Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Perhaps I am not qualified to answer this because we didn't deal with tort, but I have read lots of posts in the last couple of years. I think you are on the right track that something more than PT is needed. From what I have read, most babies have more than mild improvement in that many months. I don't know whether that would be surgery or chiro or something else, but I would encourage you to keep pursuing it. Obviously, there is something more significant going on that needs more than exercises. Good luck. From: <jsilli@...>Plagiocephaly Sent: Mon, June 28, 2010 10:14:52 PMSubject: Does PT ever end? My 13 month old son has had severe Torticollis since birth. He has been in pt since he was 4 months old and we have only seen mild improvement, which I believe is simply due to his growth and ability to hold his head up better. His PT said that she would normally expect to see more improvent with the amount of time he has been in treatment and being that he is now walking on his own and has muscle control. How long do I continue with weekly pt appointments if there is no further improvement? I feel like there is no light at the end of the tunnel. Every doctor I talk to is against surgery, yet other mom's who have waited for the surgery have told me that they wished they did it when their child was younger. We have ruled out ocular Tort. In his recent C-spine x-ray an extra mass was found in his neck so we were sent to an orthopedic surgeon who almost dismissed us with a 6 month recall appointment "b/c kids normally outgrow tort". He hasn't outgrown it in 13 months! The ortho. didn't even explain to me what the mass was. When I demanded answers he said we would have to come back for an MRI but it is rare that it is anything serious. So now I am waiting for our insurance to authorize the x-ray before I can make an appt. I just want the tort gone! I have added a picture in the older kids tort album, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 I am a PT (15 years experience, doctorate and experience with peds), and my son has plagio and torticollis. As for your son's torticollis, if the PT says there's not a lot of improvement, or that she would expect more, I would stop PT and get a second opinion from an orthopedist who specializes in pediatrics. In my experience, sometimes, when you bring a child to an adult ortho, they aren't sure what to expect. That is a long time for any child to be in PT, and since he is reaching milestones, I would get another opinion on the torticollis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 A consideration may be to get a second opinion. It seems like a long time for PT, but I don't know all of the circumstances. We did do PT for our son's tort. The PT lasted about 3 months, and we did the exercises at home religiously. We also went to a cranial sacral practitioner during the same time as well. The tort took a while to clear but eventually it did clear and he moves his head without restriction today. Hope this helps. > > Perhaps I am not qualified to answer this because we didn't deal with tort, but I have read lots of posts in the last couple of years. I think you are on the right track that something more than PT is needed. From what I have read, most babies have more than mild improvement in that many months. I don't know whether that would be surgery or chiro or something else, but I would encourage you to keep pursuing it. Obviously, there is something more significant going on that needs more than exercises. > > Good luck. > > > > > > > ________________________________ > From: <jsilli@...> > Plagiocephaly > Sent: Mon, June 28, 2010 10:14:52 PM > Subject: Does PT ever end? > > Â > My 13 month old son has had severe Torticollis since birth. He has been in pt since he was 4 months old and we have only seen mild improvement, which I believe is simply due to his growth and ability to hold his head up better. His PT said that she would normally expect to see more improvent with the amount of time he has been in treatment and being that he is now walking on his own and has muscle control. How long do I continue with weekly pt appointments if there is no further improvement? I feel like there is no light at the end of the tunnel. Every doctor I talk to is against surgery, yet other mom's who have waited for the surgery have told me that they wished they did it when their child was younger. We have ruled out ocular Tort. In his recent C-spine x-ray an extra mass was found in his neck so we were sent to an orthopedic surgeon who almost dismissed us with a 6 month recall appointment " b/c kids normally outgrow tort " . He hasn't outgrown it in > 13 months! The ortho. didn't even explain to me what the mass was. When I demanded answers he said we would have to come back for an MRI but it is rare that it is anything serious. So now I am waiting for our insurance to authorize the x-ray before I can make an appt. I just want the tort gone! > > I have added a picture in the older kids tort album, . > Quote Link to comment Share on other sites More sharing options...
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