the new guy

[Guest guest]

hi all

i'm just joining this group today, though i've been arm wrestling with sarcoid

for a long time (20 years next month). it's been a personal and private battle,

by choice, all this time, because i thought my life would be more normal if i

tried to pretend it wasn't such a big deal.

but now, after so many years of pulmonary function tests and ophthalmologist

visits, pills and needles, i am tired of going it alone. and, it looks like my

sarcoid has finally spread to my head. headaches and nausea, vertigo, and

sleeping about 12 hours a day... kinda hard to pretend it's not such a big deal

now it's not confirmed yet, i have to find a way to pay for a brain MRI scan

to confirm it, but with the new symptoms i have, i think it's a foregone

conclusion. after googling the symptoms, i realize i've probably had

neurosarcoid for the past few years & just never knew it.

so, don't mind me, i'm going to poke around some past messaages, & you'll

probably hear from me now & then. i can handle the eye problems and the short

breath on my own pretty well (practice), but when things start going whonky in

my head, i just might need to speak up once in a while

chris (skugger)