Hello from Scotland UK

[Guest guest]

Hello everyone,This is the first time I have posted.I have a 15mth old

daughter Morven who may have RSS.We are at that stage still that the

Medical Proffesion still cant give me an answer.As you all probably

know its a horrible time full of tears and uncertainty.

Morven was only 4lb 2oz at birth and has been putting weight on slowly

since then.She now weighs 18lb.The only thing thats really unusual is

that her height has caught up and she is now in the 50th

percentile.When she was born she wasnt on any percenticle.But she does

have other things that make them think she does has it.Web toe,blueish

tint to whites of eyes,reflux.She does have a ponted chin but so do I.

Here in Scotland no one seems to know much about it and we dont know

where to turn for answers.We feel we should be doing something for her.

Look forward to hearing from anyone with advice.