Help...i know so little.

November 19, 2005

Hi again everyone...i have been quietly reading all your posts and

there are a few things i am now worried about. Should i be doing

more? Should be having GH? He is certainly not the smallest

in his class at school, but probably the lightest. We have never

been offered GH, although it was mentioned way back when

first diagnosed.

I was told would grow out of hypoglycaemias by the age of 2

and not to worry about it. i know thats not true because it is clear

to me when his sugars drop and he needs food as he gets sleepy,

weepy and grumpy. Something to eat always works wonders, but should

i be testing his sugars regularly? Is he going hypo at night and i

just dont notice? Aaargh...there is so much more i should know and

dont. I have always thought was getting on so well and now i

a bag of worries. You would never guess i was a trained nurse would

you?

And what about scoliosis? stopped having his shoe built up

when he was 5 because he seemed to compensate by bending his right

knee instead of his spine. (left leg 1.5-2cm longer than right)He

was better without the lift and he was very happy to get rid of it.

So i felt the same, and was happy for him.

We have not had alot of input from professionals, and none of these

issues have been covered since was really young. Am i just

being paranoid? should i go with my gut and keep believing that

is doing fine or should i insist he sees someone else? Maybe

try to get a referral to Dr Stanhope? I know i sound like a total

novice but i never realised how much input other RSS kids had. I

feel a bit like has been forgottten about.

Still...all that said...i love this site and love reading what is

going on with you all. Being pregnant, alot of smells make me sick

to my stomach too. Not many foods though. Food smells just make me

hungry. Any sort of perfume, air freshener, or flowery smells finish

me off. Beer too. Yuck. My poor husband has to stay well away from

me when he indulges.

Did s photos show up ok? Im afraid i still cant work the chat

section, my computer doesnt seem to like it. But im still trying.

Thanks for all being there. Liz.xxx

Recommended Posts