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I'd suggest seeing another ortho and oral surgeon to see what they

recommend. It's an awful lot to go through if there isn't a

functional need for it.

> I had consulted with an Oral surgeon for jaw surgery. I have a

long

> face , slightly gummy smile and recessed chin, and lip

incompetence

> abut 5mm over bite. Functionaly I am bothered by the effort to

keep

> my mouth closed, constant compensation and neck pain when I bring

my

> jay foward to meet the upper.

>

> I am in Floirda with BCBS. I have already been preapproved for

the

> full cost of surgery. The only thing left was for the

orthodontist

> consult. My teeth are straight for the most part. The

orthodontist I

> consulted with said he did not recommend surgery. He said ther

would

> not be that big of a difference. Where te surgeon said there

would.

>

> I ave forever hated my long face and awful smile. I hate being in

> pictures. Any advice or input.

>

> mar

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Guest guest

See another orthodontist! Ask your OS for the name of someone

he/she frequently works with. That way you know they're accustomed

to dealing with surgical cases. Hang in there until you find the

right docs for you.

> I had consulted with an Oral surgeon for jaw surgery. I have a

long

> face , slightly gummy smile and recessed chin, and lip

incompetence

> abut 5mm over bite. Functionaly I am bothered by the effort to

keep

> my mouth closed, constant compensation and neck pain when I bring

my

> jay foward to meet the upper.

>

> I am in Floirda with BCBS. I have already been preapproved for

the

> full cost of surgery. The only thing left was for the

orthodontist

> consult. My teeth are straight for the most part. The

orthodontist I

> consulted with said he did not recommend surgery. He said ther

would

> not be that big of a difference. Where te surgeon said there

would.

>

> I ave forever hated my long face and awful smile. I hate being in

> pictures. Any advice or input.

>

> mar

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  • 2 months later...

Hi Lori,

You're the first that I've heard of on these sites with diabetes

undergoing this surgery, but that doesn't mean there hasn't been

anyone in the same boat.

>

> Hi everyone. I haven't posted in a while since there isn't much

to

> report, I'm going on month 3 with braces and will be having my

surgery

> around Nov of next year. I'm hoping I get lucky and go a little

> earlier, even if it's by a month or so but I'm not holding my

breath.

> I wanted to ask the group if any of you or know of someone who has

> diabetes and has had Orthognathic surgery. I'm 23 and was

diagnosed

> when I was 16. I've had an insulin pump for 3 years and before

that I

> did injections. By no means will my diabetes stop me from having

the

> surgery and I've talked with my Surgeon and Endocrinologist about

it

> and they said it will be okay as long as my blood sugars are under

> control. I'm more curious then worried, just wondering if anyone

is in

> the same boat. Thanks/Lori

>

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Hi Lori

im having lower jaw surgery in jan. I was diagnosed 7 years

ago with type 2 i am familar with the disease. Without boring

you with my diabities story i have had a few surgerys since

being diagnosed. Make sure EVERYONE knows your unique situation.

Surgeries are done all the time with people with diabities

just make sure your ansteologist and all staff is aware of

your situation. when i had surgery i told my doc to make

sure we had glucose on board so i would not get any lows

had no problem. i dont think it should be any concern as

long as everyone is on the same page. My fatherinlaw had bypass

surgery and neck surgery and he has diabities and hes still

up and around. Good luck i hope this put your mine a little

at ease

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Hi Lori,

I just had my surgery on Sept. 28th and am 5 weeks post op. I am also

Diabetic and on an Insulin pump. Everything went well on my surgery.

My blood sugars were a little high after the surgery, which my

Endocrinologist said was to be expected. Just make sure that you

check your blood sugar often after the surgery. My Endocrinologist

said to lower my Basal rate on my pump the night before my surgery so

that I won't get low blood sugar. Remember that you will not be

eating and will be on a liquid diet for a while, so your calorie

intake is much lower than normal. Just Bolus for the carb. intake for

what you are going to drink. My blood sugars are just now getting

back to normal because of the surgery. Your body is going to be under

a lot of stress, which will make your blood sugar elevate.

Actually, the day I had my surgery, the Dr's and nurses were asking

me about my insulin pump and how it worked. I found out that I knew

more than they knew about an Insulin pump and educated them. You

might find that they will be asking you more about the Insulin pump.

Don't worry so much about the surgery, as long as your blood sugars

are in control before the surgery. You will be fine.

Let me know if I can help you more.

Thanks

Heidi

>

> Hi everyone. I haven't posted in a while since there isn't much to

> report, I'm going on month 3 with braces and will be having my

surgery

> around Nov of next year. I'm hoping I get lucky and go a little

> earlier, even if it's by a month or so but I'm not holding my

breath.

> I wanted to ask the group if any of you or know of someone who has

> diabetes and has had Orthognathic surgery. I'm 23 and was

diagnosed

> when I was 16. I've had an insulin pump for 3 years and before

that I

> did injections. By no means will my diabetes stop me from having

the

> surgery and I've talked with my Surgeon and Endocrinologist about

it

> and they said it will be okay as long as my blood sugars are under

> control. I'm more curious then worried, just wondering if anyone

is in

> the same boat. Thanks/Lori

>

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Thanks. I know I'm not the only one, but there's comfort in knowing

that there are others out there. I'm confident that they're won't

be any problems. Good luck with your surgery... it will be here

before you know it.

>

>

> Hi Lori

>

> im having lower jaw surgery in jan. I was diagnosed 7

years

> ago with type 2 i am familar with the disease. Without

boring

> you with my diabities story i have had a few surgerys

since

> being diagnosed. Make sure EVERYONE knows your unique

situation.

> Surgeries are done all the time with people with diabities

> just make sure your ansteologist and all staff is aware of

> your situation. when i had surgery i told my doc to make

> sure we had glucose on board so i would not get any

lows

> had no problem. i dont think it should be any concern as

> long as everyone is on the same page. My fatherinlaw had

bypass

> surgery and neck surgery and he has diabities and hes still

> up and around. Good luck i hope this put your mine a

little

> at ease

>

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  • 5 months later...
Guest guest

According to the March of Dimes site

(http://www.marchofdimes.com/professionals/681_1211.asp), the chance

is about 3% " Generally, if a child has an isolated clubfoot (no

other birth defects present), the recurrence risks in another

pregnancy are low (about 3 percent). "

There is a wonderful post in the links section written by one of the

members about this topic. Ultimately it is a decision only you and

your husband can make, but I think her comments are very helpful.

Please check it out:

http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749

I hope that is of some help to you. Best of luck to you!

kaci

>

> Can anyone tell me a % of what the chances are to have another

baby born with CF? Here is my reasoning. I would love to have

another child, but my husband isn't with me on this. He doesn't

know if he can do the CF thing again. Don't know why this would

matter to him, yes we have had a hard go at this one, but know what

to do now. He isn't the one that puts the brace on or off. He

isn't the one that has stayed up night after night when he has had

sores or slipping from the brace. I will admit that Karter has been

more difficult to deal with then our daughter who is six. We have

had several trips to the ER, tubes in, adenoids out, reaction to

shots which ended up with a 6 day hospital stay, several castings,

now ST and OT. I love both my children dearly and would like just

one more.

>

> He does have a concern about my health. With each child it

seems to be worse. First one on bed rest for 1.5 months, second on

bed rest for 3 months, extremely high blood pressure to the point I

would pass out. Both children have been induced the first on my due

date and Karter 20 days before. had to stay in the hospital longer

with the second, because my blood pressure would not go down. Was

on meds to stop siezures, then on BP meds for 14 months after until

it finally came down. I am planning on talking with my OB Dr.

before I try to get pg, to make sure my body can handle it, but I

don't want Karter haveing CF the only reason we don't have any more.

>

> Well thanks

> Tabitha

>

>

> ---------------------------------

> Celebrate Earth Day everyday! Discover 10 things you can do to

help slow climate change. Yahoo! Earth Day

>

>

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Guest guest

If your husband is wanting another child but just fearful of dealing with

clubfeet again, there is always the choice to adopt as a way of having more

children. Each of our 6 children have come to us through adoption and we're in

the midst of adopting for the 7th time. This baby is the one with clubfeet.

When you adopt, you choose if you want a special needs child (and what special

needs you'll accept) or not.

Donna

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Kaci,

Thanks will show my husband both of these. He is thinking the % is higher

than 65, so 3% is very good on my part. It took us 4 years to get pg last time

so if we start now it will better our chances. LOL

Tabitha

nokitty00 wrote:

According to the March of Dimes site

(http://www.marchofdimes.com/professionals/681_1211.asp), the chance

is about 3% " Generally, if a child has an isolated clubfoot (no

other birth defects present), the recurrence risks in another

pregnancy are low (about 3 percent). "

There is a wonderful post in the links section written by one of the

members about this topic. Ultimately it is a decision only you and

your husband can make, but I think her comments are very helpful.

Please check it out:

http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749

I hope that is of some help to you. Best of luck to you!

kaci

>

> Can anyone tell me a % of what the chances are to have another

baby born with CF? Here is my reasoning. I would love to have

another child, but my husband isn't with me on this. He doesn't

know if he can do the CF thing again. Don't know why this would

matter to him, yes we have had a hard go at this one, but know what

to do now. He isn't the one that puts the brace on or off. He

isn't the one that has stayed up night after night when he has had

sores or slipping from the brace. I will admit that Karter has been

more difficult to deal with then our daughter who is six. We have

had several trips to the ER, tubes in, adenoids out, reaction to

shots which ended up with a 6 day hospital stay, several castings,

now ST and OT. I love both my children dearly and would like just

one more.

>

> He does have a concern about my health. With each child it

seems to be worse. First one on bed rest for 1.5 months, second on

bed rest for 3 months, extremely high blood pressure to the point I

would pass out. Both children have been induced the first on my due

date and Karter 20 days before. had to stay in the hospital longer

with the second, because my blood pressure would not go down. Was

on meds to stop siezures, then on BP meds for 14 months after until

it finally came down. I am planning on talking with my OB Dr.

before I try to get pg, to make sure my body can handle it, but I

don't want Karter haveing CF the only reason we don't have any more.

>

> Well thanks

> Tabitha

>

>

> ---------------------------------

> Celebrate Earth Day everyday! Discover 10 things you can do to

help slow climate change. Yahoo! Earth Day

>

>

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Donna

WOW 7 kids, that is just amazing. You are truely a wonderful person to take

in and love all those children. We have talked about adoption. Even older

children. There are so many kids that need a loving home. If I could I would

take in every kid that is out there without a home.

Tabitha

Donna Casady wrote:

If your husband is wanting another child but just fearful of dealing with

clubfeet again, there is always the choice to adopt as a way of having more

children. Each of our 6 children have come to us through adoption and we're in

the midst of adopting for the 7th time. This baby is the one with clubfeet.

When you adopt, you choose if you want a special needs child (and what special

needs you'll accept) or not.

Donna

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It was 100% for me. hahahah

s.

Re: Question

According to the March of Dimes site

(http://www.marchofdimes.com/professionals/681_1211.asp), the chance

is about 3% " Generally, if a child has an isolated clubfoot (no

other birth defects present), the recurrence risks in another

pregnancy are low (about 3 percent). "

There is a wonderful post in the links section written by one of the

members about this topic. Ultimately it is a decision only you and

your husband can make, but I think her comments are very helpful.

Please check it out:

http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749

I hope that is of some help to you. Best of luck to you!

kaci

>

> Can anyone tell me a % of what the chances are to have another

baby born with CF? Here is my reasoning. I would love to have

another child, but my husband isn't with me on this. He doesn't

know if he can do the CF thing again. Don't know why this would

matter to him, yes we have had a hard go at this one, but know what

to do now. He isn't the one that puts the brace on or off. He

isn't the one that has stayed up night after night when he has had

sores or slipping from the brace. I will admit that Karter has been

more difficult to deal with then our daughter who is six. We have

had several trips to the ER, tubes in, adenoids out, reaction to

shots which ended up with a 6 day hospital stay, several castings,

now ST and OT. I love both my children dearly and would like just

one more.

>

> He does have a concern about my health. With each child it

seems to be worse. First one on bed rest for 1.5 months, second on

bed rest for 3 months, extremely high blood pressure to the point I

would pass out. Both children have been induced the first on my due

date and Karter 20 days before. had to stay in the hospital longer

with the second, because my blood pressure would not go down. Was

on meds to stop siezures, then on BP meds for 14 months after until

it finally came down. I am planning on talking with my OB Dr.

before I try to get pg, to make sure my body can handle it, but I

don't want Karter haveing CF the only reason we don't have any more.

>

> Well thanks

> Tabitha

>

>

> ---------------------------------

> Celebrate Earth Day everyday! Discover 10 things you can do to

help slow climate change. Yahoo! Earth Day

>

>

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Guest guest

If not for your health I'd strongly urge you not to let the risk of cf sway you

- but with your health, yes, make sure YOU are healthy enough before you try

again!

s.

Question

Can anyone tell me a % of what the chances are to have another baby born with

CF? Here is my reasoning. I would love to have another child, but my husband

isn't with me on this. He doesn't know if he can do the CF thing again. Don't

know why this would matter to him, yes we have had a hard go at this one, but

know what to do now. He isn't the one that puts the brace on or off. He isn't

the one that has stayed up night after night when he has had sores or slipping

from the brace. I will admit that Karter has been more difficult to deal with

then our daughter who is six. We have had several trips to the ER, tubes in,

adenoids out, reaction to shots which ended up with a 6 day hospital stay,

several castings, now ST and OT. I love both my children dearly and would like

just one more.

He does have a concern about my health. With each child it seems to be

worse. First one on bed rest for 1.5 months, second on bed rest for 3 months,

extremely high blood pressure to the point I would pass out. Both children have

been induced the first on my due date and Karter 20 days before. had to stay in

the hospital longer with the second, because my blood pressure would not go

down. Was on meds to stop siezures, then on BP meds for 14 months after until

it finally came down. I am planning on talking with my OB Dr. before I try to

get pg, to make sure my body can handle it, but I don't want Karter haveing CF

the only reason we don't have any more.

Well thanks

Tabitha

---------------------------------

Celebrate Earth Day everyday! Discover 10 things you can do to help slow

climate change. Yahoo! Earth Day

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Guest guest

haha... shhhhhh.... you don't count, you're special lol

At 11:41 AM 4/21/2006, you wrote:

>It was 100% for me. hahahah

>

>s.

>

> Re: Question

>

>

> According to the March of Dimes site

> (http://www.marchofdimes.com/professionals/681_1211.asp), the chance

> is about 3% " Generally, if a child has an isolated clubfoot (no

> other birth defects present), the recurrence risks in another

> pregnancy are low (about 3 percent). "

>

> There is a wonderful post in the links section written by one of the

> members about this topic. Ultimately it is a decision only you and

> your husband can make, but I think her comments are very helpful.

> Please check it out:

>

> http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749

>

> I hope that is of some help to you. Best of luck to you!

>

> kaci

>

>

> >

> > Can anyone tell me a % of what the chances are to have another

> baby born with CF? Here is my reasoning. I would love to have

> another child, but my husband isn't with me on this. He doesn't

> know if he can do the CF thing again. Don't know why this would

> matter to him, yes we have had a hard go at this one, but know what

> to do now. He isn't the one that puts the brace on or off. He

> isn't the one that has stayed up night after night when he has had

> sores or slipping from the brace. I will admit that Karter has been

> more difficult to deal with then our daughter who is six. We have

> had several trips to the ER, tubes in, adenoids out, reaction to

> shots which ended up with a 6 day hospital stay, several castings,

> now ST and OT. I love both my children dearly and would like just

> one more.

> >

> > He does have a concern about my health. With each child it

> seems to be worse. First one on bed rest for 1.5 months, second on

> bed rest for 3 months, extremely high blood pressure to the point I

> would pass out. Both children have been induced the first on my due

> date and Karter 20 days before. had to stay in the hospital longer

> with the second, because my blood pressure would not go down. Was

> on meds to stop siezures, then on BP meds for 14 months after until

> it finally came down. I am planning on talking with my OB Dr.

> before I try to get pg, to make sure my body can handle it, but I

> don't want Karter haveing CF the only reason we don't have any more.

> >

> > Well thanks

> > Tabitha

> >

> >

> > ---------------------------------

> > Celebrate Earth Day everyday! Discover 10 things you can do to

> help slow climate change. Yahoo! Earth Day

> >

> >

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LOL, thanks. I gotta half dozen clubbed feet!

s.

Re: Question

>

>

> According to the March of Dimes site

> (http://www.marchofdimes.com/professionals/681_1211.asp), the chance

> is about 3% " Generally, if a child has an isolated clubfoot (no

> other birth defects present), the recurrence risks in another

> pregnancy are low (about 3 percent). "

>

> There is a wonderful post in the links section written by one of the

> members about this topic. Ultimately it is a decision only you and

> your husband can make, but I think her comments are very helpful.

> Please check it out:

>

> http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/40749

>

> I hope that is of some help to you. Best of luck to you!

>

> kaci

>

>

> >

> > Can anyone tell me a % of what the chances are to have another

> baby born with CF? Here is my reasoning. I would love to have

> another child, but my husband isn't with me on this. He doesn't

> know if he can do the CF thing again. Don't know why this would

> matter to him, yes we have had a hard go at this one, but know what

> to do now. He isn't the one that puts the brace on or off. He

> isn't the one that has stayed up night after night when he has had

> sores or slipping from the brace. I will admit that Karter has been

> more difficult to deal with then our daughter who is six. We have

> had several trips to the ER, tubes in, adenoids out, reaction to

> shots which ended up with a 6 day hospital stay, several castings,

> now ST and OT. I love both my children dearly and would like just

> one more.

> >

> > He does have a concern about my health. With each child it

> seems to be worse. First one on bed rest for 1.5 months, second on

> bed rest for 3 months, extremely high blood pressure to the point I

> would pass out. Both children have been induced the first on my due

> date and Karter 20 days before. had to stay in the hospital longer

> with the second, because my blood pressure would not go down. Was

> on meds to stop siezures, then on BP meds for 14 months after until

> it finally came down. I am planning on talking with my OB Dr.

> before I try to get pg, to make sure my body can handle it, but I

> don't want Karter haveing CF the only reason we don't have any more.

> >

> > Well thanks

> > Tabitha

> >

> >

> > ---------------------------------

> > Celebrate Earth Day everyday! Discover 10 things you can do to

> help slow climate change. Yahoo! Earth Day

> >

> >

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Guest guest

You defy the odds! I hope you didn't mind me sharing the link to

your post...I have asked myself that question too and your insight

helped me get over that!

> >

> > Can anyone tell me a % of what the chances are to have another

> baby born with CF? Here is my reasoning. I would love to have

> another child, but my husband isn't with me on this. He doesn't

> know if he can do the CF thing again. Don't know why this would

> matter to him, yes we have had a hard go at this one, but know

what

> to do now. He isn't the one that puts the brace on or off. He

> isn't the one that has stayed up night after night when he has

had

> sores or slipping from the brace. I will admit that Karter has

been

> more difficult to deal with then our daughter who is six. We

have

> had several trips to the ER, tubes in, adenoids out, reaction to

> shots which ended up with a 6 day hospital stay, several

castings,

> now ST and OT. I love both my children dearly and would like

just

> one more.

> >

> > He does have a concern about my health. With each child it

> seems to be worse. First one on bed rest for 1.5 months, second

on

> bed rest for 3 months, extremely high blood pressure to the

point I

> would pass out. Both children have been induced the first on my

due

> date and Karter 20 days before. had to stay in the hospital

longer

> with the second, because my blood pressure would not go down.

Was

> on meds to stop siezures, then on BP meds for 14 months after

until

> it finally came down. I am planning on talking with my OB Dr.

> before I try to get pg, to make sure my body can handle it, but

I

> don't want Karter haveing CF the only reason we don't have any

more.

> >

> > Well thanks

> > Tabitha

> >

> >

> > ---------------------------------

> > Celebrate Earth Day everyday! Discover 10 things you can do

to

> help slow climate change. Yahoo! Earth Day

> >

> >

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Guest guest

No I don't mind. I'm happy I can help, as writing it helped me a lot too.

I guess I should has a Post Script to that as I am just so completely in love

with Garrison here. He's so big and stout and dark skinned (OK, as dark as my

family can get anyway). He has 's stoic eyes yet a smile that lights up a

room that neither of the other two can match at all.

Then there is still and Everett who have been building a new bond between

them since Garrison's arrival that is wonderful to watch - and the two of them

so affectionate to their baby brother. So again I say - what IF you had

another with Clubbed Feet??? Would you trade in the previous club footed

child? Never in a million years.

I'm glad this came up again because it reminds me I DO love my kids! hahaha

(like when they are all three crying at once and I want to trade them in for

hamsters)

s.

You defy the odds! I hope you didn't mind me sharing the link to

your post...I have asked myself that question too and your insight

helped me get over that!

> >

> > Can anyone tell me a % of what the chances are to have another

> baby born with CF? Here is my reasoning. I would love to have

> another child, but my husband isn't with me on this. He doesn't

> know if he can do the CF thing again. Don't know why this would

> matter to him, yes we have had a hard go at this one, but know

what

> to do now. He isn't the one that puts the brace on or off. He

> isn't the one that has stayed up night after night when he has

had

> sores or slipping from the brace. I will admit that Karter has

been

> more difficult to deal with then our daughter who is six. We

have

> had several trips to the ER, tubes in, adenoids out, reaction to

> shots which ended up with a 6 day hospital stay, several

castings,

> now ST and OT. I love both my children dearly and would like

just

> one more.

> >

> > He does have a concern about my health. With each child it

> seems to be worse. First one on bed rest for 1.5 months, second

on

> bed rest for 3 months, extremely high blood pressure to the

point I

> would pass out. Both children have been induced the first on my

due

> date and Karter 20 days before. had to stay in the hospital

longer

> with the second, because my blood pressure would not go down.

Was

> on meds to stop siezures, then on BP meds for 14 months after

until

> it finally came down. I am planning on talking with my OB Dr.

> before I try to get pg, to make sure my body can handle it, but

I

> don't want Karter haveing CF the only reason we don't have any

more.

> >

> > Well thanks

> > Tabitha

> >

> >

> > ---------------------------------

> > Celebrate Earth Day everyday! Discover 10 things you can do

to

> help slow climate change. Yahoo! Earth Day

> >

> >

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Guest guest

When I got pregnant, my doctor told me there was a 4-6% chance that I

would pass cf on (no previous family history prior to myself) and

that the chances of having a 2nd child with cf would be 10%. Higher

than 3% from the March of Dimes, but much lower than 65%... I too

have battled with this question, I don't want the chance of passing

cf on to be the reason we don't have another child. For what it's

worth, I'm definitely happy to be here!

>

> Can anyone tell me a % of what the chances are to have another baby

born with CF? Here is my reasoning. I would love to have another

child, but my husband isn't with me on this. He doesn't know if he

can do the CF thing again. Don't know why this would matter to him,

yes we have had a hard go at this one, but know what to do now. He

isn't the one that puts the brace on or off. He isn't the one that

has stayed up night after night when he has had sores or slipping

from the brace. I will admit that Karter has been more difficult to

deal with then our daughter who is six. We have had several trips to

the ER, tubes in, adenoids out, reaction to shots which ended up with

a 6 day hospital stay, several castings, now ST and OT. I love both

my children dearly and would like just one more.

>

> He does have a concern about my health. With each child it seems

to be worse. First one on bed rest for 1.5 months, second on bed

rest for 3 months, extremely high blood pressure to the point I would

pass out. Both children have been induced the first on my due date

and Karter 20 days before. had to stay in the hospital longer with

the second, because my blood pressure would not go down. Was on meds

to stop siezures, then on BP meds for 14 months after until it

finally came down. I am planning on talking with my OB Dr. before I

try to get pg, to make sure my body can handle it, but I don't want

Karter haveing CF the only reason we don't have any more.

>

> Well thanks

> Tabitha

>

>

> ---------------------------------

> Celebrate Earth Day everyday! Discover 10 things you can do to

help slow climate change. Yahoo! Earth Day

>

>

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Guest guest

Oh ee you do defy the odds. I wouldn't care if I had to do casts over or

even the brace. We would start with Dr. Ponseti and know what to do. I do have

to say I love my kids and would like one more. it took us over 3 years to have

the last one and just thinking we should start trying now. I lost two sets of

twins and two others between the two. That would be harder than having the club

foot.

Just listening to you talk about Garrison and how the boys are interacting,

just makes me want it more.

I have to say my husband is concerned that there is 2 sets of triplets in his

family (brothers and sister, and grandpa) and 3 sets of twins in mine.(father,

aunts, and grandma) But who cares if we get two or three! lol

Tabitha

number23 wrote:

No I don't mind. I'm happy I can help, as writing it helped me a lot too.

I guess I should has a Post Script to that as I am just so completely in love

with Garrison here. He's so big and stout and dark skinned (OK, as dark as my

family can get anyway). He has 's stoic eyes yet a smile that lights up a

room that neither of the other two can match at all.

Then there is still and Everett who have been building a new bond between

them since Garrison's arrival that is wonderful to watch - and the two of them

so affectionate to their baby brother. So again I say - what IF you had

another with Clubbed Feet??? Would you trade in the previous club footed

child? Never in a million years.

I'm glad this came up again because it reminds me I DO love my kids! hahaha

(like when they are all three crying at once and I want to trade them in for

hamsters)

s.

You defy the odds! I hope you didn't mind me sharing the link to

your post...I have asked myself that question too and your insight

helped me get over that!

> >

> > Can anyone tell me a % of what the chances are to have another

> baby born with CF? Here is my reasoning. I would love to have

> another child, but my husband isn't with me on this. He doesn't

> know if he can do the CF thing again. Don't know why this would

> matter to him, yes we have had a hard go at this one, but know

what

> to do now. He isn't the one that puts the brace on or off. He

> isn't the one that has stayed up night after night when he has

had

> sores or slipping from the brace. I will admit that Karter has

been

> more difficult to deal with then our daughter who is six. We

have

> had several trips to the ER, tubes in, adenoids out, reaction to

> shots which ended up with a 6 day hospital stay, several

castings,

> now ST and OT. I love both my children dearly and would like

just

> one more.

> >

> > He does have a concern about my health. With each child it

> seems to be worse. First one on bed rest for 1.5 months, second

on

> bed rest for 3 months, extremely high blood pressure to the

point I

> would pass out. Both children have been induced the first on my

due

> date and Karter 20 days before. had to stay in the hospital

longer

> with the second, because my blood pressure would not go down.

Was

> on meds to stop siezures, then on BP meds for 14 months after

until

> it finally came down. I am planning on talking with my OB Dr.

> before I try to get pg, to make sure my body can handle it, but

I

> don't want Karter haveing CF the only reason we don't have any

more.

> >

> > Well thanks

> > Tabitha

> >

> >

> > ---------------------------------

> > Celebrate Earth Day everyday! Discover 10 things you can do

to

> help slow climate change. Yahoo! Earth Day

> >

> >

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Guest guest

I can see where there is a concern with your health and getting

pregnant again. However, in my opinion, clubfoot is correctable and

one day all of this will just be a memory. Maybe your husband is

just using the clubfoot issue as a reason but maybe there is more to

it such as a concern for you. I may be way off here and I apologize

if I am. However, I must add that my son has clubfoot and it's one

of many, many medical issues. To me the clubfeet are a very minor

issue and I almost never worry about it or think much about it. My

son has microcephaly which is a small brain so he does have mental

retardation, he has bilateral ptosis (droopy eyelids which needed

surgery to correct and he will need more), he has kidney problems

and the list goes on and on. Please don't get me wrong, I am by no

means trying to make it sound like clubfoot is nothing. I realize

how devistating it is to know that your child has a medical issue.

I must add that my hubby and I are trying to decide if we should

have another as we don't know if what our son has is genetic or not

since the doctors cannot find the cause. I guess what I'm trying to

say is that in my opinion, the possiblity of clubfoot should not be

an issue when trying to decide if you should have another.

Good Luck

Proud Mom to

>

> If not for your health I'd strongly urge you not to let the risk

of cf sway you - but with your health, yes, make sure YOU are

healthy enough before you try again!

>

> s.

>

> Question

>

>

> Can anyone tell me a % of what the chances are to have another

baby born with CF? Here is my reasoning. I would love to have

another child, but my husband isn't with me on this. He doesn't

know if he can do the CF thing again. Don't know why this would

matter to him, yes we have had a hard go at this one, but know what

to do now. He isn't the one that puts the brace on or off. He

isn't the one that has stayed up night after night when he has had

sores or slipping from the brace. I will admit that Karter has been

more difficult to deal with then our daughter who is six. We have

had several trips to the ER, tubes in, adenoids out, reaction to

shots which ended up with a 6 day hospital stay, several castings,

now ST and OT. I love both my children dearly and would like just

one more.

>

> He does have a concern about my health. With each child it

seems to be worse. First one on bed rest for 1.5 months, second on

bed rest for 3 months, extremely high blood pressure to the point I

would pass out. Both children have been induced the first on my due

date and Karter 20 days before. had to stay in the hospital longer

with the second, because my blood pressure would not go down. Was

on meds to stop siezures, then on BP meds for 14 months after until

it finally came down. I am planning on talking with my OB Dr.

before I try to get pg, to make sure my body can handle it, but I

don't want Karter haveing CF the only reason we don't have any more.

>

> Well thanks

> Tabitha

>

>

> ---------------------------------

> Celebrate Earth Day everyday! Discover 10 things you can do to

help slow climate change. Yahoo! Earth Day

>

>

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  • 2 weeks later...
Guest guest

Hi, Michele,

You're getting great suggestions. I'm sure Maddie

will be back to normal soon. Just one note. I too

had read about the karo syrup cure. Asked my

daughter's ped about this & he said not to give it

to her until she was over 1 year old (he said the

concern w/the syrup is the same concern they

have with giving honey to infants under a year old).

Anyway, your ped might have a different opinion.

Doesn't hurt to ask. If it's safe, it might just do

the trick.

All the best,

Kim

leenernd wrote:

Poor baby and momma!

When david is stopped up, we do not let him eat cheese. We load him up

on pears, apple juice(pure not watered down as he usually gets),

reduce his milk intake, and add baked beans(which he loves) as well as

green beans. I have heard karo syrup(and i believe its the dark one)

can be given to help this situation but check with Maddi'e ped. My

niece still can have a terrible time with bm's and she is five-when

she was little, they would push her legs to her chest(knees bent) to

kind of help massage/move her bowels.

HTH!

kathleen

>

> I don't know if any of your kids have had this problem before, but

> Maddie is terribly constipated due mostly to lack of moving around

> with the boots and bar. I've given her prune juice, sugar water,

> omitted binding foods like rice and bananas, but she is still having

> problems. She just got her hours reduced to 14 per day, but in the

> meantime, any suggestions. What foods, other than prunes, do you

know

> of that " inspires pooping " . i just feel awful for her because she's

> straining all the time, and when she does manage to go, it's small

and

> hard as a rock. Any advice would be greatly appreciated.

> - Michele

> 5/18/02 and Maddie 9/6/05 bcf s 14/7

>

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Guest guest

Pears are also good. Make sure she's drinking plenty of water, maybe replace

some of her milk w/water. Anything high in fiber is good.

Marcia

Question

I don't know if any of your kids have had this problem before, but

Maddie is terribly constipated due mostly to lack of moving around

with the boots and bar. I've given her prune juice, sugar water,

omitted binding foods like rice and bananas, but she is still having

problems. She just got her hours reduced to 14 per day, but in the

meantime, any suggestions. What foods, other than prunes, do you know

of that " inspires pooping " . i just feel awful for her because she's

straining all the time, and when she does manage to go, it's small and

hard as a rock. Any advice would be greatly appreciated.

- Michele

5/18/02 and Maddie 9/6/05 bcf s 14/7

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Guest guest

Michele,

Is she breast or bottle fed? Could be something in your diet or the

formula you are using. We have used Carnation Good Start with both

kids, I swear it makes them less gassy than other formulas. You might

also check with the Pediatrician about trying a soy formula.

>

> I don't know if any of your kids have had this problem before, but

> Maddie is terribly constipated due mostly to lack of moving around

> with the boots and bar. I've given her prune juice, sugar water,

> omitted binding foods like rice and bananas, but she is still having

> problems. She just got her hours reduced to 14 per day, but in the

> meantime, any suggestions. What foods, other than prunes, do you know

> of that " inspires pooping " . i just feel awful for her because she's

> straining all the time, and when she does manage to go, it's small and

> hard as a rock. Any advice would be greatly appreciated.

> - Michele

> 5/18/02 and Maddie 9/6/05 bcf s 14/7

>

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Guest guest

My son has the same problem. I found that baby foods such as the jarred squash

and sweet potatoes actually help him quite a bit.

mdfrye1 wrote: I don't know if any of your kids have had

this problem before, but

Maddie is terribly constipated due mostly to lack of moving around

with the boots and bar. I've given her prune juice, sugar water,

omitted binding foods like rice and bananas, but she is still having

problems. She just got her hours reduced to 14 per day, but in the

meantime, any suggestions. What foods, other than prunes, do you know

of that " inspires pooping " . i just feel awful for her because she's

straining all the time, and when she does manage to go, it's small and

hard as a rock. Any advice would be greatly appreciated.

- Michele

5/18/02 and Maddie 9/6/05 bcf s 14/7

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Guest guest

I'm not convinced the constipation is FAB related, but I guess it could be. How

old is she? If she's getting plenty of floor time and tummy time she ought to

be kicking her legs around plenty to keep her system moving adequately. You

might want to lay her on her back and move her legs by holding her bar - lift

them high to her head up and down, and rock from side to side as you lift up and

set down; also belly rubs can help.

s.

Question

I don't know if any of your kids have had this problem before, but

Maddie is terribly constipated due mostly to lack of moving around

with the boots and bar. I've given her prune juice, sugar water,

omitted binding foods like rice and bananas, but she is still having

problems. She just got her hours reduced to 14 per day, but in the

meantime, any suggestions. What foods, other than prunes, do you know

of that " inspires pooping " . i just feel awful for her because she's

straining all the time, and when she does manage to go, it's small and

hard as a rock. Any advice would be greatly appreciated.

- Michele

5/18/02 and Maddie 9/6/05 bcf s 14/7

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Guest guest

We do use the Good Start Formula, which has been wonderful for her gas problems.

the poor kid used to have a lot of spit up and gas issues. Those are gone now,

only to be replaced with constipation and reflux. She takes baby zantac for the

reflux, but I'm hoping the constipation can be cured with some of the great tips

I've been getting from all of you. My older daughter is allergic to dairy

products, so we initially started Maddie on soy, but that caused a lot of

problems. So far, the Good Start is the best formula we've tried. Thanks for

all the help and advice. You guys are great.

- Michele

5/18/02 and Maddie 9/6/05

wrote:

Michele,

Is she breast or bottle fed? Could be something in your diet or the

formula you are using. We have used Carnation Good Start with both

kids, I swear it makes them less gassy than other formulas. You might

also check with the Pediatrician about trying a soy formula.

>

> I don't know if any of your kids have had this problem before, but

> Maddie is terribly constipated due mostly to lack of moving around

> with the boots and bar. I've given her prune juice, sugar water,

> omitted binding foods like rice and bananas, but she is still having

> problems. She just got her hours reduced to 14 per day, but in the

> meantime, any suggestions. What foods, other than prunes, do you know

> of that " inspires pooping " . i just feel awful for her because she's

> straining all the time, and when she does manage to go, it's small and

> hard as a rock. Any advice would be greatly appreciated.

> - Michele

> 5/18/02 and Maddie 9/6/05 bcf s 14/7

>

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