Fw: Bay Area Celiac News...December 2004

[Guest guest]

Note: the celiac documentary " Gut Reaction " will play on KAZU this Wednesday,

Dec 22. See below for details. If you are in the KAZU listening area be sure

to let the station know you appreciate the program. Note that Rob Mullen is not

the correct contact for KUSP; I'll send more info on this later.

Pam

-----Forwarded Message-----

From: Deutsch <deutschm@...>

Sent: Dec 18, 2004 12:00 PM

Martha Deutsch <deutschm@...>

Subject: Bay Area Celiac News...December 2004

SF BAY AREA CELIAC NEWS….DECEMBER 2004

STANFORD

Contact Rohlfs, 650-725-4771

kellyr@...

The Stanford Support Group invites you to a luncheon event

in San on Sunday, January 16, that will include a raffle

and bake sale. (See separate email.) Proceeds will support

the Celiac Sprue Management Clinic at Stanford Hospital

that is set to open in January 2005. The clinic will be staffed

by Dr. Gray, Dr. Gail Pyle (Dr. Pyle is also a Celiac), and

a dietician. The purpose of the clinic is to provide long-term

medical and nutritional support for adult Celiacs, and will

include (1) close guidance for newly-diagnosed Celiacs to

help them return to health; (2) yearly follow-up examinations

of Celiacs who are doing well in order to assess disease

activity and screen for potential complications such as

nutritional deficiencies; (3) help to Celiacs who are having

problems managing the disease.

To schedule an appointment call 650-723-6961. Stanford

accepts several insurance plans, including many PPOs,

MediCal, and Medicare. Please call 650-724-1460 for any

insurance questions.

Thank you to the generous donors who are helping to

make this clinic possible:

Friends ($100+): Carol Fenster, Savory Palate; Rena ;

Haight; Sam & Blank; Jerry & Gloria Norfleet;

Stanford Celiac Support Group

Donors ($50): Harold & Marilyn Hosfeldt; Lanum;

& Noella Magnuson; andra Mayer

To date we have raised $1,160 of the $25,000 needed in

2005 to keep the clinic open. Together we can reach our

goal. With over 700 families on the Bay Area mailing list,

we know that our celiac community is growing. Please

consider making a tax deductible donation to fund the

clinic. Checks can be payable to the Celiac Sprue

Research Foundation and mailed to P.O. Box 61193,

Palo Alto, CA 94306-1193, with a note that the donation

is for the clinic, or donations can be made via credit

card using PayPal at http://www.celiacsprue.org.

Note to Celiacs in search of coffee with gluten free treats:

Global Blends in Mountain View now has a better stock

of the frozen gluten free bread from " I Can Eat That "

bakery. They also carry frozen pizza crust, focaccia,

and cinnamon rolls, and serve sandwiches made from

the focaccia. Please call ahead to order the frozen breads,

to be sure they are available: 650-254-1110. They are also

baking wonderful fresh blueberry pineapple muffins each

morning. What a treat with their great coffee!

SANTA CRUZ

Contact Pam Newbury, 831-423-6904

pknewbury@...

The Santa Cruz Support Group will meet on Saturday,

January 29 at 11am, in meeting room 1 at Dominican

Hospital, 1555 Soquel Drive, Santa Cruz. This will be

a general meeting for discussion and questions, and

a chance for experienced and newly diagnosed celiacs

to share experiences and ideas. The meeting will

conclude with a gluten free potluck lunch, so please

bring a gluten free lunch item to share, with a list of

ingredients or the recipe. (This is optional for those

who are very ill or unfamiliar with the gluten free diet.)

The meeting is open to all who are interested. For

more information contact Pam.

OAKLAND

Contact Ellen Switkes, 510-655-0215 (evenings/weekends)

ellen.switkes@...

February 26 is the tentative date for our next meeting.

BAY AREA ROCK

Contact Velez at 650-216-6405

kelly.velez@....

EAST BAY ROCK

Contact Dana Sylvester-Doscher, 925-648-3217

ddoscher11@...

Dana is working with Elayne of the

Family Foundation on getting dates for a Gluten

Free Kids' camp this coming summer at their

Livermore Arroyo Vista campsite.

SF ROCK

Contact Palmer, 415-647-7669

palmer@...

We are planning to have a ROCK parent/children

Valentine party in early February. (no date yet)

NAPA

Contact Marie Dell'Isola, 707-255-4027

(no meetings planned but welcomes phone calls)

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DOCUMENTARY ON CELIAC DISEASE WILL

AIR ON KAZU 90.3FM (PUBLIC RADIO STATION

IN PACIFIC GROVE) DECEMBER 22 at 10PM

The show is called " Gut Reaction " and it tells the

story of a life with CD (the pain, discomfort, confusion,

frustration, embarrassment, discovery and recovery)

through the voices of Celiacs.

Produced by of rlpaulproductions, LLC,

the program will air as part of the public radio documentary

series " Soundprint. " For those who cannot hear this

broadcast, Pam Newbury has recommendeded that we

contact local NPR stations to indicate our interest.

The stations and who to contact:

KUSP, Monterey Peninsula: Rob Mullen, 831-477-4500,

pd@...

KAZU, Santa Cruz: McNally, 831-375-7275,

mail@...

KQED, San Francisco, San : Jo Ann Wallace

415-864-2000, fm@...

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GIFT BASKETS FOR CELIACS

L. Gummels has just opened a new business,

The Picky Palate, a unique gift basket company

specializing in baskets, boxes and buckets filled

with organic, all natural food and gift items, catering

to people with food allergies, strict dietary lifestyles

and people who just want to eat healthy. She can

provide all gluten free options for celiacs. You may

visit her website www.pickypalategifts.com or contact

her at 678-648-6954, e-mail info@....

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Note to Bay Area Celiacs:

To subscribe or report address changes, please send

your name, address, phone number and e-mail address

to Martha Deutsch, 341 Central Ave, Half Moon Bay

94019, 650-726-9562, deutschm@....

This list is confidential and will be used only to keep

you informed of local celiac activities and important

celiac concerns the group leaders wish to share.

Even if you do not participate in a group, all of the

leaders are happy to answer questions and refer you

to other resources.