On the Stanford Celiac Clinic

[Guest guest]

I'm , actually, not .. But I don't think I'd posted my

name. I also answer to seamaiden

Actually once they heard about the mixup, the clinic called me and

said there had been a misunderstanding and when would i like to set

up an appointment with Dr. Pyle. I think the problem was that the

Stanford student clinic was my " go-between " and may not have fully

understood the situation.

I think it sounds interesting, and both Dr. Pyle and Dr. Gray seem

like excellent doctors, and nice people as well! I was very

impressed by both of them at the celiac conference. Now that it

seems that I can reschedule the appointment, I will definitely be

changing it to a later time- I would rather have the appointment at

a later date than spend all day killing time on campus before

classes. But isn't it just the coolest coincidence that the place

I'm going to school just happens to have an actual celiac clinic? I

am still thrilled by this! I will let you all know how it goes.

>

> >There are 3 messages in this issue.

> >

> >Topics in this digest:

> >

> > 1. Relocating Back To Santa Cruz

> > From: " julieschaul " <julieschaul@...>

> > 2. Stanford Celiac Clinic

> > From: " seamaiden399 " <seamaiden399@...>

> > 3. RE: Stanford Celiac Clinic

> > From: " Barella " <lisabarella@...>

> >

> >

>

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> >Message: 1

> > Date: Fri, 24 Feb 2006 11:53:03 -0000

> > From: " julieschaul " <julieschaul@...>

> >Subject: Relocating Back To Santa Cruz

> >

> >Hi,

> >

> >I'm planning on relocating my family and I back to the Santa Cruz

> >area. The only way I can afford to do this is if I can find an

> >intentional community/house-share situation.

> >

> >I've had non-gluten free roommates in the past and to be honest,

I was

> >uncomfortable about them being in the kitchen. So, I'm going to

be

> >trying to find a housemate who's gluten free.

> >

> >Can anybody recommend some appropriate local forums in which I

can

> >post a " situation wanted " ad?

> >

> >Thanks in advance for any ideas.

> >

> >In wellness,

> >

> >

> >

> >

> >

> >

> >

> >

>

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> >

> >Message: 2

> > Date: Fri, 24 Feb 2006 19:10:32 -0000

> > From: " seamaiden399 " <seamaiden399@...>

> >Subject: Stanford Celiac Clinic

> >

> >Hi! After much procrastinating, I finally went to the Stanford

> >health center to get a referral to the Celiac Clinic.

(Convenient,

> >huh? Especially since I'm a student at Stanford..) Anyway, the

woman

> >scheduling it through the health center is a bit clueless and she

> >called me this morning saying that she had made me an appointment

> >with Dr. Gray, who she said was " not " a celiac specialist (but

> >doesn't he do all the research with celiac???), and she was

> >insistent that if they didn't have copies of my biopsies that

they

> >couldn't schedule me with " the celiac specialist " , which i assume

> >means Gail Pyle. Since I was diagnosed(through biopsy!) at 3, 26

> >years ago, of course I don't have paperwork of my biopsy stuff.

Do I

> >really need to call my mom and get her to see if she has

> >something " proving " my diagnosis?

> >

> >For anyone who has gone to the celiac, what does this appointment

> >MEAN? Lol. Do i need to call the clinic and insist on seeing

Gail,

> >or do I have to/ want to get screened by Dr. Gray anyway? Or is

he

> >the normal celiac doctor that I should be seeing anyway? I really

> >DON'T need to be diagnosed again, obviously, just want to do

> >the " follow up " stuff that they say is so important. They also

> >scheduled me for 8:30am, which in my book is somewhat like

> >scheduling an appointment for 4am... but then I'm on a freaky

grad

> >student schedule and it takes me an hour to get to Stanford. I

feel

> >very out of the loop here, which is funny 'cause this was all my

> >idea. Grrr... this is why I avoid going to the doctor!!!

> >

> >

> >

> >

> >

>

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> >

> >Message: 3

> > Date: Sat, 25 Feb 2006 00:04:01 -0500

> > From: " Barella " <lisabarella@...>

> >Subject: RE: Stanford Celiac Clinic

> >

> >

> >Seamaidan399 (name?):

> >Dr. Gray is one of the best doctors in the country for Celiac

Disease. Dr.

> >Pyle also specializes in the disease too or might be doing

training under

> >Dr. Gray (she would have to clarrify). I just met with both in

Decemeber

> >and they are both great. Either way you are in good hands and

very lucky to

> >have an appointment with both of them. An hour is no worries.

Just go and

> >you will be fine. If this means anything, I dropped about $1000

over my

> >xmas break (I am a PhD student who moved from Mountain View, CA

to NC) to

> >fly to CA to go see Dr. Gray for a follow-up visit and biopsy.

Your lucky

> >to only be an hour away and have such great care so close to you.

> >

> >Good luck and have fun,

> >

> >

> >

> >---------------------------------------------------------

> > A. Barella

> >Ph.D. Student in Exercise & Sport Psychology

> >Graduate Research and Teaching Assistant

> >Department of Exercise and Sport Science

> >The University of North Carolina at Greensboro

> >Room 250 HHP Building

> >Greensboro, NC 27402

> >Email: lisabarella@...

> >Phone/Cell (with VM): (336) 253-5539

> >Fax: (336) 545-4486

> >

> > " Come celebrate with me that everyday something has tried to kill

me / and

> >has failed " - Lucille Clifton

> >

> >

> >

> >

> >

> >>From: " seamaiden399 " <seamaiden399@...>

> >>Reply-

> >>

> >>Subject: [ ] Stanford Celiac Clinic

> >>Date: Fri, 24 Feb 2006 19:10:32 -0000

> >>

> >>Hi! After much procrastinating, I finally went to the Stanford

> >>health center to get a referral to the Celiac Clinic.

(Convenient,

> >>huh? Especially since I'm a student at Stanford..) Anyway, the

woman

> >>scheduling it through the health center is a bit clueless and she

> >>called me this morning saying that she had made me an appointment

> >>with Dr. Gray, who she said was " not " a celiac specialist (but

> >>doesn't he do all the research with celiac???), and she was

> >>insistent that if they didn't have copies of my biopsies that

they

> >>couldn't schedule me with " the celiac specialist " , which i assume

> >>means Gail Pyle. Since I was diagnosed(through biopsy!) at 3, 26

> >>years ago, of course I don't have paperwork of my biopsy stuff.

Do I

> >>really need to call my mom and get her to see if she has

> >>something " proving " my diagnosis?

> >>

> >>For anyone who has gone to the celiac, what does this appointment

> >>MEAN? Lol. Do i need to call the clinic and insist on seeing

Gail,

> >>or do I have to/ want to get screened by Dr. Gray anyway? Or is

he

> >>the normal celiac doctor that I should be seeing anyway? I really

> >>DON'T need to be diagnosed again, obviously, just want to do

> >>the " follow up " stuff that they say is so important. They also

> >>scheduled me for 8:30am, which in my book is somewhat like

> >>scheduling an appointment for 4am... but then I'm on a freaky

grad

> >>student schedule and it takes me an hour to get to Stanford. I

feel

> >>very out of the loop here, which is funny 'cause this was all my

> >>idea. Grrr... this is why I avoid going to the doctor!!!

> >>

> >>

> >>

> >

> >

> >

> >

>

>____________________________________________________________________

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> >

> >

> >------------------------------------------------------------------

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> >

[Guest guest]

From: " Carol Powers " <cwpowers@...>

> I would like to echo 's comments about the Celiac Clinic

> and well as 's. My care from Dr. Pyle and the nutritionist

> was just what I needed as a new celiac. Lots of good

> information and very supportive

I'm happy to hear that..... :-) I was just diagnosed this year

and my upcoming appointment with Dr Gray in March will be

my first visit with anyone post-diagnosis.

Truthfully - I really have no idea what to expect from this visit

or ongoing visits (annual checkup means what and why?), so

I've just been keeping a list of questions that pop into my head

as I think of them.

-patrick