Re: Starband consult and ped visit (sorry...long)

[Guest guest]

He said it would round out as she starts to sit up and roll over and such. When

I told him the orthotist said 15mm was in the severe category and I knew that

level was well over what our insurance covered...he said that's what orthotists

do and they are trying to 'sell' you a helmet. He was a jerk...but that seems to

be the line I'm getting.

There is another children's hospital in Indy - Peyton Manning's Children

hospital. I'm going to look into them and see if they have a craniofacial

department. Maybe try them if i don't hear good news back from the medical

director at riley... I'm just at a lost...

> > > >

> > > > Well...it's been an interesting morning. Midwest ortho (starband

provider)

> >came

> >

> > > >out and did a home eval today. Explained everything thoroughly and was

very

> >much

> >

> > > >helpful. Took some measurements (no scan today) and said her cranial

vault

> > > >asymmetry is 15mm. They consider anything over 10mm to be severe and

> >recommend

> >

> > > >helmet treatment. The good thing is that she surprisingly doesn't have

much

>

> > > >facial aysmmetry. So...at the end of the appt we had decided we wanted to

go

> >

> > > >with them. They will do a 5 day post getting the cap...then a week after

> > > >that...then 2 weeks after that and if fit is good they will not see us

for a

> >

> > > >month unless we start to notice some redness or feel she's had a huge

growth

> >

> > > >spurt. I asked him the reason since docband wants to see her weekly. He

said

> >

> > > >they used to do weekly for the first 6 weeks but found it wasn't

necessary.

> >He

> >

> > > >said he owuld gladly see us more often just to check if that made us more

> > > >comfortable.

> > > >

> > > >

> > > > Then the ped visit...she is adamantly against helmets. She thinks they

are

>

> > > >cruel...said she's never seen a child that isn't miserable in one. I

stood

> >my

> >

> > > >ground and told her we'd researched it and decided this is the way we

want

> >to go

> >

> > > >if she qualifies (and that we have even researched our insurance and at

what

> >

> > > >point they will cover...and our measurements are in the covered

category).

> >We

> >

> > > >told her what the orthotist said at Midwest. She replied that we would

need

> >to

> >

> > > >go through the craniofacial center at Riley. I agree...they will tell us

for

> >

> > > >sure it's just plagio and not cranio. She was a bit alarmed that my

> >daughter's

> >

> > > >head circumference jumped from the 50th percentile to the 80th percentile

in

> >the

> >

> > > >last 2 months (while weight and height percentile remained the same). She

> >said

> >

> > > >it could be due to the way it is growing because of the flat spot. She

even

> >had

> >

> > > >the nerve at the start of the appt to say she probably wouldn't have

given

> >us

> >

> > > >the referral to Riley had she seen her (our pt called her office and

asked

> >for

> >

> > > >the referral). Ugh! So...Riley appt on Monday and praying those docs are

pro

> >

> > > >helmet (and praying most of all that it just the plagio).

> > > >

> > > >

> > > > Sorry for being so windy...I just realize everyone's frustration with

the

> > > >process now...

> > > >

> > >

> >

>