Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Has anyone had any experience (good or bad) with any of the following providers in the New Jersey / Philadelphia region? Are there other orthotists / helmet providers anyone recommends? STAR BAND Nouveau Prosthetics & Orthotics Joe Ghizzone, LPO, BOCPO Hazlet, NJ Cranial Remolding Center, New Jersey At Center For Pediatric Neurosurgery Stuart Weiner, C.P.O. town, NJ Med East Post Op and Surgical Kimura, CO, LO Blue Bell, PA Harry J. Lawall and Son Harry J. Lawall Jr., CPO; P. Jr., CAD/CAM Manager Philadelphia, PA HANGER Voorhees, NJ multiple locations in Philadelphia, PA Havertown, PA Manahawkin, NJ Linwood, NJ Newark, DE Farmingdale, NJ Edison, NJ I would like to get a second opinion about whether a 2nd band is feasible for my son. He might be graduating from his DOC Band in the next few weeks. When we were there for our initial evaluation, we were told to expect 2 bands. His cranial vault asymmetry measured 14mm. They told us the best we could hope for was a 7, and even that was being generous. So, from the beginning, they set our expectations that his head won't correct fully. He's made great progress in this first band, but I feel like he could still use some correction. I am perfectly willing to put him in the 2nd since I was expecting it anyway. Further, if we could get additional correction, that would be great. He just turned 15 months Oct 11th, so I feel like there's still time and brain / head growth there to take advantage of. I guess I am looking for a second opinion to see whether a 2nd band would give us more correction. Maybe we're at the 7 now and this is the best we'll get. I don't know. Maybe I'm looking for a little peace of mind that we took advantage of every opportunity to correct this while we had the chance. When he was there for his last adjustment on 10/11, she said he was now borderline (i.e., if I had brought him in that day for an evaluation, she probably wouldn't band him). She said he had about 5-6 weeks left in that band. Then I asked about the 2nd band, and she said he probably won't need it. I explained that I'm perfectly willing to put him in it. But she seemed kind of unwilling to go that route... explaining that there has to be a certain amount of asymmetry present for the band to work and to fit properly, etc. I go again Monday, 10/25 for another photo study. I think they're doing it to show me that he doesn't need the 2nd band. But I can look at his head in real life (i.e., not photos) and see that he still needs correction. I hope they'll do measurements again on Monday so I can compare numbers a bit. I guess either way, I'll request the measurements. Maybe that will give me some sense for how close to the 7 (or maybe even better than that) we are. Any feedback would be greatly appreciated! Thanks in advance! Quote Link to comment Share on other sites More sharing options...
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