Re: Re: the endo called...and I wished he didnt... Chris

[Guest guest]

In a message dated 2/11/2006 3:27:48 PM Central Standard Time,

rush4ak@... writes:

I agree with Pat, that if there is any way you can see Dr. H. (either at her

office or at the convention) that would be the best. She has many doctor

connections all over the country & could probably steer you to a good doctor,

no matter what diagnosis True has. Another thought - MAGIC also has a list

of doctors. If you are a member, you could contact MAGIC for help.

I have tried to find out where she is on the internet and I have gotten a

couple of different colleges but couldn't find her hospital. Can someone give

me info? I found an email for her at mount sinai college last night and

wrote her through that email but it may be old for all I know. Anyway, I don't

think I want to make a trip unless I was fairly sure I needed to be there and

now with the recent issues with the endo, I am not that certain.

There's a chance that when I call the GI Monday about what he said about the

feeding issues, that he may want their endo to see True before we do another

scope (whcih is the treatment plan that the GI said had to go on hold until

they knew why he was having hypoG) and we may be able to get into a back door

that way. However, I am not happy about having another doctor that is out of

town, so we may just try the other local and see what happens.

I really would like more contact info for Dr Harbison though.

thanks a bunch

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)

[Guest guest]

We have never seen Dr. H. but I do believe she's at Mt. Sinai in NYC. Hope this

helps.

Jeanie

VisibleWorship@... wrote:

In a message dated 2/11/2006 3:27:48 PM Central Standard Time,

rush4ak@... writes:

I agree with Pat, that if there is any way you can see Dr. H. (either at her

office or at the convention) that would be the best. She has many doctor

connections all over the country & could probably steer you to a good doctor,

no matter what diagnosis True has. Another thought - MAGIC also has a list

of doctors. If you are a member, you could contact MAGIC for help.

I have tried to find out where she is on the internet and I have gotten a

couple of different colleges but couldn't find her hospital. Can someone give

me info? I found an email for her at mount sinai college last night and

wrote her through that email but it may be old for all I know. Anyway, I don't

think I want to make a trip unless I was fairly sure I needed to be there and

now with the recent issues with the endo, I am not that certain.

There's a chance that when I call the GI Monday about what he said about the

feeding issues, that he may want their endo to see True before we do another

scope (whcih is the treatment plan that the GI said had to go on hold until

they knew why he was having hypoG) and we may be able to get into a back door

that way. However, I am not happy about having another doctor that is out of

town, so we may just try the other local and see what happens.

I really would like more contact info for Dr Harbison though.

thanks a bunch

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)