablizers – i.e. is

just milk and lactobacillus, not corn starch or “stabilizers” and

add your own flavors.  If this is a quick food grabbed while out somewhere –

you might want to consider the cottage cheese and jam things as well.  

The danger lies in the stabilizers and in

the flavoring.  Clover or Brown Cow plain should be ok, but always check with

the manufacturer – “should” has caused me many a sick day.

Connie

From:

[mailto: ] On Behalf Of kate

Sent: Sunday, August 06, 2006 12:38 PM

Subject: Re: [ ]

Digest Number 460

Does

anyone know about other yogurts? I usually eat Clover or Brown Cow...

wrote:

There is 1 message in this issue.

Topics in this digest:

1. Re: Dannon yogurts are NOT gluten-free

From: dgreenhbs99

Message

________________________________________________________________________

1. Re: Dannon yogurts are NOT gluten-free

Posted by: " dgreenhbs99 " dgreenhbs99 dgreenhbs99

Date: Fri Aug 4,

2006 4:56 pm

(PDT)

According to the Dannon website, none of it is, because of stabilizers

they use in the manufacture. I just got violently ill off the Dannon

lite Vanilla.

I eat Mt. High all the time without problems...it's

fine. I also

recommend Lucerne

(the Safeway brand), most of which is gluten-free

according to Safeway's Celiac list -- request the list from Safeway.

>

> > Not even plain, unflavored Dannon yogurt? Even that's not GF?

> > H.

>

> I can't remember. I just know I can't eat any of the flavored ones.

>

> My favorite plain youghurt is Mountain High. The container is blue.

> It says " gluten free " right on the container. If I want

flavoring, I

> just mix it in myself.

>

> --Ruth Anne

>

Messages in this topic (4)

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[Guest guest]

I had a short conversation with the Brown Cow people at their booth at

the San Francisco Marathon, and they asserted that NONE of their

yogurts are gluten-free because of cross-contamination in the

manufacturing process (they add oats and other goodies to several of

their yogurts). The Brown Cow website suggests that a few yogurts are

formulated gluten-free, but appears to be confused about gluten

sources. So I guess it depends on how much risk you want to take. In

my book, eating Brown Cow is like playing roulette.

RE: Dannon, remember you don't have to get sick for it to be damaging

your villi!

> >

> > > Not even plain, unflavored Dannon yogurt? Even that's not GF?

> > > H.

> >

> > I can't remember. I just know I can't eat any of the flavored ones.

> >

> > My favorite plain youghurt is Mountain High. The container is blue.

> > It says " gluten free " right on the container. If I want flavoring, I

> > just mix it in myself.

> >

> > --Ruth Anne

> >

>

>

>

>

>

>

> Messages in this topic (4)

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

I get the Trader Joe’s brand

(plain).  I eat it daily.  Well, consume is more like it – I put it in my

smoothies, otherwise I can’t stand the taste of that stuff.

;-)

From: [mailto: ] On Behalf Of kate

Sent: Sunday, August 06, 2006

12:38 PM

Subject: Re: [ ]

Digest Number 460

Does

anyone know about other yogurts? I usually eat Clover or Brown Cow...

wrote:

There is 1 message in this issue.

Topics in this digest:

1. Re: Dannon yogurts are NOT gluten-free

From: dgreenhbs99

Message

________________________________________________________________________

1. Re: Dannon yogurts are NOT gluten-free

Posted by: " dgreenhbs99 " dgreenhbs99 dgreenhbs99

Date: Fri Aug 4, 2006 4:56 pm (PDT)

According to the Dannon website, none of it is, because of stabilizers

they use in the manufacture. I just got violently ill off the Dannon

lite Vanilla.

I eat Mt. High all the time without problems...it's

fine. I also

recommend Lucerne

(the Safeway brand), most of which is gluten-free

according to Safeway's Celiac list -- request the list from Safeway.

>

> > Not even plain, unflavored Dannon yogurt? Even that's not GF?

> > H.

>

> I can't remember. I just know I can't eat any of the flavored ones.

>

> My favorite plain youghurt is Mountain High. The container is blue.

> It says " gluten free " right on the container. If I want

flavoring, I

> just mix it in myself.

>

> --Ruth Anne

>

Messages in this topic (4)

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