Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 The Remicade isn't supposed to stop the damage but slow its progression. Since I've been on it over a year now I haven't noticed any additional damage, but I am sure I am having minimal damage now as to where it was more before Remicade, due to present noticeable swelling. ~Rainy ----- Original Message ----- Sent: Friday, May 25, 2001 4:20 PM Subject: Re: [ ] Question? > , > Don't know about how long for permanent damage but I have it in my left knee > and hip after 2 years, that's with about a year on enbrel or remicade with > are suppose to stop damage. Go figure! > > Temple Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 I ditto that. I can't remember what not having pain feels like. I've had this 19 years now and have built up quite a tolerance to it. I sit here now in pain, but I am able to ignore it pretty well. ~Rainy ----- Original Message ----- From: <tpeppergirl@...> < > Sent: Friday, May 25, 2001 6:51 PM Subject: Re: [ ] Question? > , > I don't mean to scare you but, to be honest I don't remember a day since > before my RA started having a day with no pain. That's not to say that I > don't have my good days, but the pain is always there just sometimes a little > more in the back ground. You get used to it. You will build up a pain > tolerance. I think that most of us with this and similar disease's build up > a very high pain tolerance. I hope you get some relief soon. > > Have you tried rice socks? Heating pads, ice packs, switching between cold > and heat? What about my favorite a paraffin bath? It's hot wax, I love > mine. Tery > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2003 Report Share Posted September 10, 2003 Hi > > As I said I intend to start at 4.5 and lower the dose carefully > to and below 1.5mg, unless I have an attack. > That's how Dr. Bihari had me do it.. 4.5 to start, if I had problems, he told me to back off to 3.. I take it at midnight. So far no problems, so I've been on 4.5 since July 29th. Take care, Janis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Stella: Based upon my observation of this site, it appears that a lot of MS'er cannot tolerate 4.5 mg. They express the same complaint as you. A lot appear to tolerate 3.0 mg of LDN with an occasional person having to use 1.75-2.0 mg. So, start reducing your dosage until you find your dose. Everyone's tolerance is different. Noland ----- Original Message ----- From: szaffa1@... low dose naltrexone Sent: Tuesday, September 23, 2003 7:38 AM Subject: [low dose naltrexone] Question? The past couple of weeks have been very difficult for me. I changed my dose to the lactose free form and automatically started with the 4.5 dose. I've been on it for about a month. Is it possible that it is the ldn that is making my legs stiff and weak? It didn't hit me that it could be what is causing my problems until I was lying in bed last night. I don't think it is an exacerbation because those are my only symptoms. If that is the problem, what should I lower my dose to? Thank you, Stella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Hi Stella....According to my Pharmacist, the leg stiffness is due to the muscles waking up and being used, and just like when you overdo excercise, your muscles get stiff. If you keep stretching and light excercise, the leg stiffness shoud go away gradually. Also, with LDN, sometimes less is better, for some people. I was on 4.5 and went back down to 3mg, and now I'm doing pretty well....leg stiffness is there sometimes, but not as bad. I hope this helped you Love, Sally > The past couple of weeks have been very difficult for me. I changed my dose > to the lactose free form and automatically started with the 4.5 dose. I've > been on it for about a month. Is it possible that it is the ldn that is making > my legs stiff and weak? It didn't hit me that it could be what is causing my > problems until I was lying in bed last night. I don't think it is an > exacerbation because those are my only symptoms. If that is the problem, what should > I lower my dose to? > > Thank you, > Stella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Keep in mind that blood tests are notorious for false negatives for CD. In a message dated 5/8/06 5:31:58 PM, cory66katt@... writes: I am trying to arrange to take the blood test (BLOOD TEST, I'm not getting a biopsy) for celiac, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 So I've been emailing my doctor, who hasn't been giving me good responses,so I'll ask you. I am trying to arrange to take the blood test (BLOOD TEST, I'm not getting a biopsy) for celiac, does anyone have any idea how long I need to be EATING GLUTEN again for this to be reliable??? I have been on a GF diet for the past two or so months. For anyone that lives in the SF bay area. Does anyone have a Kaiser doctor recommendation for someone who actually has a clue about celiac? San , Richmond, or Oakland (preference in that order). Thanks so much! This list has been so much help, I really appreciate you guys. Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Well I got the blood test before going off gluten. Then was off for about 6 months and was told to go back on it to do more testing - so I had one dinner and one breakfast and got really, really sick so I cancelled the test. Connie -----Original Message----- From: [mailto: ] On Behalf Of Cory Sent: Monday, May 08, 2006 5:31 PM Subject: [ ] question? So I've been emailing my doctor, who hasn't been giving me good responses,so I'll ask you. I am trying to arrange to take the blood test (BLOOD TEST, I'm not getting a biopsy) for celiac, does anyone have any idea how long I need to be EATING GLUTEN again for this to be reliable??? I have been on a GF diet for the past two or so months. For anyone that lives in the SF bay area. Does anyone have a Kaiser doctor recommendation for someone who actually has a clue about celiac? San , Richmond, or Oakland (preference in that order). Thanks so much! This list has been so much help, I really appreciate you guys. Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Lil, my GI in SF in Dr. Shlager. He quickly diagnosed an autoimmune disease I had that most doctors never see in a lifetime. Later, he suspected I also had CD, even though at that time I was obese (due to necesssary treatment for the first disease) and hadn't complained of digestive problems. When the blood test was negative, he did a biopsy, and he followed that up with a second biopsy six months later to confirm that my going GF was resulting in healed vilii -- that is, to confirm the diagnosis. I can't say much for his staff members, but I certainly recommend him as a diagnostician. H. In a message dated 5/8/06 10:05:31 PM, lillythdenaghykeogh@... writes: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Lili, I neglected to say that Dr. Shlager is a GI in San Francisco Kaiser. H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 It releases enzyme inhibitors... check the files on how to.... sprouting.. and there is a good website on how long... (usually I do overnite)... www..com bentsmom <bentsmom@...> wrote: What is the theory behind soaking nuts and how should it be done?? Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
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