Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 ---For the record: My son is 14 and was diagnosed with PDD/possibly Infantile Autism...(prognosis poor)Feb. 1993, at age 22 months, this was appx. 4 months after his 18 month vaccines and his fall into autism. I had no problem getting the diagnosis...not that I wanted to hear it, but I knew deeep in my heart that is what it was. He lost all eye-contact, stopped responding to the human voice and became an " empty shell " within 2 weeks of the vaccines. I was in denial for a very long time as I was with my oldest daughter who was sexually abused by her father not long before my son and his twin sister were born in March 1991. I wanted to burn my son's pictures that were taken before this bc I felt that my " perfect baby boy " had been torn from me and was replaced with someone else that I did not know. Interestingly, I was concerned for his twin sister bc she was not making good eye=contact as a baby and fell asleep eating and just did not act " right " was ahead of her in most everything ...rolling over, sitting up, standing, walking, he even got his teeth first. still had speech until age 3, but he got a tetanus shot, and walked around making strange howling sounds for a couple of months and has not spoken since, except for a few times over the years he said an entire sentence apropriately, but could not repeat it. I certainly DISAGREE with the notion that the increase in Autism is bc of " better dianosis " , since the incidence of Autism has increased right along with the increase of vaccines and my son was diagnosed very quickly 12 years ago. If this was true the incidence should be decreasing as I understand that most parents have to fight to get a diagnosis these days. So this tells me the oposite... that we have MORE of an epidemic than what we realize. Lindy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ In , wrote: > > > Enter your vote today! A new poll has been created for the > group: > > How was your child diagnosed? > > o You believed there was a problem and brought it up with your Doctor and they listened and recomended further analysis by experts. > o Your Doctor brought it up and suggested follow-up with specialists. > o An educator/Preschool Teacher/Day Care provider suggested there may be a problem and you followed through seeking diagnosis. > o You went to Early Intervention outside of your medical provider. > o Your doctor refused to share your concerns so you obtained a diagnosis on your own. > o You have never received a definitive diagnosis but know or believe that your child is somewhere on the spectrum. > o A relative or family member pushed you to look into the problems. > o You received a diagnosis with the first specialist you approached. > o It took 2-3 " experts " before you received a diagnosis. > o It took more than 3 " experts " before you received a diagnosis. > > > To vote, please visit the following web page: > /surveys?id=1763345 > > Note: Please do not reply to this message. Poll votes are > not collected via email. To vote, you must go to the > web site listed above. > > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 I feel like I'm probably not completely qualified to comment on this but I thought I would share. I just joined this group a few days ago in hopes of gaining information to help my son. The first few threads I read were an ongoing attack between two members and I was a little shocked. As a new person who is just starting the process of thinking about chelating my son, I have a LOT of questions. Many of them probably increadibly stupid yet I need to learn somehow. And believe me (which I know you all will understand), there are many days when I feel like I am hanging on with just a little thread. I am swimming upstream against a lot of people that think what I am trying to do for my son is crazy. So, my hope is that this is a place where I can come and ask my really stupid questions and be treated with compassion and understanding. Thanks for letting me share! > I agree as I am referring people who are contacting me about healing their > children with autism to this list. I have referred 5+ people just in the > past few days due to the publicity of Generation Rescue. I personally feel > they will be turned off and scared to seek support here because of the > disruptions that happen. Healing our kids is tough enough and if you read > every thread as I did when I joined..... some of the tones are disturbing. > Especially to a newbie. > > Jackie--- > > > > > a: > > > > The interesting thing about dilemmas such as this one is often the people > > who have to mete out the consequences often feel worse about than the > > person who is causing the disruption. We feel worse because we operate > > with a set of principles and rules that disruptive people often do not. It > > is what makes our lives a LOT harder, worrying about doing the wrong > > thing. > > > > But, like a child, (not comparing anyone to a child) who is clearly > > informed of the consequences and still chooses to continue in the > > behavior, I believe that the consequences are also chosen. That is the > > theory behind discipline. It is why discipline works. > > > > Voting as a list would take the heat off you making the decision by > > yourself, if that bothers you. Again, a very, very, firm approach from > > another moderator who left no doubt what would happen if he chose to > > continue behavior was enough to cause him to make amends and quit posting. > > And a, I respect you enough to tell you that I really think the > > moderator should be the one to ban a person from the list based on the > > level of disruption, people complaints and ample warnings. > > > > If that is not feasible, I would be in agreement in voting as a list. I do > > not think it is in poor taste, this list is primarily for parents to help > > their kids. There is no higher goal that this list serves. NOONE should be > > allowed to disrupt our primary focus, the kids. The auxiliary people who > > do not have children (thank you all), but post on this list still have a > > common goal of helping children, by way of their expertise or experience. > > But it is uncomfortable. Probably more so for the voters than it is for > > the disrupter. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Trust me , you came to the right place and you will learn a lot from everyone here. If you would like any links that I found useful as a newbie... e-mail me privately and I will send them to you. I completely understand receiving resistance from people who don't understand chelation and detoxing your child..... but... only you and your husband have to know. Let the others see the difference in your child and ask what has changed. My DH wasn't into learning about this process and has left things up to me to research as he knows how thorough I am about any new protocol I try. I keep him in the loop and we have come to terms on this after many arguments. What I personally cannot stand is someone giving me an opinion on chelation therapy when they have no knowledge about it. I give them the 'hand' and tell them to talk to it, because I am not listening to them. After they have done their homework like I have.... come talk to me, otherwise, they should keep their opinions to themselves. They don't walk in my shoes or live in my house. I know many understand what I mean! Keep researching and asking.... I am a teacher (elementary) and I always told my students that there are no dumb questions you could ever ask! Jackie--- >I feel like I'm probably not completely qualified to comment on this > but I thought I would share. > > I just joined this group a few days ago in hopes of gaining > information to help my son. The first few threads I read were an > ongoing attack between two members and I was a little shocked. > > As a new person who is just starting the process of thinking about > chelating my son, I have a LOT of questions. Many of them probably > increadibly stupid yet I need to learn somehow. And believe me > (which I know you all will understand), there are many days when I > feel like I am hanging on with just a little thread. I am swimming > upstream against a lot of people that think what I am trying to do > for my son is crazy. So, my hope is that this is a place where I > can come and ask my really stupid questions and be treated with > compassion and understanding. > > Thanks for letting me share! > > > > >> I agree as I am referring people who are contacting me about > healing their >> children with autism to this list. I have referred 5+ people just > in the >> past few days due to the publicity of Generation Rescue. I > personally feel >> they will be turned off and scared to seek support here because of > the >> disruptions that happen. Healing our kids is tough enough and if > you read >> every thread as I did when I joined..... some of the tones are > disturbing. >> Especially to a newbie. >> >> Jackie--- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Here is what is important folks: last posters comments shoot to the heart of why most of us bother to log in: <<<<I just joined this group a few days ago in hopes of gaining information to help my son. The first few threads I read were an ongoing attack between two members and I was a little shocked. As a new person who is just starting the process of thinking about chelating my son, I have a LOT of questions.>>>>>>>>> I have been a member for two years now and depend on this group in particular in my everyday life to enlighten and arm me with knowledge to be of help to my son. I am still full of questions as well. Do you think the local doctor is going to help me? This list is very important to me. I appreciate everyone's opinions even if I personally disagree with them. There are people doing the " natural " thing. There are people doing the DAN protocol thing There are people doing the Andy protocol thing. There are people doing the Butar (sp?) thing. There is the clay,the sauna's, the foot patches, the opinions on the different chelators themselves. Point is its " Information! " We each can and probably have taken the information that is shared and done further research to see what we believe would help ourselves and our children based on the particular needs. I think we get it... that not one thing will work for everyone. I am disappointed in the latest of issues. Do you all realize that people I talk with in my community about the possiblity of mercury causing mine and their childs autism/asperger's/pdd is really sticking my neck out in the first place. These are desperate parents and I don't take that lightly. When I share my resources this list is among the top. Besides limited written materials you guys are the living breathing testament that this theory is correct. I send people here, how embarrassing it is for me and should be for the rest of you to have this list trapped in the drama of " differing opinions turned ego bashing " . If you're all not comfortable with having a moderator drop a hint, then just simply stop it please. Its just completely unneccessary. The poll didn't name names, it was a polite way of saying..can we please get back to business, we have kids to heal. P.S. to the new poster, I apologize for the drama you walked into, this is not how this list is normally..far from it. We would never think you have a stupid question and I want you to stay and learn from our wonderfully libral and intelligent group. C.F. > > I agree as I am referring people who are contacting me about > healing their > > children with autism to this list. I have referred 5+ people just > in the > > past few days due to the publicity of Generation Rescue. I > personally feel > > they will be turned off and scared to seek support here because of > the > > disruptions that happen. Healing our kids is tough enough and if > you read > > every thread as I did when I joined..... some of the tones are > disturbing. > > Especially to a newbie. > > > > Jackie--- > > > > > > > > > a: > > > > > > The interesting thing about dilemmas such as this one is often > the people > > > who have to mete out the consequences often feel worse about > than the > > > person who is causing the disruption. We feel worse because we > operate > > > with a set of principles and rules that disruptive people often > do not. It > > > is what makes our lives a LOT harder, worrying about doing the > wrong > > > thing. > > > > > > But, like a child, (not comparing anyone to a child) who is > clearly > > > informed of the consequences and still chooses to continue in > the > > > behavior, I believe that the consequences are also chosen. That > is the > > > theory behind discipline. It is why discipline works. > > > > > > Voting as a list would take the heat off you making the decision > by > > > yourself, if that bothers you. Again, a very, very, firm > approach from > > > another moderator who left no doubt what would happen if he > chose to > > > continue behavior was enough to cause him to make amends and > quit posting. > > > And a, I respect you enough to tell you that I really think > the > > > moderator should be the one to ban a person from the list based > on the > > > level of disruption, people complaints and ample warnings. > > > > > > If that is not feasible, I would be in agreement in voting as a > list. I do > > > not think it is in poor taste, this list is primarily for > parents to help > > > their kids. There is no higher goal that this list serves. NOONE > should be > > > allowed to disrupt our primary focus, the kids. The auxiliary > people who > > > do not have children (thank you all), but post on this list > still have a > > > common goal of helping children, by way of their expertise or > experience. > > > But it is uncomfortable. Probably more so for the voters than it > is for > > > the disrupter. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Question about the poll: Does it make a difference if the sweating has changed since chelation? Is this a before or after chelation question or is it a NOW situation question? Thanks, [ ] New poll for Enter your vote today! A new poll has been created for the group: Does your Child Sweat? o Never o Slightly o Normal o Greater than normal o excessive To vote, please visit the following web page: /surveys?id=1946606 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the web site listed above. Thanks! ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Enter your vote today! A new poll has been created for the group: Does your Child Sweat? o Never o Slightly o Normal o Greater than normal o excessive To vote, please visit the following web page: /surveys?id=1946606 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the web site listed above. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 - I have the same question. Before we went GFCF and added supplements, would sweat through the sheets almost every night. Within 6 months of adding supplements this stopped, and he pretty much sweats like my other son. K. > Question about the poll: > > Does it make a difference if the sweating has changed > since chelation? Is this a before or after chelation > question or is it a NOW situation question? > > Thanks, > > [ ] New poll for > > > > Enter your vote today! A new poll has been created for the > group: > > Does your Child Sweat? > > o Never > o Slightly > o Normal > o Greater than normal > o excessive > > > To vote, please visit the following web page: > /surveys?id=1946606 > > Note: Please do not reply to this message. Poll votes are > not collected via email. To vote, you must go to the Groups > web site listed above. > > Thanks! > > > > > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 This, is funny, very funny. Don't suppose we can find out who is responsible? [ ] New poll for > > Enter your vote today! A new poll has been created for the > group: > > Mark Sircus should start his own listserv > Vote how many strikes are in one out > ( Let's discuss this with the ump's) > > > > o I like Mark , He's informative yet toxic, besides we all need a laugh anyway. > o No more Mark Circushe can post his cut and paiste info on other bio boards that are more tolerant of his nature and appreciate his contribution in the chelation process. > o He can read but not post maybe he will learn something. > o He can stay but must remove his letters at the end of his name so know one else is mislead. > o He can leave along with his letters, sales pitches and self-promoting conflicting agenda. > o Give the guy one more out even though his 3 strikes already been used up 2 up at bats ago. > o Enough is enough 3 strikes he's out already. (Let's discuss this with the ump's) > > > To vote, please visit the following web page: > /surveys?id=1965503 > > Note: Please do not reply to this message. Poll votes are > not collected via email. To vote, you must go to the > web site listed above. > > Thanks! > > > > > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
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