Re: strange news

[Guest guest]

Nothing is Stupid..............I felt bad about going cause I had a bad headache...It was my pressure it would have killed me

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-support Sent: Fri, December 4, 2009 8:02:21 PMSubject: strange news

I went to the Pendleton Center this afteenoon for my medically supervised exercise and before i start they take my pulse, my 02 and my blood pressure...my blood pressure after sitting for 10 minutes was 200/100 and they would not let me exercise. She said I should make an appointment to see my doc. I told her how fatigued I have been and how any amount of movement leaves mefeeling weak and fatigued...I told her that my )2 stats were good and she said that was ok I still need to see adoctor...but whatgood will that do? If it's my lungs they don'tgie me anything. She said it could be as simple as a virus and it could be my heart...my heart was just fine a couple of years ago how could it not be so now...this is very frustrating but god, doing the smallest and most simple thing makes meso fatigued I cannot move. I have an appointment to see my primary on Tuesday but I feel stupid about going. I mean there isn't anything she can do.

Joyce

[Guest guest]

RUDY JOYCE

you are talking about old fashioned hypertension that many people have including me

it has probably nothing to do with the pulmonary fibrosis

it is different from pulmonary hypertension that lots of people worry about with pulmonary fibrosis

200 over 100 is extremely high

your doctor will probably put you on blood pressure medication

normal blood pressure is 120 over 80

i'm almost surprised they didn't send you to the ER

i kind of think of 200 over 100 as a "walking time bomb"

i grew up with a mother who had hypertension that was out of control

always knew that her top number was frequently over 200

never knew what her bottom number was

was really surprised that she died from pancreatic cancer instead of a stroke

because of my mother's hypertension, when i started cooking, i always limited the amount of salt, since i predicted that i might get it too

as far as the heart being fine a couple of years ago, things change all the time, that's why some people get ekg's every year

plus your heart is working extra hard pushing oxygen into your lungs or your blood or whatever it does

if you were here, i would be yelling at you and taking you to the doctor

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: strange newsTo: Breathe-support Date: Friday, December 4, 2009, 8:02 PM

I went to the Pendleton Center this afteenoon for my medically supervised exercise and before i start they take my pulse, my 02 and my blood pressure...my blood pressure after sitting for 10 minutes was 200/100 and they would not let me exercise. She said I should make an appointment to see my doc. I told her how fatigued I have been and how any amount of movement leaves mefeeling weak and fatigued...I told her that my )2 stats were good and she said that was ok I still need to see adoctor...but whatgood will that do? If it's my lungs they don'tgie me anything. She said it could be as simple as a virus and it could be my heart...my heart was just fine a couple of years ago how could it not be so now...this is very frustrating but god, doing the smallest and most simple thing makes meso fatigued I cannot move. I have an appointment to see my primary on Tuesday but I feel stupid about going. I mean there isn't anything she can do.

Joyce

[Guest guest]

Joyce,

I agree with what they told you at exercise today. Your blood pressure was seriously elevated and you need to see your doctor. Think of this for now as unrelated to your lung disease. Your blood pressure is too high. It was not safe for you to exercise today. So you'll go see your primary care doctor to look into why your bp was so high today. It's not stupid and it's not a waste of time. If you have chronically high blood pressure there are medications that can help control it. It's important that you look after yourself. It's even possible that some of your fatigue could be related to high blood pressure.

Joyce this is all part of taking care of yourself. Any new symptom is something that should be investigated and looked after so that it does not add to your problems over the long haul. You tend to be hard on yourself and hold yourself to unreasonably high standards. Please be kind and patient with yourself. You are important to us!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-support Sent: Fri, December 4, 2009 8:02:21 PMSubject: strange news

I went to the Pendleton Center this afteenoon for my medically supervised exercise and before i start they take my pulse, my 02 and my blood pressure...my blood pressure after sitting for 10 minutes was 200/100 and they would not let me exercise. She said I should make an appointment to see my doc. I told her how fatigued I have been and how any amount of movement leaves mefeeling weak and fatigued...I told her that my )2 stats were good and she said that was ok I still need to see adoctor...but whatgood will that do? If it's my lungs they don'tgie me anything. She said it could be as simple as a virus and it could be my heart...my heart was just fine a couple of years ago how could it not be so now...this is very frustrating but god, doing the smallest and most simple thing makes meso fatigued I cannot move. I have an appointment to see my primary on Tuesday but I feel stupid about going. I mean there isn't anything she can do.

Joyce

[Guest guest]

I wasn't even feeling sick when I had to have my first stent. Two years is a long time. Things can change fast. Please get checked.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: strange newsTo: Breathe-support Date: Friday, December 4, 2009, 5:02 PM

I went to the Pendleton Center this afteenoon for my medically supervised exercise and before i start they take my pulse, my 02 and my blood pressure...my blood pressure after sitting for 10 minutes was 200/100 and they would not let me exercise. She said I should make an appointment to see my doc. I told her how fatigued I have been and how any amount of movement leaves mefeeling weak and fatigued...I told her that my )2 stats were good and she said that was ok I still need to see adoctor...but whatgood will that do? If it's my lungs they don'tgie me anything. She said it could be as simple as a virus and it could be my heart...my heart was just fine a couple of years ago how could it not be so now...this is very frustrating but god, doing the smallest and most simple thing makes meso fatigued I cannot move. I have an appointment to see my primary on Tuesday but I feel stupid about going. I mean there isn't anything she can do. Joyce

[Guest guest]

Joyce -

The same thing happened to one of the guys in my morning rehab exercise session

at the University. They sent him away and he was back the next week after they

figured out what was up. It turned out he needed yet another medication, but

with the adjustment, he was fine to exercise. They explained to him that was

the express reason for testing O2 sat, blood pressure and heart monitoring. To

make sure you are exercising safely and there are no lingering or newly

developing situations that could put you at jeopardy. Take it in stride and all

will be well.

Stefani 61 year old Utahn (transplant from MN)

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> I went to the Pendleton Center this afteenoon for my medically supervised

> exercise and before i start they take my pulse, my 02 and my blood

> pressure...my blood pressure after sitting for 10 minutes was 200/100 and

they would

> not let me exercise. She said I should make an appointment to see my doc.

> I told her how fatigued I have been and how any amount of movement leaves

> mefeeling weak and fatigued...I told her that my )2 stats were good and she

> said that was ok I still need to see adoctor...but whatgood will that do?

> If it's my lungs they don'tgie me anything. She said it could be as simple

> as a virus and it could be my heart...my heart was just fine a couple of

> years ago how could it not be so now...this is very frustrating but god,

doing

> the smallest and most simple thing makes meso fatigued I cannot move. I

> have an appointment to see my primary on Tuesday but I feel stupid about

> going. I mean there isn't anything she can do. Joyce

>