reversing chromosomal disorders Re: Glyconutrients

[Guest guest]

Michele,

Very well said! I agree completely. The whole idea of nutrition is so

hard for people to beleive because the average person still believes we

get everything we need from our foods. There is just no way, especially

when the average american child eats, fruit loops for breakfast,

macdonald for lunch and pizza for dinner. I know alot of you do better

than that so please don't blast me. did you know the FDA did tests on

the the current levels of vitamins and minerals in the food today and

compared it to 50 years ago. Here are just 2 comparisons. 1 peach 50

years ago you will need 53 today, 1 orange 50 years ago you will need 8

today. Can you imagine what are daily intake has to be with these kinds

of depletions in our food! Healthy people must supplement, but sick and

challenged people have to work even harder, it is sad but true. Our food

now has to come in a bottle.

Michele wrote:

> Pam said:

> > I'm sorry, but I can't even begin to understand how glyconutrients

> > reversed a chromosomal disorder.

>

> I think that the human body is a lot more " plastic " -- I mean malleable

> -- than is generally believed. I think too much stock is put in how

> much " genes " determine things. I think environment has a much bigger

> impact than is generally believed.

>

> When my oldest child was 3, he was a year behind in speach development

> and I put him in preschool to force him to speak. At that time, it was

> apparent to me that he had some serious problems and I concluded that I

> had until his brain stopped growing at age 6 or 7 to make the most

> meaningful impact. I figured that, after that, there wouldn't be much I

> could do. I don't regret my decision to work hard at helping him while

> he was little but my estimate of when the " window " would " close " turned

> out to be wrong.

>

> I did vitamin therapy with him when he was 9 and that caused permanent

> improvement in handwriting, social skills, and other areas. He was

> finally ID'd as " gifted " at age 11 1/2, after spending years in " special

> ed " programs. His genetic disorder was ID'd at age 14 and the

> subsequently put 20 pounds on him. That was a nearly 20% weight gain

> for him and many of his 'aspie' issues dramatically improved or

> seemingly " disappeared " with his improved health. Someone clued me

> about face blindness when he was 15 and that was a huge AHA! for us and

> has helped us understand a LOT of the mysterious garbage in his life and

> helped us better understand what kind of accommodations he needs and so

> forth. About a year ago, I began buying books for him to read like

> " Thinking in Pictures " and " Children with Emerald Eyes " and " Upside-Down

> Brilliance " and started a discussion group for him to participate in.!

> With the security of knowing mom was running the group and with his

> new-found understanding

> of how his own mind works and what is different about it compared to all

> those weirdos out there (aka " normal " people, :-P), he really began to

> come out of his shell.

>

> I think few people get 'optimal' nutrition and I think understanding

> what " optimal nutrition " really means is still in its infancy -- and

> that " optimal nutrition " is highly individualized, not really about " the

> four food groups " and other generic advice. My genetic disorder -- a

> mild form of Cystic Fibrosis -- means that my body misprocesses certain

> molecules at the cellular level. People think that means that I " must "

> cough up " gallons " of mucous daily and be constantly sick. But the

> latest reseach suggests that CF patients aren't really overproducing

> mucous -- that they are coughing up phlegm, not merely mucous, and the

> reality is that their mucous membranes produce to LITTLE mucous. That

> is consistent with my experience: when I get enough salt and fluids and

> so forth and am not sick, I have more actual mucous and I cough up less

> crap. One molecule that my body misprocesses is salt, which is an!

> important ingredient in creating mucous. So my prescribed diet is a

> high salt diet

> because my body purges salt at a high rate, making me prone to

> dehydration, too little mucous, etc. The lack of sufficient mucous

> leaves me vulnerable to infections, particularly respiratory

> infections. So, for me, whether or not I get enough salt, etc.

> significantly impacts how symptomatic I am for the types of issues the

> medical profession classifies as " CF " .

>

> In my opinion, we currently do a poor job of distinguishing the

> causative, underlying issues and the symptoms that occur as a secondary

> or even tertiary effect. So while I agree with my doctors that my

> genetic disorder is " incurable " and " symptom management is the name of

> the game " , we have VERY different ideas about what " symptoms " are to be

> " managed " . To ME, the symptoms I need to manage are things like the

> need for a high salt diet. To THEM, the symptoms I need to manage are

> the pain, post-nasal drip, etc. of having a chronic sinus infection. I

> was told outright that " CF patients are simply chronically infected --

> symptom management is the name of the game " . They are so used to CF

> patients being chronically ill that they cannot differentiate between

> the effects on the body caused by the genetic disorder per se and the

> effects on the body of being chronically ill because those underlying

> effect! s are not well understood or properly addressed.

>

> Given my experience, I have no problem imagining that a Down's Syndrome

> person is not really " guaranteed " to have the issues you typically see

> with this syndrome. If the difference in how their body functions is

> better understood, I can well imagine that the outcome could be a lot

> more 'normal'-looking. Maybe a simple comparison would be that I have

> pale skin and get easily sunburned. If no one realized my skin was more

> vulnerable to sun burn than that of most folks and we all ran around

> outside naked all the time, I would likely be chronically sunburned,

> possibly chronically peeling, and would be highly likely to get skin

> cancer at an early age and possibly die from it. So, then let's call it

> " peeling skin disorder " and write it up in all the medical journals with

> symptoms like " chronically peeling skin, especially in summer months "

> and " most of the people die at an early age of skin cancer " . If people

> li! ke me always have those symptoms and my " genetic disorder " is assumed to

> be the CAUSE of the peeling skin, cancer, etc. then it is hard to

> imagine treating such an overwhelming condition by simply protecting me

> from an excess of sunlight. But the fact is that my genetic variation

> does not make me constantly sunburned. My genetic variation only makes

> me more vulnerable to the effects of sunlight. How much sunlight I am

> exposed to is a factor that can be controlled and there is no reason I

> have to go around constantly burned, in pain, peeling, dying of skin

> cancer, etc.

>

> I can see that same paradigm concerning my diagnosis of Cystic

> Fibrosis. My doctors cannot.

>

> So, I think glyconutrients provide optimal nutrition that is

> particularly crucial to some folks with genetic variations -- like me

> and like folks with Down's Syndrome. And I know that relatively simple

> nutritional interventions -- like high doses of b vitamins and, later, a

> 20 pound weight gain -- impacted my son's handwriting, social skills etc

> by treating his malnourshed brain and body. For me, it isn't hard to

> imagine or understand the same type of thing happening for Down's Syndrome.

>

> HTH,

>

>

>

>

>

> Michele in California

>

> calif.michele@...

> webmaster@...

>

>

> Visit Michele's World! of (Twice) Exceptional Homeschooling

> http://www.califmichele.com

>

> It is not so very important for a person to learn facts. For that he

> does not really need a college. He can learn them from books. The value

> of an education in a liberal arts college is not learning of many facts

> but the training of the mind to think something that cannot be learned

> from textbooks.

> -Albert Einstein

>

>

[Guest guest]

One orange 50 years ago will need 200 today

Bruce H. Berman, MD

Re: [ ] " reversing " chromosomal disorders Re:

Glyconutrients

Michele,

Very well said! I agree completely. The whole idea of nutrition is so

hard for people to beleive because the average person still believes we

get everything we need from our foods. There is just no way, especially

when the average american child eats, fruit loops for breakfast,

macdonald for lunch and pizza for dinner. I know alot of you do better

than that so please don't blast me. did you know the FDA did tests on

the the current levels of vitamins and minerals in the food today and

compared it to 50 years ago. Here are just 2 comparisons. 1 peach 50

years ago you will need 53 today, 1 orange 50 years ago you will need 8

today. Can you imagine what are daily intake has to be with these kinds

of depletions in our food! Healthy people must supplement, but sick and

challenged people have to work even harder, it is sad but true. Our food

now has to come in a bottle.

Michele wrote:

> Pam said:

> > I'm sorry, but I can't even begin to understand how glyconutrients

> > reversed a chromosomal disorder.

>

> I think that the human body is a lot more " plastic " -- I mean

malleable

> -- than is generally believed. I think too much stock is put in how

> much " genes " determine things. I think environment has a much bigger

> impact than is generally believed.

>

> When my oldest child was 3, he was a year behind in speach development

> and I put him in preschool to force him to speak. At that time, it

was

> apparent to me that he had some serious problems and I concluded that

I

> had until his brain stopped growing at age 6 or 7 to make the most

> meaningful impact. I figured that, after that, there wouldn't be much

I

> could do. I don't regret my decision to work hard at helping him

while

> he was little but my estimate of when the " window " would " close "

turned

> out to be wrong.

>

> I did vitamin therapy with him when he was 9 and that caused permanent

> improvement in handwriting, social skills, and other areas. He was

> finally ID'd as " gifted " at age 11 1/2, after spending years in

" special

> ed " programs. His genetic disorder was ID'd at age 14 and the

> subsequently put 20 pounds on him. That was a nearly 20% weight gain

> for him and many of his 'aspie' issues dramatically improved or

> seemingly " disappeared " with his improved health. Someone clued me

> about face blindness when he was 15 and that was a huge AHA! for us

and

> has helped us understand a LOT of the mysterious garbage in his life

and

> helped us better understand what kind of accommodations he needs and

so

> forth. About a year ago, I began buying books for him to read like

> " Thinking in Pictures " and " Children with Emerald Eyes " and

" Upside-Down

> Brilliance " and started a discussion group for him to participate in.!

> With the security of knowing mom was running the group and with his

> new-found understanding

> of how his own mind works and what is different about it compared to

all

> those weirdos out there (aka " normal " people, :-P), he really began to

> come out of his shell.

>

> I think few people get 'optimal' nutrition and I think understanding

> what " optimal nutrition " really means is still in its infancy -- and

> that " optimal nutrition " is highly individualized, not really about

" the

> four food groups " and other generic advice. My genetic disorder -- a

> mild form of Cystic Fibrosis -- means that my body misprocesses

certain

> molecules at the cellular level. People think that means that I

" must "

> cough up " gallons " of mucous daily and be constantly sick. But the

> latest reseach suggests that CF patients aren't really overproducing

> mucous -- that they are coughing up phlegm, not merely mucous, and the

> reality is that their mucous membranes produce to LITTLE mucous. That

> is consistent with my experience: when I get enough salt and fluids

and

> so forth and am not sick, I have more actual mucous and I cough up

less

> crap. One molecule that my body misprocesses is salt, which is an!

> important ingredient in creating mucous. So my prescribed diet is a

> high salt diet

> because my body purges salt at a high rate, making me prone to

> dehydration, too little mucous, etc. The lack of sufficient mucous

> leaves me vulnerable to infections, particularly respiratory

> infections. So, for me, whether or not I get enough salt, etc.

> significantly impacts how symptomatic I am for the types of issues the

> medical profession classifies as " CF " .

>

> In my opinion, we currently do a poor job of distinguishing the

> causative, underlying issues and the symptoms that occur as a

secondary

> or even tertiary effect. So while I agree with my doctors that my

> genetic disorder is " incurable " and " symptom management is the name of

> the game " , we have VERY different ideas about what " symptoms " are to

be

> " managed " . To ME, the symptoms I need to manage are things like the

> need for a high salt diet. To THEM, the symptoms I need to manage are

> the pain, post-nasal drip, etc. of having a chronic sinus infection.

I

> was told outright that " CF patients are simply chronically infected --

> symptom management is the name of the game " . They are so used to CF

> patients being chronically ill that they cannot differentiate between

> the effects on the body caused by the genetic disorder per se and the

> effects on the body of being chronically ill because those underlying

> effect! s are not well understood or properly addressed.

>

> Given my experience, I have no problem imagining that a Down's

Syndrome

> person is not really " guaranteed " to have the issues you typically see

> with this syndrome. If the difference in how their body functions is

> better understood, I can well imagine that the outcome could be a lot

> more 'normal'-looking. Maybe a simple comparison would be that I have

> pale skin and get easily sunburned. If no one realized my skin was

more

> vulnerable to sun burn than that of most folks and we all ran around

> outside naked all the time, I would likely be chronically sunburned,

> possibly chronically peeling, and would be highly likely to get skin

> cancer at an early age and possibly die from it. So, then let's call

it

> " peeling skin disorder " and write it up in all the medical journals

with

> symptoms like " chronically peeling skin, especially in summer months "

> and " most of the people die at an early age of skin cancer " . If

people

> li! ke me always have those symptoms and my " genetic disorder " is

assumed to

> be the CAUSE of the peeling skin, cancer, etc. then it is hard to

> imagine treating such an overwhelming condition by simply protecting

me

> from an excess of sunlight. But the fact is that my genetic variation

> does not make me constantly sunburned. My genetic variation only

makes

> me more vulnerable to the effects of sunlight. How much sunlight I am

> exposed to is a factor that can be controlled and there is no reason I

> have to go around constantly burned, in pain, peeling, dying of skin

> cancer, etc.

>

> I can see that same paradigm concerning my diagnosis of Cystic

> Fibrosis. My doctors cannot.

>

> So, I think glyconutrients provide optimal nutrition that is

> particularly crucial to some folks with genetic variations -- like me

> and like folks with Down's Syndrome. And I know that relatively

simple

> nutritional interventions -- like high doses of b vitamins and, later,

a

> 20 pound weight gain -- impacted my son's handwriting, social skills

etc

> by treating his malnourshed brain and body. For me, it isn't hard to

> imagine or understand the same type of thing happening for Down's

Syndrome.

>

> HTH,

>

>

>

>

>

> Michele in California

>

> calif.michele@...

> webmaster@...

>

>

> Visit Michele's World! of (Twice) Exceptional Homeschooling

> http://www.califmichele.com

>

> It is not so very important for a person to learn facts. For that he

> does not really need a college. He can learn them from books. The

value

> of an education in a liberal arts college is not learning of many

facts

> but the training of the mind to think something that cannot be learned

> from textbooks.

> -Albert Einstein

>

>

[Guest guest]

Hi again,

I do not know of a down case but listend to a neonatal docotr talk on

several genetic disorder treated at birth and the results were dramatic.

I just recently heard of one case where 2 people with dwarfism in their

genes were going tohave a baby. Thru the sonograms it was confirmed that

the baby was a dwarf, they can tell by length of bones in arms and legs.

The mother started using glyconutrients during pregnancy and continue

giving them to baby at birth. The baby developed normally and at age 2

had all normal bone lenghts! So obviously the sooner the better. You

know in olden time, special diets were consumed prior to conception, can

you imagine what most of us ate prior to our conception! Diet is not

much of a consideration for health at all any more, what a shame.

noaholiviaian wrote:

>

> and Michele,

>

> My inquiry is not the doubting of nutrition therapy. Hey, I'm using

> it for my ASD son and seeing tremendous results! I don't think any

> of the parents here can be described as the " average person " ...

>

> Taking the leap from treating an illness (mercury induced Autism) to

> reversing a chromosomal disorder is where I get stuck. Semantics, I

> suppose. When you personally delve in to treating the human body,

> you realize just how little is known.

>

> Has anybody used Glyconutrients with an infant who has Down

> Syndrome? Does treating it earlier have bette results?

>

> Pam

>

>

> > > Pam said:

> > > > I'm sorry, but I can't even begin to understand how

> glyconutrients

> > > > reversed a chromosomal disorder.

> > >

> > > I think that the human body is a lot more " plastic " -- I mean

> malleable

> > > -- than is generally believed. I think too much stock is put in

> how

> > > much " genes " determine things. I think environment has a much

> bigger

> > > impact than is generally believed.

> > >

> > > When my oldest child was 3, he was a year behind in speach

> development

> > > and I put him in preschool to force him to speak. At that time,

> it was

> > > apparent to me that he had some serious problems and I concluded

> that I

> > > had until his brain stopped growing at age 6 or 7 to make the

> most

> > > meaningful impact. I figured that, after that, there wouldn't

> be much I

> > > could do. I don't regret my decision to work hard at helping

> him while

> > > he was little but my estimate of when the " window " would " close "

> turned

> > > out to be wrong.

> > >

> > > I did vitamin therapy with him when he was 9 and that caused

> permanent

> > > improvement in handwriting, social skills, and other areas. He

> was

> > > finally ID'd as " gifted " at age 11 1/2, after spending years

> in " special

> > > ed " programs. His genetic disorder was ID'd at age 14 and the

> > > subsequently put 20 pounds on him. That was a nearly 20% weight

> gain

> > > for him and many of his 'aspie' issues dramatically improved or

> > > seemingly " disappeared " with his improved health. Someone clued

> me

> > > about face blindness when he was 15 and that was a huge AHA! for

> us and

> > > has helped us understand a LOT of the mysterious garbage in his

> life and

> > > helped us better understand what kind of accommodations he needs

> and so

> > > forth. About a year ago, I began buying books for him to read

> like

> > > " Thinking in Pictures " and " Children with Emerald Eyes "

> and " Upside-Down

> > > Brilliance " and started a discussion group for him to

> participate in.!

> > > With the security of knowing mom was running the group and with

> his

> > > new-found understanding

> > > of how his own mind works and what is different about it

> compared to all

> > > those weirdos out there (aka " normal " people, :-P), he really

> began to

> > > come out of his shell.

> > >

> > > I think few people get 'optimal' nutrition and I think

> understanding

> > > what " optimal nutrition " really means is still in its infancy --

> and

> > > that " optimal nutrition " is highly individualized, not really

> about " the

> > > four food groups " and other generic advice. My genetic

> disorder -- a

> > > mild form of Cystic Fibrosis -- means that my body misprocesses

> certain

> > > molecules at the cellular level. People think that means that

> I " must "

> > > cough up " gallons " of mucous daily and be constantly sick. But

> the

> > > latest reseach suggests that CF patients aren't really

> overproducing

> > > mucous -- that they are coughing up phlegm, not merely mucous,

> and the

> > > reality is that their mucous membranes produce to LITTLE

> mucous. That

> > > is consistent with my experience: when I get enough salt and

> fluids and

> > > so forth and am not sick, I have more actual mucous and I cough

> up less

> > > crap. One molecule that my body misprocesses is salt, which is

> an!

> > > important ingredient in creating mucous. So my prescribed diet

> is a

> > > high salt diet

> > > because my body purges salt at a high rate, making me prone to

> > > dehydration, too little mucous, etc. The lack of sufficient

> mucous

> > > leaves me vulnerable to infections, particularly respiratory

> > > infections. So, for me, whether or not I get enough salt, etc.

> > > significantly impacts how symptomatic I am for the types of

> issues the

> > > medical profession classifies as " CF " .

> > >

> > > In my opinion, we currently do a poor job of distinguishing the

> > > causative, underlying issues and the symptoms that occur as a

> secondary

> > > or even tertiary effect. So while I agree with my doctors that

> my

> > > genetic disorder is " incurable " and " symptom management is the

> name of

> > > the game " , we have VERY different ideas about what " symptoms "

> are to be

> > > " managed " . To ME, the symptoms I need to manage are things like

> the

> > > need for a high salt diet. To THEM, the symptoms I need to

> manage are

> > > the pain, post-nasal drip, etc. of having a chronic sinus

> infection. I

> > > was told outright that " CF patients are simply chronically

> infected --

> > > symptom management is the name of the game " . They are so used

> to CF

> > > patients being chronically ill that they cannot differentiate

> between

> > > the effects on the body caused by the genetic disorder per se

> and the

> > > effects on the body of being chronically ill because those

> underlying

> > > effect! s are not well understood or properly addressed.

> > >

> > > Given my experience, I have no problem imagining that a Down's

> Syndrome

> > > person is not really " guaranteed " to have the issues you

> typically see

> > > with this syndrome. If the difference in how their body

> functions is

> > > better understood, I can well imagine that the outcome could be

> a lot

> > > more 'normal'-looking. Maybe a simple comparison would be that

> I have

> > > pale skin and get easily sunburned. If no one realized my skin

> was more

> > > vulnerable to sun burn than that of most folks and we all ran

> around

> > > outside naked all the time, I would likely be chronically

> sunburned,

> > > possibly chronically peeling, and would be highly likely to get

> skin

> > > cancer at an early age and possibly die from it. So, then let's

> call it

> > > " peeling skin disorder " and write it up in all the medical

> journals with

> > > symptoms like " chronically peeling skin, especially in summer

> months "

> > > and " most of the people die at an early age of skin cancer " . If

> people

> > > li! ke me always have those symptoms and my " genetic disorder "

> is assumed to

> > > be the CAUSE of the peeling skin, cancer, etc. then it is hard

> to

> > > imagine treating such an overwhelming condition by simply

> protecting me

> > > from an excess of sunlight. But the fact is that my genetic

> variation

> > > does not make me constantly sunburned. My genetic variation

> only makes

> > > me more vulnerable to the effects of sunlight. How much

> sunlight I am

> > > exposed to is a factor that can be controlled and there is no

> reason I

> > > have to go around constantly burned, in pain, peeling, dying of

> skin

> > > cancer, etc.

> > >

> > > I can see that same paradigm concerning my diagnosis of Cystic

> > > Fibrosis. My doctors cannot.

> > >

> > > So, I think glyconutrients provide optimal nutrition that is

> > > particularly crucial to some folks with genetic variations --

> like me

> > > and like folks with Down's Syndrome. And I know that relatively

> simple

> > > nutritional interventions -- like high doses of b vitamins and,

> later, a

> > > 20 pound weight gain -- impacted my son's handwriting, social

> skills etc

> > > by treating his malnourshed brain and body. For me, it isn't

> hard to

> > > imagine or understand the same type of thing happening for

> Down's Syndrome.

> > >

> > > HTH,

> > >

> > >

> > >

> > >

> > >

> > > Michele in California

> > >

> > > calif.michele@s...

> > > webmaster@c...

> > >

> > >

> > > Visit Michele's World! of (Twice) Exceptional Homeschooling

> > > http://www.califmichele.com

> > >

> > > It is not so very important for a person to learn facts. For

> that he

> > > does not really need a college. He can learn them from books.

> The value

> > > of an education in a liberal arts college is not learning of

> many facts

> > > but the training of the mind to think something that cannot be

> learned

> > > from textbooks.

> > > -Albert Einstein

> > >

> > >

[Guest guest]

Wow is it that bad! I know for sure I cannot eat 200 oranges in one

day.

Bruce Berman wrote:

> One orange 50 years ago will need 200 today

>

> Bruce H. Berman, MD

> Re: [ ] " reversing " chromosomal disorders Re:

> Glyconutrients

>

> Michele,

>

> Very well said! I agree completely. The whole idea of nutrition is so

> hard for people to beleive because the average person still believes we

> get everything we need from our foods. There is just no way, especially

> when the average american child eats, fruit loops for breakfast,

> macdonald for lunch and pizza for dinner. I know alot of you do better

> than that so please don't blast me. did you know the FDA did tests on

> the the current levels of vitamins and minerals in the food today and

> compared it to 50 years ago. Here are just 2 comparisons. 1 peach 50

> years ago you will need 53 today, 1 orange 50 years ago you will need 8

> today. Can you imagine what are daily intake has to be with these kinds

> of depletions in our food! Healthy people must supplement, but sick and

> challenged people have to work even harder, it is sad but true. Our food

>

> now has to come in a bottle.

>

> Michele wrote:

> > Pam said:

> > > I'm sorry, but I can't even begin to understand how glyconutrients

> > > reversed a chromosomal disorder.

> >

> > I think that the human body is a lot more " plastic " -- I mean

> malleable

> > -- than is generally believed. I think too much stock is put in how

> > much " genes " determine things. I think environment has a much bigger

> > impact than is generally believed.

> >

> > When my oldest child was 3, he was a year behind in speach development

>

> > and I put him in preschool to force him to speak. At that time, it

> was

> > apparent to me that he had some serious problems and I concluded that

> I

> > had until his brain stopped growing at age 6 or 7 to make the most

> > meaningful impact. I figured that, after that, there wouldn't be much

> I

> > could do. I don't regret my decision to work hard at helping him

> while

> > he was little but my estimate of when the " window " would " close "

> turned

> > out to be wrong.

> >

> > I did vitamin therapy with him when he was 9 and that caused permanent

>

> > improvement in handwriting, social skills, and other areas. He was

> > finally ID'd as " gifted " at age 11 1/2, after spending years in

> " special

> > ed " programs. His genetic disorder was ID'd at age 14 and the

> > subsequently put 20 pounds on him. That was a nearly 20% weight gain

> > for him and many of his 'aspie' issues dramatically improved or

> > seemingly " disappeared " with his improved health. Someone clued me

> > about face blindness when he was 15 and that was a huge AHA! for us

> and

> > has helped us understand a LOT of the mysterious garbage in his life

> and

> > helped us better understand what kind of accommodations he needs and

> so

> > forth. About a year ago, I began buying books for him to read like

> > " Thinking in Pictures " and " Children with Emerald Eyes " and

> " Upside-Down

> > Brilliance " and started a discussion group for him to participate in.!

>

> > With the security of knowing mom was running the group and with his

> > new-found understanding

> > of how his own mind works and what is different about it compared to

> all

> > those weirdos out there (aka " normal " people, :-P), he really began to

>

> > come out of his shell.

> >

> > I think few people get 'optimal' nutrition and I think understanding

> > what " optimal nutrition " really means is still in its infancy -- and

> > that " optimal nutrition " is highly individualized, not really about

> " the

> > four food groups " and other generic advice. My genetic disorder -- a

> > mild form of Cystic Fibrosis -- means that my body misprocesses

> certain

> > molecules at the cellular level. People think that means that I

> " must "

> > cough up " gallons " of mucous daily and be constantly sick. But the

> > latest reseach suggests that CF patients aren't really overproducing

> > mucous -- that they are coughing up phlegm, not merely mucous, and the

>

> > reality is that their mucous membranes produce to LITTLE mucous. That

>

> > is consistent with my experience: when I get enough salt and fluids

> and

> > so forth and am not sick, I have more actual mucous and I cough up

> less

> > crap. One molecule that my body misprocesses is salt, which is an!

> > important ingredient in creating mucous. So my prescribed diet is a

> > high salt diet

> > because my body purges salt at a high rate, making me prone to

> > dehydration, too little mucous, etc. The lack of sufficient mucous

> > leaves me vulnerable to infections, particularly respiratory

> > infections. So, for me, whether or not I get enough salt, etc.

> > significantly impacts how symptomatic I am for the types of issues the

>

> > medical profession classifies as " CF " .

> >

> > In my opinion, we currently do a poor job of distinguishing the

> > causative, underlying issues and the symptoms that occur as a

> secondary

> > or even tertiary effect. So while I agree with my doctors that my

> > genetic disorder is " incurable " and " symptom management is the name of

>

> > the game " , we have VERY different ideas about what " symptoms " are to

> be

> > " managed " . To ME, the symptoms I need to manage are things like the

> > need for a high salt diet. To THEM, the symptoms I need to manage are

>

> > the pain, post-nasal drip, etc. of having a chronic sinus infection.

> I

> > was told outright that " CF patients are simply chronically infected --

>

> > symptom management is the name of the game " . They are so used to CF

> > patients being chronically ill that they cannot differentiate between

> > the effects on the body caused by the genetic disorder per se and the

> > effects on the body of being chronically ill because those underlying

> > effect! s are not well understood or properly addressed.

> >

> > Given my experience, I have no problem imagining that a Down's

> Syndrome

> > person is not really " guaranteed " to have the issues you typically see

>

> > with this syndrome. If the difference in how their body functions is

> > better understood, I can well imagine that the outcome could be a lot

> > more 'normal'-looking. Maybe a simple comparison would be that I have

>

> > pale skin and get easily sunburned. If no one realized my skin was

> more

> > vulnerable to sun burn than that of most folks and we all ran around

> > outside naked all the time, I would likely be chronically sunburned,

> > possibly chronically peeling, and would be highly likely to get skin

> > cancer at an early age and possibly die from it. So, then let's call

> it

> > " peeling skin disorder " and write it up in all the medical journals

> with

> > symptoms like " chronically peeling skin, especially in summer months "

> > and " most of the people die at an early age of skin cancer " . If

> people

> > li! ke me always have those symptoms and my " genetic disorder " is

> assumed to

> > be the CAUSE of the peeling skin, cancer, etc. then it is hard to

> > imagine treating such an overwhelming condition by simply protecting

> me

> > from an excess of sunlight. But the fact is that my genetic variation

>

> > does not make me constantly sunburned. My genetic variation only

> makes

> > me more vulnerable to the effects of sunlight. How much sunlight I am

>

> > exposed to is a factor that can be controlled and there is no reason I

>

> > have to go around constantly burned, in pain, peeling, dying of skin

> > cancer, etc.

> >

> > I can see that same paradigm concerning my diagnosis of Cystic

> > Fibrosis. My doctors cannot.

> >

> > So, I think glyconutrients provide optimal nutrition that is

> > particularly crucial to some folks with genetic variations -- like me

> > and like folks with Down's Syndrome. And I know that relatively

> simple

> > nutritional interventions -- like high doses of b vitamins and, later,

> a

> > 20 pound weight gain -- impacted my son's handwriting, social skills

> etc

> > by treating his malnourshed brain and body. For me, it isn't hard to

> > imagine or understand the same type of thing happening for Down's

> Syndrome.

> >

> > HTH,

> >

> >

> >

> >

> >

> > Michele in California

> >

> > calif.michele@...

> > webmaster@...

> >

> >

> > Visit Michele's World! of (Twice) Exceptional Homeschooling

>

> Version: 7.0.308 / Virus Database: 266.9.0 - Release Date: 3/31/2005

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.308 / Virus Database: 266.9.0 - Release Date: 3/31/2005

[Guest guest]

Six ounces of spinach from 1950 has the iron equivalent of four pounds

of spinach today

Bruce H. Berman, MD

Re: [ ] " reversing " chromosomal disorders Re:

> Glyconutrients

>

> Michele,

>

> Very well said! I agree completely. The whole idea of nutrition is so

> hard for people to beleive because the average person still believes

we

> get everything we need from our foods. There is just no way,

especially

> when the average american child eats, fruit loops for breakfast,

> macdonald for lunch and pizza for dinner. I know alot of you do

better

> than that so please don't blast me. did you know the FDA did tests on

> the the current levels of vitamins and minerals in the food today and

> compared it to 50 years ago. Here are just 2 comparisons. 1 peach 50

> years ago you will need 53 today, 1 orange 50 years ago you will need

8

> today. Can you imagine what are daily intake has to be with these

kinds

> of depletions in our food! Healthy people must supplement, but sick

and

> challenged people have to work even harder, it is sad but true. Our

food

>

> now has to come in a bottle.

>

> Michele wrote:

> > Pam said:

> > > I'm sorry, but I can't even begin to understand how

glyconutrients

> > > reversed a chromosomal disorder.

> >

> > I think that the human body is a lot more " plastic " -- I mean

> malleable

> > -- than is generally believed. I think too much stock is put in

how

> > much " genes " determine things. I think environment has a much

bigger

> > impact than is generally believed.

> >

> > When my oldest child was 3, he was a year behind in speach

development

>

> > and I put him in preschool to force him to speak. At that time, it

> was

> > apparent to me that he had some serious problems and I concluded

that

> I

> > had until his brain stopped growing at age 6 or 7 to make the most

> > meaningful impact. I figured that, after that, there wouldn't be

much

> I

> > could do. I don't regret my decision to work hard at helping him

> while

> > he was little but my estimate of when the " window " would " close "

> turned

> > out to be wrong.

> >

> > I did vitamin therapy with him when he was 9 and that caused

permanent

>

> > improvement in handwriting, social skills, and other areas. He was

> > finally ID'd as " gifted " at age 11 1/2, after spending years in

> " special

> > ed " programs. His genetic disorder was ID'd at age 14 and the

> > subsequently put 20 pounds on him. That was a nearly 20% weight

gain

> > for him and many of his 'aspie' issues dramatically improved or

> > seemingly " disappeared " with his improved health. Someone clued me

> > about face blindness when he was 15 and that was a huge AHA! for us

> and

> > has helped us understand a LOT of the mysterious garbage in his

life

> and

> > helped us better understand what kind of accommodations he needs

and

> so

> > forth. About a year ago, I began buying books for him to read like

> > " Thinking in Pictures " and " Children with Emerald Eyes " and

> " Upside-Down

> > Brilliance " and started a discussion group for him to participate

in.!

>

> > With the security of knowing mom was running the group and with his

> > new-found understanding

> > of how his own mind works and what is different about it compared

to

> all

> > those weirdos out there (aka " normal " people, :-P), he really began

to

>

> > come out of his shell.

> >

> > I think few people get 'optimal' nutrition and I think

understanding

> > what " optimal nutrition " really means is still in its infancy --

and

> > that " optimal nutrition " is highly individualized, not really about

> " the

> > four food groups " and other generic advice. My genetic disorder --

a

> > mild form of Cystic Fibrosis -- means that my body misprocesses

> certain

> > molecules at the cellular level. People think that means that I

> " must "

> > cough up " gallons " of mucous daily and be constantly sick. But the

> > latest reseach suggests that CF patients aren't really

overproducing

> > mucous -- that they are coughing up phlegm, not merely mucous, and

the

>

> > reality is that their mucous membranes produce to LITTLE mucous.

That

>

> > is consistent with my experience: when I get enough salt and fluids

> and

> > so forth and am not sick, I have more actual mucous and I cough up

> less

> > crap. One molecule that my body misprocesses is salt, which is an!

> > important ingredient in creating mucous. So my prescribed diet is

a

> > high salt diet

> > because my body purges salt at a high rate, making me prone to

> > dehydration, too little mucous, etc. The lack of sufficient mucous

> > leaves me vulnerable to infections, particularly respiratory

> > infections. So, for me, whether or not I get enough salt, etc.

> > significantly impacts how symptomatic I am for the types of issues

the

>

> > medical profession classifies as " CF " .

> >

> > In my opinion, we currently do a poor job of distinguishing the

> > causative, underlying issues and the symptoms that occur as a

> secondary

> > or even tertiary effect. So while I agree with my doctors that my

> > genetic disorder is " incurable " and " symptom management is the name

of

>

> > the game " , we have VERY different ideas about what " symptoms " are

to

> be

> > " managed " . To ME, the symptoms I need to manage are things like

the

> > need for a high salt diet. To THEM, the symptoms I need to manage

are

>

> > the pain, post-nasal drip, etc. of having a chronic sinus

infection.

> I

> > was told outright that " CF patients are simply chronically infected

--

>

> > symptom management is the name of the game " . They are so used to

CF

> > patients being chronically ill that they cannot differentiate

between

> > the effects on the body caused by the genetic disorder per se and

the

> > effects on the body of being chronically ill because those

underlying

> > effect! s are not well understood or properly addressed.

> >

> > Given my experience, I have no problem imagining that a Down's

> Syndrome

> > person is not really " guaranteed " to have the issues you typically

see

>

> > with this syndrome. If the difference in how their body functions

is

> > better understood, I can well imagine that the outcome could be a

lot

> > more 'normal'-looking. Maybe a simple comparison would be that I

have

>

> > pale skin and get easily sunburned. If no one realized my skin was

> more

> > vulnerable to sun burn than that of most folks and we all ran

around

> > outside naked all the time, I would likely be chronically

sunburned,

> > possibly chronically peeling, and would be highly likely to get

skin

> > cancer at an early age and possibly die from it. So, then let's

call

> it

> > " peeling skin disorder " and write it up in all the medical journals

> with

> > symptoms like " chronically peeling skin, especially in summer

months "

> > and " most of the people die at an early age of skin cancer " . If

> people

> > li! ke me always have those symptoms and my " genetic disorder " is

> assumed to

> > be the CAUSE of the peeling skin, cancer, etc. then it is hard to

> > imagine treating such an overwhelming condition by simply

protecting

> me

> > from an excess of sunlight. But the fact is that my genetic

variation

>

> > does not make me constantly sunburned. My genetic variation only

> makes

> > me more vulnerable to the effects of sunlight. How much sunlight I

am

>

> > exposed to is a factor that can be controlled and there is no

reason I

>

> > have to go around constantly burned, in pain, peeling, dying of

skin

> > cancer, etc.

> >

> > I can see that same paradigm concerning my diagnosis of Cystic

> > Fibrosis. My doctors cannot.

> >

> > So, I think glyconutrients provide optimal nutrition that is

> > particularly crucial to some folks with genetic variations -- like

me

> > and like folks with Down's Syndrome. And I know that relatively

> simple

> > nutritional interventions -- like high doses of b vitamins and,

later,

> a

> > 20 pound weight gain -- impacted my son's handwriting, social

skills

> etc

> > by treating his malnourshed brain and body. For me, it isn't hard

to

> > imagine or understand the same type of thing happening for Down's

> Syndrome.

> >

> > HTH,

> >

> >

> >

> >

> >

> > Michele in California

> >

> > calif.michele@...

> > webmaster@...

> >

> >

> > Visit Michele's World! of (Twice) Exceptional Homeschooling

>

> Version: 7.0.308 / Virus Database: 266.9.0 - Release Date: 3/31/2005

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.308 / Virus Database: 266.9.0 - Release Date: 3/31/2005

=======================================================

[Guest guest]

Hi Bruce,

Where are you finding these equivilents? I would love to have them for

my own records. Thanks.

Bruce Berman wrote:

> Six ounces of spinach from 1950 has the iron equivalent of four pounds

> of spinach today

>

> Bruce H. Berman, MD

> Re: [ ] " reversing " chromosomal disorders Re:

> Glyconutrients

>

> Wow is it that bad! I know for sure I cannot eat 200 oranges in one

> day.

>

> Bruce Berman wrote:

> > One orange 50 years ago will need 200 today

> >

> > Bruce H. Berman, MD

>

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.308 / Virus Database: 266.9.0 - Release Date: 3/31/2005

[Guest guest]

The average nutritional content of all foods across the board approaches

75% decline from 50 years ago

Corporate America is hazardous to your health!

Bruce H. Berman, MD

[ ] " reversing " chromosomal disorders Re:

Glyconutrients

Can we assume (or be sure) the way they tested for nutrient content

then vs now is equal in accuracy? What an amazing and maddening set

of stats you give us!

P

> > > > Pam said:

> > > > > I'm sorry, but I can't even begin to understand how

> > glyconutrients

> > > > > reversed a chromosomal disorder.

> > > >

> > > > I think that the human body is a lot more " plastic " -- I

mean

> > > malleable

> > > > -- than is generally believed. I think too much stock is

put

> in

> > how

> > > > much " genes " determine things. I think environment has a

much

> > bigger

> > > > impact than is generally believed.

> > > >

> > > > When my oldest child was 3, he was a year behind in speach

> > development

> > >

> > > > and I put him in preschool to force him to speak. At that

> time, it

> > > was

> > > > apparent to me that he had some serious problems and I

> concluded

> > that

> > > I

> > > > had until his brain stopped growing at age 6 or 7 to make

the

> most

> > > > meaningful impact. I figured that, after that, there

> wouldn't be

> > much

> > > I

> > > > could do. I don't regret my decision to work hard at

helping

> him

> > > while

> > > > he was little but my estimate of when the " window "

> would " close "

> > > turned

> > > > out to be wrong.

> > > >

> > > > I did vitamin therapy with him when he was 9 and that caused

> > permanent

> > >

> > > > improvement in handwriting, social skills, and other

areas.

> He was

> > > > finally ID'd as " gifted " at age 11 1/2, after spending

years

> in

> > > " special

> > > > ed " programs. His genetic disorder was ID'd at age 14 and

the

> > > > subsequently put 20 pounds on him. That was a nearly 20%

> weight

> > gain

> > > > for him and many of his 'aspie' issues dramatically

improved

> or

> > > > seemingly " disappeared " with his improved health. Someone

> clued me

> > > > about face blindness when he was 15 and that was a huge

AHA!

> for us

> > > and

> > > > has helped us understand a LOT of the mysterious garbage in

> his

> > life

> > > and

> > > > helped us better understand what kind of accommodations he

> needs

> > and

> > > so

> > > > forth. About a year ago, I began buying books for him to

> read like

> > > > " Thinking in Pictures " and " Children with Emerald Eyes " and

> > > " Upside-Down

> > > > Brilliance " and started a discussion group for him to

> participate

> > in.!

> > >

> > > > With the security of knowing mom was running the group and

> with his

> > > > new-found understanding

> > > > of how his own mind works and what is different about it

> compared

> > to

> > > all

> > > > those weirdos out there (aka " normal " people, :-P), he

really

> began

> > to

> > >

> > > > come out of his shell.

> > > >

> > > > I think few people get 'optimal' nutrition and I think

> > understanding

> > > > what " optimal nutrition " really means is still in its

> infancy --

> > and

> > > > that " optimal nutrition " is highly individualized, not

really

> about

> > > " the

> > > > four food groups " and other generic advice. My genetic

> disorder --

> > a

> > > > mild form of Cystic Fibrosis -- means that my body

> misprocesses

> > > certain

> > > > molecules at the cellular level. People think that means

> that I

> > > " must "

> > > > cough up " gallons " of mucous daily and be constantly sick.

> But the

> > > > latest reseach suggests that CF patients aren't really

> > overproducing

> > > > mucous -- that they are coughing up phlegm, not merely

> mucous, and

> > the

> > >

> > > > reality is that their mucous membranes produce to LITTLE

> mucous.

> > That

> > >

> > > > is consistent with my experience: when I get enough salt

and

> fluids

> > > and

> > > > so forth and am not sick, I have more actual mucous and I

> cough up

> > > less

> > > > crap. One molecule that my body misprocesses is salt,

which

> is an!

> > > > important ingredient in creating mucous. So my prescribed

> diet is

> > a

> > > > high salt diet

> > > > because my body purges salt at a high rate, making me prone

to

> > > > dehydration, too little mucous, etc. The lack of

sufficient

> mucous

> > > > leaves me vulnerable to infections, particularly respiratory

> > > > infections. So, for me, whether or not I get enough salt,

> etc.

> > > > significantly impacts how symptomatic I am for the types of

> issues

> > the

> > >

> > > > medical profession classifies as " CF " .

> > > >

> > > > In my opinion, we currently do a poor job of distinguishing

> the

> > > > causative, underlying issues and the symptoms that occur as

a

> > > secondary

> > > > or even tertiary effect. So while I agree with my doctors

> that my

> > > > genetic disorder is " incurable " and " symptom management is

> the name

> > of

> > >

> > > > the game " , we have VERY different ideas about

what " symptoms "

> are

> > to

> > > be

> > > > " managed " . To ME, the symptoms I need to manage are things

> like

> > the

> > > > need for a high salt diet. To THEM, the symptoms I need to

> manage

> > are

> > >

> > > > the pain, post-nasal drip, etc. of having a chronic sinus

> > infection.

> > > I

> > > > was told outright that " CF patients are simply chronically

> infected

> > --

> > >

> > > > symptom management is the name of the game " . They are so

> used to

> > CF

> > > > patients being chronically ill that they cannot

differentiate

> > between

> > > > the effects on the body caused by the genetic disorder per

se

> and

> > the

> > > > effects on the body of being chronically ill because those

> > underlying

> > > > effect! s are not well understood or properly addressed.

> > > >

> > > > Given my experience, I have no problem imagining that a

Down's

> > > Syndrome

> > > > person is not really " guaranteed " to have the issues you

> typically

> > see

> > >

> > > > with this syndrome. If the difference in how their body

> functions

> > is

> > > > better understood, I can well imagine that the outcome

could

> be a

> > lot

> > > > more 'normal'-looking. Maybe a simple comparison would be

> that I

> > have

> > >

> > > > pale skin and get easily sunburned. If no one realized my

> skin was

> > > more

> > > > vulnerable to sun burn than that of most folks and we all

ran

> > around

> > > > outside naked all the time, I would likely be chronically

> > sunburned,

> > > > possibly chronically peeling, and would be highly likely to

> get

> > skin

> > > > cancer at an early age and possibly die from it. So, then

> let's

> > call

> > > it

> > > > " peeling skin disorder " and write it up in all the medical

> journals

> > > with

> > > > symptoms like " chronically peeling skin, especially in

summer

> > months "

> > > > and " most of the people die at an early age of skin

cancer " .

> If

> > > people

> > > > li! ke me always have those symptoms and my " genetic

> disorder " is

> > > assumed to

> > > > be the CAUSE of the peeling skin, cancer, etc. then it is

> hard to

> > > > imagine treating such an overwhelming condition by simply

> > protecting

> > > me

> > > > from an excess of sunlight. But the fact is that my genetic

> > variation

> > >

> > > > does not make me constantly sunburned. My genetic

variation

> only

> > > makes

> > > > me more vulnerable to the effects of sunlight. How much

> sunlight I

> > am

> > >

> > > > exposed to is a factor that can be controlled and there is

no

> > reason I

> > >

> > > > have to go around constantly burned, in pain, peeling,

dying

> of

> > skin

> > > > cancer, etc.

> > > >

> > > > I can see that same paradigm concerning my diagnosis of

Cystic

> > > > Fibrosis. My doctors cannot.

> > > >

> > > > So, I think glyconutrients provide optimal nutrition that is

> > > > particularly crucial to some folks with genetic variations -

-

> like

> > me

> > > > and like folks with Down's Syndrome. And I know that

> relatively

> > > simple

> > > > nutritional interventions -- like high doses of b vitamins

> and,

> > later,

> > > a

> > > > 20 pound weight gain -- impacted my son's handwriting,

social

> > skills

> > > etc

> > > > by treating his malnourshed brain and body. For me, it

isn't

> hard

> > to

> > > > imagine or understand the same type of thing happening for

> Down's

> > > Syndrome.

> > > >

> > > > HTH,

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Michele in California

> > > >

> > > > calif.michele@s...

> > > > webmaster@c...

> > > >

> > > >

> > > > Visit Michele's World! of (Twice) Exceptional Homeschooling

> > >

> > > Version: 7.0.308 / Virus Database: 266.9.0 - Release Date:

> 3/31/2005

> >

> >

> > --

> > No virus found in this outgoing message.

> > Checked by AVG Anti-Virus.

> > Version: 7.0.308 / Virus Database: 266.9.0 - Release Date:

> 3/31/2005

> >

> >

> >

> > =======================================================

> >

[Guest guest]

Ok, I am being sarcastic here. Imagine they can keep track of how

much iron is in spinach for 50 years but not how much mercury is in a

vaccine! Isn't that great?

Michele

> > > > > Pam said:

> > > > > > I'm sorry, but I can't even begin to understand how

> > > glyconutrients

> > > > > > reversed a chromosomal disorder.

> > > > >

> > > > > I think that the human body is a lot more " plastic " -- I

mean

> > > > malleable

> > > > > -- than is generally believed. I think too much stock is

put

> > in

> > > how

> > > > > much " genes " determine things. I think environment has a

much

> > > bigger

> > > > > impact than is generally believed.

> > > > >

> > > > > When my oldest child was 3, he was a year behind in speach

> > > development

> > > >

> > > > > and I put him in preschool to force him to speak. At that

> > time, it

> > > > was

> > > > > apparent to me that he had some serious problems and I

> > concluded

> > > that

> > > > I

> > > > > had until his brain stopped growing at age 6 or 7 to make

the

> > most

> > > > > meaningful impact. I figured that, after that, there

> > wouldn't be

> > > much

> > > > I

> > > > > could do. I don't regret my decision to work hard at

helping

> > him

> > > > while

> > > > > he was little but my estimate of when the " window "

> > would " close "

> > > > turned

> > > > > out to be wrong.

> > > > >

> > > > > I did vitamin therapy with him when he was 9 and that

caused

> > > permanent

> > > >

> > > > > improvement in handwriting, social skills, and other

areas.

> > He was

> > > > > finally ID'd as " gifted " at age 11 1/2, after spending

years

> > in

> > > > " special

> > > > > ed " programs. His genetic disorder was ID'd at age 14

and the

> > > > > subsequently put 20 pounds on him. That was a nearly 20%

> > weight

> > > gain

> > > > > for him and many of his 'aspie' issues dramatically

improved

> > or

> > > > > seemingly " disappeared " with his improved health. Someone

> > clued me

> > > > > about face blindness when he was 15 and that was a huge

AHA!

> > for us

> > > > and

> > > > > has helped us understand a LOT of the mysterious garbage

in

> > his

> > > life

> > > > and

> > > > > helped us better understand what kind of accommodations he

> > needs

> > > and

> > > > so

> > > > > forth. About a year ago, I began buying books for him to

> > read like

> > > > > " Thinking in Pictures " and " Children with Emerald Eyes "

and

> > > > " Upside-Down

> > > > > Brilliance " and started a discussion group for him to

> > participate

> > > in.!

> > > >

> > > > > With the security of knowing mom was running the group and

> > with his

> > > > > new-found understanding

> > > > > of how his own mind works and what is different about it

> > compared

> > > to

> > > > all

> > > > > those weirdos out there (aka " normal " people, :-P), he

really

> > began

> > > to

> > > >

> > > > > come out of his shell.

> > > > >

> > > > > I think few people get 'optimal' nutrition and I think

> > > understanding

> > > > > what " optimal nutrition " really means is still in its

> > infancy --

> > > and

> > > > > that " optimal nutrition " is highly individualized, not

really

> > about

> > > > " the

> > > > > four food groups " and other generic advice. My genetic

> > disorder --

> > > a

> > > > > mild form of Cystic Fibrosis -- means that my body

> > misprocesses

> > > > certain

> > > > > molecules at the cellular level. People think that means

> > that I

> > > > " must "

> > > > > cough up " gallons " of mucous daily and be constantly

sick.

> > But the

> > > > > latest reseach suggests that CF patients aren't really

> > > overproducing

> > > > > mucous -- that they are coughing up phlegm, not merely

> > mucous, and

> > > the

> > > >

> > > > > reality is that their mucous membranes produce to LITTLE

> > mucous.

> > > That

> > > >

> > > > > is consistent with my experience: when I get enough salt

and

> > fluids

> > > > and

> > > > > so forth and am not sick, I have more actual mucous and I

> > cough up

> > > > less

> > > > > crap. One molecule that my body misprocesses is salt,

which

> > is an!

> > > > > important ingredient in creating mucous. So my prescribed

> > diet is

> > > a

> > > > > high salt diet

> > > > > because my body purges salt at a high rate, making me

prone to

> > > > > dehydration, too little mucous, etc. The lack of

sufficient

> > mucous

> > > > > leaves me vulnerable to infections, particularly

respiratory

> > > > > infections. So, for me, whether or not I get enough salt,

> > etc.

> > > > > significantly impacts how symptomatic I am for the types

of

> > issues

> > > the

> > > >

> > > > > medical profession classifies as " CF " .

> > > > >

> > > > > In my opinion, we currently do a poor job of

distinguishing

> > the

> > > > > causative, underlying issues and the symptoms that occur

as a

> > > > secondary

> > > > > or even tertiary effect. So while I agree with my doctors

> > that my

> > > > > genetic disorder is " incurable " and " symptom management is

> > the name

> > > of

> > > >

> > > > > the game " , we have VERY different ideas about

what " symptoms "

> > are

> > > to

> > > > be

> > > > > " managed " . To ME, the symptoms I need to manage are

things

> > like

> > > the

> > > > > need for a high salt diet. To THEM, the symptoms I need

to

> > manage

> > > are

> > > >

> > > > > the pain, post-nasal drip, etc. of having a chronic sinus

> > > infection.

> > > > I

> > > > > was told outright that " CF patients are simply chronically

> > infected

> > > --

> > > >

> > > > > symptom management is the name of the game " . They are so

> > used to

> > > CF

> > > > > patients being chronically ill that they cannot

differentiate

> > > between

> > > > > the effects on the body caused by the genetic disorder

per se

> > and

> > > the

> > > > > effects on the body of being chronically ill because those

> > > underlying

> > > > > effect! s are not well understood or properly addressed.

> > > > >

> > > > > Given my experience, I have no problem imagining that a

Down's

> > > > Syndrome

> > > > > person is not really " guaranteed " to have the issues you

> > typically

> > > see

> > > >

> > > > > with this syndrome. If the difference in how their body

> > functions

> > > is

> > > > > better understood, I can well imagine that the outcome

could

> > be a

> > > lot

> > > > > more 'normal'-looking. Maybe a simple comparison would be

> > that I

> > > have

> > > >

> > > > > pale skin and get easily sunburned. If no one realized my

> > skin was

> > > > more

> > > > > vulnerable to sun burn than that of most folks and we all

ran

> > > around

> > > > > outside naked all the time, I would likely be chronically

> > > sunburned,

> > > > > possibly chronically peeling, and would be highly likely

to

> > get

> > > skin

> > > > > cancer at an early age and possibly die from it. So, then

> > let's

> > > call

> > > > it

> > > > > " peeling skin disorder " and write it up in all the medical

> > journals

> > > > with

> > > > > symptoms like " chronically peeling skin, especially in

summer

> > > months "

> > > > > and " most of the people die at an early age of skin

cancer " .

> > If

> > > > people

> > > > > li! ke me always have those symptoms and my " genetic

> > disorder " is

> > > > assumed to

> > > > > be the CAUSE of the peeling skin, cancer, etc. then it is

> > hard to

> > > > > imagine treating such an overwhelming condition by simply

> > > protecting

> > > > me

> > > > > from an excess of sunlight. But the fact is that my

genetic

> > > variation

> > > >

> > > > > does not make me constantly sunburned. My genetic

variation

> > only

> > > > makes

> > > > > me more vulnerable to the effects of sunlight. How much

> > sunlight I

> > > am

> > > >

> > > > > exposed to is a factor that can be controlled and there

is no

> > > reason I

> > > >

> > > > > have to go around constantly burned, in pain, peeling,

dying

> > of

> > > skin

> > > > > cancer, etc.

> > > > >

> > > > > I can see that same paradigm concerning my diagnosis of

Cystic

> > > > > Fibrosis. My doctors cannot.

> > > > >

> > > > > So, I think glyconutrients provide optimal nutrition that

is

> > > > > particularly crucial to some folks with genetic

variations --

> > like

> > > me

> > > > > and like folks with Down's Syndrome. And I know that

> > relatively

> > > > simple

> > > > > nutritional interventions -- like high doses of b vitamins

> > and,

> > > later,

> > > > a

> > > > > 20 pound weight gain -- impacted my son's handwriting,

social

> > > skills

> > > > etc

> > > > > by treating his malnourshed brain and body. For me, it

isn't

> > hard

> > > to

> > > > > imagine or understand the same type of thing happening for

> > Down's

> > > > Syndrome.

> > > > >

> > > > > HTH,

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Michele in California

> > > > >

> > > > > calif.michele@s...

> > > > > webmaster@c...

> > > > >

> > > > >

> > > > > Visit Michele's World! of (Twice) Exceptional

Homeschooling

> > > >

> > > > Version: 7.0.308 / Virus Database: 266.9.0 - Release Date:

> > 3/31/2005

> > >

> > >

> > > --

> > > No virus found in this outgoing message.

> > > Checked by AVG Anti-Virus.

> > > Version: 7.0.308 / Virus Database: 266.9.0 - Release Date:

> > 3/31/2005

> > >

> > >

> > >

> > > =======================================================

> > >

[Guest guest]

may be a longshot but what about purchasing foods from meninites ? not sure

If I had spelled that right or not sorry.

But my mother and I were talking about foods today vs many years ago how

alot of the chemicals etc to treat the foods in stores, For instance, My

spouse used to work in a supermarket stocking shelves, the girl there said

that they actually bleach their meats to make them LOOK MORE APPEALING.

so naturally Chicken would look a yellowish in colour but because when they

look fleshy white, it's more appealing to the eye but yet the yellowish

which looks less appealing is actually the better choice.

I know that meninites sp? they naturally grow their foods, fruit, veggies

and their stock.

they are grain fed, not animal by products etc.

I know its all more expensive but it is healthier right?

I am against hunting for the most part but I know it is healthier to

purchase meats from hunters that are known within the community and

meninites for knowing it's all natural and untreated etc.

Just curious of your thoughts on this?

I have a son with RAD, ADHD and a Daughter with PDD Autism.

I also have 3 other children.

natually I want the best for my children, food and environmentally, all the

way around..

but really, what is the best ?

what vitamins are my best choice to supplement them with also ?

On Apr 1, 2005 11:09 PM, Kindscher (Charter) <

morningsunranch@...> wrote:

>

> I live in ville, California, where a huge percent of the food for

> the USA is produced. The farmers are being heavily charged for the

> water that comes out of the ground from their very own wells! Alot of

> the small farms are being forced out of business because of these water

> charges and heavy taxes in this area they cannot afford to do business

> anymore. People complain about all these problems of pesticides and

> green harvesting but do not support the local growers who are trying to

> grow organic, because they say it is too expensive. I figure I can pay

> now for fresh organic foods for pay later with ill health. Even eating

> an all organic, vine ripend diet of fruits and vegies and lots of other

> healthy stuff will not necesarily keep you well but at least you can

> minimize the toxins that are going in on a daily basis. The days of

> getting all you need from your diet our gone. Did you notice a bottle of

> supplements is at the top of the food pyramid guide now? GIna

>

> Bruce Berman wrote:

> > 3% of our farms grow 67% of our produce

> > factory farms

> > a) use large amount pesticides

> > cant do crop rotations

> > c) sterilize the soil

> > d) don't do top soil repletion

> > e) use hybrid species

> >

> > all this and more contribute to the dumbing down of our commercial food

> > supply

> >

> > Bruce H. Berman, MD

> > Re: [ ] " reversing " chromosomal disorders Re:

> > Glyconutrients

> >

> > So what has caused the decrease in nutritional values?

> >

> > Debbie

> >

> > On Apr 1, 2005 5:52 PM, Bruce Berman <drbruce@...> wrote:

> > >

> > >

> > > Yes pam they have figures from 1950 spinach which is when they tested

> > > them

> > >

> > > Bruce H. Berman, MD

> > >

> >

> >

> >