Vitamin B12

[Guest guest]

I am curious...why are you taking vitamin B 12? That is one thing my doctor is testing for...a vit b12 deficiency.

I am not doing well.....I am beginning to think it is all in my mind..I just seem to get worse....I am even having a problem eating...too much effort. My doctor is having me take an X-ray and blood tests and stress test...all the blood tests are strange ones like Vit B12......How can I be deficient in Vitamins I am a Vegetarian and eat so many vegetables! Things like sitting at the computer are very hard for me now....I am nauseous too and get light headed....I am so puzzled by this...it just has to be all in my mind. There are times I feel like I cannot breath....I pull my oxygen off and just pant...it must be in my mind. Has anyone had anything like this happen to you? Sometimes I cannot lift my arms or move my legs. I get so weak that holding something makes my hand and arm tremble....Anyone have problems like these. Joyce Rudy AZ birds

[Guest guest]

Beth-I was thinking back and the respitory therapist i saw warned me that a high carbohydrate diet makes more carbon dioxide in your blood and can raise your demand for Oxygen,...she told me to be careful....She said that a diet for people with lung disease is not a high carb diet....didn't think much about it but I wonder if that is a contributing factor??? I will call her tomorrow and ask....a high carb diet raises your metabolism causing a lot of carbon dioxide in the blood and the response to carbon dioxide is you demand more oxygen. I should have listened to her! Maybe my dietitian and the respitory therapist should get together because it could be that being a vegetarian isn't so good for someone with lung disease....Joyce R

[Guest guest]

MB- you don't like tofu??? Go to Panda Express and get their Tofu and eggplant...I'll bet you won't mind it in that! It it isn't the taste of tofu most people find bad it is the texture because tofu takes on the taste of whatever it's in. i thought I hated it but since I have learned to cook with it I like it. come on over and I'll whip up some Thai tofu and asperagus! If you like spicey food it is delicious! And for dessert I'll have Vegan cheesecake and coffee! joyce R

[Guest guest]

Joyce

Protein is just the most essential nutrient while all serve some purpose

in the right quantities. For those of you having problems with some of

your meds making you ill, I also offer this advice. Whereas you may have

been told to take with food, I'll advise to take with protein. You'll be

surprised how it might help. has morning meds that she must have

protein in her system for. It doesn't matter how much other stuff she

eats in the morning, if she doesn't eat protein, the meds do affect her

stomach.

We also get misled sometimes on fats. While excessive amounts of fats

may be a problem, there are certain essential fats our body needs too.

If one is on a low fat diet they may well need some supplements for

these. That's part of the reason behind the explosion of the Omega 3

oils in use.

I often mention diabetic diets for all those on prednisone. Well, in

reality, most of us would benefit from such diets, whether or not we

have diabetes or a weight problem. The diets talked recently about here

are along those lines.

>

> Joyce,

> For what it's worth Joyce I agree completley with . Regardless of

whatever else is going on with you I think you probably are not

getting the protein your body needs to function.

>

> I would be less concerned if you were just a vegetarian and not a

vegan because you would at least be including eggs and milk products

in your diet. Getting adequate protein as a vegan requires a

tremendous amount of care and attention. And our protein needs may

indeed be higher because of our struggles to do something as ordinary or

mundane as breathe.

>

> How about just trying a little animal protein over the next couple of

days. It's not as though it's an unknown medication....it's just food. A

scrambled egg for breakfast maybe? Hope you feel better soonest!

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> Â

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> ________________________________

> From: worth hope2thend@...

> To: Breathe-Support

> Sent: Sat, December 19, 2009 9:49:58 PM

> Subject: Re: Vitamin B12

>

> Â

> Joyce-Rudy,

> Like Beth I too am concered about your diet. Good nutrition is

especially important in those with lung disease. We have

advanced lung disease and need extra energy to power the muscles of

respiration that are working overtime. We have a tenfold increase in

energy expenditure over baseline compared to those with normal lung

function. You may have significant protein calorie malnutrition.Â

 Vegetables are not protein.

> Also,  symptoms of Vitamin B12 deficiency can include

weakness, fatigue, numbness, tingling in fingers and toes, decreased

appetite, diarrhea, hair loss, or depression.

> Â

> C_53_Familial IPF_5/09, Washington

> HOPEÂ doesn't disappoint!

>

>

>

>

>

> ________________________________

> From: Beth mbmurtha (AT) yahoo (DOT) com>

> To: Breathe-Support@ yahoogroups. com

> Sent: Sat, December 19, 2009 5:39:24 PM

> Subject: Re: Vitamin B12

>

> Â

> Joyce,

> For what it's worth I don't think it's in your mind. Your doctor

is testing you for B12 deficiency because your symptoms matchÂ

pretty closely with B12 deficiency. Doesn't mean that's what's going on

but your doctor is doing the right thing by testing.

> Strict vegans are at higher risk for developing pernicious anemia (B12

deficiency). Obviously you make your own decisions about your

diet but I do wish you would think about consuming some animal

protein a couple of times a week. Given the demands put on your

body trying to function with reduced lung capacity and your penchant

for running around pretending you're Superwoman, a little protein on

occasion would probably be appreciated by your body.

>

> Just my opinion of course. It's worth what you paid for it.Â

LOLÂ I'm just concerned about you!

> Â

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> Â

> Â

>

>

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> ________________________________

> From: " BlueLiddy (AT) aol (DOT) com " BlueLiddy (AT) aol (DOT) com>

> To: Breathe-support@ yahoogroups. com

> Sent: Sat, December 19, 2009 7:45:43 PM

> Subject: Vitamin B12

>

> Â

> I am curious...why are you taking vitamin B 12? That is one thing my

doctor is testing for...a vit b12 deficiency.

>

> I am not doing well.....I am beginning to think it is all in my

mind..I just seem to get worse....I am even having a problem

eating...too much effort. My doctor is having me take an X-ray and blood

tests and stress test...all the blood tests are strange ones like Vit

B12.......How can I be deficient in Vitamins I am a Vegetarian and eat

so many vegetables! Things like sitting at the computer are very hard

for me now....I am nauseous too and get light headed....I am so puzzled

by this...it just has to be all in my mind. There are times I feel like

I cannot breath....I pull my oxygen off and just pant...it must be in my

mind. Has anyone had anything like this happen to you? Sometimes I

cannot lift my arms or move my legs. I get so weak that holding

something makes my hand and arm tremble....Anyone have problems like

these. Joyce Rudy AZ birds

>

[Guest guest]

Joyce

I found the diet and McDougall has his center in Santa Clara and many

followers. There are those with autoimmune diseases and multiple

sclerosis referring to it as life saving. There is so much still to

learn about diet and nutrition and there are so few real studies. I

personally find the diet with no protein and no fat, but instead lots of

starches very disturbing but thats just a personal opinion. However, the

reality is that you're not feeling well so I'd advise coming off of it

just in case. I'd advise this to anyone on a fairly extreme diet. For

instance, I'm a believer in low carb but if someone went on one and

quickly was struggling, I'd advise to go back to balance until figuring

out the medical problems. I think 50 years from now they'll be able to

take blood from each of us and tell us the ideal diet for us (unless we

just take pills instead of eating by then). But for now we must listen

to our bodies.

>

> The diet I have been on - the McDougall Weight Loss Program doesn't

want

> you to eat any fat or protien. He says you get all the protien you

need from

> vegetagbles and fat is very bad for you. He says if you follow his

diet

> your dieabetes and other problems will go away that the problem is

with our

> diets. I went to a registered diatitian and she said it is ok to

follow his

> diet and is excellent for diabetics.....but, I need more protien so

she

> suggested tofu...now My instructor doesnt really like that but I do

eat some

> tofu....But his program without being weight loss has no fat or

protein

> accept what you get from vegeetables. He eats some but not a lot of

Tofu because

> Tofu is processed. It is a starch based diet...you are supposed to

eat

> mostly brown rice and potato...the extra is side stuff the greens

etc....he

> says you can live totally on just potato alone. It is bad that I had

to add

> tofu....my instructor told me instead of eating tofu I should try a

tiny bit

> of pea powder with my food...like an eight of a teaspoonful. I ran

into

> problems and the dietitian told me toeat tofu 3 times a day and my

instructor

> wasn't too thrilled with that....I guess because Tofu has fat in it.

By

> McDougall Protein is an abomination...unless it comes from

vegetables. He

> states we get enough protein and fat from nature with vegetables. But

his diet

> is starch based....You eat a high starch diet... a platefull of Brown

rice

> with a dab of vegetabe or he likes a plateful of potato but not with

any

> fat....if it is my diet that is causing this how can everyone else

who eats

> this do so well and I do so poorly? Am I from outerspace.

>

> Beth I blew going to get my blood drawn today because I was so

hungry

> and forgot but I did have an egg with some sweet potato and

morningstar

> Farms sausage...boy did that egg taste good! Joyce R

>

[Guest guest]

Joyce/MB

I'm with Beth. No Tofu. Not at Panda Express or anywhere else.

>

> MB- you don't like tofu??? Go to Panda Express and get their Tofu and

> eggplant...I'll bet you won't mind it in that!

> (http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYYYUS) It it

isn't the taste of tofu most people

> find bad it is the texture because tofu takes on the taste of

whatever it's

> in. i thought I hated it but since I have learned to cook with it I

like

> it. come on over and I'll whip up some Thai tofu and asperagus! If

you like

> spicey food it is delicious! And for dessert I'll have Vegan

cheesecake and

> coffee! joyce R

>