Questions

April 23, 2010

Dear Bee:

What do you mean finding a farmer who saved original seed? Does it meant i look

for organic pearl barley? Or organic gluten product?

Thanks!

Star

> >>

> > Dear Bee; Thank you for the reply.

> > However, my question were not really clarified by your reply.

> >

> > 1. I know the fermented food list that are allowed to eat. I just want to

know why certain fermented food are allowed and some are not allowed......,

because they are all fermented food.

>

> +++Hi Star. I did answer you. That is because not all fermented foods are

okay, so you can only have foods on the food list that are fermented, and not

any others.

> >

> > 2. I am modifying my diet gradually. Before I can completely getting rid of

grains, will you please tell me which one is less harmful? Rice, pearl barley or

quinoa?. Your article mentioned that barley is molded, does that included pearl

barley, and why is that?

>

> +++Brown rice or quinoa that are properly soaked. Barley like all gluten

grains are genetically modified and contain fungal-type toxins that aren't good

for anyone's health, unless you find a farmer who has saved " original seeds. "

> >

> > 3. I did not find any info about SIBO in the article you send me. SIBO is

not the same as IBS.

>

> +++You do not need information specifically for SIBO since you do the same

things I recommend to improve your digestion for any digestive issues.

> >

> > 4. You recommend Now brand of Nutritional Yeast FLakes. That one also

contain fortified vitamin B. Is it ok to use ?

>

> +++Yes, since it says " fortified with additional B vitamins. "

>

> Bee

>

April 24, 2010

>

> Dear Bee:

>

> What do you mean finding a farmer who saved original seed? Does it meant i

look for organic pearl barley? Or organic gluten product?

+++Hi Star,

Don't have pearl barley at all. Have buckwheat, quinoi, millet or brown rice.

Bee

June 4, 2010

Hi Sherry,

I think it's reasonable to assume that now that your body is stronger, it reacts

very quickly to get rid of any garbage that you feed it. I think that may be

why you feel so bad after cheating.

Diarrhea is a way for your body to get rid of toxins, so it makes sense that

yours has increased as you've become more strict on the diet.

All the best,

(a group moderator)

>

> Now that I have been on the diet and supps a year now it seems when I do cheat

I get sicker than before??? Now when I do cheat I feel completely awful and much

worse than even before starting the diet?

>

> I also am still having dirreahh so bad. I have been alot more strict im the

month of May.....is my body finally releasing some of this crap??

>

> sherry

>

July 3, 2010

Hi JE and Welcome,

With Androgel 4 pumps is 5 grams a starting dose I find it very hard to believe

your levels went this high. Most men doing 10 grams are lucky to hit 600.

Now here is the best way to do your labs on gels. Get up take a shower go do

your labs first then put the gel on when your labs are taken. If you can't do

this shower put on the gel don't get it on the spot they take the blood from and

do your labs in 4 to 6 hrs.

When you put on the gel is stays just under your skin for about 6 hrs feeding

your blood Testosterone if you do labs after you put on the gel and have gel in

this area your going to spike up your labs. Most of us have been there done

that. Then your Dr. reads them labs cut your dose back and you crash.

As for the rash this can be your nerves from your Dr. lowing your dose and

upping it again.

My Dr. never makes a dose change on one set of labs labs just mess up to much.

What dose this rash look like dose it have small red bumps or big red areas of

skin.

One thing you need to do is find a good Dr. Endo's are not good Dr.'s for low T

and Uro's.

But he is at least treating you can you post your first set of labs and the labs

there after.

We try to tell men find out why your low first before going on TRT because it's

for life.

One more thing test your Estradiol levels do a Quest labs Sensitive Estradiol

test #4021 or get it from LabCorp. If your levels are very high this can cause

a rash. I got them on the sides of my chest just down from my under arms and on

the back of my legs.

If your levels are high it kills your sex life one way to tell if your high is

you don't have night time and morning wood and you could have ED.

http://www.sexdictionary.info/erection_nocturnal.html

The range is 13 to 54 pg/ml at Quest labs if your over 30 you could have a

problem and need to take something to bring this down. Most of us use Arimidex

if your over 50 pg/ml you will have a problem feeling better on TRT of any kind.

http://answers.google.com/answers/threadview?id=450553

http://www.griffinmedical.com/male_hormone_modulation_therapy.html

http://www.medibolics.com/ArimidexBoostsTestosterone.htm

Here is a copy of a file I made about using gels.

=================================

Starting on Androgel or Testim.

Yes this happens a lot you start on a low starting dose 5 grams when your brain

sees the testosterone in your blood even just a little it slows down even stops

sending the LH and FSH message to your testis to make the Testosterone you were

making. So lets say your labs for Total T were 350 you add this dose of gel

your brain sees this and you lose the base level you had before the gel.

Now lets say you need more then 5 grams most do so now all your left with is

what the gel is doing so lets say it's doing 200 so you lost 150.

The reason you feel good is your levels go up that 200 the gel is doing in the

first 2 weeks so your levels go up to 550 in theory. The brain sees this and

you fall back.

Why can this happen it might be how your putting on the gel with Androgel you

need to spread it over your upper arms and shoulders and down your back as far

as you can reach this is half of your dose then do the other side. Just spread

it over the area but don't rub it in.

The other thing is it's not getting through your skin good so you need more. If

you have a thyroid problem your skin will become thicker and gels and creams

don't get through the skin and you need to switch to shots.

I tell men when they go on Gels to retest in 2 weeks because you can end up

feeling worse. Most men just need more gel. Dr.'s that tell men to go on 5

grams of gel and come back in 8 to 12 weeks for labs don't know much about the

use of gels. Dr.'s that treat a lot of men for low T on gels see this happen

and test them again in 2 weeks.

When you go to do labs get up and shower that morning go do your labs and then

put in the gel after your blood test so you donâ€™t spike up your labs. If you

canâ€™t do labs in the morning shower put on the gel but donâ€™t get any gel on

the spot they take the blood from. Do your labs about 6 hrs later.

Call your Dr. and tell him this and that your not feeling good you were but fell

back.

----------------------------------------------------------------------------

Some men can't take gels it gives them a rash on the areas the put the gel on if

this is the case switch to shots do them your self start with 100 mgs / week.

Co-Moderator

Phil

> From: jeffeason@... <jeffeason@...>

> Subject: questions

>

> Date: Saturday, July 3, 2010, 6:56 AM

> I have been on Andorgel for six

> months with no issues other than large swings in T

> levels.Â I was on on 4 pumps and T level went to 830

> then lowered to 3 pumps and dropped to 150.Â The Endo

> just raised me back to 4 pumps.Â I have developed a

> rash dispersed all over my body and not just at the

> application site.Â Do you think it is the

> Androgel?Â Has anyone had this experience? What could

> cause these huge T level swings?

>

> JE

>

> ------------------------------------

>

October 16, 2010

>

> Dear All

>

> I went to the store to purchase " Garden of Life " cod liver oil today. They

apparently came out with another kind which I did not get because it contained

seaweed and soy. But now I'm wondering about the bottle that you recommend. It

doesnt say it contains soy on the bottle, but it does contain alpha tocopherol.

Isnt that synthetic vitamin E? If it is, is it derived from soy? I'm thinking

that if it does, is should say so on the bottle right?

>

> Also, I cant seem to find any vitamin C that says " free from corn " . The ones

that I've looked at says free from everything else but corn. I don't know what

to do about that.

+++Hi there. What is your name please?

Why don't you write to Garden of Life and ask them your questions and let us

know what their response is.

Vitamin C can be derived from corn, but during the process corn is chemically

changed and is not corn any more.

See my list of recommended supplements at iHerb, which is one of the best ways

to get your supplements. Please give them my Rewards Number so I get a little

credit for it:

http://www.healingnaturallybybee.com/resource/iherb.php

Thank you, Bee

October 18, 2010

Hi,

I just found a Vitamin C last night without corn called Pure Radiance C. Info:

http://www.nudefood.com/shop/cart.php?m=product_detail & p=68 HOWEVER it does not

say soy free and I plan on calling today to ask before I order. I'll post the

response.

Also many vitamins contain tocopherol from soy but do not list it because they

remove the soy protein. On fish oil I just bought that DID NOT list soy I was

told, " it's from soy but we removed the protein. " The fish oil was the only

thing I had added recently and it caused eczema like soy does.

Also, I bought a vitamin and it said it was soy-free but I reacted to it as

though it was soy and the woman said, it's not soy because it's totally

synthetic. My body seems to always react to synthetics (I was a wreck on

synthetic thyroid) so that was another lesson.

Yarrgh! Why can't they just clearly tell it like it is?

Best,

Nan

>

> Dear All

>

> I went to the store to purchase " Garden of Life " cod liver oil today. They

apparently came out with another kind which I did not get because it contained

seaweed and soy. But now I'm wondering about the bottle that you recommend. It

doesnt say it contains soy on the bottle, but it does contain alpha tocopherol.

Isnt that synthetic vitamin E? If it is, is it derived from soy? I'm thinking

that if it does, is should say so on the bottle right?

>

> Also, I cant seem to find any vitamin C that says " free from corn " . The ones

that I've looked at says free from everything else but corn. I don't know what

to do about that. Thanks!

>

October 19, 2010

here are some of the reasons you want to take your child to a

neuromedical doctor for an exam if apraxia is suspected (we cover this in The

Late Talker book too)

To answer any questions you may have about taking your child to see a

neurodevelopmental MD if he has not yet been to one and apraxia is

suspected... in one word - " Yes!!! " I would have your child diagnosed

(private) by a neurodevelopmental medical doctor (developmental

pediatrician or pediatric neurologist) who is knowledgeable about

apraxia and other neurologically based multi-faceted communication

impairments for numerous reasons. Reasons include (but not limited

to)

*having a " hero " on the outside of the school who can assist in a

therapeutic plan and oversee your child's development over the years

*advocacy support with the insurance company

* ruling out or confirming any neurological soft signs or any other

reasons for the delay in speech

*help those that ask " why isn't he talking yet " understand this is a

medical condition -and has nothing to do with your child's cognitive

ability. (if in your child's case it doesn't. Apraxia in itself

does not affect a child's cognitive ability -and speaking early or

late is no indication of a child's intelligence. Also contrary to

popular belief -most who have speech impairments have average to

above average intelligence)

Not sure if you ever read the full " new member archive " which is from years ago

-but here it is:

http://www.facebook.com/topic.php?uid=115029735601 & topic=13085

For example with a neuroMD exam and evaluation you could secure one on one

therapy through the school if appropriate- there are sample letters in the book.

Don't let them tell you that your child isn't qualified without a fight with an

outside opinion...again with that neuroMD eval comes in...and don't let them say

that the doctor's letter won't affect outcome -doctors can and are part of IEP

teams all the time. The AAP has a stand on this:

http://aappolicy.aappublications.org/cgi/content/full/pediatrics;104/1/124

The church and playground are all awesome for play and motor planning and social

skills -but your child is entitled to a free and appropriate public education in

the least restrictive environment with professionals that are aware and

knowledgeable of how to best help implement the IEP which are goals that are set

and agreed upon by the entire team. The goal is to give your child the best

possible chance to succeed and to be mainstreamed by kindergarten and beyond.

If your child had just a developmental delay in speech any program, or no

program at all would be fine.

Again read the link above and look over The Late Talker book again -sometimes

the first time you read it you may not recall sections you need down the road.

=====

October 20, 2010

Thank you . I did read the late talker when he was 1st diagnosed but I

should probably read some areas of it again. I felt like he was getting all

the stuff he needed and he is doing so well. I will definately seek a doctor

that you advised. Do you or does anyone have a good one in the Indianapolis

area that they would recommend? Please let me know.

Thanks,

>

> here are some of the reasons you want to take your child to a

neuromedical doctor for an exam if apraxia is suspected (we cover this in The

Late Talker book too)

>

> To answer any questions you may have about taking your child to see a

> neurodevelopmental MD if he has not yet been to one and apraxia is

> suspected... in one word - " Yes!!! " I would have your child diagnosed

> (private) by a neurodevelopmental medical doctor (developmental

> pediatrician or pediatric neurologist) who is knowledgeable about

> apraxia and other neurologically based multi-faceted communication

> impairments for numerous reasons. Reasons include (but not limited

> to)

>

> *having a " hero " on the outside of the school who can assist in a

> therapeutic plan and oversee your child's development over the years

> *advocacy support with the insurance company

> * ruling out or confirming any neurological soft signs or any other

> reasons for the delay in speech

> *help those that ask " why isn't he talking yet " understand this is a

> medical condition -and has nothing to do with your child's cognitive

> ability. (if in your child's case it doesn't. Apraxia in itself

> does not affect a child's cognitive ability -and speaking early or

> late is no indication of a child's intelligence. Also contrary to

> popular belief -most who have speech impairments have average to

> above average intelligence)

>

> Not sure if you ever read the full " new member archive " which is from years

ago -but here it is:

> http://www.facebook.com/topic.php?uid=115029735601 & topic=13085

>

> For example with a neuroMD exam and evaluation you could secure one on one

therapy through the school if appropriate- there are sample letters in the book.

Don't let them tell you that your child isn't qualified without a fight with an

outside opinion...again with that neuroMD eval comes in...and don't let them say

that the doctor's letter won't affect outcome -doctors can and are part of IEP

teams all the time. The AAP has a stand on this:

http://aappolicy.aappublications.org/cgi/content/full/pediatrics;104/1/124

>

> The church and playground are all awesome for play and motor planning and

social skills -but your child is entitled to a free and appropriate public

education in the least restrictive environment with professionals that are aware

and knowledgeable of how to best help implement the IEP which are goals that are

set and agreed upon by the entire team. The goal is to give your child the best

possible chance to succeed and to be mainstreamed by kindergarten and beyond.

If your child had just a developmental delay in speech any program, or no

program at all would be fine.

>

> Again read the link above and look over The Late Talker book again -sometimes

the first time you read it you may not recall sections you need down the road.

>

> =====

>

October 29, 2010

glutenfreefoodsrock,

How old is your daughter? You can get LDN in a transdermal formula dr. Jaquelyn

McCandless formulated for gut sensitive people and children. Have your

compounding pharmacy contact coastal Compounding pharmacy for Dr. McCandless'

LDN transdermal formula http://www.coastalcompounding.com

==============

>

> Hello

>

> My daughter will start LDN tonight. She has " unhealed " Gluten Intolerance

her TgG levels are remaining high on a gluten free diet. She also has Lyme

Disease and anemia. Any advice on taking LDN? Thought about giving it to her in

applesauce. She won't be able to swallow the pill.

>

October 29, 2010

ï»¿

She is 7 years old. Our house is 100% Gluten free. We do NOT eat often. She also has air reactions with wheat/gluten.

Re: [low dose naltrexone] questions

How old is she? Cream probably would have been better.

I have celiac and take LDN for other problems. I have to have

a pristine GF diet. I do eat out , only at a couple of restaurants

and have to keep a GF kitchen. I cannot eat at friends homes

at all.Debbie Sent from my iPhone

On Oct 29, 2010, at 11:51 AM, "glutenfreefoodsrock" <glutenfreefoodsrock@...> wrote:

Hello

My daughter will start LDN tonight. She has "unhealed" Gluten Intolerance her TgG levels are remaining high on a gluten free diet. She also has Lyme Disease and anemia. Any advice on taking LDN? Thought about giving it to her in applesauce. She won't be able to swallow the pill.

October 29, 2010

ï»¿

Thank you She is on probiotics already.

[low dose naltrexone] questions

Hello

My daughter will start LDN tonight. She has "unhealed" Gluten Intolerance her TgG levels are remaining high on a gluten free diet. She also has Lyme Disease and anemia. Any advice on taking LDN? Thought about giving it to her in applesauce. She won't be able to swallow the pill.

October 29, 2010

ï»¿

I will have to ask our Dr about liquid form.

[low dose naltrexone] questions

Hello

My daughter will start LDN tonight. She has "unhealed" Gluten Intolerance her TgG levels are remaining high on a gluten free diet. She also has Lyme Disease and anemia. Any advice on taking LDN? Thought about giving it to her in applesauce. She won't be able to swallow the pill.

October 29, 2010

ï»¿

Should read "We do NOT eat out often"

Re: [low dose naltrexone] questions

How old is she? Cream probably would have been better.

I have celiac and take LDN for other problems. I have to have

a pristine GF diet. I do eat out , only at a couple of restaurants

and have to keep a GF kitchen. I cannot eat at friends homes

at all.Debbie Sent from my iPhone

On Oct 29, 2010, at 11:51 AM, "glutenfreefoodsrock" <glutenfreefoodsrock@...> wrote:

Hello

My daughter will start LDN tonight. She has "unhealed" Gluten Intolerance her TgG levels are remaining high on a gluten free diet. She also has Lyme Disease and anemia. Any advice on taking LDN? Thought about giving it to her in applesauce. She won't be able to swallow the pill.

November 2, 2010

I understand that pain in the soles of the feet is usually a symptom of the

coinfection bartonella. Make sure he is tested for all coinfections including

mycoplasma fermentens that can cause severe anxiety. Even if he tests negative

if he was bit by a tick and has positive symptoms for lyme it is a clinical

diagnosis and getting him on antibiotic treatment is the only way he will ever

get better. Kids do get better with proper antibiotic treatment!

[ ] questions

Hello. We are new to this group, and I hope some of you might be able to

answer some questions that I have.

My son Tim is 16 and was bitten by a deer tick 2 ½ years ago. 6 months

later he began to complain of attention issues at school, and his grades

dropped. He became increasingly anxious, and really went downhill about 6

months ago. After 9 doctors and many prescriptions and diagnoses (ADHD,

anxiety, depression, bipolar), we went to a new doctor who said he was

positive it’s Lyme. Tim had tested negative in the spring, so it never

occurred to us that it could be Lyme. We are now waiting for results from

IGenix .

Given that the doctor was so adamant that he has Lyme, we started

Doxycycline in mid-September. We also started him on Omega-3 supplements

b/c his cholesterol levels were so low (107) and many other supplements

including a pro-biotic.

My primary question is about the extreme pain he is in. He says even the

soles of his feet hurt, and it’s painful to walk. This is much more than

just the joint pain he started with, and so it seems that this is not a

herx. His anxiety is still high and he is on a low dose SSRI. The doctor

suspects that the SSRI might be what is causing him pain. Can anyone weigh

in on this? Is that possible? He also recommended stopping the doxy until

we get back the IGenix report, just to give his body a rest. Also, if the

tests come back negative then I really have no idea what to do.

Like all of you, I am scared and worried and frustrated. I appreciate any

feedback you might have.

Ellen

Bethesda, MD

November 2, 2010

For me my soles of my feet hurt and that is related to my barttenella

co-infection. Many people with Bart complain about this - it & #39;s extreme pain

and the co-infection needs to be treated.....to me it feels like someone hit my

soles of my feet with a bat and they feel all bruised and hurt bad - thats how I

explain my sole pain - that will go away with proper treatment for Bart - hope

that helped at least with the sole pain....my prayers are with you as I have

three girls with this disease and myself.....keep asking questions we are all

here to help eachother - Diane

November 2, 2010

's feet peel, fight for laura. On fb

Sent on the Sprint® Now Network from my BlackBerry®

Re: [ ] questions

For me my soles of my feet hurt and that is related to my barttenella

co-infection. Many people with Bart complain about this - it & #39;s extreme pain

and the co-infection needs to be treated.....to me it feels like someone hit my

soles of my feet with a bat and they feel all bruised and hurt bad - thats how I

explain my sole pain - that will go away with proper treatment for Bart - hope

that helped at least with the sole pain....my prayers are with you as I have

three girls with this disease and myself.....keep asking questions we are all

here to help eachother - Diane

November 2, 2010

Hi Ellen, I had the pain in the soles of my feet very badly and sometimes still

get it a little bit. In addition to getting a proper diagnosis and treatment

plan, here are some things that helped with the symptoms: ART (look up Active

Release Technology practitioners) found at specially trained chiropractors, warm

baths with epsom salt, any type of massage, eating as well as you can possibly

convince him to, keep moving, stretching, whatever he can do. Also saunas

especially FIR saunas if you can find a place near you. Best of luck to you and

hang in there, it does get better.

>

> I understand that pain in the soles of the feet is usually a symptom of the

coinfection bartonella. Make sure he is tested for all coinfections including

mycoplasma fermentens that can cause severe anxiety. Even if he tests negative

if he was bit by a tick and has positive symptoms for lyme it is a clinical

diagnosis and getting him on antibiotic treatment is the only way he will ever

get better. Kids do get better with proper antibiotic treatment!

>

> [ ] questions

>

> Hello. We are new to this group, and I hope some of you might be able to

> answer some questions that I have.

>

> My son Tim is 16 and was bitten by a deer tick 2 ½ years ago. 6 months

> later he began to complain of attention issues at school, and his grades

> dropped. He became increasingly anxious, and really went downhill about 6

> months ago. After 9 doctors and many prescriptions and diagnoses (ADHD,

> anxiety, depression, bipolar), we went to a new doctor who said he was

> positive it's Lyme. Tim had tested negative in the spring, so it never

> occurred to us that it could be Lyme. We are now waiting for results from

> IGenix .

>

> Given that the doctor was so adamant that he has Lyme, we started

> Doxycycline in mid-September. We also started him on Omega-3 supplements

> b/c his cholesterol levels were so low (107) and many other supplements

> including a pro-biotic.

>

> My primary question is about the extreme pain he is in. He says even the

> soles of his feet hurt, and it's painful to walk. This is much more than

> just the joint pain he started with, and so it seems that this is not a

> herx. His anxiety is still high and he is on a low dose SSRI. The doctor

> suspects that the SSRI might be what is causing him pain. Can anyone weigh

> in on this? Is that possible? He also recommended stopping the doxy until

> we get back the IGenix report, just to give his body a rest. Also, if the

> tests come back negative then I really have no idea what to do.

>

> Like all of you, I am scared and worried and frustrated. I appreciate any

> feedback you might have.

>

> Ellen

>

> Bethesda, MD

>

November 2, 2010

Yes to the increased pain...several people mentioned the common co-infection,

Bartonella. It can cause terrible anxiety and pain. The pain with Lyme and the

co-infections tends to move around from joint to joint, also. And as it is

treated, it really does intensify for a while.

Given the abysmal state of testing these days, if I were you, I would still

treat him. There is hope with treatment, and otherwise you will probably be

looking at just treating the symptoms. I'm sure you are seeing that high anxiety

and pain are disabling and can really negatively affect a kid's ability to

function. Be grateful you have a doctor who wants to treat. Most of us have had

to force the issue.

I think there's every reason to hope for a good recovery, given his youth and a

willing doctor on board.

Wishing you the best,

Carla

December 3, 2010

Hi globalresearch2001 and Welcome,

I have been on TRT 30 yrs I have a pituitary problem and for the first 23 yrs I

was told I am Primary meaning my Testis don't work. Turns out my pituitary is

bad from an Auto Accident some 30 yrs ago where I had a head injury. It was

after this Dr.'s new ones not Endo's or Uro's started to treat my low in range

levels of Cortiol, Thyroid, Ferriting,Growth Hormone and Aldosterone levels.

I never felt great on TRT the first 23 yrs until we treated all my hormones.

I was taken off TRT 7 times by Endo's the only thing they found out was how dam

sick they made me and each time I end off work on sick leave.

Don't treat or see Endo's they are not good Dr.'s for this problem. And it's

not just me saying this I read a huge amount of posts by men seeing them and

getting no where.

Two yrs ago due to my low hormones I need Heart Bypass Surgery it went bad I was

in a coma 13 weeks have to be opened up 5 times due to the dumb Dr.'s taking me

off TRT when I went to have the surgery.

I had one infection after the other if you ever need surgery don't let them

Dr.'s take you off TRT it can kill you. I died 5 x's I am lucky to be here

today.

My story is long you can read it here at this link and the Heart update. Having

low hormones all them yrs did in my heart I ended up with 2 99% blockages going

to my heart.

http://forums.realthyroidhelp.com/viewtopic.php?f=5 & t=9239

You can't be on TRT 2 months and stop your brain sees the Testosterone in your

blood and stops sending the LH and FSH messages to your Testis and body. Even

when you stop TRT your brain will not jump back in and send LH and FSH to your

tests enough to do labs to tell if your Pituitary is bad.

If your health care plain will pay for the MRI do it mine showed nothing by my

labs over the yrs were screaming a pituitary problem it's called Hypopituitary

today are boys are coming home from the war with this problem from the road side

bombs.

Even men in sports Foot Ball and Boxing are finding out there pituitary is bad

but MIR's don't show this it will show if you have a tumor.

I feel you need to be on TRT Gels are OK but in your case shots would work

better. Gels in old men on TRT a long time end up with very high DHT levels.

I do Test C shots every 3 days using a small needle 27g 1ml x 1/2 " lg. and shoot

into my thigh. I also shoot 250 IU's of HCG the day before my Test C shot this

keeps my Testis work and all the LH cells in my body and brain.

Men need to get there Total Testosterone levels up into the upper 1/3 of there

labs range for a young man and they need to keep there Estradiol levels at about

20 pg/ml being to high or to low undose any good the TRT is doing. To high or

to low kills your sex life.

Go to www.allthingsmale.com and read Dr. 's paper TRT: A Recipe for Success

and his HCG update.

Also join his forum a lot of guys here even fly out and see him or drive he only

needs to see you once to test and treat you by Phone. He will even work in your

Family Dr. over the phone to treat you. He is one of the best male hormone

Dr.'s in the world.

He puts this info on his site free for you and your Dr.

But don't try showing this to an Endo they are legens in there own minds.

http://www.musclechatroom.com/forum/forumdisplay.php?f=2

My friend what your doing to your self off TRT is taking time off the back of

your life.

http://tinyurl.com/2smrg7

In this link you will learn about low T in men read it over and over again so

when you see a Dr. you know if he is up on this.

http://www.griffinmedical.com/male_hormone_modulation_therapy.html

Co-Moderator

Phil

> From: globalresearch2001 <jbx10@...>

> Subject: questions

>

> Date: Friday, December 3, 2010, 11:07 AM

> Hello all..

> Ive been on and off TRT for 12 years.Done

> injections,gels,patches.When I come off I feel horrible and

> have high anxiety with no sexual interest,shrunken

> testes,ed,dizziness etc..

> My current levels are very low total Test is 53,free is low

> also.My estriol is low though too.

> I have tried HCG and clomid to kick start my system

> perhaps, my testes dropped a bit but all symptoms remain and

> still total test is 70 now.

> Feeling horrible still, I went back to Androgel I feel lil

> better,

> My question is will I have to remain on this for life?

> Is there another way to get your system to work properly

> without drugs?

> What is the mildest form of TRT on the system so one wont

> crash perhaps when one stops?

> Can a system come back after many years of synthetic

> therapy?

> Thanks for your help..

>

> ------------------------------------

>

December 9, 2010

Jon,First of all let me say WELCOME. You have landed in a soft spot with a lot of other people in similar situations as you. There are folks here on this forum in all stages of dealing with Hep C. From newly diagnosed, to diagnosed and confused, awaiting treatment, on treatment, not wanting to do treatment, using alternative treatments to a few like me who have done the treatment and cleared the virus and are now cured.

My name is Teri. I was diagnosed in 2004. I went thru 48 weeks of treatment, Peg-Interferon and Ribavirin, in 2005-2006. Most likely, I wound up with the virus from a blood transfusion in 1980 when I had my son. I say most likely because none of us will ever really know for sure. There are just way too many variables. I achieved SVR or Sustained Viral Response in December of 2006. Meaning I had gone 6 months with the virus clear from my body after treatment was over. I still get tested once a year. I am still negative. I am now cured.

I understand the avoidance of treatment completely. Especially when you appear to be healthy in all other ways.. how much harm can it do right? Unfortunately, Hep C is a slow moving virus but a dangerous one. It did some harm in your case. It did in mine as well. The good news, your liver is the only organ that can regenerate itself.. well, skin can too but as far as what we consider organs, your liver is the one that can heal itself. In time, after treatment is over and the virus cleared, your liver will start to regenerate itself. Dissolving the damaged parts and building on new cells.

Hopes are that the new drug will be out in late Spring to early Summer. That's a 4 to 6 month wait... and that's pending FDA approval. The drug has been fast tracked so hopefully we are looking at late Spring. But there are no guarantees on the time frame.

The current course of treatment is Interferon and Ribavirin. The interferon is a weekly shot and the Ribavirin is in pill form. You would probably be taking 5 to 6 pills a day. That number can changed based on the doctor's recommendations. I took 14 a day but my doctor was very aggressive and I was in dire straights when I started treatment. Side effects from treatment vary from person to person. The most " common " side effect is not so lovingly referred to as " flu like symptoms " . From personal experience, that term is an insult to the flu. The flu isn't that mean. But then again, that is my experience. We have had people on this forum who had little to no side effects and some who only feel bad for a few hours after the shot. Nobody can predict how your body will react. Some react harshly while others get a pass on all the craziness. I didn't get the pass. But, I cleared. So end result for me.. it was well worth it.

As for supplements... this is something if you are going to go thru treatment that you should discuss with your doctor. I was on none. My only supplements were pain pills and a couple of other prescriptions to make treatment easier. My doctor did not want me taking anything more than absolutely necessary. We were on the same page with that and it worked out fine. Doctor's are different, their protocols are different. I defer to your doctor on this one.

Does starting on January 4th sound like a plan? Sure. But it has to be your plan. My suggestion to you would be to get your ducks in a row before you get started. There is a possibility that you may need some time off of work when you start treatment. My doctor took me off work about a week before starting so I could get my stress level down. He told me once treatment started I would be off work for anywhere from 2 to 10 weeks as thats about how long the average person takes to get used to the meds. I am not the average person. I was not able to go back to work. Luckily, I had set the ground work up before I started treatment. I had short term disability insurance already in place and also long term disability insurance. I used them both.

Do you have a support system? Folks around you that can help you if need be. Spouse, family, friends, that kind of thing.. you need to have people that know you are going thru this treatment in case you need help. You may need help. I did.

Hope this helps a bit... hopefully it has spawned more questions in your mind... Ask away! The only dumb question is the one you didn't ask.Hugs,Teri

On Thu, Dec 9, 2010 at 5:14 PM, groundzero81876 <baggio@...> wrote:

Hello Warriors,

I just signed up for this site today. I have a few questions that maybe some of you can assist me with. Some background info: I was first diagnosed about eight years ago and have likely had HEPC since I was an IV drug user through 1974. My initial biopsy when I was diagnosed indicated mild damage and my family doctor recommended that I start treatment at that time. I have avoided treatment for a variety of reasons: fear, lack of health insurance for a span of 5-6 years. I have been under the illusion that I have been healthy. I play soccer 3-4 days a week, workout in a fitness boot camp 3 days a week. Outward appearances are that I am healthy with the exception of increasing fatique. A biopsy last month indicates that I have beginning stages of Cirrhosis, so it looks like I am going to have to do something. Apparently it's not going away! I have been clean and sober since 1976, so it has taken 36 years + to catch up with me. I can't imagine what kind of shape I'd be in if I had continued drinking. Likely, I wouldn't still be here talking about it. My Gastro just had me take a supposed new IL28b genetic test to determine my genotype 1 subtype. I came up with a " CC " genotype, which according to him has a greater than 80% chance of sustained virlogic response with Pegasys. He suggested that I start Pegasys now instead of waiting for the so called miracle treatment that the FDA is supposed to approve next summer. I just passed a stress test and I will likely get my Pegasys prescription on January 4th. Does this sound like a good plan? Also, what supplements should I be taking? I know there are a lot of crazy ideas out there on some of this stuff, so I am skeptical. I don't want to take 40 pills a day that might be a good idea. Also, how do I know what is good and what could actually cause me more harm?

Thanks for reading,

Jon from sville, OH

December 9, 2010

JonFirst of all, welcome to the !! We are here as support for one another and our Don has quite an extensive library for all to read.I have been sober for 24+ yrs now and I know with absolute certainty that if it had not been for my sobriety, I would be dead!!! However, as I told my Dr at the beginning of my diagnosis, it just simply was not possible for me to have been infected since the handful of times I ever allowed IV drugs near me. That was because, I took up drinking with a vengeance after that escapade and went for nearly 15 yrs. At the time that I was just learning of this diagnosis, I had been sober for 15 yrs; but, I abused over the counter Tylenol. Anyway, I

am a genotype 1b and initially was a stage 3 damage, full fibrosis. Unfortunately, the treatment that I did back in 2004/2005, left me a non-responder. It also left me having absolutely no idea what could or would happen. There was no talk of any new medication and it has never been recommended to retreat. However, in early 2009, I was blessed to be asked to participate in a clinical trial from out of Vancouver, Canada. The biopsy just prior to starting the clinical did come back that I had slipped into cirrhosis. By October of that year, I was finally told that I was HCV RNA negative, although I could have guessed that. The reason was, in order to be allowed to complete that trial, I would have to be negative at the juncture.We are aware here, like yourself, that we did not feel nearly as sick as we were. In my case, had it not been for a blood test for an insurance policy, I have no idea

how long I would have gone before learning about the HepC. There simply was no reason for my Drs to test me.WOW you play soccer 3 - 4 times a week???? I come from a soccer family and am well aware of what kind of shape you have to be in, to be able to play even 1 game. I am really impressed. One of my brothers was on the team from Canada for the 1984 Olympics in LA. Then, he had to be cut from the team just prior to the World Cup in 1986. Now, he is either coaching teen boys or I believe that it's teen girls now.I'd better go and look back on the material that I've been sent about this IL28b genetic test. Currently, I was asked by the clinic where I did my trial, to return for a 3 yr study regarding DNA testing to learn why some of us can clear the virus and others can't. So I wasn't aware that they may already have some kind of news.Finally, I would recommend that you take

advantage of the group library and ask a whole lot of questions before January. Personally, I certainly don't scoff at the idea of vitamins or supplementation; because I did that for probably over 30 yrs prior to HepC. However, during the treatment the first time, I was just so sick and tired of swallowing pills that I just couldn't continue with supplements.Again, welcome and jump right in as you did. We are all here for one another in a big way.Gloria Hello Warriors, I just signed up for this site today. I have a few questions that maybe some of you can assist me with. Some background info: I was first diagnosed about eight years ago and have likely had HEPC since I was an IV drug user through 1974. My initial biopsy when I was diagnosed indicated mild damage and my family doctor recommended that I start treatment at that time. I have avoided treatment for a variety of reasons: fear, lack of health insurance for a span of 5-6 years. I have been under the illusion that I have been healthy. I play soccer 3-4 days a week, workout in a fitness boot camp 3 days a week. Outward appearances are that I am healthy with the exception of increasing fatique. A biopsy last month indicates that I have beginning stages of Cirrhosis, so it looks like I am going to have to do

something. Apparently it's not going away! I have been clean and sober since 1976, so it has taken 36 years + to catch up with me. I can't imagine what kind of shape I'd be in if I had continued drinking. Likely, I wouldn't still be here talking about it. My Gastro just had me take a supposed new IL28b genetic test to determine my genotype 1 subtype. I came up with a "CC" genotype, which according to him has a greater than 80% chance of sustained virlogic response with Pegasys. He suggested that I start Pegasys now instead of waiting for the so called miracle treatment that the FDA is supposed to approve next summer. I just passed a stress test and I will likely get my Pegasys prescription on January 4th. Does this sound like a good plan? Also, what supplements should I be taking? I know there are a lot of crazy ideas out there on some of this stuff, so I am skeptical. I don't want to take 40 pills a day that might be a good idea. Also, how

do I know what is good and what could actually cause me more harm? Thanks for reading, Jon from sville, OH

December 10, 2010

Jon,

Teri has covered most of what you need to know and has done an excellent

job--one of the best I've seen.

I've had my Hep C since the early 60's or maybe before. I was diagnosed with

" liver disease " in 1966. My biopsy was over 10 years ago and doctors haven't

done a new one. Probably because I don't plan to treat at age 76.

Additionally, I have chosen to use supplements to help keep my liver healthy. I

chose to see Dr Burt Berkson and follow his protocol. You can find him in the

files or look him up on the internet. Here is one website berkson_lipoic_final.

Since you are genotype 1, then there is new treatment that ups the odds of SVR

from 50% to about 85% coming out shortly--probably in the Spring. You might

want to follow a supplement program for now and treat with the new meds. Maybe

your doctor is not aware of the new meds and does not realize the difference in

success. It is NOT an easy treatment for most and waiting a few months to change

the odds of success from 50% to 85% is a big change--especially if you use a few

liver friendly supps in the meantime. Also, you may want to be sure you can

cover expenses in case the treatment is difficult for you. You don't want

additional stress DURING treatment. There are many things to consider (and

cover) before you start a year long treatment.

Welcome to this forum.

SuziQ

>

> >

> > Hello Warriors,

> > I just signed up for this site today. I have a few questions that maybe

> > some of you can assist me with. Some background info: I was first diagnosed

> > about eight years ago and have likely had HEPC since I was an IV drug user

> > through 1974. My initial biopsy when I was diagnosed indicated mild damage

> > and my family doctor recommended that I start treatment at that time. I have

> > avoided treatment for a variety of reasons: fear, lack of health insurance

> > for a span of 5-6 years. I have been under the illusion that I have been

> > healthy. I play soccer 3-4 days a week, workout in a fitness boot camp 3

> > days a week. Outward appearances are that I am healthy with the exception of

> > increasing fatique. A biopsy last month indicates that I have beginning

> > stages of Cirrhosis, so it looks like I am going to have to do something.

> > Apparently it's not going away! I have been clean and sober since 1976, so

> > it has taken 36 years + to catch up with me. I can't imagine what kind of

> > shape I'd be in if I had continued drinking. Likely, I wouldn't still be

> > here talking about it. My Gastro just had me take a supposed new IL28b

> > genetic test to determine my genotype 1 subtype. I came up with a " CC "

> > genotype, which according to him has a greater than 80% chance of sustained

> > virlogic response with Pegasys. He suggested that I start Pegasys now

> > instead of waiting for the so called miracle treatment that the FDA is

> > supposed to approve next summer. I just passed a stress test and I will

> > likely get my Pegasys prescription on January 4th. Does this sound like a

> > good plan? Also, what supplements should I be taking? I know there are a lot

> > of crazy ideas out there on some of this stuff, so I am skeptical. I don't

> > want to take 40 pills a day that might be a good idea. Also, how do I know

> > what is good and what could actually cause me more harm?

> > Thanks for reading,

> >

> > Jon from sville, OH

> >

>

December 10, 2010

Aww.. thanks SuziQ... blushing and batting eyes over here!Hugs,TeriOn Fri, Dec 10, 2010 at 8:54 AM, SuziQ <ancientkron@...> wrote:

Jon,

Teri has covered most of what you need to know and has done an excellent job--one of the best I've seen.

I've had my Hep C since the early 60's or maybe before. I was diagnosed with " liver disease " in 1966. My biopsy was over 10 years ago and doctors haven't done a new one. Probably because I don't plan to treat at age 76. Additionally, I have chosen to use supplements to help keep my liver healthy. I chose to see Dr Burt Berkson and follow his protocol. You can find him in the files or look him up on the internet. Here is one website berkson_lipoic_final.

Since you are genotype 1, then there is new treatment that ups the odds of SVR from 50% to about 85% coming out shortly--probably in the Spring. You might want to follow a supplement program for now and treat with the new meds. Maybe your doctor is not aware of the new meds and does not realize the difference in success. It is NOT an easy treatment for most and waiting a few months to change the odds of success from 50% to 85% is a big change--especially if you use a few liver friendly supps in the meantime. Also, you may want to be sure you can cover expenses in case the treatment is difficult for you. You don't want additional stress DURING treatment. There are many things to consider (and cover) before you start a year long treatment.