Re: Less Than 23 hrs/Day?

[Guest guest]

Is he getting fussy because he has the band on?  If the fussiness is unrelated to the band then I would not take it off.  If he is fussy every day because of the band I would investigate what is causing the problem - is the band fitting to tight and in need of an adjustment?  Has the strap been tightened too much?  Are there any sores on his head?

 

Molly

Novato, CA

Nicolas, STARband graduate

On 9 December 2010 11:31, Anne <annekbui@...> wrote:

Hi,Anyone keep the band (Star band on our case) on their kids for less than 23hrs/day and still have a successful outcome?  I'm not talking about an extreme deviation, but keeping it on for something like maybe 20 hrs/day? I realize that this may prolong the treatment, but can it potentially derail it?

Our caregiver reports that our son gets extremely fussy in the early afternoon, and I wonder if it would be OK for him to get an extended break (4 hrs) on a daily basis.  Less fussiness would enable our caregiver to devote more time to our older child, whom she also takes care of.  I realize that she could take off his helmet, wipe his head and allow him to have a good scratch, and then put the helmet back on, but our son hates having his helmet put back on multiple times.  He gets his bath, and the helmet is cleaned when my husband and I get home from work (7pm-ish).

Thanks,Anne(7-month old son wearing Starband for almost 4 weeks now)------------------------------------For more plagio info

[Guest guest]

I think he's just fussy from having the band on for 20 hrs straight (7pm prior day to 3pm next day). The band fits fine. I think he's just itchy and sweaty by the early afternoon. His 1hr break can't really happen until we get home from work and can bathe him and clean the helmet.

Hi,Anyone keep the band (Star band on our case) on their kids for less than 23hrs/day and still have a successful outcome? I'm not talking about an extreme deviation, but keeping it on for something like maybe 20 hrs/day? I realize that this may prolong the treatment, but can it potentially derail it?Our caregiver reports that our son gets extremely fussy in the early afternoon, and I wonder if it would be OK for him to get an extended break (4 hrs) on a daily basis. Less fussiness would enable our caregiver to devote more time to our older child, whom she also takes care of. I realize that she could take off his helmet, wipe his head and allow him to have a good scratch, and then put the helmet back on, but our son hates having his helmet put back on multiple times. He gets his bath, and the helmet is cleaned when my husband and I get

home from work (7pm-ish).Thanks,Anne(7-month old son wearing Starband for almost 4 weeks now)------------------------------------For more plagio info

[Guest guest]

My boys have been wearing the helmets for 2 months now. They love taking off the helmets on their own and chewing the gap stoppers. I'm still not sure about how long the grandparents have the helmets taken off during the day while they watch the children. Also when I put them to sleep at night, I have to take the helmets off otherwise they refuse to sleep. When they fall into sound sleep, I'll put them back on. On some bad days when my husband watches them, he takes off the helmets for many many hours... I just don't have control of how my other families do it.

So my boys only wear the helmets max 20 hours a day. I kind of start to realize that it's not doing what it's supposed to do with not wearing full time, but it could be just my boys old ages. They are over 16 months now.

Plagiocephaly From: annekbui@...Date: Thu, 9 Dec 2010 19:31:42 +0000Subject: Less Than 23 hrs/Day?

Hi,Anyone keep the band (Star band on our case) on their kids for less than 23hrs/day and still have a successful outcome? I'm not talking about an extreme deviation, but keeping it on for something like maybe 20 hrs/day? I realize that this may prolong the treatment, but can it potentially derail it?Our caregiver reports that our son gets extremely fussy in the early afternoon, and I wonder if it would be OK for him to get an extended break (4 hrs) on a daily basis. Less fussiness would enable our caregiver to devote more time to our older child, whom she also takes care of. I realize that she could take off his helmet, wipe his head and allow him to have a good scratch, and then put the helmet back on, but our son hates having his helmet put back on multiple times. He gets his bath, and the helmet is cleaned when my husband and I get home from work (7pm-ish). Thanks,Anne(7-month old son wearing Starband for almost 4 weeks now)

[Guest guest]

Maybe in the morning when you dress him you can take the band off and rub his

head with a dry towel. That might help with the itchy/sweaty part, but not take

too much time in your routine.

-christine

sydney, almost 5 yrs, starband grad

>

> Hi,

>

> Anyone keep the band (Star band on our case) on their kids for less than

23hrs/day and still have a successful outcome?  I'm not talking about an

extreme deviation, but keeping it on for something like maybe 20 hrs/day? I

realize that this may prolong the treatment, but can it potentially derail it?

>

> Our caregiver reports that our son gets extremely fussy in the early

afternoon, and I wonder if it would be OK for him to get an extended break (4

hrs) on a daily basis.  Less fussiness would enable our caregiver to devote

more time to our older child, whom she also takes care of.  I realize that she

could take off his helmet, wipe his head and allow him to have a good scratch,

and then put the helmet back on, but our son hates having his helmet put back on

multiple times.  He gets his bath, and the helmet is cleaned when my husband

and I get home from work (7pm-ish).

>

> Thanks,

> Anne

> (7-month old son wearing Starband for almost 4 weeks now)

>

>

>

> ------------------------------------

>

> For more plagio info

[Guest guest]

i bet it's just nap time. I really doubt it's the helmetFrom: christineashok <christineashok@...>Plagiocephaly Sent: Thu, December 9, 2010 7:40:21 PMSubject: Re: Less Than 23 hrs/Day?

Maybe in the morning when you dress him you can take the band off and rub his head with a dry towel. That might help with the itchy/sweaty part, but not take too much time in your routine.

-christine

sydney, almost 5 yrs, starband grad

>

> Hi,

>

> Anyone keep the band (Star band on our case) on their kids for less than 23hrs/day and still have a successful outcome? Â I'm not talking about an extreme deviation, but keeping it on for something like maybe 20 hrs/day? I realize that this may prolong the treatment, but can it potentially derail it?

>

> Our caregiver reports that our son gets extremely fussy in the early afternoon, and I wonder if it would be OK for him to get an extended break (4 hrs) on a daily basis. Â Less fussiness would enable our caregiver to devote more time to our older child, whom she also takes care of. Â I realize that she could take off his helmet, wipe his head and allow him to have a good scratch, and then put the helmet back on, but our son hates having his helmet put back on multiple times. Â He gets his bath, and the helmet is cleaned when my husband and I get home from work (7pm-ish).

>

> Thanks,

> Anne

> (7-month old son wearing Starband for almost 4 weeks now)

>

>

>

> ------------------------------------

>

> For more plagio info

[Guest guest]

Hi there,

My son started wearing a StarBand at 5 months.. for severe plagio/brachio. We had him wearing it for probably 21 hours a day, largely b/c I was nursing him and he wouldn't eat with it on. Also sometimes when I would do his 4am feeding I would not put it back on until he woke up at about 7:30am.. so he definitely wore it a lot less than they recommended.. however, about 2 months ago now, at his midscan, his results were astounding, his head really looks great. They knew that his helmet wasn't on all the time, but it was apparently when it mattered b/c he got growth in all of the right places, which they were very happy with. Since then, his head has corrected even more (though there is a flat spot on the side/top/front.. that we just can't see to get to fill in). He has another month and a half maybe left to be in the helmet.. and maybe he wouldn't have had to wear it til he was a year old if I kept it on more.. or maybe he would have.. but in the

overall scheme of things I have not seen anything negative happen to his head. I think having it on a little less every day is probably not a huge deal, though to our orthototists point, you never know when they will have a little growth spurt, so that's why they like you to have it on as much as possible. Once I stopped nursing him and he was drinking from a bottle (at 8 months) his helmet has been on a lot more.. but most of his correction was done by then anyway.. So, I would say do what you feel is right. However, I agree with the other person that wrote, is it really the helmet that is making him fussy? Does his temperment totally change when it's off? Oftentimes I would think that my son was being fussy from the helmet.. but in reality, it was not the helmet at all, as I found that nothing changed even with it off. Good luck!

Genevieve mom of

Sebastian, 10 months

From: Anne <annekbui@...>Plagiocephaly Sent: Thu, December 9, 2010 2:31:42 PMSubject: Less Than 23 hrs/Day?

Hi,Anyone keep the band (Star band on our case) on their kids for less than 23hrs/day and still have a successful outcome? I'm not talking about an extreme deviation, but keeping it on for something like maybe 20 hrs/day? I realize that this may prolong the treatment, but can it potentially derail it?Our caregiver reports that our son gets extremely fussy in the early afternoon, and I wonder if it would be OK for him to get an extended break (4 hrs) on a daily basis. Less fussiness would enable our caregiver to devote more time to our older child, whom she also takes care of. I realize that she could take off his helmet, wipe his head and allow him to have a good scratch, and then put the helmet back on, but our son hates having his helmet put back on multiple times. He gets his bath, and the helmet is cleaned when my husband and I get home from work (7pm-ish). Thanks,Anne(7-month old son wearing Starband for almost 4

weeks now)

[Guest guest]

We do try to leave it on as long as possible especially since we are in band number two. Have you tried not taking it off during the afternoon and just taking it off at bedtime? I know for our son we took it off when the temp. was very warm over the summer for a bit, and I try to give him about an hour break before bedtime. Hope all goes well for you!!

From: Anne <annekbui@...>Subject: Less Than 23 hrs/Day?Plagiocephaly Date: Thursday, December 9, 2010, 1:31 PM

Hi,Anyone keep the band (Star band on our case) on their kids for less than 23hrs/day and still have a successful outcome? I'm not talking about an extreme deviation, but keeping it on for something like maybe 20 hrs/day? I realize that this may prolong the treatment, but can it potentially derail it?Our caregiver reports that our son gets extremely fussy in the early afternoon, and I wonder if it would be OK for him to get an extended break (4 hrs) on a daily basis. Less fussiness would enable our caregiver to devote more time to our older child, whom she also takes care of. I realize that she could take off his helmet, wipe his head and allow him to have a good scratch, and then put the helmet back on, but our son hates having his helmet put back on multiple times. He gets his bath, and the helmet is cleaned when my husband and I get home from work (7pm-ish). Thanks,Anne(7-month old son wearing Starband for almost 4

weeks now)

[Guest guest]

I've heard if you put a barrette on the velcro they won't be able to open it

(unless they can pull it off with the velcro closed). Are you seeing any

improvement in their heads?

-christine

sydney, almost 5 yrs, starband grad

>

>

> My boys have been wearing the helmets for 2 months now. They love taking off

the helmets on their own and chewing the gap stoppers. I'm still not sure about

how long the grandparents have the helmets taken off during the day while they

watch the children. Also when I put them to sleep at night, I have to take the

helmets off otherwise they refuse to sleep. When they fall into sound sleep,

I'll put them back on. On some bad days when my husband watches them, he takes

off the helmets for many many hours... I just don't have control of how my other

families do it.

>

> So my boys only wear the helmets max 20 hours a day. I kind of start to

realize that it's not doing what it's supposed to do with not wearing full time,

but it could be just my boys old ages. They are over 16 months now.

>

>

>

>

>

> Plagiocephaly

> From: annekbui@...

> Date: Thu, 9 Dec 2010 19:31:42 +0000

> Subject: Less Than 23 hrs/Day?

>

>

>

>

>

>

> Hi,

>

> Anyone keep the band (Star band on our case) on their kids for less than

23hrs/day and still have a successful outcome? I'm not talking about an extreme

deviation, but keeping it on for something like maybe 20 hrs/day? I realize that

this may prolong the treatment, but can it potentially derail it?

>

> Our caregiver reports that our son gets extremely fussy in the early

afternoon, and I wonder if it would be OK for him to get an extended break (4

hrs) on a daily basis. Less fussiness would enable our caregiver to devote more

time to our older child, whom she also takes care of. I realize that she could

take off his helmet, wipe his head and allow him to have a good scratch, and

then put the helmet back on, but our son hates having his helmet put back on

multiple times. He gets his bath, and the helmet is cleaned when my husband and

I get home from work (7pm-ish).

>

> Thanks,

> Anne

> (7-month old son wearing Starband for almost 4 weeks now)

>