Re: Subject Lines

[Guest guest]

Hi,

I have been a member of this support group for less than 4 months

and I am kind of new to this family. Honestly I don't really

understand what has been happening here in the past two days about

postings.

I would definitely like to say that since I live in Colombia, really

far from all of you, being exposed to a very rare disorder and

having almost none contact with people related to it, I have found

this support group as it, SUPPORTIVE!... I have considered this as a

light after the tunnel, as a window of hope and an excellent way to

understand what is happening with my family, with my son and how

other parents in the world have been handeling this.

I don't have the time to read everyone's posts as I check them at

work but I try to read as many as I can and I have learned tons of

things, I have shared with my husband amazing stories about you guys

that have opened our eyes on seeing this disorder in Nicolas not as

a disease but as an opportunity to become the best parents and to

give him all the tools and things he need to become a happy, healthy

and grateful son.

I have received really good answers to my questions (not as much as

I expected byt really quality ones) and I have felt all of you as a

family. I would love to meet some of you in the future, but in the

meantime I hope to be able to count with you all trough this support

group and to keep reading about your families, your problems, your

satisfactions and everything. You can't imagine how useful this has

been to me and how much I feel I need you in the future as I am

aware that the treatment we will begin is not going to be any near

to easy.

I hope someday, in a few years, I can be supportive as some of you

have been to me and give as much love, energy and prayers, to new

members that would felt the same way I do.

I bless you all for being so supportive and I hope we still be

together, sharing our lifes and being there for whoever needs us.

Thanks a lot to all!

Escobar (Colombia) mom to Nicolas - 19 months (RSS)

[Guest guest]

,

Your beautiful message was a form of giving support. See, you are

already supporting and you've just joined!

Jodi Z