Guest guest Posted January 1, 1970 Report Share Posted January 1, 1970 Sounds like your daughter has some sensory integration issues... she has some tactile defensiveness. I'm not sure exactly what the solution is but I would definitely talk to an occupational therapist. My son had similar issues, particularly when it came to his mouth. He actually does allow me to help him brush his teeth today and has vastly improved. However, he still likes to mouth objects, often inappropriately. Good luck! Note: If you live in NJ, I can recommend some OT's! From: " nancfin " <nancfin@...> Subject: [ ] advice Date: Wed, May 1, 2002, 10:26 PM I need some much needed advice from anyone who wants to jump in. My daughter has been seeing a new SLP since Feb. I have the highest regard for her abilities and feel very confidient of her diagnosis and treatment. My daughter had been seeing a ST with EI for months without any results. (the new SLP), diagnosed oral hypotonia, and we started Beckman Oral Motor exercises. It was actually amazing the difference in my daughter's speech in just a month. We started out with just more or less touching the outside of the mouth and each week started a new oral exercise. For any of you who have any experience with these exercises, I guess you might be able to understand my problem. Ok, here it is. At first getting my daughter to cooperate was no problem. The more in depth the exercises became the more uncooperative she has become. I have to absolutely fight her to do these at home, and now she refuses to let her SLP get near her mouth with her hands. We drive 2 hours one way for therapy and today we had to leave early due to the tantrum my daughter had when tried to measure the movement in her lips. I realize my daughter is just 3 years old and it's hard I guess for her to understand why we do what we do, but we aren't hurting her. I've tried talking to her, threatening her, disciplining her, and today even popped her on her butt when she pitched her fit in therapy. Does ANYONE have ANY suggestions or advice. If so, PLEASE respond. Thanks forever, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 Have they done the blood work or DNA to rule out any of these? --- lldybg013 <LldyBg013@...> wrote: > I was diagnosed with RSD in 1987. I have had several > years of > Physical therapy and several surgeries for this > decease. I have it in > both legs. In march of 2001 I was diagnosed with CMT > by 2 doc. now > last tuesday I saw a Doc. in Santa Ynez Ca. He tells > me he doesn't > think that I have either disease, and that he is'nt > dure what I have > but he doesn't think it is what Iv'e been told all > these years. I > ahve agreed to go see another Doctor { this is > number 32} this Doc. > is a pain specialist in Santa Barbara Ca. I'am > sechedualed to have a > interveinas Lidocaine Infusion nexy Tuesday for the > RSD and the Cmt > pain that Iam having I take oxicontin everday 240 > milligrams. Now I'm > not sure of what to do next. Has anyone been told > they have this > disease and then told they don't, I have been in > this group for > awhile and have learned alot about this disease and > identified with > so many of you. Don't get me wrong I would be happy > to find out > everyone is wrong and what I have is fixable but > then am afraid to > get my hopes shattered again Iam in my 50's and > would like good news > for a change. have any of you been thruogh anything > similar > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Hi Staci, Here is my advice.... Expect to spend 2-3 hours at the office. Reason is that Dr. G completes all his other appointments and then spends uninterrupted time with first time visitors, but it sometimes takes a while to complete the other appointments first. Once you meet with Dr. Goldberg he will probably spend an hour or more with you. Bring your own snacks and drinks for your son (and yourselves). There is a pharmacy downstairs that sells juice and packaged snacks, but it's mostly candy, etc. I was at Dr. Goldberg's office yesterday and saw a family there for their first visit. They brought a small cooler with them, which I thought was a good idea. Most of the time Dr. G will be speaking to you, rather than examining your child. Bring some things your son likes to do to keep him happy (books, toys, etc.). There are a few toys in the office. If you and your spouse are going, I recommend designating one of you as the note taker and one as the talker. It's hard for one person to take notes and talk - at least it is for me. Write down any questions you already have in advance. The physical exam and any blood that is required for tests will be done at the end of the visit. For future visits, you can ask for copies of the lab results and allergy test results if you wish. Hope this is helpful. Good luck, Vicki > Hi- > In three weeks we are going to take our 3 year old son to see Dr. Goldberg > for the first time. I just wondered if anyone has any last minute advice > for us- things you wish you would have known, asked, or done at the > appointment. > > Also, about how long is the appointment from start to finish? Our > pediatrician would not run any of the bloodwork so we will be doing all that > while we are there. > > Any advice is appreciated, we are a little nervous since we're not sure what > all goes on at the first consultation. > > Thanks in advance, > Staci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 I remember someone commenting on this list that Dr. Goldberg doesn't mind if you bring a tape recorder to the appointment. This would eliminate the note taking and you'd be able to concentrate better on what he's saying and ask needed questions. mm_mommy wrote: > Hi Staci, > > Here is my advice.... > > Expect to spend 2-3 hours at the office. Reason is that Dr. G > completes all his other appointments and then spends uninterrupted > time with first time visitors, but it sometimes takes a while to > complete the other appointments first. Once you meet with Dr. > Goldberg he will probably spend an hour or more with you. > > Bring your own snacks and drinks for your son (and yourselves). > There is a pharmacy downstairs that sells juice and packaged snacks, > but it's mostly candy, etc. I was at Dr. Goldberg's office yesterday > and saw a family there for their first visit. They brought a small > cooler with them, which I thought was a good idea. > > Most of the time Dr. G will be speaking to you, rather than examining > your child. Bring some things your son likes to do to keep him happy > (books, toys, etc.). There are a few toys in the office. > > If you and your spouse are going, I recommend designating one of you > as the note taker and one as the talker. It's hard for one person to > take notes and talk - at least it is for me. Write down any > questions you already have in advance. > > The physical exam and any blood that is required for tests will be > done at the end of the visit. For future visits, you can ask for > copies of the lab results and allergy test results if you wish. > > Hope this is helpful. Good luck, > Vicki > > > > Hi- > > In three weeks we are going to take our 3 year old son to see Dr. > Goldberg > > for the first time. I just wondered if anyone has any last minute > advice > > for us- things you wish you would have known, asked, or done at the > > appointment. > > > > Also, about how long is the appointment from start to finish? Our > > pediatrician would not run any of the bloodwork so we will be doing > all that > > while we are there. > > > > Any advice is appreciated, we are a little nervous since we're not > sure what > > all goes on at the first consultation. > > > > Thanks in advance, > > Staci > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 I brought a tape recorder and he didn't mind. I would ask before you do this just in case, but it was great to be able to listen to the tape to get things I had missed during the appointment. He answers all your questions, but sometimes he talks about other things before he gets to the answer and if your little one interrupts you may lose the train of the conversation. Good luck. On Fri, 15 Feb 2002 21:29:16 -0500 ette Cormier <paulette.cormierale@...> writes: > I remember someone commenting on this list that Dr. Goldberg doesn't > mind if you bring a tape recorder to the appointment. This would > eliminate the note taking and you'd be able to concentrate better > on > what he's saying and ask needed questions. > > mm_mommy wrote: > > > Hi Staci, > > > > Here is my advice.... > > > > Expect to spend 2-3 hours at the office. Reason is that Dr. G > > completes all his other appointments and then spends > uninterrupted > > time with first time visitors, but it sometimes takes a while to > > complete the other appointments first. Once you meet with Dr. > > Goldberg he will probably spend an hour or more with you. > > > > Bring your own snacks and drinks for your son (and yourselves). > > There is a pharmacy downstairs that sells juice and packaged > snacks, > > but it's mostly candy, etc. I was at Dr. Goldberg's office > yesterday > > and saw a family there for their first visit. They brought a > small > > cooler with them, which I thought was a good idea. > > > > Most of the time Dr. G will be speaking to you, rather than > examining > > your child. Bring some things your son likes to do to keep him > happy > > (books, toys, etc.). There are a few toys in the office. > > > > If you and your spouse are going, I recommend designating one of > you > > as the note taker and one as the talker. It's hard for one person > to > > take notes and talk - at least it is for me. Write down any > > questions you already have in advance. > > > > The physical exam and any blood that is required for tests will > be > > done at the end of the visit. For future visits, you can ask for > > copies of the lab results and allergy test results if you wish. > > > > Hope this is helpful. Good luck, > > Vicki > > > > > > > Hi- > > > In three weeks we are going to take our 3 year old son to see > Dr. > > Goldberg > > > for the first time. I just wondered if anyone has any last > minute > > advice > > > for us- things you wish you would have known, asked, or done at > the > > > appointment. > > > > > > Also, about how long is the appointment from start to finish? > Our > > > pediatrician would not run any of the bloodwork so we will be > doing > > all that > > > while we are there. > > > > > > Any advice is appreciated, we are a little nervous since we're > not > > sure what > > > all goes on at the first consultation. > > > > > > Thanks in advance, > > > Staci > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Hi, We just back from the first appointment. It was impressive. Dr.Goldberg said pretty much the same as he said in his presentation. He will talk to you more than to you child. Blood work was very fast. Usually Dr.Goldberg runs out of time and he was almost an hour late, but he " all yours " . Now other patients, no phone calls. We have 3 y son also. You will see a lot of patients in his office. We saw two big kids and it is hard, but we saw very nice 4y old boy, played and talked to Dr. We were told that he started a year ago and was in dark side of spectrum. I do not know about you child, we have 3 y son with mild form of autism. It seemed that he does not have other problems. MMR, neurospect were not recommended in this step. We are going to try antiviral (we will know more after blood work will be done). It is nice to have blood work with you (we had about 40%), but from the other side Dr. likes to send it to certain labs, so it will be better to do this in his office. We are lucky having BCBS PPO, so I paid only for food allergy panel (my test form Great Smokies was not accepted), so I paid only $99 form my pocket (so far). We used tape recorder. Ask first Dr. if he does not mind. Good luck. Regina Re: Re: Advice I remember someone commenting on this list that Dr. Goldberg doesn't mind if you bring a tape recorder to the appointment. This would eliminate the note taking and you'd be able to concentrate better on what he's saying and ask needed questions. mm_mommy wrote: > Hi Staci, > > Here is my advice.... > > Expect to spend 2-3 hours at the office. Reason is that Dr. G > completes all his other appointments and then spends uninterrupted > time with first time visitors, but it sometimes takes a while to > complete the other appointments first. Once you meet with Dr. > Goldberg he will probably spend an hour or more with you. > > Bring your own snacks and drinks for your son (and yourselves). > There is a pharmacy downstairs that sells juice and packaged snacks, > but it's mostly candy, etc. I was at Dr. Goldberg's office yesterday > and saw a family there for their first visit. They brought a small > cooler with them, which I thought was a good idea. > > Most of the time Dr. G will be speaking to you, rather than examining > your child. Bring some things your son likes to do to keep him happy > (books, toys, etc.). There are a few toys in the office. > > If you and your spouse are going, I recommend designating one of you > as the note taker and one as the talker. It's hard for one person to > take notes and talk - at least it is for me. Write down any > questions you already have in advance. > > The physical exam and any blood that is required for tests will be > done at the end of the visit. For future visits, you can ask for > copies of the lab results and allergy test results if you wish. > > Hope this is helpful. Good luck, > Vicki > > > > Hi- > > In three weeks we are going to take our 3 year old son to see Dr. > Goldberg > > for the first time. I just wondered if anyone has any last minute > advice > > for us- things you wish you would have known, asked, or done at the > > appointment. > > > > Also, about how long is the appointment from start to finish? Our > > pediatrician would not run any of the bloodwork so we will be doing > all that > > while we are there. > > > > Any advice is appreciated, we are a little nervous since we're not > sure what > > all goes on at the first consultation. > > > > Thanks in advance, > > Staci > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Thanks to everyone for all the wonderful advice!!! We appreciate all of it. Staci Re: Re: Advice I remember someone commenting on this list that Dr. Goldberg doesn't mind if you bring a tape recorder to the appointment. This would eliminate the note taking and you'd be able to concentrate better on what he's saying and ask needed questions. mm_mommy wrote: > Hi Staci, > > Here is my advice.... > > Expect to spend 2-3 hours at the office. Reason is that Dr. G > completes all his other appointments and then spends uninterrupted > time with first time visitors, but it sometimes takes a while to > complete the other appointments first. Once you meet with Dr. > Goldberg he will probably spend an hour or more with you. > > Bring your own snacks and drinks for your son (and yourselves). > There is a pharmacy downstairs that sells juice and packaged snacks, > but it's mostly candy, etc. I was at Dr. Goldberg's office yesterday > and saw a family there for their first visit. They brought a small > cooler with them, which I thought was a good idea. > > Most of the time Dr. G will be speaking to you, rather than examining > your child. Bring some things your son likes to do to keep him happy > (books, toys, etc.). There are a few toys in the office. > > If you and your spouse are going, I recommend designating one of you > as the note taker and one as the talker. It's hard for one person to > take notes and talk - at least it is for me. Write down any > questions you already have in advance. > > The physical exam and any blood that is required for tests will be > done at the end of the visit. For future visits, you can ask for > copies of the lab results and allergy test results if you wish. > > Hope this is helpful. Good luck, > Vicki > > > > Hi- > > In three weeks we are going to take our 3 year old son to see Dr. > Goldberg > > for the first time. I just wondered if anyone has any last minute > advice > > for us- things you wish you would have known, asked, or done at the > > appointment. > > > > Also, about how long is the appointment from start to finish? Our > > pediatrician would not run any of the bloodwork so we will be doing > all that > > while we are there. > > > > Any advice is appreciated, we are a little nervous since we're not > sure what > > all goes on at the first consultation. > > > > Thanks in advance, > > Staci > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 Marci, Thanks I think I'll check into airholes on our next visit. (MOM2SHANNON) Re: (PositionalPlagioSupport) ,Welcome back!! I think you should go for the airholes!! Any bit of ventilation is sure to help. Sorry to hear that she is not adjusting too well, but hopefully things will begin to improve soon.Marci (Mom to )OklahomaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 : The air holes could help out with her sweating, they just didn't help my Abby much. I am glad her new band fits much better. I hope her sweating decreases soon! Good luck. Debbie Abby's mom DOCgrad MI > > > Sunflower > > > Hello, > > > > > > Its been a while since I posted. My computer went down. I'm > > sure I miss a lot of interesting info. I know I missed having you > > all to lean on. A quick update has her NICband for about a > > month. She had some trouble with the fit in the beginning. Her > > orthist remolded and the one does seem to fit better. She's not > > adjusting that well, she really hates it being on. especially when > > the weather got warm. (Very sweaty). I know they can put air > holes > > but I don't know if that would help. Anyone have any thoughts? > > > > > > take care, > > > > > > (MOM2SHANNON) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 Hi, He sweat for the first 2-3 days as his body became accustomed to the helemt. Now his hair is always dry ! I figure the holes sure didn't hurt! Dana > > Sunflower > > Hello, > > > > Its been a while since I posted. My computer went down. I'm > sure I miss a lot of interesting info. I know I missed having you > all to lean on. A quick update has her NICband for about a > month. She had some trouble with the fit in the beginning. Her > orthist remolded and the one does seem to fit better. She's not > adjusting that well, she really hates it being on. especially when > the weather got warm. (Very sweaty). I know they can put air holes > but I don't know if that would help. Anyone have any thoughts? > > > > take care, > > > > (MOM2SHANNON) > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 My SLP/oral myologist AND Cory's other SLP get him to use a lollipop to do some of the tongue side to side exercises and tongue up and down exercises. Place the sucker to the left, have them lick and vice versa. Also, if she fights practicing at home, use bribery? Make it fun! Let me know if this works. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 , neither you nor your SLP need to do anything that imposes upon the dignity and rights of your child, including the pop on the behind, which you say didn't hurt her. Your daughter is communicating to you that her space is being invaded. My suggestion is to stop this therapy immediately. Period. Vera Karger, SLP > I need some much needed advice from anyone who wants to jump in. My > daughter has been seeing a new SLP since Feb. I have the highest > regard for her abilities and feel very confidient of her diagnosis > and treatment. My daughter had been seeing a ST with EI for months > without any results. (the new SLP), diagnosed oral > hypotonia, and we started Beckman Oral Motor exercises. It was > actually amazing the difference in my daughter's speech in just a > month. We started out with just more or less touching the outside of > the mouth and each week started a new oral exercise. For any of you > who have any experience with these exercises, I guess you might be > able to understand my problem. Ok, here it is. At first getting my > daughter to cooperate was no problem. The more in depth the > exercises became the more uncooperative she has become. I have to > absolutely fight her to do these at home, and now she refuses to let > her SLP get near her mouth with her hands. We drive 2 hours one way > for therapy and today we had to leave early due to the tantrum my > daughter had when tried to measure the movement in her lips. > I realize my daughter is just 3 years old and it's hard I guess for > her to understand why we do what we do, but we aren't hurting her. > I've tried talking to her, threatening her, disciplining her, and > today even popped her on her butt when she pitched her fit in > therapy. Does ANYONE have ANY suggestions or advice. If so, PLEASE > respond. > > Thanks forever, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 , I agree with the other responses that you have received. I know it is frustrating when your child won't cooperate with the help that he/she so desperately needs and you want them to receive. I have to pay out of pocket ($120 per hour) for therapy my son receives and I know your frustration when all the effort has been for nothing. The saying is so true that " you can lead a horse to water, but you can't make him drink. " Forcing the therapy is going to do more harm than good. Patience, love and understanding will take you much further. Just remember that how ever much anger or frustration you feel, your child feels it more and is just showing you the only way he/she can. My suggestion is that you try and change something about the therapy such as you not being present (leave the room or have another person take them) or even a new therapist (even though I know you expressed your like for this one). If this can't be a pleasant and fun experience for your child I agree that stopping the therapy for a while would be a good idea. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi , I have to totally agree with Vera that you need to STOP this therapy imediately. Your child will not respond to forceful treatment, I know I have been there with my son Jack. CHildren will not allow anyone to do that stuff until they want to. Eileen --- Vera Karger <vkarger@...> wrote: > , neither you nor your SLP need to do anything > that imposes upon the > dignity and rights of your child, including the pop > on the behind, which you > say didn't hurt her. Your daughter is communicating > to you that her space is > being invaded. My suggestion is to stop this therapy > immediately. Period. > Vera Karger, SLP > > > I need some much needed advice from anyone who > wants to jump in. My > > daughter has been seeing a new SLP since Feb. I > have the highest > > regard for her abilities and feel very confidient > of her diagnosis > > and treatment. My daughter had been seeing a ST > with EI for months > > without any results. (the new SLP), > diagnosed oral > > hypotonia, and we started Beckman Oral Motor > exercises. It was > > actually amazing the difference in my daughter's > speech in just a > > month. We started out with just more or less > touching the outside of > > the mouth and each week started a new oral > exercise. For any of you > > who have any experience with these exercises, I > guess you might be > > able to understand my problem. Ok, here it is. At > first getting my > > daughter to cooperate was no problem. The more in > depth the > > exercises became the more uncooperative she has > become. I have to > > absolutely fight her to do these at home, and now > she refuses to let > > her SLP get near her mouth with her hands. We > drive 2 hours one way > > for therapy and today we had to leave early due to > the tantrum my > > daughter had when tried to measure the > movement in her lips. > > I realize my daughter is just 3 years old and it's > hard I guess for > > her to understand why we do what we do, but we > aren't hurting her. > > I've tried talking to her, threatening her, > disciplining her, and > > today even popped her on her butt when she pitched > her fit in > > therapy. Does ANYONE have ANY suggestions or > advice. If so, PLEASE > > respond. > > > > Thanks forever, > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 - while my son hasn't been doing the Beckman exercises per se, he had grown increasingly less cooperative with certain exercises with his SLP. I asked him once when belting him into the car after a particularly uncooperative session if what he did with his SLP was hard and he started to cry and said, " yes yes yes " . My heart just broke. Since then, I've told him that I know some of it's hard and that he doesn't have to do anything perfectly, just to try... Since then, he's been MUCH more cooperative and now runs down the hall to go see his SLP. I also quit forcing regemented practice at home - he didn't need to resent me, too. Instead, we worked on what he was good at, and he got lots of praise for trying ANYTHING - puzzles, food, jumping, etc.. I would say to back off from the type of therapy. No one is going to be helped by your daughter growing more and more resentful of the SLP and having to go. You can return to this type of therapy when she's ready - all things in due time. Good luck! Marina > I need some much needed advice from anyone who wants to jump in. My > daughter has been seeing a new SLP since Feb. I have the highest > regard for her abilities and feel very confidient of her diagnosis > and treatment. My daughter had been seeing a ST with EI for months > without any results. (the new SLP), diagnosed oral > hypotonia, and we started Beckman Oral Motor exercises. It was > actually amazing the difference in my daughter's speech in just a > month. We started out with just more or less touching the outside of > the mouth and each week started a new oral exercise. For any of you > who have any experience with these exercises, I guess you might be > able to understand my problem. Ok, here it is. At first getting my > daughter to cooperate was no problem. The more in depth the > exercises became the more uncooperative she has become. I have to > absolutely fight her to do these at home, and now she refuses to let > her SLP get near her mouth with her hands. We drive 2 hours one way > for therapy and today we had to leave early due to the tantrum my > daughter had when tried to measure the movement in her lips. > I realize my daughter is just 3 years old and it's hard I guess for > her to understand why we do what we do, but we aren't hurting her. > I've tried talking to her, threatening her, disciplining her, and > today even popped her on her butt when she pitched her fit in > therapy. Does ANYONE have ANY suggestions or advice. If so, PLEASE > respond. > > Thanks forever, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 My son will not cooperate with either his speech therapist or feeding therapist unless I go into the observation tank. He sees me as an out and still points to the glass I'm behind as an avoidance behavior, but he focuses better without me as a real option and is more prone to do what he can to befriend his therapists as they are the ones in charge who dole out the cookies and love at that moment. Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Oral motor therapy stuff is hard to get Wiley into. Like brushing his cheeks with the nuk brush and so on and so forth - he is acts out a ton with me, is better with his feeding therapist, though still wimpers a bit, etc. Just doesn't want his mouth played with. However, what has helped is letting him control the tools a bit - letting him to the exercises first before having the therapist do them - also, having the therapist or me do the same to our own mouths that we are asking him to do with his, so if he has a nuk brush in his mouth or a strip of tubing or whatever, so do I. Makes it easier on him. When he acts out at home, I just put the harder pieces of the therapy away and let him play with bubbles, blow toys, licorice, etc. I can't afford to let him reject the therapy - it's very helpful for him so I just let things slide when he's really averse to it and try more fun activities that don't seem as obviously about work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi , I think we have all been in your shoes where we know how important therapy is especially like in your case you see a positive change. It is so frustrating as a parent and for our little ones cannot express back what they are feeling. I certainly don't think you should stop seeing a therapist who is competent and already your daughter is progressing with. If we all gave in to our kids when they acted up none of them would be in therapy!! Talk to the therapist and maybe she can take a step back with the oral motor activities until your daughter is more comfortable with being touched. I think as another Mom said perhaps she is frustrated that it is difficult and recognizes that it is not an easy process. We went through stages like this with my son. Most recently he would not go into therapy without me. When he was out of therapy for about 2 weeks over Easter he ran in when we resumed and left me in the dust! Sometimes it is trial and error to see what works. Know you are a great Mom and are doing the right thing by getting her proper treatment. Hang in there. > I need some much needed advice from anyone who wants to jump in. My > daughter has been seeing a new SLP since Feb. I have the highest > regard for her abilities and feel very confidient of her diagnosis > and treatment. My daughter had been seeing a ST with EI for months > without any results. (the new SLP), diagnosed oral > hypotonia, and we started Beckman Oral Motor exercises. It was > actually amazing the difference in my daughter's speech in just a > month. We started out with just more or less touching the outside of > the mouth and each week started a new oral exercise. For any of you > who have any experience with these exercises, I guess you might be > able to understand my problem. Ok, here it is. At first getting my > daughter to cooperate was no problem. The more in depth the > exercises became the more uncooperative she has become. I have to > absolutely fight her to do these at home, and now she refuses to let > her SLP get near her mouth with her hands. We drive 2 hours one way > for therapy and today we had to leave early due to the tantrum my > daughter had when tried to measure the movement in her lips. > I realize my daughter is just 3 years old and it's hard I guess for > her to understand why we do what we do, but we aren't hurting her. > I've tried talking to her, threatening her, disciplining her, and > today even popped her on her butt when she pitched her fit in > therapy. Does ANYONE have ANY suggestions or advice. If so, PLEASE > respond. > > Thanks forever, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 , Many of us have been there with our kids. (3.5) has oral motor issues and sensory issues around his face and mouth. We <don't> do the school/therapy exercises at home -- it was too much. We have found alternate ways of accomplishing the same stuff, but no sitting and doing at home (just doesn't work). I agree with the other posts that backing off on the deep pressure sounds like the right thing just now -- until she is more ready. We also talk to about how we will do just a " little " of the hard stuff, then more easy stuff. also does the " hard " stuff better without me in the room. It has always been important for us to let know that going to " class " isn't an option -- but we will work together to make sure that " class " is fun. Hang in there -- it always seems unbearable before it gets better! Margaret...'s Momo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Thank you all for your advice. I knew there were some smart minds at work here. You know, I think just knowing my child is not the only child to act this way makes ME feel 100% better. Now I think I the SLP and I need to talk about alternative methods. Thans again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 , Thanks for the advice! Hopefully it will help someone out!! Niki Kaylie & Danny (STAR grads) Phila.,PA > Hi Everyone! > > Since there are a few kids getting fitted soon or getting their > bands/helmets soon, I wanted to pipe in with a great piece of advice > that my neurologist gave to us when our first child got his helmet. > The day we went he said to not put the helmet on right away. Let him > play with it on the way home and sleep with it in his crib. Then, in > the morning after a bath, put it on. Worked like a charm! When the > doctor first told us this, I thought the man was nuts, but he was > right. Seems to have something to do with developing an " ownership " , > so to speak, of the helmet. I don't know if they are still > advocating this anywhere else, but it sure worked for us and Walter > NEVER objected to his helmet. His was the kind that covered the > whole head, with airholes, and had a valcro chin strap on it. And he > had to wear it july 98 to december 98. Thanks for letting me pipe in > my .02. > > > Central PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 , Thanks for that great advice to everyone- it will surely help someone out there that is currently having problems with their child adapting to it! Thanks for sharing your experience/wisdom- sounds like a really great idea! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Thanks for the advice . I believe some orthos still think along those lines, but if they don't they should! That's great advice for people who are just getting started - thanks! Marci (mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 : Thanks for piping in your 2 cents! That's a great piece of advice. We all know how kid's like to claim everything as " mine " ....thanks a lot! Debbie Abby's mom DOCgrad MI > Hi Everyone! > > Since there are a few kids getting fitted soon or getting their > bands/helmets soon, I wanted to pipe in with a great piece of advice > that my neurologist gave to us when our first child got his helmet. > The day we went he said to not put the helmet on right away. Let him > play with it on the way home and sleep with it in his crib. Then, in > the morning after a bath, put it on. Worked like a charm! When the > doctor first told us this, I thought the man was nuts, but he was > right. Seems to have something to do with developing an " ownership " , > so to speak, of the helmet. I don't know if they are still > advocating this anywhere else, but it sure worked for us and Walter > NEVER objected to his helmet. His was the kind that covered the > whole head, with airholes, and had a valcro chin strap on it. And he > had to wear it july 98 to december 98. Thanks for letting me pipe in > my .02. > > > Central PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2003 Report Share Posted July 13, 2003 Glad to hear that you're feeling better, Janice. If you are currently active and going to the gym, that's great. I think any sort of exercise that you enjoy and can do regularly is quite valuable. If you can incorporate some weight training into your routine, that would be a good idea. For diet, good nutritional principles apply. I recommend staying away from anything artificial or highly processed and limiting sugar, meat, and dairy. a has a lot of good information at her Web site: http://rheumatoid.arthritis.freehosting.net/ [ ] advice > Thanks to all the replies to my first post. > > So I woke up this morning feeling better (talked to my dr. and took > some prednisone for my pain - by the way a, I started prednisone > in January and plaquenil in February at which time I tapered > completely off the prednisone - we also talked about how my drug > strategy would be different if we weren't trying to get pregnant). > > I was hoping to get some advice from some of you around things you > did/do or wish you had done. In an attempt to be proactive and > create some healthy habits, etc... I thought I would seek your > opinions on the following: > > Exercise - what have you found works the best? yoga, swim, strength > conditioning? Do you get help from trainers or therapists or just > go it on your own? I am still fairly young and active and would > definitely like to stay that way as long as possible. > > Diet - besides staying slim, any advice? Any miracle foods, > vitamins, supplements > > Insurance - any issues I should watch out for regarding pre-existing > condition? drug costs and coverage? Currently I'm covered under my > husbands insurance but he's most likely going to change jobs soon. > In the future I am hoping to return to teaching which will hopefully > ensure me some good benefits. Just a little scary now to be so > dependent on insurance and medicine. > > Pregnancy - if we are successful with #2 any advice on how to help > get through it - drugs or not. > > I guess that's all I can think of for now. I just feel like for the > most part this year I have tried to ignore the fact that something > is seriously wrong with me. I don't mind 'ignoring' it in the sense > that I continue to live my life normally, but I want to make sure > that I don't ignore taking care of myself and it so that I can > continue to live my life as normally as possible - does that make > sense? > > I'm off to the gym - hope everyone has a great weekend and thanks in > advance for your advice help. > > Janice Quote Link to comment Share on other sites More sharing options...
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