Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Jerry, Thaks for your great post! It can be very frustrating waiting for the positive changes, but I'm glad you stuck with it. I guess we all need to develop a patient attitude when dealing with this problem. Regards, K4 > Hi guys, > > I haven't posted here before because I still feel kind of > uncomfortable about this whole problem, but I've been > appreciatively reading your messages for quite a while now. I > thought I might have some things worth sharing. > > I'm 51 now. After 40 I started feeling that my energy and focus > began to diminish. I used to have an iron grip and it eventually > got uncomfortable to even pick up a milk bottle from the fridge. > An exciting and promising career began to diminish and stall. > Sexual energy and desire slowly evaporated. I didn't know what > to think and started to believe that old age was just coming early > for me. One summer my wife and I were driving back from a > health ranch in Utah and I happened to see an article about > hypogonadism and new treatments. > > It was a year or two before I got up the nerve to talk to a doctor > about what I was feeling. The first doc decided I was depressed > and put me on Paxil, an antidepressant, which I quit rather soon > because of side effects. A family member who know more about > drug therapies told me I didn't give it a fair chance, but I'm pretty > sure I never had ordinary depression. My symptoms lined up > much closer with the hypogonadism. Finally I tried another doc > and asked him to give me a blood test for testosterone levels > and sure enough it came back at 203 - borderline or low by > anyone's standards. > > The doc let me have androderm patches, which I had a vicious > reaction to. Big itchy welts that I scratched at all the time. No > way to be discreet about it. I felt a little better over all but couldn't > deal with the rash. Then one day I heard about Androgel on > Good Morning America. I looked it up on the web and after > reading the info asked my doc if he would let me try it. I got a > prescription and tried it, only to find myself covered with a severe > itchy rash everywhere I applied it. I gave up shortly and thought I > would abandon the pursuit, but the malaise I was feeling every > day was unacceptable. I asked the doc to let me see a urologist > and he did. This doctor is involved in researching various > hormone replacement therapies, including the test phase of > androgel. A little before I saw him I tried Androgel again for a few > days and still got the rash. He was really surprised at my > application site reaction and said that no one in the studies had > had a severe enough reaction to abandon androgel. Once > again, I seemed the exception. He tried me on shots for a while > and I was about to go on them permanently, doing my own > injections, but I asked if I could try the androgel one more time > before committing to a lifetime of shots. Well, I have no > explanation for this but on the third try I stopped having the site > reactions. Was it psychosomatic? I don't know. I don't think I'm > that easily influenced by such things (as fear of needles) but I > couldn't entirely rule it out either. > > So I went along for about a month on 5g of Androgel a day and > got tested again. I was only up to 214 - hardly seemed worth the > effort and was pretty dissappointing. He had me continue for a > couple of months and and I made it to 330. I was happier with > the number but wasn't feeling any big difference. I had a phone > conversation with the doc and pleaded with him to let me try 10 > grams, he was resistant but finally let me. > > Several more months went by and I started to feel that it just > wasn't working. I got pretty frustrated and asked for another > appointment, which usually takes about 6 weeks. Oddly enough > I began to feel a little different during those weeks. I slowly > began to notice that my abs were starting to firm up, though I > haven't been especially attentive to my exercise. I have to admit > that early on in the therapy my mental state was improving but I > was frustrated with my lack of libido and now that also began to > show signs of life again. When I finally got back to the Uro, my > blood test showed T at about 765, which I was thrilled with. > > Bottom line, I don't have a good head for science - I'm in the arts. > But I'm starting to feel some really positive differences. They > seemed slow in coming compared to some of you. But it was a > real relief when I saw one of you post that it could take up to a > year to " come back " on this therapy. I'm starting put on some > muscle, can think more clearly, feel more enthused about work, > and feel like having sex a few times a week rather than a few > times a year. > > Hope this encourages some of you to hang in there. I almost > didn't, but I'm sure glad I did now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Jerry: Great message. I haven't found the happy ending just yet, but your message keeps me motivated. Welcome to the group! By the way, the bit about antidepressants supports my theory that the MD's are not educated by the drug companies to treat the cause of hypogonadism because there is more money in drugs that treat its symptoms. Be thankful that you seem to one of the few MD's who we all seek that is willing to work with you. So far, after a year of trying, the patches and AG haven't boosted me at all. I'm in my early 40's. I still hover in the 218 to 331 zone. Actually, the 331 was one month into AG, then it started to go down (original reading before anything was 271). Now I'm dosing HCG to see if my anatomy can be primed into working properly. I go for a blood test today to see what 2,000IU/3x/wk has resulted in after six weeks. I get the results next week. Keep posting! We like hearing from you! Seren. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Jerry, Great post and welcome to the Group. It took time for the AG to really start to help me. The first blood tests were disappointing. I went from 5 to 7-1/2 grams and things seemed to kick in at 10. I hope that LDSlifter is reading this! AG does not seem to be a quick fix but maybe a more steady one. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Hi Jim. No, it wasn't the quick fix I hoped for. I almost quit before it finally started to work. I think the key may be that we all have different body chemistry, and things like this don't work the same for everybody. I've read about guys getting near immediate results, in particular with libido. Just wasn't the same for me. I complained to the doctor about my lack of libido before the AG finally started to work. He told me that libido is complicated, not just about the T level, and that it has a lot to do with your mental state and how well the rest of your life is working out. He also gave me a sample pack of Viagra, but since the AG started working I haven't felt the need for it. A lot of guys on here have talked about the importance of good health habits like proper diet, exercise, rest and stress management, as well as getting the T level back to normal. Ditto that. Now that my T level is in the 700's I'm trying to get the other things back in balance. It's a struggle given the crazy lives most of us lead, but definitely worth the effort. Anyway, how long have you been on AG, and since it kicked in have your results been pretty stable? Thanks for your reply. Jerry > Jerry, > > Great post and welcome to the Group. It took time for the AG to > really start to help me. The first blood tests were disappointing. > I went from 5 to 7-1/2 grams and things seemed to kick in at 10. I > hope that LDSlifter is reading this! AG does not seem to be a quick > fix but maybe a more steady one. > > Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Sounds like you have secondary hypo. Did you ever consider HCG therapy? > Hi guys, > > I haven't posted here before because I still feel kind of > uncomfortable about this whole problem, but I've been > appreciatively reading your messages for quite a while now. I > thought I might have some things worth sharing. > > I'm 51 now. After 40 I started feeling that my energy and focus > began to diminish. I used to have an iron grip and it eventually > got uncomfortable to even pick up a milk bottle from the fridge. > An exciting and promising career began to diminish and stall. > Sexual energy and desire slowly evaporated. I didn't know what > to think and started to believe that old age was just coming early > for me. One summer my wife and I were driving back from a > health ranch in Utah and I happened to see an article about > hypogonadism and new treatments. > > It was a year or two before I got up the nerve to talk to a doctor > about what I was feeling. The first doc decided I was depressed > and put me on Paxil, an antidepressant, which I quit rather soon > because of side effects. A family member who know more about > drug therapies told me I didn't give it a fair chance, but I'm pretty > sure I never had ordinary depression. My symptoms lined up > much closer with the hypogonadism. Finally I tried another doc > and asked him to give me a blood test for testosterone levels > and sure enough it came back at 203 - borderline or low by > anyone's standards. > > The doc let me have androderm patches, which I had a vicious > reaction to. Big itchy welts that I scratched at all the time. No > way to be discreet about it. I felt a little better over all but couldn't > deal with the rash. Then one day I heard about Androgel on > Good Morning America. I looked it up on the web and after > reading the info asked my doc if he would let me try it. I got a > prescription and tried it, only to find myself covered with a severe > itchy rash everywhere I applied it. I gave up shortly and thought I > would abandon the pursuit, but the malaise I was feeling every > day was unacceptable. I asked the doc to let me see a urologist > and he did. This doctor is involved in researching various > hormone replacement therapies, including the test phase of > androgel. A little before I saw him I tried Androgel again for a few > days and still got the rash. He was really surprised at my > application site reaction and said that no one in the studies had > had a severe enough reaction to abandon androgel. Once > again, I seemed the exception. He tried me on shots for a while > and I was about to go on them permanently, doing my own > injections, but I asked if I could try the androgel one more time > before committing to a lifetime of shots. Well, I have no > explanation for this but on the third try I stopped having the site > reactions. Was it psychosomatic? I don't know. I don't think I'm > that easily influenced by such things (as fear of needles) but I > couldn't entirely rule it out either. > > So I went along for about a month on 5g of Androgel a day and > got tested again. I was only up to 214 - hardly seemed worth the > effort and was pretty dissappointing. He had me continue for a > couple of months and and I made it to 330. I was happier with > the number but wasn't feeling any big difference. I had a phone > conversation with the doc and pleaded with him to let me try 10 > grams, he was resistant but finally let me. > > Several more months went by and I started to feel that it just > wasn't working. I got pretty frustrated and asked for another > appointment, which usually takes about 6 weeks. Oddly enough > I began to feel a little different during those weeks. I slowly > began to notice that my abs were starting to firm up, though I > haven't been especially attentive to my exercise. I have to admit > that early on in the therapy my mental state was improving but I > was frustrated with my lack of libido and now that also began to > show signs of life again. When I finally got back to the Uro, my > blood test showed T at about 765, which I was thrilled with. > > Bottom line, I don't have a good head for science - I'm in the arts. > But I'm starting to feel some really positive differences. They > seemed slow in coming compared to some of you. But it was a > real relief when I saw one of you post that it could take up to a > year to " come back " on this therapy. I'm starting put on some > muscle, can think more clearly, feel more enthused about work, > and feel like having sex a few times a week rather than a few > times a year. > > Hope this encourages some of you to hang in there. I almost > didn't, but I'm sure glad I did now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 HI, Jerry, I have been on AG since April of last year. The results have been mostly steady. Every so often it seems to back slide. The last couple of days are a good example of that. I think writing to you that things were good jinxed me. lol What was standing tall just doesn't want to. I am hoping that it is just a phase and that it will return to the way it had been lately. This business is so very frustrating. I am happy to hear that someone is having good results. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Great news Don, There are some other supplements that should have additional benefits for you. We can discuss those when you feel you are ready. My best Aletha [low dose naltrexone] PROGRESS Hi everybody, I just got the greatest news from my neuro.The DR. WAS Amazed with my progress .My MS symptons Improved walking,balance,etc.I also look and feel better and I'm back to being me again.The DR gave me another script for the LDN for another 3 months thats how impressed he is with the LDN.I was dx with rrms in oct 2006 I then took the betaserone from oct-march In April I started taking the LDN 4.5MG'S I also take kalawala[a homeopathic med for ms] AND B-12 THATS IT !! and i feel great I hope i can totally walk normal again soon. The DR wants to give me my second MRI in SEPT.I hope the lessions on the brain either shrunk or dissapeared.If so the DR wants his other ms patients to take the LDN.I'm his first patient on it so I'm like the ginney pig.lol I'LL keep you all posted have a great day!!! DJ It's here! Your new message!Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 Thanks ALETHA,What other supps. do you recomend? DJ [low dose naltrexone] PROGRESS Hi everybody, I just got the greatest news from my neuro.The DR. WAS Amazed with my progress .My MS symptons Improved walking,balance, etc.I also look and feel better and I'm back to being me again.The DR gave me another script for the LDN for another 3 months thats how impressed he is with the LDN.I was dx with rrms in oct 2006 I then took the betaserone from oct-march In April I started taking the LDN 4.5MG'S I also take kalawala[a homeopathic med for ms] AND B-12 THATS IT !! and i feel great I hope i can totally walk normal again soon. The DR wants to give me my second MRI in SEPT.I hope the lessions on the brain either shrunk or dissapeared. If so the DR wants his other ms patients to take the LDN.I'm his first patient on it so I'm like the ginney pig.lol I'LL keep you all posted have a great day!!! DJ It's here! Your new message!Get new email alerts with the free Toolbar. Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 DON - one couldn't receive greater news!! See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Don kirk wrote: " Hi everybody, I just got the greatest news from my neuro.The DR. WAS Amazed with my progress .My MS symptons Improved walking,balance, etc.I also look and feel better and I'm back to being me again.... " Congratulations, Don! This is great news. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 I just wanted to share my son's progress. He got his helmet last Wednesday, June 2. We're using Hanger in NYC so he had the transition time so he's only been wearing it full time for a few days. He started at 8.5 months and had 10mm of asymmetry. Yesterday he went for his first follow up appt and already had 3mm of correction and is now down to 7mm. Our orthotist would like 4mm so I'm very optimistic. His correction is very noticeable - at his age I wasn't expecting such a drastic improvement in such a short time. I really hope it continues like this! Jami Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 That is great!!! Thanks for sharing your wonderful update. Angie Progress I just wanted to share my son's progress. He got his helmet last Wednesday, June 2. We're using Hanger in NYC so he had the transition time so he's only been wearing it full time for a few days. He started at 8.5 months and had 10mm of asymmetry. Yesterday he went for his first follow up appt and already had 3mm of correction and is now down to 7mm. Our orthotist would like 4mm so I'm very optimistic. His correction is very noticeable - at his age I wasn't expecting such a drastic improvement in such a short time. I really hope it continues like this!JamiSent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2010 Report Share Posted June 12, 2010 That is wonderful. I think that many of the experts down play the progress that can be made in the latter half of the first year. From the posts that I've seen, most still make wonderful gains, even a little past their first birthday. From: "jrein23@..." <jrein23@...>Plagiocephaly Sent: Sat, June 12, 2010 8:38:58 AMSubject: Progress I just wanted to share my son's progress. He got his helmet last Wednesday, June 2. We're using Hanger in NYC so he had the transition time so he's only been wearing it full time for a few days. He started at 8.5 months and had 10mm of asymmetry. Yesterday he went for his first follow up appt and already had 3mm of correction and is now down to 7mm. Our orthotist would like 4mm so I'm very optimistic. His correction is very noticeable - at his age I wasn't expecting such a drastic improvement in such a short time. I really hope it continues like this!JamiSent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Here’s another attempt at ‘weeding’ through a bunch of Conventional statements without being so negative it defeats the purpose. That being said, it is fortunate that many members on this list have learned enough about the statistics used to support the “advances†claimed in Conventional circles. If you analyze what the ‘Progress’ really is claimed, you’ll find little real progress and a large amount of the commonly used words such as ‘Response’ which many of us know means Tumor Shrinkage which is not necessarily an indication of cure. During the period of this 1% reduction in “new cases†it should not be attributed to any Conventional Treatments and is probably due to the reduction in the numbers of people smoking and other life-style improvements. Take the following ‘exciting’ piece: “Patients with melanoma associated with a specific BRAF mutations had an 81% response rate to the BRAF inhibitor PLX4032, also in a phase I clinical trial. “ Exactly what does an 81% response rate mean? What ‘response’? Note they did not say “cure†or even “they lived longerâ€. Once we see “Response†you need to stop, take a breath, and see if there is more because that’s not enough. The most important part to me was the following: “Quality of life. Lung cancer patients on chemotherapy lived longer, had better quality of life, and reported less depression, pain, and disability when they saw a palliative care specialist. They also were less likely to undergo costly therapies that offered little or no promise of benefit. “ Check out that last sentence. Now this is an improvement showing that some practitioners are giving their ‘hopeless’ patients a better ‘ending’ by not pushing them into “costly therapies†that offered little or no promise of benefitâ€.........they are living longer. It would be great to see a real study during which no treatment was given and see the length of time for survival. However, how many would seek a ‘no treatment’ course of action? This “Progress†report is the usual propaganda to justify the hundreds of millions of dollars that pour into Cancer Research and over the past two years, from 2001 – 2006 they screech about a 1.6 % improvement in survival and besides not knowing which figures they used, such as “relative†vs “absolute†how much of an improvement is this spread over 5 years with a couple of billion dollars thrown to the researchers. My favorite of all in this report was in the piece headed: Hard To Treat cancers----and if you read that paragraph and see the whopping 34% improvement, to me, all it means is that they are killing that many less than when they used previous treatments. To show some fairness, which I hesitate to use when commenting on Conventional BS, there is improvement shown in it as regards Prostate Cancer and the use of the drug Provenga for “Castration resistant†patients. I would think that this is better than Castration don’t you..... but then again, this is only for people that can’t Castrate. Maybe they should use this drug before they get to that point? I know the article was meant for us in a positive way but after watching these number crunching statistic altering artists for the past 60+ years, one looks at their writings with a bit more than skepticism. To sum it up, The War On Cancer, to date, with all of the Hullabaloo, has been a failure when one considers the multiple billions of dollars spent on expensive chemotherapy and fancy radiology gadgets. Joe C. For those not familiar with the terms ‘Relative’ and ‘Absoluteâ€, just think on this which is how ‘they’ usually figure things out. If there is a increase in survival from 4 months to 6 months, not a big increase, it can still be claimed in a ‘Relative’ sense that there is a 60% increase in survivability. But that’s still only a 2 month improvement (Absolute). If someone is told that, ‘If you use this treatment there is a 60% improvement in survivability, would you accept it vs if they told you it was only 2 months improvement? Is it any wonder they use ‘Relative’ vs ‘Absolute’?.................or are we wrong in coming to the conclusion there is more than shenanigans going on here? If there is one ‘Absolute’ in all of this it is the clear and undeniable fact that every couple of years we are bombarded with the trumpeting of “we are about to break-through with cancer treatment and cure this dreaded scourgeâ€. Yeah sure, let’s kill the greatest Cash Cow ever thought up. Joe C. http://www.medpagetoday.com/HematologyOncology/OtherCancers/23306?utm_content=Gr\ oupCL & utm_medium=email & impressionId=1289542375287 & utm_campaign=DailyHeadlines & ut\ m_source=mSpoke & userid=5715 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 The mention of avastin is no surprise. It extends life two months. Vit C will do the same without the horrific side effects. Other countries have banned it yet it is still promoted in the US. Our alternate doctor told us the conventional doctor gets $10,000 for each person signed up for this drug. Vic ________________________________ From: JoeCastron Sent: Fri, November 12, 2010 Here's another attempt at ˜weeding' through a bunch of Conventional statements without being so negative it defeats the purpose. That being said, it is fortunate that many members on this list have learned enough about the statistics used to support the 'advances' claimed in Conventional circles. If you analyze what the 'Progress' really is claimed, you'll find little real progress and a large amount of the commonly used words such as 'Response' which many of us know means Tumor Shrinkage which is not necessarily an indication of cure. During the period of this 1% reduction in 'new cases' it should not be attributed to any Conventional Treatments and is probably due to the reduction in the numbers of people smoking and other life-style improvements. Take the following 'exciting' piece: 'Patients with melanoma associated with a specific BRAF mutations had an 81% response rate to the BRAF inhibitor PLX4032, also in a phase I clinical trial.' Exactly what does an 81% response rate mean? What 'response'? Note they did not say 'cure' or even 'they lived longer.' Once we see 'Response' you need to stop, take a breath, and see if there is more because that's not enough. ------snip------ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.