Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 Good Morning Everyone, Just wondering if any of you run a small humidifyer in your bedroom. I have always used one at night during the winter months (it also helps drown out my husbands snoring),but now I am wondering if that is safe for IPF patients. It's the small one that is clean and you just fill every day. Patti, 59, Indianapolis, IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 Patti I'm about to purchase one. If you keep it clean and free of all bacteria and mold it would be safe. The key is finding one that is easy to keep clean. Distilled water would also be preferable to tap water, although that could require a lot of water. Make sure you completely empty it and refill it each day and wash it out carefully. Also rinse very well after washing. The dry air of winter and heating the house causes me great issues with my allergies and sinuses. Moisture does benefit me. Also, while some PF'ers find humidity bad, because of my allergies, hay fever, sinuses, I find humidity (to a reasonable level) to help me. > > Good Morning Everyone, > Just wondering if any of you run a small humidifyer in your bedroom. I have always used one at night during the winter months (it also helps drown out my husbands snoring),but now I am wondering if that is safe for IPF patients. It's the small one that is clean and you just fill every day. > > Patti, 59, Indianapolis, IPF 2007 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 yes, we have used a humidifier for many, many years we add a liquid to the water to keep it clean and prevent bacteria Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Good MorningTo: Breathe-Support Date: Sunday, December 6, 2009, 9:53 AM Good Morning Everyone,Just wondering if any of you run a small humidifyer in your bedroom. I have always used one at night during the winter months (it also helps drown out my husbands snoring),but now I am wondering if that is safe for IPF patients. It's the small one that is clean and you just fill every day.Patti, 59, Indianapolis, IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 Bruce that's the key : the level of humidity too dry is not good too humid is not good Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Good MorningTo: Breathe-Support Date: Sunday, December 6, 2009, 10:51 AM PattiI'm about to purchase one. If you keep it clean and free of all bacteriaand mold it would be safe. The key is finding one that is easy to keepclean. Distilled water would also be preferable to tap water, althoughthat could require a lot of water. Make sure you completely empty it andrefill it each day and wash it out carefully. Also rinse very well afterwashing. The dry air of winter and heating the house causes me greatissues with my allergies and sinuses. Moisture does benefit me. Also,while some PF'ers find humidity bad, because of my allergies, hay fever,sinuses, I find humidity (to a reasonable level) to help me.>> Good Morning Everyone,> Just wondering if any of you run a small humidifyer in your bedroom. I have always used one at night during the winter months (it also helpsdrown out my husbands snoring),but now I am wondering if that is safefor IPF patients. It's the small one that is clean and you just fillevery day.>> Patti, 59, Indianapolis, IPF 2007> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 Joyce....I have been wondering what it means after your signature listed 1/09 inactive 4/09? What is the inactive part mean? Are you on the transplant list? Patti, 59, Indianapolis, IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 Patti i was on the transplant list for a couple of months actually they started encouraging me to list may 2008 when there was a change in my condition i finally decided to list in December 2008, a couple of tests had to be refreshed before they could actually list me since the eval was July 2006 in the meantime, they started me on a high dose of Prednisone -- 40 mgs -- since my disease responded to that , the put me on Cellcept, an immuno, then they were able to start weaning down the prednisone because my disease responded to the change in meds, they were able to take me off of the active transplant list my LAC would be very low at this time do you know about the LAC -- lung allocation score? they feed all sorts of data into it to determine where you are on the list when i listed, there were about 20 people with the same LAC and Blood type that i have in the Philadelphia area plus there were a lot of people whose lungs were in worse shape than mine UNOS will send you a pamphlet about the LAC if you contact them if you are thinking about transplant, contact UNOS they have lots of literature including a book written for children explaining transplants at their level I got it to read to my grandchildren Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: Good MorningTo: Breathe-Support Date: Sunday, December 6, 2009, 11:36 AM Joyce....I have been wondering what it means after your signature listed 1/09 inactive 4/09? What is the inactive part mean? Are you on the transplant list? Patti, 59, Indianapolis, IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Joyce ......I had not heard about the LAC before now......I guess I will find out more when I go back to Chicago University on Weds. I am so encouraged (and happy for you) to hear you responded to the medications. Patti, 59, Indianapolis, IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 patti if they don't tell you about the LAS, look it up on line lung allocation score Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: Good MorningTo: Breathe-Support Date: Wednesday, December 9, 2009, 3:55 PM Joyce ......I had not heard about the LAC before now......I guess I will find out more when I go back to Chicago University on Weds. I am so encouraged (and happy for you) to hear you responded to the medications. Patti, 59, Indianapolis, IPF 2007 Quote Link to comment Share on other sites More sharing options...
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