Re: Digest Number 514

[Guest guest]

hi it me shirley i to send my prayers to janis and her family iam

sorry that she

pass away iwill miss we all family hear

god bless your family shirley

[Guest guest]

Message: 1

> Date: Wed, 25 Jul 2001 12:01:29 EDT

> From: jandog7@...

> Subject: Sad Passing

>

> Hi ~

> Please remove Janis Morrow (jandog7@...) from

> your email list. Our dear

> friend passed away Monday night from end stage liver

> decease due to Hepatitis

> C. Thank you all for having Janis a part of your

> email list:)

>

> Sincerely,

> Jan's friend ~

> Patty VanReenen

>

Patty's post brings up a question.... do we have a

moderator on this list? Who is the list owner? With

Merill gone, and now the tragic loss of our beloved

Janis (or at least beloved to me)they should both be

removed.

Anyone have any answers?

Jeanie

__________________________________________________

[Guest guest]

In Beyond 120 Years, Walford says the vitamins in Total or Product 19 are not very helpful, as they're not very fresh. Apparently vitamins lose their effectiveness over time, or something. If you're eating Total for the vitamins (as I used to), this information might send you in another direction.

[Guest guest]

I would like to unsubscribe from this group, Thank you

autism wrote:

>

>

[Guest guest]

On Wed, 2003-07-23 at 15:27, Jos wrote:

> I would like to unsubscribe from this group, Thank you

> autism wrote:

The answer to how to do this is below. All you need to do is send an

email to that address and follow the instructions; most people here are

not moderators and cannot unsubscribe you, but it's fairly easy to do it

yourself -- send an email to

autism-unsubscribe .

> >

[Guest guest]

In a message dated 10/14/2005 1:09:37 PM US Mountain Standard Time, neck pain writes:

Date: Fri, 14 Oct 2005 10:40:04 -0500 From: "LARRY GULLAHORN" <lagullahorn68-69@...>Subject: Had my hearing yesterdayWell I finally had my social security disability hearing yesterday.Man am I glad to get that over with. My lawyer told me that he would really be surprised if I did not win my case. My doctor testified via telephone and was the main reason for such a favorable reaction from the judge. The vocational doctor testified that with my medical history and work background that there was nothing that I could do on a sustained basis.The judge told me that he will be sending me his decision in about three to four weeks.I should be getting benefits from December 2003 to the present.Now that will be a nice chunk of change.Having such a good reaction from the judge was such a relief and took such a load off my mind.I would not have had a chance in h@@@ to get anything if I had tried to do it by myself.Well,it's over and now all I have to do is wait for the letter telling me what the decision will be.Guess that I'll stop and say bye for now. EVERY ONE TAKE AS BEST CARE AS YOU CAN AND BE SAFE.LARRY ,IN COWTOWN TEXAS

Hi Larry,

Don't count your chickens before they are hatched. It took me 2 yrs. to get disability. The judge can still say no. Also if you do get it, watch the amt. that your big check is. I had an attorney & they were supposed to send her payment to her, they didn't. I got the entire amt. I didn't think anything of it, I figured the Feds knew what they were doing.not so!!!!!!! I ended up having to pay back $100.00 a month from my ck. until the amt. owed to the lawyer was paid. Next month I will get my first full ck., it's been 3 yrs.

Shari

[Guest guest]

Hi, My name is Jill and I live in Sunnyvale. I have just been diagnosed with dermatitis herpetiformis, which is a skin disorder related to celiac. I have suffered from it for years, and was misdiagnosed by doctors (they all thought it was eczema). Autoimmune disorders run in my family though, I have a cousin with Lou Gherigs, aunt with lupus, and another aunt who was just diagnosed with celiac ...I myself have autoimmune hypothyroidism) My husband and I had tried for 3 years to get pregnant, but had several miscarriages. When my aunt was diagnosed with celiac, she told me one of the symptoms was multiple miscarriages, so I began to look into it more thoroughly. Well, last fall, I found out I was pregnant, and during that time my symptoms subsided, so I forgot about it. In August I gave birth to a healthy boy, but 5 days afterwards, completely broke out in a itchy rash. I went to

the dermatologist and demanded to be tested, and sure enough, it was positive for DH. I have some questions, perhaps some of you can help me with. I am pretty sure, but since I have DH, does that mean I automatically have celiac? Do I need further testing, or should I go on the diet? Did anyone else get upset about going on this restrictive diet? I am putting it off, because I can't imagine giving up everything I love. Plus, I can't imagine going to parties, and family get togethers, only to stare and salivate over food I can't have. With kids in the picture now too, the stress of being on a specialized diet scares me. Any encouragement you have would be great! Jill wrote: celiacBayarea Messages In This Digest (5 Messages) 1a. Re: Hi, my

name is... From: Connie Hampton 1b. Re: Hi, my name is... From: LSBlondie@... 1c. Re: Hi, my name is... From: Debbie Duncan 1d. Re: Hi, my name is... From: flatcat9@... 2. Re: last minute pot luck From: Suki O'Raghallaigh View All

Topics | Create New Topic Messages 1a. Re: Hi, my name is... Posted by: "Connie Hampton" connie@... connie53us Thu Oct 5, 2006 9:18 am (PST) HI, My name is Connie. I'm over 50, have 3 kids, only one still at home, and apartner of 13

years. I'm a pretty good cook, having cooked from scratch foryears. I live in Oakland. I was sort of diagnosed about 2 years ago,partly self diagnosed and then had a gastroenterologist agree with me, butthen I decided not to do the testing so as not to tip off the insurancecompany. I try to eat a more "palean" diet - i.e. not much manufactured,processed foods, rather foods that I know where they come from.I'm happy to help with cooking questions. And I'd love to know whatrestaurants you find that we can safely eat at.Connie _____ From: [mailto: ]On Behalf Of piglet95037Sent: Wednesday, October 04, 2006 6:59 PM Subject:

[ ] Hi, my name is...Hi all. We've had a sudden influx of new members, so maybe we can eachtake a chance to (re)introduce ourselves...I'll go first.Hi, I'm Carla. I'll be 27 on Saturday. I grew up in the south bay, butrecently relocated to Chico for a was short-term (now year long)assignment.I was diagnosed earlier this year. I'm also allergic to bananas, rawcarrots, aspirin and penicillin.I'm not the best cook, and really unsure of myself and my ability tochange recipes to be gf, but I'm trying. Oh, and my rommie is a greatcook, so that's a major plus.So, please, introduce yourself. It's always nice to know who else isreading.Carlabored in Chico, CA (and missing the Bay) Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (5) 1b. Re: Hi, my name is... Posted by: "LSBlondie@..." LSBlondie@... lori_shigo Thu Oct 5, 2006 10:56 am (PST) My name is Lori. I'll be 25 next month. I'm a newlywed (married in June) to a wonderful man who is VERY supportive with this whole new way of

life. We live in San Francisco....but moving to New Hampshire in two weeks.I was diagnosed 3 years ago and was lucky enough to join this group and make friends with Sue....who has been a god send in terms of helping me cope and learn. I go to Dr. Aron - who's a local celebrity in terms of Celiac disease. I was diagnosed throughI've always been a bit of a health nut so I eat alot of meats, fish, fruits, veggies and dairy. I was never big on breads and sweets so luckily it was pretty easy to go GF (except for the eating out part) When I am craving sweets though...I cannot resist Wholefoods Chocolate Chip cookies! Or I make some of my killer Orange Chocolate Chip biscotti :0)-----Original Message-----From: conniehampton-researchTo: Sent: Thu, 5 Oct 2006 9:12 AMSubject: RE:

[ ] Hi, my name is...HI, My name is Connie. I’m over 50, have 3 kids, only one still at home, and a partner of 13 years. I’m a pretty good cook, having cooked from scratch for years. I live in Oakland. I was sort of diagnosed about 2 years ago, partly self diagnosed and then had a gastroenterologist agree with me, but then I decided not to do the testing so as not to tip off the insurance company. I try to eat a more “palean†diet – i.e. not much manufactured, processed foods, rather foods that I know where they come from.I’m happy to help with cooking questions. And I’d love to know what restaurants you find that we can safely eat at.Connie From: [mailto: ] On Behalf Of piglet95037Sent: Wednesday, October 04, 2006 6:59

PM Subject: [ ] Hi, my name is...Hi all. We've had a sudden influx of new members, so maybe we can eachtake a chance to (re)introduce ourselves...I'll go first.Hi, I'm Carla. I'll be 27 on Saturday. I grew up in the south bay, butrecently relocated to Chico for a was short-term (now year long)assignment.I was diagnosed earlier this year. I'm also allergic to bananas, rawcarrots, aspirin and penicillin.I'm not the best cook, and really unsure of myself and my ability tochange recipes to be gf, but I'm trying. Oh, and my rommie is a greatcook, so that's a major plus.So, please, introduce yourself. It's always nice to know who else isreading.Carlabored in Chico, CA (and missing the

Bay)__________________________________________________________Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (5) 1c. Re: Hi, my name is... Posted by: "Debbie Duncan" debbie@...

debbieduncan94305 Thu Oct 5, 2006 11:44 am (PST) Debbie. My 16-year-old daughter, Molly, was diagnosed in 1992, at the age of 20 months. She almost died of malnutrition under the eyes of about 100 doctors over the final three months of her decline. A friend of my husband's in L.A. suggested we ask about gluten intolerance. I did so (of physician #100) that afternoon. For the first time, a doctor stepped back and looked at my emaciated baby with the bloated tummy instead of at her chart. "She DOES look like a sprue kid," he said. She had a biopsy four days later and the diagnosis the following day. She also spent two more weeks in the hospital -- she was that sick.I'm a writer, and I've told this story as a My Turn column in Newsweek ("What's Wrong With Our Baby?" 4/2/92), the first issue of Living Without,

and in a couple of Bette Hagman books. The advantage of being the first to write about celiac disease to a national audience was that I received more than 150 letters from around the globe, offering advice and support. It was pre-www and before there were ANY decent prepared foods. I became a GF baker, developing a GF bread that Molly's had for breakfast nearly every day for at least 10 years!I've tried to raise Molly to take control of her diet and her celiac disease. She doesn't feel sorry for herself. She was the only kid at Rohlf's support group meetings at Stanford, until Chaitan Khosla's son was diagnosed (by Molly's pediatrician, who finally knew what it looked like). She knew she didn't want to grow up to be a whiny celiac adult. She's active over at celiac.com, led the teen part of the Stanford celiac conference the last two years, and is talking with Danna Korn about launching a new

support/advocacy/ networking group for celiac teens, TAG (Teens Against Gluten). Eating out is still a challenge, and she is now avoiding corn and soy as well as gluten.Molly's GI doc (who wasn't in on her un-diagnosis) refers newly diagnosed celiac families to me for advice and a tour of my kitchen. I help lead the local R.O.C.K group, though we're more of a presence (bayareaceliacrock) than a physical one.On Oct 5, 2006, at 10:52 AM, LSBlondieaol wrote:>> My name is Lori. I'll be 25 next month. I'm a newlywed (married in > June) to a wonderful man who is VERY supportive with this whole new > way of life. We live in San Francisco....but moving to New > Hampshire in two weeks.>> I was diagnosed 3 years ago and was lucky enough to join this group > and make friends with Sue....who has been a god send in terms of

> helping me cope and learn. I go to Dr. Aron - who's a local > celebrity in terms of Celiac disease. I was diagnosed through>> I've always been a bit of a health nut so I eat alot of meats, > fish, fruits, veggies and dairy. I was never big on breads and > sweets so luckily it was pretty easy to go GF (except for the > eating out part) When I am craving sweets though...I cannot resist > Wholefoods Chocolate Chip cookies! Or I make some of my killer > Orange Chocolate Chip biscotti :0)>>> -----Original Message-----> From: conniehampton-research> > Sent: Thu, 5 Oct 2006 9:12 AM> Subject: RE: [ ] Hi, my name is...>> HI,> My name is Connie. I’m over 50, have 3 kids, only one

still at > home, and a partner of 13 years. I’m a pretty good cook, having > cooked from scratch for years. I live in Oakland. I was sort of > diagnosed about 2 years ago, partly self diagnosed and then had a > gastroenterologist agree with me, but then I decided not to do the > testing so as not to tip off the insurance company. I try to eat > a more “palean” diet – i.e. not much manufactured, processed foods, > rather foods that I know where they come from.>> I’m happy to help with cooking questions. And I’d love to know > what restaurants you find that we can safely eat at.>> Connie>> From: > [mailto: ]On Behalf Of piglet95037> Sent: Wednesday, October 04, 2006 6:59 PM>

> Subject: [ ] Hi, my name is...>> Hi all. We've had a sudden influx of new members, so maybe we can each> take a chance to (re)introduce ourselves...>> I'll go first.>> Hi, I'm Carla. I'll be 27 on Saturday. I grew up in the south bay, but> recently relocated to Chico for a was short-term (now year long)> assignment.>> I was diagnosed earlier this year. I'm also allergic to bananas, raw> carrots, aspirin and penicillin.>> I'm not the best cook, and really unsure of myself and my ability to> change recipes to be gf, but I'm trying. Oh, and my rommie is a great> cook, so that's a major plus.>> So, please, introduce yourself. It's always nice to know who else is> reading.>> Carla>> bored in Chico, CA

(and missing the Bay)> Check out the new AOL. Most comprehensive set of free safety and > security tools, free access to millions of high-quality videos from > across the web, free AOL Mail and more.>> Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (5) 1d. Re: Hi, my name is... Posted by: "flatcat9@..." flatcat9@...

autonomous2 Thu Oct 5, 2006 12:06 pm (PST) Back to top Reply to sender | Reply to group | Reply

via web post Messages in this topic (5) 2. Re: last minute pot luck Posted by: "Suki O'Raghallaigh" suki@... xsukix Thu Oct 5, 2006 11:05 am (PST) You could bring a salad )On 10/4/06, piglet95037 <csilversteinsbcglobal (DOT) net> wrote:> It's like the subject header says. We're having a potluck at work on> Friday and I have no idea what to bring. I'm not the best cook, so> anyone with simple ideas please please respond!>> Carla>>>>>>>>

[Guest guest]

If any of you develop severe itching without -- without -- a rash, please talk to your doctor about the possibility of another autoimmune disease that affects the liver; it miust be treated promptly. Rashless itching is often the first symptom of this very serious disorder. Those of us with one autoimmune disease are at a higher risk for developing others.

Atarax often is prescribed for itching. The drawback/benefit is that it causes sleepiness. Atarax is generally free of serious, damaging side effects.

H.

In a message dated 10/6/06 5:57:41 PM, sophie65@... writes:

the itching was

back, and no matter how much medication.. I couldnt sleep, and my husband though of

handcuffs so I would stop scratching during my sleep (and wake up bleeding hands). ;-)

[Guest guest]

for me the choice was a maybe only for a short time.

first gluten error, and I couldnt live nor sleep for about 8 days... because the

itching was

back, and no matter how much medication.. I couldnt sleep, and my husband though

of

handcuffs so I would stop scratching during my sleep (and wake up bleeding

hands). ;-)

Just thinking about the itch gives me nausea ... that hides any though of

pleasure of eating

a fresh croissant.

I have to say that after a few months of diet, it got worse, but it has improved

ever since..

and tho I still have some rare extra rare blisters, I dont remember having bled

or itched in

the past year... and I dont believe that my diet has improved that much.

What I have to say, however, is that the skin never healed completely. And one

of my

finger looks " wrinkled from a long bath " . But unless you know where to look,

there is no

more excema or itch or blister anywhere. And the best of all is that I can wear

my rings

again!

As for the restriction. Over the past years, we did several types of

restrictions for food

allergy, and gluten is not the most restrictive, nor the most anoying (I'm nnot

saying it's

easy...). IMO, corn is the most nightmare-ish. Gluten free, specialy for an

adult (that is,

you can have nuts and eggs) is somehow possible to still eat some processed and

specialized food without having to cook everything. (think frozen waffles, ready

to bake

cake mixes etc).

Sophie

>

> Hi,

> My name is Jill and I live in Sunnyvale. I have just been diagnosed with

dermatitis

herpetiformis, which is a skin disorder related to celiac.

>

> Did anyone else get upset about going on this restrictive diet? I am

putting it off,

because I can't imagine giving up everything I love.

[Guest guest]

As I wrote someone else a few minutes ago, the autoimmune disease I spoke of is rare, and the itching doesn't start until it has progressed a long way. Usually, people who have it and are untreated become extremely ill before long. There are always exceptions, of course. So, it seems very unlikely that your son has it. You asked about tests; I think blood tests showing liver functions would reveal it. The formal name for the disease is autoimmune hepatitis. It's not contagious; hepatitis just means "irritation of the liver".

Itching has many, many causes, and it's hard to deal with, as I'm sure you know.

I'm sorry your son is having such a hard time. Best wishes.

H.

In a message dated 10/7/06 9:45:55 AM, sophie65@... writes:

do you have more info on that? my son itches all the time (like every single minute he has

lived so far), and reacts to atarax (so it's out).

he doesnt have any ratch, rather self inflicted cuts.

I believe it's his lactose intolerence, but I have some difficulty controling it.. and the strict

diet has been great to reduce it, but it never really stopped.

any simple test?

thanks, Sophie and .

[Guest guest]

do you have more info on that? my son itches all the time (like every single

minute he has

lived so far), and reacts to atarax (so it's out).

he doesnt have any ratch, rather self inflicted cuts.

I believe it's his lactose intolerence, but I have some difficulty controling

it.. and the strict

diet has been great to reduce it, but it never really stopped.

any simple test?

thanks, Sophie and .

>

> If any of you develop severe itching without -- without -- a rash, please

> talk to your doctor about the possibility of another autoimmune disease that

> affects the liver; it miust be treated promptly. Rashless itching is often

the

> first symptom of this very serious disorder. Those of us with one autoimmune

> disease are at a higher risk for developing others.

>

> Atarax often is prescribed for itching. The drawback/benefit is that it

> causes sleepiness. Atarax is generally free of serious, damaging side

effects.

>

> H.

[Guest guest]

thanks. I believe there were some liver test in the last blood test.

I'll keep that in the back of my mind.

Sophie

>

> As I wrote someone else a few minutes ago, the autoimmune disease I spoke of

> is rare, and the itching doesn't start until it has progressed a long way.

> Usually, people who have it and are untreated become extremely ill before

long.

> There are always exceptions, of course. So, it seems very unlikely that

> your son has it. You asked about tests; I think blood tests showing liver

> functions would reveal it. The formal name for the disease is autoimmune

> hepatitis. It's not contagious; hepatitis just means " irritation of the

liver " .

>

> Itching has many, many causes, and it's hard to deal with, as I'm sure you

> know.

>

> I'm sorry your son is having such a hard time. Best wishes.

>

> H.

>

> In a message dated 10/7/06 9:45:55 AM, sophie65@... writes:

>

> > do you have more info on that? my son itches all the time (like every

> > single minute he has

> > lived so far), and reacts to atarax (so it's out).

> > he doesnt have any ratch, rather self inflicted cuts.

> > I believe it's his lactose intolerence, but I have some difficulty

> > controling it.. and the strict

> > diet has been great to reduce it, but it never really stopped.

> >

> > any simple test?

> > thanks, Sophie and .

> >

> >

> >

>