Guest guest Posted April 29, 2000 Report Share Posted April 29, 2000 Welcome Stacey! Mogdrmom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 I have all the same symptons, including pain in the muscles in the leg. I am having suregery on Fri, exploratory. Good Luck Jackie Mulligan <JackieM1982@...> wrote: Hello List! My name is Jackie, I'm a veterinary technician and college student in land. I've had knee pain from about the age of sixteen. It has become progressively worse, I am now twenty. There is a lot of grinding, popping, and cracking in my knee joint. The grinding is loud enough for people in the room to hear easily. I can also feel the grinding if I put my hand over my knee and flex the joint. Also, I can feel " things " moving in, out, and around on my knees that I cannot feel on a normal knee. I experience pain going up and downstairs, sitting, walking, and standing for long periods. It's worse in the morning, and after I run. The pain feels like it is under the knee cap, in front of the joint. I also sometimes have pain on the inside of my knees. Both knees are affected, the right is worse than the left. There's no history of acute trauma to my knee. And no history of chondromalacia in the family. I have been horse-back-riding for ten years, but have only recently started running. Does this sound like Chondromalacia??? Thank you for your time! Jackie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 This sounds very similar to the problems that I have with my knee and I have chondromalacia. Mine is due to a tracking problem with my kneecap and the fact that my kneecap is very low and rubs against the joint. My tibia is also out of alignment. As a result of all this I'm facing a Tibial Tubercle Transfer surgery this summer. I have all kind of noises-popping, clicking, cracking and I have pain under my kneecap. Like you, there's no history of knee problems of any kind in my family. I'm the only one who has problems like this. I'd suggest that you see a doctor who can tell you what's really going on with your knee. Good Luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Jodi- Welcome to the group. Sounds like you have a great pediatrician! Sorry to hear your little man had to have surgery, but sounds like he is much better as a result! There are a few parents here who have banded their babies at Stanford. With Collin starting treatment so young, you should see some very fast progression Again, welcome to the group! Dane's mom DOC Grad > Hi all, > > I just found this board today, and it is such a wealth of > information! > > Quick intro. My name is Jodi. I am a 28 year old SAHM since being > laid off last year. I live in the Silicon Valley area of California > with my husband of 4 1/2 years, 2 year old daughter , and 14 > week old son Collin. > > Collin was diagnosed last week with moderate to severe plagio. > Luckily, no torticollis or anything along with it. We first noticed > his flat head at around 3 weeks of age. Actually, our ped did. He > was very sick and found out he had pyloric stenosis - basically the > muscle that moves food from the stomach to the intestines wasn't > working properly, so he threw up (violently) everything he ate. Once > we found out what it was, he had surgery at Lucille Packard > Children's Hospital at Stanford. He was 3 1/2 weeks old at the > time. We have tried repositioning ever since and it hasn't done a > bit of good - he's gotten worse. Ped said he was probably born with > it and it got worse when he laid on it. > > Fast forward to his 2 month appt. I was concerned about the flat > spot so she referred us back to Stanford. They diagnosed the plagio > and we were sent to an orthotist and he had a laser scan done last > week to have the STARband helmet made. He will get it on Tuesday and > have to wear it for about 3 months, give or take. > > Anyway, that's our story - gotta run - he's crying! > > Nice to " meet " you all, > > Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Hi Jodi! Welcome to the group. Wow it sounds like you have a great ped! You should see some excellent results from the STARband. Your son is at a great " younger " age. Please let us know how he adjusts to his new hat! Once again welcome to the group. > Hi all, > > I just found this board today, and it is such a wealth of > information! > > Quick intro. My name is Jodi. I am a 28 year old SAHM since being > laid off last year. I live in the Silicon Valley area of California > with my husband of 4 1/2 years, 2 year old daughter , and 14 > week old son Collin. > > Collin was diagnosed last week with moderate to severe plagio. > Luckily, no torticollis or anything along with it. We first noticed > his flat head at around 3 weeks of age. Actually, our ped did. He > was very sick and found out he had pyloric stenosis - basically the > muscle that moves food from the stomach to the intestines wasn't > working properly, so he threw up (violently) everything he ate. Once > we found out what it was, he had surgery at Lucille Packard > Children's Hospital at Stanford. He was 3 1/2 weeks old at the > time. We have tried repositioning ever since and it hasn't done a > bit of good - he's gotten worse. Ped said he was probably born with > it and it got worse when he laid on it. > > Fast forward to his 2 month appt. I was concerned about the flat > spot so she referred us back to Stanford. They diagnosed the plagio > and we were sent to an orthotist and he had a laser scan done last > week to have the STARband helmet made. He will get it on Tuesday and > have to wear it for about 3 months, give or take. > > Anyway, that's our story - gotta run - he's crying! > > Nice to " meet " you all, > > Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Hi Jodi & welcome to our group! Thanks for your great introduction. It's SOOO nice to hear of a plagio aware Dr. who helped dx your son & get him treatment. That's all too rare in our group, so I love reading stories like yours. You could not start treatment at a more perfect age!!! Just 3.5 mos old? WOW, Collin should be in & out of his band in no time with great results. We've had several other members in our group go to Stanford for a STARband as well. It's very nice to have you with us. We look forward to hearing of Collin's rounding head in the weeks & mos to come let us know when his band is in & how it goes. Debbie Abby's mom DOCGrad MI > Hi all, > > I just found this board today, and it is such a wealth of > information! > > Quick intro. My name is Jodi. I am a 28 year old SAHM since being > laid off last year. I live in the Silicon Valley area of California > with my husband of 4 1/2 years, 2 year old daughter , and 14 > week old son Collin. > > Collin was diagnosed last week with moderate to severe plagio. > Luckily, no torticollis or anything along with it. We first noticed > his flat head at around 3 weeks of age. Actually, our ped did. He > was very sick and found out he had pyloric stenosis - basically the > muscle that moves food from the stomach to the intestines wasn't > working properly, so he threw up (violently) everything he ate. Once > we found out what it was, he had surgery at Lucille Packard > Children's Hospital at Stanford. He was 3 1/2 weeks old at the > time. We have tried repositioning ever since and it hasn't done a > bit of good - he's gotten worse. Ped said he was probably born with > it and it got worse when he laid on it. > > Fast forward to his 2 month appt. I was concerned about the flat > spot so she referred us back to Stanford. They diagnosed the plagio > and we were sent to an orthotist and he had a laser scan done last > week to have the STARband helmet made. He will get it on Tuesday and > have to wear it for about 3 months, give or take. > > Anyway, that's our story - gotta run - he's crying! > > Nice to " meet " you all, > > Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 Jodi, Welcome to the group- so nice to "meet" you too! Poor Collin had a rough start with the surgery at 3 1/2 weeks, that must have been hard to go through. He should receive great correction with him being so young when he gets the helmet. Keep us posted on what type, and the name, its always interesting to hear of the differing helmets out there. Good luck! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 In a message dated 6/19/2006 11:43:34 PM Eastern Standard Time, courtney.writes@... writes: Making meat intimidates me a bit, and I think that I has been part of my reluctance to buckle down and do what my body needs me to do! Some websites that may help you get more information on the BTD and recipes for meat are listed below. If the link doesn't work just paste the address into your browser. Hope this helps. Max TYPEbase® The Blood Type Diet Database or http://www.dadamo.com/typebase/typebase.cgi Eat Right 4 Your Type: RECIbase searchable recipe database by blood type or http://www.dadamo.com/recipebase/recipebase.cgi SUPPbase® By D'Adamo or http://www.dadamo.com/suppbase/suppbase.cgi FRANKENbase® By D'Adamo or http://www.dadamo.com/frankenbase/list.cgi D'Adamo: TYPEBase (Bloo D'Adamo: Blood Groups Knowledge Based Group Diet Food Lookup) or http://www.dadamo.com/faq/smartfaq.cgi?answer=988882481 & id=988813483 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 Hello, everyone. I found this group the other day while doing a search for places to possibly eat or buy extra food while camping at Big Basin State Park next week. It's been a few years since we've been there but I do remember a store in a small town-I think it was New Leaf or something. This time we are going with a GFCF diet in mind. I have a child diagnosed two years ago at age 3. Upon learning about CD I realized it was my answer to health problems that increased after she was born(IBS, Fibro, CFS and Sjogren's)and I had a positive IGA and IGG and a biopsy with " insignificant blunting of villi " . Genetic testing was also a confirmation. Needless to say, I am doing much better these days. I lead the Central Valley Celiacs group which covers a large area(Merced to Lodi and into the foothills) and averages 15+ people at meetings twice yearly, though I expect it will increase with medical community awareness. So it is nice to have contact with more people in the California area! This is definitely a place to visit on a regular basis. Cadiz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Hi and welcome to the group! It's great you lead the support group in your area. I know you came to us by looking for places when you're at Big Basin...any luck besides the local store? Perhaps someone here can offer additional advice. I look forward to hearing more from you in the near future. Carla San , CA > > Hello, everyone. I found this group the other day while doing a search > for places to possibly eat or buy extra food while camping at Big > Basin State Park next week. It's been a few years since we've been > there but I do remember a store in a small town-I think it was New > Leaf or something. This time we are going with a GFCF diet in mind. I > have a child diagnosed two years ago at age 3. Upon learning about CD > I realized it was my answer to health problems that increased after > she was born(IBS, Fibro, CFS and Sjogren's)and I had a positive IGA > and IGG and a biopsy with " insignificant blunting of villi " . Genetic > testing was also a confirmation. Needless to say, I am doing much > better these days. I lead the Central Valley Celiacs group which > covers a large area(Merced to Lodi and into the foothills) and > averages 15+ people at meetings twice yearly, though I expect it will > increase with medical community awareness. So it is nice to have > contact with more people in the California area! This is definitely a > place to visit on a regular basis. > > Cadiz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Thanks for the welcome, Carla. I did find some restaurants listed in the ICORS mailing list archive. > > > > Hello, everyone. I found this group the other day while doing a > search > > for places to possibly eat or buy extra food while camping at Big > > Basin State Park next week. It's been a few years since we've been > > there but I do remember a store in a small town-I think it was New > > Leaf or something. This time we are going with a GFCF diet in > mind. I > > have a child diagnosed two years ago at age 3. Upon learning about > CD > > I realized it was my answer to health problems that increased after > > she was born(IBS, Fibro, CFS and Sjogren's)and I had a positive IGA > > and IGG and a biopsy with " insignificant blunting of villi " . > Genetic > > testing was also a confirmation. Needless to say, I am doing much > > better these days. I lead the Central Valley Celiacs group which > > covers a large area(Merced to Lodi and into the foothills) and > > averages 15+ people at meetings twice yearly, though I expect it > will > > increase with medical community awareness. So it is nice to have > > contact with more people in the California area! This is > definitely a > > place to visit on a regular basis. > > > > Cadiz > > > Quote Link to comment Share on other sites More sharing options...
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