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Hi my name is Kim I have three sons the youngest is he is

12 weeks and is being followed for suspected RSS. He was born 12/9/05

at 36 weeks weighing 3#12oz and 16.5 inches long. He has curved pinky

fingers which is one of the main reasons they began to suspect it.

We've been denying that this is the case. Today we went back to our

geneticist who still says this is RSS. He weighs 7#2oz and is 20.5

inches long. That seems like a great weight gain and growth to us! I

guess I'm wondering if there are varying degrees of RSS? He is

breastfed but we also give bottles of expressed milk with 22 calorie

formula mixed in. He doesnt have a huge appetite but today because we

were away from home he has had 4 bottles of 3oz each which is alot for

him. The geneticist said there is no test to give him that we'll just

have to watch and see. She's doing a followup u/s on his abdomen and

kidneys (his first was fine) but she wants to follow him for something

to do with his kidneys (tumors?). We see her again at a year. I am

looking forward to getting to know more about RSS and getting to know

more parents dealing with this. Thanks for any BTDT advice or stories

you'd be willing to share.