Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Joyce Did you get an echocardiogram and did you see a cardiologist? The symptoms you keep showing aren't necessarily connected to your lungs. The rising pulse rate to those levels is the concern. Have you followed up on everything your rehab people said? Sorry but I can't remember it all. But you are showing symptoms of something and in some cases they appear to be beyond what you'd expect from your PF. Also, sure your oxygen is all hooked up secure and no leaks in connectors (can check that by dipping that section into a glass of water and looking for bubbles) and your humidifier tight? You must get the stress test....must must must. Why are you getting your lungs xrayed tomorrow? Are you experiencing coughing or cold or anything that would require that? Now this is to all.....EVERY SYMPTOM YOU HAVE IS NOT RELATED TO YOUR PF AND YOU CAN HAVE ALL OTHER CONDITIONS KNOWN TO MANKIND AS WELL. DO NOT ASSUME IT'S PF IF IT'S NEW OR DIFFERENT. Ok, through yelling, but Jack's situation is the perfect reminder. His symptoms had nothing to do with PF and he ignored them a couple of days. We have a newcomer who had arterial blockage. I have so many conditions and no one knows which are related but I have to take care of them all and not just my lungs. Now get to a cardiologist and get the stress test and get treatment for anything and everything that ails you, Joyce. And if you haven't had an echocardiogram lately, get one (by lately I mean since these symptoms showed up and within the last six months). Please take care of yourself and turn the fear into action and insistence on help from your doctors. You trust your GP so get to her and get some advice if you can't get to the Cardiologist quicker. She can prescribe the tests at least while you're waiting. > > I just got a scare. I decided to wear my oximeter while walking and I > walked from the bathroom to the kitchen and started putting dishes in the > dishwasher and my 02 dropped to 90 and my heart rate was 159. I quit and sat > down. I sure wish they would finally call me to set up a stress > test....tomorrow I will go get my lungs Xrayed...this is scaring me. I can't understand > why my stats are doing this. It is scary. Joyce R AZ birds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Joyce I'd be shocked if you didn't have an echocardiogram at National Jewish but if you haven't had one since then please insist your GP schedule one for you tomorrow in addition to following up on the stress test. I know it's scary but I've seen you when you get yourself in the solution mode before so get with the doctor you trust and get help and get all these tests taken care of. They'll explain things I believe. Chest xray is useful just to rule out pneumonia. However, I hope they have previous to compare to as sometimes they see one of ours and think pneumonia even when its not the case. But its the echo and stress and cardiac tests that most concern me right now. > > Bruce- tomorrow I am going in for a chest Xray. I have been coughing more > and she wanted a look. It's my fault that I haven't gotten it sooner but > will do so tomorrow. I keep waitinf for a call from the hospital to make an > appointment for a stress test. I have called my doctors office once all ready > and complained I have never heard from anyone and will do that agian > tomorrow. I don't understand why no one is calling me to make an appointment > for a stress test. I have vnever had an echo and don't even know what that > is. I am fine is I just sit or lie down. This is really scary though. I have > to do things! Joyce R > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Joyce Mild Pulmonary Hypertension. Probably time for another echocardiogram and it might be time for a right heart catheter now but your doctors will know. I'm glad you have the appointment now. I know you're worrying yourself crazy but just get the appointments and tests and it will all be resolved. > > Bruce, I think Jewish took an echo because they said I have mild what ever > it is called when the artery in your lungs pressure is high. Joyce R > AZ birds > Quote Link to comment Share on other sites More sharing options...
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