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Reflux Solutions - Lori

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Hi Lori!!

Welcome to the group! Could Chloe be suffering from reflux?? Or silent

reflux?? Is she on any reflux meds??

Reflux is not uncommon in RSS children. Lightweight foods, such as formula,

will reflux more easily than solids. Even children that do not vomit, or

even spit up, can be experiencing reflux. silent reflux can be virtually

undetectable, but is still painful to the child.

Undiagnosed reflux caused a severe oral aversion in my g-son, , and

eventually led to the placement of a g-tube at 8.5 months of age. His oral

aversions had gotten so bad that he was literally starving himself.

Some Peds will just make the formula heavier by adding rice cereal, but I've

found in most cases of silent reflux, this doesn't help much. And the rice

cereal has a tendency to make the baby feel full longer, thus inhibiting

appetite.

You could try an inert medication like Zantac. This is in the Histamine 2

Antagonist (H2A), and it neutralizes the acid in the stomach. It doesn't

actually " stop " the reflux, but it makes it less painful.

Or you could try something like Prevacid or Prilosec. This is a Proton Pump

Inhibitor (PPI). It stops the proton pumps from creating the acid that

causes the pain with reflux.

We use a combination of these meds (Zantac in the morning, and Prevacid in

the evening) to control my g-son's reflux.

I hope this helps!

Pat (g-ma to , RSS, 4yrs 2m old, 28# 10oz, 35 " , G-tube, GHT)

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Hi Pat,

Thanks for the response. Yes Chloe does suffer from reflux. She is on

previcid. She used to reflux all the time with silent reflux, she always seemed

to be in pain. The previcid works great for her. She still has reflux but I

believe she is outgrowing it. I guess I'll just keep giving her as much baby

food as possible.

I also was wondering if you and anyone else has had a family history of RSS.

My husband has 5 sisters and out of the 5 3 of them have RSS. His smallest

sister is 4'6 " and weighs 65-70 lbs. Our genectist was amazed by this and would

like to get blood drawn from them for studies. It seems to only affect the

females. So I wonder if my son Cole decides to have kids if his daughter will

have RSS. So far seems to pass down this way. Just was curious if anyone had a

family history!

Thanks,

Lori (Twins Cole non RSS 18 lbs 6 oz & Chloe RSS 10 lbs 9 oz at 9 months)

pat wrote:

Hi Lori!!

Welcome to the group! Could Chloe be suffering from reflux?? Or silent

reflux?? Is she on any reflux meds??

Reflux is not uncommon in RSS children. Lightweight foods, such as formula,

will reflux more easily than solids. Even children that do not vomit, or

even spit up, can be experiencing reflux. silent reflux can be virtually

undetectable, but is still painful to the child.

Undiagnosed reflux caused a severe oral aversion in my g-son, , and

eventually led to the placement of a g-tube at 8.5 months of age. His oral

aversions had gotten so bad that he was literally starving himself.

Some Peds will just make the formula heavier by adding rice cereal, but I've

found in most cases of silent reflux, this doesn't help much. And the rice

cereal has a tendency to make the baby feel full longer, thus inhibiting

appetite.

You could try an inert medication like Zantac. This is in the Histamine 2

Antagonist (H2A), and it neutralizes the acid in the stomach. It doesn't

actually " stop " the reflux, but it makes it less painful.

Or you could try something like Prevacid or Prilosec. This is a Proton Pump

Inhibitor (PPI). It stops the proton pumps from creating the acid that

causes the pain with reflux.

We use a combination of these meds (Zantac in the morning, and Prevacid in

the evening) to control my g-son's reflux.

I hope this helps!

Pat (g-ma to , RSS, 4yrs 2m old, 28# 10oz, 35 " , G-tube, GHT)

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