Update on my son: Good news!

[Guest guest]

Thank you for sharing your story. It made me cry (in a good way) We are

trying to start chelating but my son is just so hard to get supplements into

him.

He is doing LDN and MB12 injections and some homeopath. If the supplements

would just come in a cream it would be great! Congratulations to your son!

God

Bless

Cherie

[Guest guest]

In a message dated 02/09/2005 22:32:00 GMT Daylight Time, mysuperteach@... writes:

I wanted to post this because I'm happy, because I want to share the good news with so many of you who have offered such incredible help, and because maybe some people who are trying to decide whether to chelate or not will be helped. So...My son was damaged by flu vaccinations while on antibiotics. I didn't even consider this possibility at first. Or even second or third. But the more I read, the more of our videos of his before and after behaviour that I watched, the more I was convinced. Prior to these vaccinations he spoke about 80 words, was affectionate, involved, funny. Just a normal kid. Two months after the first vaccination, at the age of 23 months, he was withdrawn, almost non-verbal, obsessed with movies and dropping action figures over the edge of the couch. He started biting himself very hard and banging his head against chairs. He no longer acknowledged anyone except me, and generally he just wanted to twirl the rings on my fingers until his nails were torn and my fingers were swollen. He stopped sleeping well at night. His poops became soft and wierd. He didn't want to run or play anymore. Eye contact was gone. Many of you know exactly what I am describing.Just prior to his second birthday, we went GFCF. He stopped hurting himself and we were joyful. He started sleeping better. We began supplementing, giving epsom salt baths and using Floortime. He made some progress. A few words came back. After about 6 weeks, he would smile a bit a couple times a day. Our floortime therapy was devoted entirely to trying to make him happy. We wanted to close circles of communication that involved a smile, or maybe even a laugh or a caress. Progress was slow but noticeable. We didn't even try to teach him language or skills, even though we now had 45 minutes of ST every second week (I simply gathered information to put into practice later). We had the idea right from the beginning that we were going to fix things from the inside out.Fifteen supplements into things, diet now low soy, phenol and sugar, and some pretty decent floortime skills under my belt and progress was still back and forth. The improvements that stuck involved level of happiness. My son could now laugh when tickled, at least some of the time. He could smile if you fell down in a spectacular kind of way. He started jumping on our bed in a manner that no longer looked like an obsession, but looked like fun. Once in a while, he would look up if you called his name. Maybe three times a week, he would approach me from behind while I sat on the floor and hug me. We had a few weeks of great language improvement, up to about 50 different words within one week, but then gone again. We were happy with our efforts over the past six months, and joyful with the progress, but we knew that we could do better. We knew we had to address the reason why, in spite of our efforts, our son continued to lose skills/language/behaviours that he had just learned.We then started chelation, using Andy's protocol. DMSA/ALA every three hours. We've finished five rounds in five weeks. At the end of the last round, my son hugged his dad. Something that hasn't happened in eight months. My son looked up at me from the bed the other day, held up an arm and said "nuggle", a word he used to use 10 times a day. And then we nuggled, his cheek against mine, just like we used to do before his regression. Eye contact can sometimes last 15 or 20 seconds, up from 1 or 2 seconds at most. He can play pat-a-cake with his hands now (as opposed to only feet that we would move for him) and he even grabbed my hands and held them still as a joke. With a smile on his face! Some of these changes began before chelation. But now they are coming faster and faster and they seem to be sticking. The word nuggle three days in row, as opposed to once and then gone again for months. Calling his sister's name when she's gone, rather than ignoring her completely while she's around. Watching some kids play on their bikes at the park, instead of swinging obsessively like he's alone in the world. I read not too long ago a post where someone mentioned a "spark" in their child after changing dosing schedules (and thank you VERY much for sharing that!). That's what we see too. That spark, that used to be in his eyes always, had disappeared. It is coming back now, for longer and longer stretches. We have far to go. And for anyone just starting this process, I know that write-ups like this make it all seem very quick and orderly, but it's not like that. It's starting supps and then taking them away. And then starting new supps that you should have had in place first, and restarting the old supps, but at a lower dose. It's assuming you might know what you're doing for once, until you start trying to do it, and then it suddenly seems very confusing, and you have to write your listmates again, and again, and again. It's wondering if you're making the right decisions even when the progress is staring you right in the face because how bloody ludicrous is it that someone who is supposed to protect my child from harm would poison him on purpose? If you can get your mind around that seeming impossibility, you can take the steps to get your child better.There are hardships, most certainly. Hardships of all kinds, and I know that my son's condition is not nearly as severe as many I have read about on this board. But there are many pleasures too. Like getting up twice a night to chelate and being very, very happy about doing so--I mean skipping to the fridge, smiling! Or having your kid look into your eyes and bragging about it when your husband gets home, and both of you tearing up with joy. Or your older son running upstairs to report that his little brother just played drawing with him for five minutes withough interruption. This is longer than I meant it to be, yet I've left out 99% (thank goodness you say). Thank you so much to everyone on this list who has given of their limited time and energy to help and encourage me. And an enormously tearful and heartfelt thank you to Andy whose protocol has made this possible. Anita

I wanted to post this because I'm happy, because I want to share the

good news with so many of you who have offered such incredible help,

and because maybe some people who are trying to decide whether to

chelate or not will be helped. So...

My son was damaged by flu vaccinations while on antibiotics. I

didn't even consider this possibility at first. Or even second or

third. But the more I read, the more of our videos of his before

and after behaviour that I watched, the more I was convinced. Prior

to these vaccinations he spoke about 80 words, was affectionate,

involved, funny. Just a normal kid. Two months after the first

vaccination, at the age of 23 months, he was withdrawn, almost non-

verbal, obsessed with movies and dropping action figures over the

edge of the couch. He started biting himself very hard and banging

his head against chairs. He no longer acknowledged anyone except

me, and generally he just wanted to twirl the rings on my fingers

until his nails were torn and my fingers were swollen. He stopped

sleeping well at night. His poops became soft and wierd. He didn't

want to run or play anymore. Eye contact was gone. Many of you

know exactly what I am describing.

Just prior to his second birthday, we went GFCF. He stopped hurting

himself and we were joyful. He started sleeping better. We began

supplementing, giving epsom salt baths and using Floortime. He made

some progress. A few words came back. After about 6 weeks, he

would smile a bit a couple times a day. Our floortime therapy was

devoted entirely to trying to make him happy. We wanted to close

circles of communication that involved a smile, or maybe even a

laugh or a caress. Progress was slow but noticeable. We didn't

even try to teach him language or skills, even though we now had 45

minutes of ST every second week (I simply gathered information to

put into practice later). We had the idea right from the beginning

that we were going to fix things from the inside out.

Fifteen supplements into things, diet now low soy, phenol and sugar,

and some pretty decent floortime skills under my belt and progress

was still back and forth. The improvements that stuck involved

level of happiness. My son could now laugh when tickled, at least

some of the time. He could smile if you fell down in a spectacular

kind of way. He started jumping on our bed in a manner that no

longer looked like an obsession, but looked like fun. Once in a

while, he would look up if you called his name. Maybe three times

a week, he would approach me from behind while I sat on the floor

and hug me. We had a few weeks of great language improvement, up to

about 50 different words within one week, but then gone again. We

were happy with our efforts over the past six months, and joyful

with the progress, but we knew that we could do better. We knew we

had to address the reason why, in spite of our efforts, our son

continued to lose skills/language/behaviours that he had just

learned.

We then started chelation, using Andy's protocol. DMSA/ALA every

three hours. We've finished five rounds in five weeks. At the end

of the last round, my son hugged his dad. Something that hasn't

happened in eight months. My son looked up at me from the bed the

other day, held up an arm and said " nuggle " , a word he used to use

10 times a day. And then we nuggled, his cheek against mine, just

like we used to do before his regression. Eye contact can sometimes

last 15 or 20 seconds, up from 1 or 2 seconds at most. He can play

pat-a-cake with his hands now (as opposed to only feet that we would

move for him) and he even grabbed my hands and held them still as a

joke. With a smile on his face! Some of these changes began

before chelation. But now they are coming faster and faster and

they seem to be sticking. The word nuggle three days in row, as

opposed to once and then gone again for months. Calling his

sister's name when she's gone, rather than ignoring her completely

while she's around. Watching some kids play on their bikes at the

park, instead of swinging obsessively like he's alone in the world.

I read not too long ago a post where someone mentioned a " spark " in

their child after changing dosing schedules (and thank you VERY much

for sharing that!). That's what we see too. That spark, that used

to be in his eyes always, had disappeared. It is coming back now,

for longer and longer stretches.

We have far to go. And for anyone just starting this process, I

know that write-ups like this make it all seem very quick and

orderly, but it's not like that. It's starting supps and then

taking them away. And then starting new supps that you should have

had in place first, and restarting the old supps, but at a lower

dose. It's assuming you might know what you're doing for once,

until you start trying to do it, and then it suddenly seems very

confusing, and you have to write your listmates again, and again,

and again. It's wondering if you're making the right decisions even

when the progress is staring you right in the face because how

bloody ludicrous is it that someone who is supposed to protect my

child from harm would poison him on purpose? If you can get your

mind around that seeming impossibility, you can take the steps to

get your child better.

There are hardships, most certainly. Hardships of all kinds, and I

know that my son's condition is not nearly as severe as many I have

read about on this board. But there are many pleasures too. Like

getting up twice a night to chelate and being very, very happy about

doing so--I mean skipping to the fridge, smiling! Or having your

kid look into your eyes and bragging about it when your husband gets

home, and both of you tearing up with joy. Or your older son

running upstairs to report that his little brother just played

drawing with him for five minutes withough interruption.

This is longer than I meant it to be, yet I've left out 99% (thank

goodness you say). Thank you so much to everyone on this list who

has given of their limited time and energy to help and encourage

me. And an enormously tearful and heartfelt thank you to Andy whose

protocol has made this possible.

Anita

=======================================================

[Guest guest]

I wanted to post this because I'm happy, because I want to share the

good news with so many of you who have offered such incredible help,

and because maybe some people who are trying to decide whether to

chelate or not will be helped. So...

My son was damaged by flu vaccinations while on antibiotics. I

didn't even consider this possibility at first. Or even second or

third. But the more I read, the more of our videos of his before

and after behaviour that I watched, the more I was convinced. Prior

to these vaccinations he spoke about 80 words, was affectionate,

involved, funny. Just a normal kid. Two months after the first

vaccination, at the age of 23 months, he was withdrawn, almost non-

verbal, obsessed with movies and dropping action figures over the

edge of the couch. He started biting himself very hard and banging

his head against chairs. He no longer acknowledged anyone except

me, and generally he just wanted to twirl the rings on my fingers

until his nails were torn and my fingers were swollen. He stopped

sleeping well at night. His poops became soft and wierd. He didn't

want to run or play anymore. Eye contact was gone. Many of you

know exactly what I am describing.

Just prior to his second birthday, we went GFCF. He stopped hurting

himself and we were joyful. He started sleeping better. We began

supplementing, giving epsom salt baths and using Floortime. He made

some progress. A few words came back. After about 6 weeks, he

would smile a bit a couple times a day. Our floortime therapy was

devoted entirely to trying to make him happy. We wanted to close

circles of communication that involved a smile, or maybe even a

laugh or a caress. Progress was slow but noticeable. We didn't

even try to teach him language or skills, even though we now had 45

minutes of ST every second week (I simply gathered information to

put into practice later). We had the idea right from the beginning

that we were going to fix things from the inside out.

Fifteen supplements into things, diet now low soy, phenol and sugar,

and some pretty decent floortime skills under my belt and progress

was still back and forth. The improvements that stuck involved

level of happiness. My son could now laugh when tickled, at least

some of the time. He could smile if you fell down in a spectacular

kind of way. He started jumping on our bed in a manner that no

longer looked like an obsession, but looked like fun. Once in a

while, he would look up if you called his name. Maybe three times

a week, he would approach me from behind while I sat on the floor

and hug me. We had a few weeks of great language improvement, up to

about 50 different words within one week, but then gone again. We

were happy with our efforts over the past six months, and joyful

with the progress, but we knew that we could do better. We knew we

had to address the reason why, in spite of our efforts, our son

continued to lose skills/language/behaviours that he had just

learned.

We then started chelation, using Andy's protocol. DMSA/ALA every

three hours. We've finished five rounds in five weeks. At the end

of the last round, my son hugged his dad. Something that hasn't

happened in eight months. My son looked up at me from the bed the

other day, held up an arm and said " nuggle " , a word he used to use

10 times a day. And then we nuggled, his cheek against mine, just

like we used to do before his regression. Eye contact can sometimes

last 15 or 20 seconds, up from 1 or 2 seconds at most. He can play

pat-a-cake with his hands now (as opposed to only feet that we would

move for him) and he even grabbed my hands and held them still as a

joke. With a smile on his face! Some of these changes began

before chelation. But now they are coming faster and faster and

they seem to be sticking. The word nuggle three days in row, as

opposed to once and then gone again for months. Calling his

sister's name when she's gone, rather than ignoring her completely

while she's around. Watching some kids play on their bikes at the

park, instead of swinging obsessively like he's alone in the world.

I read not too long ago a post where someone mentioned a " spark " in

their child after changing dosing schedules (and thank you VERY much

for sharing that!). That's what we see too. That spark, that used

to be in his eyes always, had disappeared. It is coming back now,

for longer and longer stretches.

We have far to go. And for anyone just starting this process, I

know that write-ups like this make it all seem very quick and

orderly, but it's not like that. It's starting supps and then

taking them away. And then starting new supps that you should have

had in place first, and restarting the old supps, but at a lower

dose. It's assuming you might know what you're doing for once,

until you start trying to do it, and then it suddenly seems very

confusing, and you have to write your listmates again, and again,

and again. It's wondering if you're making the right decisions even

when the progress is staring you right in the face because how

bloody ludicrous is it that someone who is supposed to protect my

child from harm would poison him on purpose? If you can get your

mind around that seeming impossibility, you can take the steps to

get your child better.

There are hardships, most certainly. Hardships of all kinds, and I

know that my son's condition is not nearly as severe as many I have

read about on this board. But there are many pleasures too. Like

getting up twice a night to chelate and being very, very happy about

doing so--I mean skipping to the fridge, smiling! Or having your

kid look into your eyes and bragging about it when your husband gets

home, and both of you tearing up with joy. Or your older son

running upstairs to report that his little brother just played

drawing with him for five minutes withough interruption.

This is longer than I meant it to be, yet I've left out 99% (thank

goodness you say). Thank you so much to everyone on this list who

has given of their limited time and energy to help and encourage

me. And an enormously tearful and heartfelt thank you to Andy whose

protocol has made this possible.

Anita

[Guest guest]

Very eloquent, Anita. Fabulous news! I had the same feeling at the

beginning of chelation -- dreading those nighttime doses until we

actually started, and then so happy to do it once I saw the result.

Hooray for all of you!

Nell

[Guest guest]

That was very inspirational Anita. Thanks for sharing it.

[ ] Update on my son: Good news!

I wanted to post this because I'm happy, because I want to share the

good news with so many of you who have offered such incredible help,

and because maybe some people who are trying to decide whether to

chelate or not will be helped. So...

My son was damaged by flu vaccinations while on antibiotics. I

didn't even consider this possibility at first. Or even second or

third. But the more I read, the more of our videos of his before

and after behaviour that I watched, the more I was convinced. Prior

to these vaccinations he spoke about 80 words, was affectionate,

involved, funny. Just a normal kid. Two months after the first

vaccination, at the age of 23 months, he was withdrawn, almost non-

verbal, obsessed with movies and dropping action figures over the

edge of the couch. He started biting himself very hard and banging

his head against chairs. He no longer acknowledged anyone except

me, and generally he just wanted to twirl the rings on my fingers

until his nails were torn and my fingers were swollen. He stopped

sleeping well at night. His poops became soft and wierd. He didn't

want to run or play anymore. Eye contact was gone. Many of you

know exactly what I am describing.

Just prior to his second birthday, we went GFCF. He stopped hurting

himself and we were joyful. He started sleeping better. We began

supplementing, giving epsom salt baths and using Floortime. He made

some progress. A few words came back. After about 6 weeks, he

would smile a bit a couple times a day. Our floortime therapy was

devoted entirely to trying to make him happy. We wanted to close

circles of communication that involved a smile, or maybe even a

laugh or a caress. Progress was slow but noticeable. We didn't

even try to teach him language or skills, even though we now had 45

minutes of ST every second week (I simply gathered information to

put into practice later). We had the idea right from the beginning

that we were going to fix things from the inside out.

Fifteen supplements into things, diet now low soy, phenol and sugar,

and some pretty decent floortime skills under my belt and progress

was still back and forth. The improvements that stuck involved

level of happiness. My son could now laugh when tickled, at least

some of the time. He could smile if you fell down in a spectacular

kind of way. He started jumping on our bed in a manner that no

longer looked like an obsession, but looked like fun. Once in a

while, he would look up if you called his name. Maybe three times

a week, he would approach me from behind while I sat on the floor

and hug me. We had a few weeks of great language improvement, up to

about 50 different words within one week, but then gone again. We

were happy with our efforts over the past six months, and joyful

with the progress, but we knew that we could do better. We knew we

had to address the reason why, in spite of our efforts, our son

continued to lose skills/language/behaviours that he had just

learned.

We then started chelation, using Andy's protocol. DMSA/ALA every

three hours. We've finished five rounds in five weeks. At the end

of the last round, my son hugged his dad. Something that hasn't

happened in eight months. My son looked up at me from the bed the

other day, held up an arm and said " nuggle " , a word he used to use

10 times a day. And then we nuggled, his cheek against mine, just

like we used to do before his regression. Eye contact can sometimes

last 15 or 20 seconds, up from 1 or 2 seconds at most. He can play

pat-a-cake with his hands now (as opposed to only feet that we would

move for him) and he even grabbed my hands and held them still as a

joke. With a smile on his face! Some of these changes began

before chelation. But now they are coming faster and faster and

they seem to be sticking. The word nuggle three days in row, as

opposed to once and then gone again for months. Calling his

sister's name when she's gone, rather than ignoring her completely

while she's around. Watching some kids play on their bikes at the

park, instead of swinging obsessively like he's alone in the world.

I read not too long ago a post where someone mentioned a " spark " in

their child after changing dosing schedules (and thank you VERY much

for sharing that!). That's what we see too. That spark, that used

to be in his eyes always, had disappeared. It is coming back now,

for longer and longer stretches.

We have far to go. And for anyone just starting this process, I

know that write-ups like this make it all seem very quick and

orderly, but it's not like that. It's starting supps and then

taking them away. And then starting new supps that you should have

had in place first, and restarting the old supps, but at a lower

dose. It's assuming you might know what you're doing for once,

until you start trying to do it, and then it suddenly seems very

confusing, and you have to write your listmates again, and again,

and again. It's wondering if you're making the right decisions even

when the progress is staring you right in the face because how

bloody ludicrous is it that someone who is supposed to protect my

child from harm would poison him on purpose? If you can get your

mind around that seeming impossibility, you can take the steps to

get your child better.

There are hardships, most certainly. Hardships of all kinds, and I

know that my son's condition is not nearly as severe as many I have

read about on this board. But there are many pleasures too. Like

getting up twice a night to chelate and being very, very happy about

doing so--I mean skipping to the fridge, smiling! Or having your

kid look into your eyes and bragging about it when your husband gets

home, and both of you tearing up with joy. Or your older son

running upstairs to report that his little brother just played

drawing with him for five minutes withough interruption.

This is longer than I meant it to be, yet I've left out 99% (thank

goodness you say). Thank you so much to everyone on this list who

has given of their limited time and energy to help and encourage

me. And an enormously tearful and heartfelt thank you to Andy whose

protocol has made this possible.

Anita

=======================================================

[Guest guest]

Anita -

Good news! Absolutely amazing story. I always say that we are the lucky ones,

in a way, because we are joyous over every small gain, every little smile that

we work so hard to get. Congratulations to you and your family!

Ruth

Anita Kugelstadt <mysuperteach@...> wrote:

I wanted to post this because I'm happy, because I want to share the

good news with so many of you who have offered such incredible help,

and because maybe some people who are trying to decide whether to

chelate or not will be helped. So...

My son was damaged by flu vaccinations while on antibiotics. I

didn't even consider this possibility at first. Or even second or

third. But the more I read, the more of our videos of his before

and after behaviour that I watched, the more I was convinced. Prior

to these vaccinations he spoke about 80 words, was affectionate,

involved, funny. Just a normal kid. Two months after the first

vaccination, at the age of 23 months, he was withdrawn, almost non-

verbal, obsessed with movies and dropping action figures over the

edge of the couch. He started biting himself very hard and banging

his head against chairs. He no longer acknowledged anyone except

me, and generally he just wanted to twirl the rings on my fingers

until his nails were torn and my fingers were swollen. He stopped

sleeping well at night. His poops became soft and wierd. He didn't

want to run or play anymore. Eye contact was gone. Many of you

know exactly what I am describing.

Just prior to his second birthday, we went GFCF. He stopped hurting

himself and we were joyful. He started sleeping better. We began

supplementing, giving epsom salt baths and using Floortime. He made

some progress. A few words came back. After about 6 weeks, he

would smile a bit a couple times a day. Our floortime therapy was

devoted entirely to trying to make him happy. We wanted to close

circles of communication that involved a smile, or maybe even a

laugh or a caress. Progress was slow but noticeable. We didn't

even try to teach him language or skills, even though we now had 45

minutes of ST every second week (I simply gathered information to

put into practice later). We had the idea right from the beginning

that we were going to fix things from the inside out.

Fifteen supplements into things, diet now low soy, phenol and sugar,

and some pretty decent floortime skills under my belt and progress

was still back and forth. The improvements that stuck involved

level of happiness. My son could now laugh when tickled, at least

some of the time. He could smile if you fell down in a spectacular

kind of way. He started jumping on our bed in a manner that no

longer looked like an obsession, but looked like fun. Once in a

while, he would look up if you called his name. Maybe three times

a week, he would approach me from behind while I sat on the floor

and hug me. We had a few weeks of great language improvement, up to

about 50 different words within one week, but then gone again. We

were happy with our efforts over the past six months, and joyful

with the progress, but we knew that we could do better. We knew we

had to address the reason why, in spite of our efforts, our son

continued to lose skills/language/behaviours that he had just

learned.

We then started chelation, using Andy's protocol. DMSA/ALA every

three hours. We've finished five rounds in five weeks. At the end

of the last round, my son hugged his dad. Something that hasn't

happened in eight months. My son looked up at me from the bed the

other day, held up an arm and said " nuggle " , a word he used to use

10 times a day. And then we nuggled, his cheek against mine, just

like we used to do before his regression. Eye contact can sometimes

last 15 or 20 seconds, up from 1 or 2 seconds at most. He can play

pat-a-cake with his hands now (as opposed to only feet that we would

move for him) and he even grabbed my hands and held them still as a

joke. With a smile on his face! Some of these changes began

before chelation. But now they are coming faster and faster and

they seem to be sticking. The word nuggle three days in row, as

opposed to once and then gone again for months. Calling his

sister's name when she's gone, rather than ignoring her completely

while she's around. Watching some kids play on their bikes at the

park, instead of swinging obsessively like he's alone in the world.

I read not too long ago a post where someone mentioned a " spark " in

their child after changing dosing schedules (and thank you VERY much

for sharing that!). That's what we see too. That spark, that used

to be in his eyes always, had disappeared. It is coming back now,

for longer and longer stretches.

We have far to go. And for anyone just starting this process, I

know that write-ups like this make it all seem very quick and

orderly, but it's not like that. It's starting supps and then

taking them away. And then starting new supps that you should have

had in place first, and restarting the old supps, but at a lower

dose. It's assuming you might know what you're doing for once,

until you start trying to do it, and then it suddenly seems very

confusing, and you have to write your listmates again, and again,

and again. It's wondering if you're making the right decisions even

when the progress is staring you right in the face because how

bloody ludicrous is it that someone who is supposed to protect my

child from harm would poison him on purpose? If you can get your

mind around that seeming impossibility, you can take the steps to

get your child better.

There are hardships, most certainly. Hardships of all kinds, and I

know that my son's condition is not nearly as severe as many I have

read about on this board. But there are many pleasures too. Like

getting up twice a night to chelate and being very, very happy about

doing so--I mean skipping to the fridge, smiling! Or having your

kid look into your eyes and bragging about it when your husband gets

home, and both of you tearing up with joy. Or your older son

running upstairs to report that his little brother just played

drawing with him for five minutes withough interruption.

This is longer than I meant it to be, yet I've left out 99% (thank

goodness you say). Thank you so much to everyone on this list who

has given of their limited time and energy to help and encourage

me. And an enormously tearful and heartfelt thank you to Andy whose

protocol has made this possible.

Anita

=======================================================

[Guest guest]

Anita,

did you have any testing done before you start chelation? Do you have detailed

info of Andy's protocol?

Thanks,

Yi

" Setlak, Dan & Ruth " <dan-ruth-setlak@...> wrote:

Anita -

Good news! Absolutely amazing story. I always say that we are the lucky ones,

in a way, because we are joyous over every small gain, every little smile that

we work so hard to get. Congratulations to you and your family!

Ruth

Anita Kugelstadt <mysuperteach@...> wrote:

I wanted to post this because I'm happy, because I want to share the

good news with so many of you who have offered such incredible help,

and because maybe some people who are trying to decide whether to

chelate or not will be helped. So...

My son was damaged by flu vaccinations while on antibiotics. I

didn't even consider this possibility at first. Or even second or

third. But the more I read, the more of our videos of his before

and after behaviour that I watched, the more I was convinced. Prior

to these vaccinations he spoke about 80 words, was affectionate,

involved, funny. Just a normal kid. Two months after the first

vaccination, at the age of 23 months, he was withdrawn, almost non-

verbal, obsessed with movies and dropping action figures over the

edge of the couch. He started biting himself very hard and banging

his head against chairs. He no longer acknowledged anyone except

me, and generally he just wanted to twirl the rings on my fingers

until his nails were torn and my fingers were swollen. He stopped

sleeping well at night. His poops became soft and wierd. He didn't

want to run or play anymore. Eye contact was gone. Many of you

know exactly what I am describing.

Just prior to his second birthday, we went GFCF. He stopped hurting

himself and we were joyful. He started sleeping better. We began

supplementing, giving epsom salt baths and using Floortime. He made

some progress. A few words came back. After about 6 weeks, he

would smile a bit a couple times a day. Our floortime therapy was

devoted entirely to trying to make him happy. We wanted to close

circles of communication that involved a smile, or maybe even a

laugh or a caress. Progress was slow but noticeable. We didn't

even try to teach him language or skills, even though we now had 45

minutes of ST every second week (I simply gathered information to

put into practice later). We had the idea right from the beginning

that we were going to fix things from the inside out.

Fifteen supplements into things, diet now low soy, phenol and sugar,

and some pretty decent floortime skills under my belt and progress

was still back and forth. The improvements that stuck involved

level of happiness. My son could now laugh when tickled, at least

some of the time. He could smile if you fell down in a spectacular

kind of way. He started jumping on our bed in a manner that no

longer looked like an obsession, but looked like fun. Once in a

while, he would look up if you called his name. Maybe three times

a week, he would approach me from behind while I sat on the floor

and hug me. We had a few weeks of great language improvement, up to

about 50 different words within one week, but then gone again. We

were happy with our efforts over the past six months, and joyful

with the progress, but we knew that we could do better. We knew we

had to address the reason why, in spite of our efforts, our son

continued to lose skills/language/behaviours that he had just

learned.

We then started chelation, using Andy's protocol. DMSA/ALA every

three hours. We've finished five rounds in five weeks. At the end

of the last round, my son hugged his dad. Something that hasn't

happened in eight months. My son looked up at me from the bed the

other day, held up an arm and said " nuggle " , a word he used to use

10 times a day. And then we nuggled, his cheek against mine, just

like we used to do before his regression. Eye contact can sometimes

last 15 or 20 seconds, up from 1 or 2 seconds at most. He can play

pat-a-cake with his hands now (as opposed to only feet that we would

move for him) and he even grabbed my hands and held them still as a

joke. With a smile on his face! Some of these changes began

before chelation. But now they are coming faster and faster and

they seem to be sticking. The word nuggle three days in row, as

opposed to once and then gone again for months. Calling his

sister's name when she's gone, rather than ignoring her completely

while she's around. Watching some kids play on their bikes at the

park, instead of swinging obsessively like he's alone in the world.

I read not too long ago a post where someone mentioned a " spark " in

their child after changing dosing schedules (and thank you VERY much

for sharing that!). That's what we see too. That spark, that used

to be in his eyes always, had disappeared. It is coming back now,

for longer and longer stretches.

We have far to go. And for anyone just starting this process, I

know that write-ups like this make it all seem very quick and

orderly, but it's not like that. It's starting supps and then

taking them away. And then starting new supps that you should have

had in place first, and restarting the old supps, but at a lower

dose. It's assuming you might know what you're doing for once,

until you start trying to do it, and then it suddenly seems very

confusing, and you have to write your listmates again, and again,

and again. It's wondering if you're making the right decisions even

when the progress is staring you right in the face because how

bloody ludicrous is it that someone who is supposed to protect my

child from harm would poison him on purpose? If you can get your

mind around that seeming impossibility, you can take the steps to

get your child better.

There are hardships, most certainly. Hardships of all kinds, and I

know that my son's condition is not nearly as severe as many I have

read about on this board. But there are many pleasures too. Like

getting up twice a night to chelate and being very, very happy about

doing so--I mean skipping to the fridge, smiling! Or having your

kid look into your eyes and bragging about it when your husband gets

home, and both of you tearing up with joy. Or your older son

running upstairs to report that his little brother just played

drawing with him for five minutes withough interruption.

This is longer than I meant it to be, yet I've left out 99% (thank

goodness you say). Thank you so much to everyone on this list who

has given of their limited time and energy to help and encourage

me. And an enormously tearful and heartfelt thank you to Andy whose

protocol has made this possible.

Anita

=======================================================

[Guest guest]

Yi,

We ordered the elemental hair test from DDI and applied Andy's

counting rules. My son didn't meet the counting rules but he did

show toxicity in lead, antimony, arsenic, silver, and tin. That was

the only test we ran before we started chelating. My idea was to do

five rounds without changing any other part of his treatments and

see if we saw improvement. In fact, I did less floortime with him

during this time, just to be extra sure that I wouldn't influence

things to turn out like I had hoped they would. Plus, we have more

objective eyes to help us see the improvements.

I don't have a doctor truly helping me with this, and although I'd

love to have some more tests to help with supplementing, I do feel

confident now that the chelation protocol we're using is safe and

effective. We will have bloodwork done every three months or so

just to be safe.

About Andy's protocol, I bought and read both of his books and read

everything I could on this site. I read all the relevant files,

Moria's love letters, approximately one year's worth of relevant

posts, and I onibasued many different subjects. I also read a dozen

other books on biomedical approaches to autism and everything I

could find on other protocols from other websites mostly. I even

read the anti-chelation stuff, most of which is garbage and ill-

informed, but I wanted to see every side of this I could.

What kept coming up for me were the great parent reports and the

comment that starting sooner was better than starter later (if that

situation was within your control). I also found it reassuring that

Andy is not trying to make money off us, he doesn't claim that his

protocol will cure everyone and everything, and he doesn't try to

make win us over with his charm ; ). His facts, as far as my

scientifically challenged brain can discern, are actually facts.

Does that answer your questions? If not, I am more than happy to

share more. Just let me know.

Anita

> I wanted to post this because I'm happy, because I want to share

the

> good news with so many of you who have offered such incredible

help,

> and because maybe some people who are trying to decide whether to

> chelate or not will be helped. So...

>

> My son was damaged by flu vaccinations while on antibiotics. I

> didn't even consider this possibility at first. Or even second or

> third. But the more I read, the more of our videos of his before

> and after behaviour that I watched, the more I was convinced.

Prior

> to these vaccinations he spoke about 80 words, was affectionate,

> involved, funny. Just a normal kid. Two months after the first

> vaccination, at the age of 23 months, he was withdrawn, almost non-

> verbal, obsessed with movies and dropping action figures over the

> edge of the couch. He started biting himself very hard and

banging

> his head against chairs. He no longer acknowledged anyone except

> me, and generally he just wanted to twirl the rings on my fingers

> until his nails were torn and my fingers were swollen. He stopped

> sleeping well at night. His poops became soft and wierd. He

didn't

> want to run or play anymore. Eye contact was gone. Many of you

> know exactly what I am describing.

>

> Just prior to his second birthday, we went GFCF. He stopped

hurting

> himself and we were joyful. He started sleeping better. We began

> supplementing, giving epsom salt baths and using Floortime. He

made

> some progress. A few words came back. After about 6 weeks, he

> would smile a bit a couple times a day. Our floortime therapy was

> devoted entirely to trying to make him happy. We wanted to close

> circles of communication that involved a smile, or maybe even a

> laugh or a caress. Progress was slow but noticeable. We didn't

> even try to teach him language or skills, even though we now had

45

> minutes of ST every second week (I simply gathered information to

> put into practice later). We had the idea right from the

beginning

> that we were going to fix things from the inside out.

>

> Fifteen supplements into things, diet now low soy, phenol and

sugar,

> and some pretty decent floortime skills under my belt and progress

> was still back and forth. The improvements that stuck involved

> level of happiness. My son could now laugh when tickled, at least

> some of the time. He could smile if you fell down in a

spectacular

> kind of way. He started jumping on our bed in a manner that no

> longer looked like an obsession, but looked like fun. Once in a

> while, he would look up if you called his name. Maybe three

times

> a week, he would approach me from behind while I sat on the floor

> and hug me. We had a few weeks of great language improvement, up

to

> about 50 different words within one week, but then gone again. We

> were happy with our efforts over the past six months, and joyful

> with the progress, but we knew that we could do better. We knew

we

> had to address the reason why, in spite of our efforts, our son

> continued to lose skills/language/behaviours that he had just

> learned.

>

> We then started chelation, using Andy's protocol. DMSA/ALA every

> three hours. We've finished five rounds in five weeks. At the

end

> of the last round, my son hugged his dad. Something that hasn't

> happened in eight months. My son looked up at me from the bed the

> other day, held up an arm and said " nuggle " , a word he used to use

> 10 times a day. And then we nuggled, his cheek against mine, just

> like we used to do before his regression. Eye contact can

sometimes

> last 15 or 20 seconds, up from 1 or 2 seconds at most. He can

play

> pat-a-cake with his hands now (as opposed to only feet that we

would

> move for him) and he even grabbed my hands and held them still as

a

> joke. With a smile on his face! Some of these changes began

> before chelation. But now they are coming faster and faster and

> they seem to be sticking. The word nuggle three days in row, as

> opposed to once and then gone again for months. Calling his

> sister's name when she's gone, rather than ignoring her completely

> while she's around. Watching some kids play on their bikes at the

> park, instead of swinging obsessively like he's alone in the

world.

>

> I read not too long ago a post where someone mentioned a " spark "

in

> their child after changing dosing schedules (and thank you VERY

much

> for sharing that!). That's what we see too. That spark, that

used

> to be in his eyes always, had disappeared. It is coming back now,

> for longer and longer stretches.

>

> We have far to go. And for anyone just starting this process, I

> know that write-ups like this make it all seem very quick and

> orderly, but it's not like that. It's starting supps and then

> taking them away. And then starting new supps that you should

have

> had in place first, and restarting the old supps, but at a lower

> dose. It's assuming you might know what you're doing for once,

> until you start trying to do it, and then it suddenly seems very

> confusing, and you have to write your listmates again, and again,

> and again. It's wondering if you're making the right decisions

even

> when the progress is staring you right in the face because how

> bloody ludicrous is it that someone who is supposed to protect my

> child from harm would poison him on purpose? If you can get your

> mind around that seeming impossibility, you can take the steps to

> get your child better.

>

> There are hardships, most certainly. Hardships of all kinds, and

I

> know that my son's condition is not nearly as severe as many I

have

> read about on this board. But there are many pleasures too.

Like

> getting up twice a night to chelate and being very, very happy

about

> doing so--I mean skipping to the fridge, smiling! Or having your

> kid look into your eyes and bragging about it when your husband

gets

> home, and both of you tearing up with joy. Or your older son

> running upstairs to report that his little brother just played

> drawing with him for five minutes withough interruption.

>

> This is longer than I meant it to be, yet I've left out 99% (thank

> goodness you say). Thank you so much to everyone on this list who

> has given of their limited time and energy to help and encourage

> me. And an enormously tearful and heartfelt thank you to Andy

whose

> protocol has made this possible.

>

> Anita

>

>

>

>

> =======================================================

>

[Guest guest]

> I wanted to post this because I'm happy, because I want to share

the

> good news with so many of you who have offered such incredible

help,

> and because maybe some people who are trying to decide whether to

> chelate or not will be helped. So...

Happy, always, to hear happy news

> We have far to go. And for anyone just starting this process, I

> know that write-ups like this make it all seem very quick and

> orderly, but it's not like that. It's starting supps and then

> taking them away. And then starting new supps that you should

have

> had in place first, and restarting the old supps, but at a lower

> dose. It's assuming you might know what you're doing for once,

> until you start trying to do it, and then it suddenly seems very

> confusing, and you have to write your listmates again, and again,

> and again. It's wondering if you're making the right decisions

even

> when the progress is staring you right in the face because how

> bloody ludicrous is it that someone who is supposed to protect my

> child from harm would poison him on purpose?

This is the part of your post I want to comment on.

I agree (1000%) that the process is full of doubts and

questions, and RARELY is there a clear big change. More

often it is a small change, one that would leave you

wondering. Then another small change, maybe one that

doesn't stick. Some minor new problem, too. Trying

to sort out which is a side effect or yeast or WHAT?

And so on.

I've actually had people complain to me that the stuff

in LOVE_LETTERS is " little " changes. I'm like " yah,

of course -- little changes are what make big changes " .

I added a couple of lines to the introduction about that.

Oh well.

http://home.earthlink.net/~moriam/LOVE_LETTERS.html

I really really also like the collection of posts here:

Autism-

Mercury/files/KennysProgressReportsFrom

One of the things I love about it is it shows EXACTLY

what you just said, Anita. Problems, doubts, questions,

along with positive changes. Not easy, not all wonderful.

This is a mom who put

up with her kid THROWING UP the chelation agents.

[ " Pill swallowing is still not getting any easier.

Every once in a while it goes down like a charm, but

most of the time it is quite a challenge. He has vomited

on me a few times too. " ] And she persisted. Lots of

questions, some improvements, some problems.

AND THEN FINALLY KENNY STARTS TO TALK

and I want to cry every time.

Anyway, I think it is good to highlight that aspect, that

it is NOT all " good " and NOT all simple and NOT all easy.

But it doesn't " sell " as well. But it is more real.

good wishes,

Moria