Re: In the hospital.....

[Guest guest]

wow

at a trip i hope matt get well quick thank goodness for dr.h keep us posted

cara mom to jacob

Kacey171 wrote:

I am starting to feel like I an relate to evryone dealing with

hospitals. & I came to NY to see Dr. Harbison, and he got

sick while he was here with significant breathing problems. So,

yesterday, I scrambled to buy a nebulizer & get my local ped. to call

in some meds before we saw Dr. H. Once Dr. H saw him, she admitted

him directly to the hospital. Turns out he has the flu, and it is

having an extreme effect on his lungs. He is on oxygen, and I have

no idea howlong we will be here at Mt. Sinai.

I have been so stressed trying to take care of our travel

accommodations. I had to check out of the hotel early, and I don't

know whether I will get a refund for the unused night (it was a

prepaid reservation). It was real fun getting all my luggage to the

hospital by myself in the pouring rain, and then getting lost in the

hospital coming back in, because the main entrance is under

construction, and I had to go through the basement. We were supposed

to fly home tommorow, and now I'll have to change our flight plans

too. Meanwhile, I didn't bring enough clothes, meds, formula, or

other stuff with me, and the hospital is having a hard time getting

's GH, Aromasin, & formula. Ugh! Now enough venting.....

On the positive side, Dr. H was wonderful in staying with us &

getting directly admitted to the hospital so we didn't have

to go through the ER. She took down to radiology herself,

and stood there until the did they chest X-ray. Then, she brought

him directly to the peds floor. We met another RSS family while we

were here, which was also nice.

Chrissy, thanks to you, I knew there was a way to get online here!

We are in room 428 now. The number to our room is if

anyone feels like chatting. Hope everyone else is doing better than

us right now!

Kim C.

(mom to , 12, RSS)

[Guest guest]

Kim,

If you are checking the listserve, I have to run out for a party at my

sister's but I will be home around 6. I will call you. Where are you from?

I'm in NJ and if there is something you need please let me know. How is

feeling today?

B

and Kelli

cara schobert wrote:

wow

at a trip i hope matt get well quick thank goodness for dr.h keep us posted

cara mom to jacob

Kacey171 wrote:

I am starting to feel like I an relate to evryone dealing with

hospitals. & I came to NY to see Dr. Harbison, and he got

sick while he was here with significant breathing problems. So,

yesterday, I scrambled to buy a nebulizer & get my local ped. to call

in some meds before we saw Dr. H. Once Dr. H saw him, she admitted

him directly to the hospital. Turns out he has the flu, and it is

having an extreme effect on his lungs. He is on oxygen, and I have

no idea howlong we will be here at Mt. Sinai.

I have been so stressed trying to take care of our travel

accommodations. I had to check out of the hotel early, and I don't

know whether I will get a refund for the unused night (it was a

prepaid reservation). It was real fun getting all my luggage to the

hospital by myself in the pouring rain, and then getting lost in the

hospital coming back in, because the main entrance is under

construction, and I had to go through the basement. We were supposed

to fly home tommorow, and now I'll have to change our flight plans

too. Meanwhile, I didn't bring enough clothes, meds, formula, or

other stuff with me, and the hospital is having a hard time getting

's GH, Aromasin, & formula. Ugh! Now enough venting.....

On the positive side, Dr. H was wonderful in staying with us &

getting directly admitted to the hospital so we didn't have

to go through the ER. She took down to radiology herself,

and stood there until the did they chest X-ray. Then, she brought

him directly to the peds floor. We met another RSS family while we

were here, which was also nice.

Chrissy, thanks to you, I knew there was a way to get online here!

We are in room 428 now. The number to our room is if

anyone feels like chatting. Hope everyone else is doing better than

us right now!

Kim C.

(mom to , 12, RSS)

[Guest guest]

Kim! Yikes! I'm so sorry to hear has been admitted -

fortunately you will have the care you need while you are there.

That must have been a little scary, tiring and stressful to say the

least. I know it was very difficult for us in that it had been our

first time to New York and we were so uncomfortable in our

surroundings. I hope you will feel more comfortable than we did and

that you will take advantage of a Starbucks (offered near the

cafeteria) occassionally while you are there. That was the only

time I felt " normal " .

Please keep everyone posted. I will be in touch with several here

and I'll be checking in with them to see how is doing.

Please take care. Lot's of hugs.

- H

>

> I am starting to feel like I an relate to evryone dealing with

> hospitals. & I came to NY to see Dr. Harbison, and he got

> sick while he was here with significant breathing problems. So,

> yesterday, I scrambled to buy a nebulizer & get my local ped. to

call

> in some meds before we saw Dr. H. Once Dr. H saw him, she

admitted

> him directly to the hospital. Turns out he has the flu, and it is

> having an extreme effect on his lungs. He is on oxygen, and I

have

> no idea howlong we will be here at Mt. Sinai.

>

> I have been so stressed trying to take care of our travel

> accommodations. I had to check out of the hotel early, and I

don't

> know whether I will get a refund for the unused night (it was a

> prepaid reservation). It was real fun getting all my luggage to

the

> hospital by myself in the pouring rain, and then getting lost in

the

> hospital coming back in, because the main entrance is under

> construction, and I had to go through the basement. We were

supposed

> to fly home tommorow, and now I'll have to change our flight plans

> too. Meanwhile, I didn't bring enough clothes, meds, formula, or

> other stuff with me, and the hospital is having a hard time

getting

> 's GH, Aromasin, & formula. Ugh! Now enough venting.....

>

> On the positive side, Dr. H was wonderful in staying with us &

> getting directly admitted to the hospital so we didn't

have

> to go through the ER. She took down to radiology herself,

> and stood there until the did they chest X-ray. Then, she brought

> him directly to the peds floor. We met another RSS family while

we

> were here, which was also nice.

>

> Chrissy, thanks to you, I knew there was a way to get online

here!

> We are in room 428 now. The number to our room is if

> anyone feels like chatting. Hope everyone else is doing better

than

> us right now!

>

> Kim C.

> (mom to , 12, RSS)

>

[Guest guest]

Kim,

Which gh do you use? We have Humatrope and LOTS of it. If that is

the one, then I can bring some to you. Dr. H. once gave us someone

else's, so I'd like to return the favor.

If you need anything else, please let me know. I am only an hour away

and my husband is used to running me into the city to visit my RSS

families. He just shakes his head and says, " Let's go.... " Chrissy

knows all about that one!

My phone number is . I can bring you anything. I'll even

pick up meds for you if you need them. Do you need food or money?

Hey, I can grab Briggs and make her go with me!

Jodi Z

[Guest guest]

You got that right Jodi Z.

B

and Kelli

Jodi Zwain wrote:

Kim,

Which gh do you use? We have Humatrope and LOTS of it. If that is

the one, then I can bring some to you. Dr. H. once gave us someone

else's, so I'd like to return the favor.

If you need anything else, please let me know. I am only an hour away

and my husband is used to running me into the city to visit my RSS

families. He just shakes his head and says, " Let's go.... " Chrissy

knows all about that one!

My phone number is . I can bring you anything. I'll even

pick up meds for you if you need them. Do you need food or money?

Hey, I can grab Briggs and make her go with me!

Jodi Z

[Guest guest]

MY SYMPATHIES!!!!!!! No way to spend the weekend! We did 2 weekends in a row

like this. Hope everything is better very soon!

Kacey171 wrote:

I am starting to feel like I an relate to evryone dealing with

hospitals. & I came to NY to see Dr. Harbison, and he got

sick while he was here with significant breathing problems. So,

yesterday, I scrambled to buy a nebulizer & get my local ped. to call

in some meds before we saw Dr. H. Once Dr. H saw him, she admitted

him directly to the hospital. Turns out he has the flu, and it is

having an extreme effect on his lungs. He is on oxygen, and I have

no idea howlong we will be here at Mt. Sinai.

I have been so stressed trying to take care of our travel

accommodations. I had to check out of the hotel early, and I don't

know whether I will get a refund for the unused night (it was a

prepaid reservation). It was real fun getting all my luggage to the

hospital by myself in the pouring rain, and then getting lost in the

hospital coming back in, because the main entrance is under

construction, and I had to go through the basement. We were supposed

to fly home tommorow, and now I'll have to change our flight plans

too. Meanwhile, I didn't bring enough clothes, meds, formula, or

other stuff with me, and the hospital is having a hard time getting

's GH, Aromasin, & formula. Ugh! Now enough venting.....

On the positive side, Dr. H was wonderful in staying with us &

getting directly admitted to the hospital so we didn't have

to go through the ER. She took down to radiology herself,

and stood there until the did they chest X-ray. Then, she brought

him directly to the peds floor. We met another RSS family while we

were here, which was also nice.

Chrissy, thanks to you, I knew there was a way to get online here!

We are in room 428 now. The number to our room is if

anyone feels like chatting. Hope everyone else is doing better than

us right now!

Kim C.

(mom to , 12, RSS)

[Guest guest]

Thanks - nobody can understand all we go through like another

RSS family!

Kim C.

> MY SYMPATHIES!!!!!!! No way to spend the weekend! We did 2

weekends in a row like this. Hope everything is better very soon!

>

>

>

> Kacey171 <capuano_k@p...> wrote:

> I am starting to feel like I an relate to evryone dealing with

> hospitals. & I came to NY to see Dr. Harbison, and he got

> sick while he was here with significant breathing problems. So,

> yesterday, I scrambled to buy a nebulizer & get my local ped. to

call

> in some meds before we saw Dr. H. Once Dr. H saw him, she admitted

> him directly to the hospital. Turns out he has the flu, and it is

> having an extreme effect on his lungs. He is on oxygen, and I have

> no idea howlong we will be here at Mt. Sinai.

>

> I have been so stressed trying to take care of our travel

> accommodations. I had to check out of the hotel early, and I don't

> know whether I will get a refund for the unused night (it was a

> prepaid reservation). It was real fun getting all my luggage to

the

> hospital by myself in the pouring rain, and then getting lost in

the

> hospital coming back in, because the main entrance is under

> construction, and I had to go through the basement. We were

supposed

> to fly home tommorow, and now I'll have to change our flight plans

> too. Meanwhile, I didn't bring enough clothes, meds, formula, or

> other stuff with me, and the hospital is having a hard time getting

> 's GH, Aromasin, & formula. Ugh! Now enough venting.....

>

> On the positive side, Dr. H was wonderful in staying with us &

> getting directly admitted to the hospital so we didn't have

> to go through the ER. She took down to radiology herself,

> and stood there until the did they chest X-ray. Then, she brought

> him directly to the peds floor. We met another RSS family while we

> were here, which was also nice.

>

> Chrissy, thanks to you, I knew there was a way to get online here!

> We are in room 428 now. The number to our room is if

> anyone feels like chatting. Hope everyone else is doing better

than

> us right now!

>

> Kim C.

> (mom to , 12, RSS)

>

>

>

>

>

>