Update (of sorts) re: Optic Neuritis

[Guest guest]

Just a question...

...has anyone had a 'Visual Evoked Potential Test' ?

I had an MRI one week ago, and have seen my Neurologust just this morning. The

MRi did not show any changes (no ne lesions - no changes in existing lesions) -

it does show some inhlammation of the optic nerve. My neurologist has arranged a

Visual Evoked Potential Test for next week, so I;m goping she ( the brain-Dr)

can come up with some better ideas to share with me. I do seem to be able to

see a bit clearer now, but...

....I still feel frustrated not being able to see with noth eyes ( " oh darn -

thats where that wall is !! )

hope everyone is managinf,

and hope all my fellow Canadjuns enjoyed the day long weekend

ms

[Guest guest]

Mike,

I'm not sure what that test is, but I have the inflammation in my optic nerves as well and the visual tests they do on my is the OCT test and the visual field test along with the regular eye exam you would normally get with a yearly check up. I can understand the frustration of limited sight, I have very partial sight in one eye and lots of blurred vision in the other so my depth perception is off by a lot.

Good luck.

To: Neurosarcoidosis Sent: Tue, May 24, 2011 10:35:18 PMSubject: Update (of sorts) re: Optic Neuritis

Just a question......has anyone had a 'Visual Evoked Potential Test' ?I had an MRI one week ago, and have seen my Neurologust just this morning. The MRi did not show any changes (no ne lesions - no changes in existing lesions) - it does show some inhlammation of the optic nerve. My neurologist has arranged a Visual Evoked Potential Test for next week, so I;m goping she ( the brain-Dr) can come up with some better ideas to share with me. I do seem to be able to see a bit clearer now, but......I still feel frustrated not being able to see with noth eyes (" oh darn - thats where that wall is !! )hope everyone is managinf,and hope all my fellow Canadjuns enjoyed the day long weekendms

[Guest guest]

Well I haven't had any problems with my eyes, except dry.  Just had my check up and was told everything looked real good!  We are leaving tomorrow for our Seattle/ trip, my brother called me today to tell about some of the places to go to, so I'm really excited.

Now if I can just get rid of this darn Bronchitis, I will be a lot more fun, seems to hang on, my ribs hurt I've been coughing so much!!    Hang in there!  Marla

" Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours. " - Irish Proverb  

 

Just a question...

....has anyone had a 'Visual Evoked Potential Test' ?

I had an MRI one week ago, and have seen my Neurologust just this morning. The MRi did not show any changes (no ne lesions - no changes in existing lesions) - it does show some inhlammation of the optic nerve. My neurologist has arranged a Visual Evoked Potential Test for next week, so I;m goping she ( the brain-Dr) can come up with some better ideas to share with me. I do seem to be able to see a bit clearer now, but...

....I still feel frustrated not being able to see with noth eyes ( " oh darn - thats where that wall is !! )

hope everyone is managinf,

and hope all my fellow Canadjuns enjoyed the day long weekend

ms

[Guest guest]

; good news on the "static" MRI results--when I hear the no new lesions, and even sterady as she goes for existing lesions then I am ready to jump for joy; hope you are too, but be careful, if you aren't seeing well

Regarding your question, I a certain I've had this test, along with a couple of other "back of eye" exams done at the eye clinic of St. ph Hospital in Stoney Creek, ON. My journey with neurosarc started with eye problems (first opthamologist locally treated me for infection for nearly two weeks before I begged my husband to take me somewhere else when the pain--could not move/turn my head, and light sensitivity got so bad I wanted to die -- and no other Drs here [emerg or specialists] would "interfere' with first Dr's treatment; I thank God now that I left Niagara and got into the Hamilton/McMaster treatment system).

Anyhow, the evoked potential testing searches for nerve pathways, and helps in diagnosis and treatment. I continue to have lesions on my optic nerve, and also trigemenal (?) nerve, and ongoing visual problemsl although the blurred vision, my neuro-opthamologist says, are primarily associated with the long-term prednisone use. But because I continue to have active inflammation in both eyes, despite recent MRI that showed no changes in brain/optic nerve lesions, I am still on pred eye drops (up to 4x daily) so the pred load continues as a double-edged sword. But the drops help; I know "it's time" because vision blurs even more than usual, and pain begins ... but, despite blurriness, the actual vision (eye glass prescription) hasn't changed except for the "usual" associated with age . .. this disease, even with the optic neuritis symptoms, is so srange.

Anyhow, do hope your team can come up with some results and strategies/treatment for you. Good luck, fellow Canuk!

in Niagara

> To: Neurosarcoidosis > Date: Wed, 25 May 2011 03:35:18 +0000> Subject: Update (of sorts) re: Optic Neuritis> > Just a question...> ...has anyone had a 'Visual Evoked Potential Test' ?> I had an MRI one week ago, and have seen my Neurologust just this morning. The MRi did not show any changes (no ne lesions - no changes in existing lesions) - it does show some inhlammation of the optic nerve. My neurologist has arranged a Visual Evoked Potential Test for next week, so I;m goping she ( the brain-Dr) can come up with some better ideas to share with me. I do seem to be able to see a bit clearer now, but...> ...I still feel frustrated not being able to see with noth eyes (" oh darn - thats where that wall is !! )> hope everyone is managinf,> and hope all my fellow Canadjuns enjoyed the day long weekend> ms> > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >

[Guest guest]

Thanks (and all in this community) for the response(s).

It was actually my GP who had referred me to a Neurologist here in StCatharines

- she is the Dr who is sending me off for aVisual Evoked Potential ( terminology

?) test . I had visited our 'Urgent Care clinic' here (on Ontario St, StKitts) -

an Opthalmologist had 'strong;y' recommended I go to Hamilton General Hosp

b'cause they have Neuro on-call there - but the Neurologits who had originally

treated me in Toronto had replied to him I should be treated locally (in

Niagara) before I be 'shipped off' to Toronto. This Neurologisthere in StKitts

is acquainted w\ my Toronto Neuro, and she seems quite familiar aith Sarcoid, so

I beleive I am in good hands. If this StCatharines Neurologist believes she

needs to refer me to Toronto (or hamilton) for treatment, she wll decide that

(with no disrespect to the Opthalmologist here). Again, Thanks much to all

respoonders

I do hope you are managing well ...

>

>

> ; good news on the " static " MRI results--when I hear the no new

lesions, and even sterady as she goes for existing lesions then I am ready to

jump for joy; hope you are too, but be careful, if you aren't seeing well

> Regarding your question, I a certain I've had this test, along with a couple

of other " back of eye " exams done at the eye clinic of St. ph Hospital in

Stoney Creek, ON. My journey with neurosarc started with eye problems (first

opthamologist locally treated me for infection for nearly two weeks before I

begged my husband to take me somewhere else when the pain--could not move/turn

my head, and light sensitivity got so bad I wanted to die -- and no other Drs

here [emerg or specialists] would " interfere' with first Dr's treatment; I thank

God now that I left Niagara and got into the Hamilton/McMaster treatment

system).

> Anyhow, the evoked potential testing searches for nerve pathways, and helps in

diagnosis and treatment. I continue to have lesions on my optic nerve, and also

trigemenal (?) nerve, and ongoing visual problemsl although the blurred vision,

my neuro-opthamologist says, are primarily associated with the long-term

prednisone use. But because I continue to have active inflammation in both eyes,

despite recent MRI that showed no changes in brain/optic nerve lesions, I am

still on pred eye drops (up to 4x daily) so the pred load continues as a

double-edged sword. But the drops help; I know " it's time " because vision blurs

even more than usual, and pain begins ... but, despite blurriness, the actual

vision (eye glass prescription) hasn't changed except for the " usual " associated

with age . .. this disease, even with the optic neuritis symptoms, is so srange.

> Anyhow, do hope your team can come up with some results and

strategies/treatment for you. Good luck, fellow Canuk!

> in Niagara

>

> > To: Neurosarcoidosis

> > From: michealscott86@...

> > Date: Wed, 25 May 2011 03:35:18 +0000

> > Subject: Update (of sorts) re: Optic Neuritis

> >

> > Just a question...

> > ...has anyone had a 'Visual Evoked Potential Test' ?

> > I had an MRI one week ago, and have seen my Neurologust just this morning.

The MRi did not show any changes (no ne lesions - no changes in existing

lesions) - it does show some inhlammation of the optic nerve. My neurologist has

arranged a Visual Evoked Potential Test for next week, so I;m goping she ( the

brain-Dr) can come up with some better ideas to share with me. I do seem to be

able to see a bit clearer now, but...

> > ...I still feel frustrated not being able to see with noth eyes ( " oh darn -

thats where that wall is !! )

> > hope everyone is managinf,

> > and hope all my fellow Canadjuns enjoyed the day long weekend

> > ms

> >

> >

> >

> > ------------------------------------

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Neurosarcoidosis Community

> >

> >

> >

> > Message Archives:-

> > http://groups.yahoo.com/group/Neurosarcoidosis/messages

> >

> > Members Database:-

> > Listings of locations, phone numbers, and instant messengers.

> > http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

> >

[Guest guest]

Thanks--and all the best, . I am surprised to find another neurosarc here in Niagara; hope your treatment goes well.

> To: Neurosarcoidosis > Date: Sat, 28 May 2011 17:38:36 +0000> Subject: Re: Update (of sorts) re: Optic Neuritis> > Thanks (and all in this community) for the response(s).> It was actually my GP who had referred me to a Neurologist here in StCatharines - she is the Dr who is sending me off for aVisual Evoked Potential ( terminology ?) test . I had visited our 'Urgent Care clinic' here (on Ontario St, StKitts) - an Opthalmologist had 'strong;y' recommended I go to Hamilton General Hosp b'cause they have Neuro on-call there - but the Neurologits who had originally treated me in Toronto had replied to him I should be treated locally (in Niagara) before I be 'shipped off' to Toronto. This Neurologisthere in StKitts is acquainted w\ my Toronto Neuro, and she seems quite familiar aith Sarcoid, so I beleive I am in good hands. If this StCatharines Neurologist believes she needs to refer me to Toronto (or hamilton) for treatment, she wll decide that (with no disrespect to the Opthalmologist here). Again, Thanks much to all respoonders> I do hope you are managing well ...> > > >> > > > ; good news on the "static" MRI results--when I hear the no new lesions, and even sterady as she goes for existing lesions then I am ready to jump for joy; hope you are too, but be careful, if you aren't seeing well > > Regarding your question, I a certain I've had this test, along with a couple of other "back of eye" exams done at the eye clinic of St. ph Hospital in Stoney Creek, ON. My journey with neurosarc started with eye problems (first opthamologist locally treated me for infection for nearly two weeks before I begged my husband to take me somewhere else when the pain--could not move/turn my head, and light sensitivity got so bad I wanted to die -- and no other Drs here [emerg or specialists] would "interfere' with first Dr's treatment; I thank God now that I left Niagara and got into the Hamilton/McMaster treatment system).> > Anyhow, the evoked potential testing searches for nerve pathways, and helps in diagnosis and treatment. I continue to have lesions on my optic nerve, and also trigemenal (?) nerve, and ongoing visual problemsl although the blurred vision, my neuro-opthamologist says, are primarily associated with the long-term prednisone use. But because I continue to have active inflammation in both eyes, despite recent MRI that showed no changes in brain/optic nerve lesions, I am still on pred eye drops (up to 4x daily) so the pred load continues as a double-edged sword. But the drops help; I know "it's time" because vision blurs even more than usual, and pain begins ... but, despite blurriness, the actual vision (eye glass prescription) hasn't changed except for the "usual" associated with age . .. this disease, even with the optic neuritis symptoms, is so srange.> > Anyhow, do hope your team can come up with some results and strategies/treatment for you. Good luck, fellow Canuk!> > in Niagara> > > > > To: Neurosarcoidosis > > > > > Date: Wed, 25 May 2011 03:35:18 +0000> > > Subject: Update (of sorts) re: Optic Neuritis> > > > > > Just a question...> > > ...has anyone had a 'Visual Evoked Potential Test' ?> > > I had an MRI one week ago, and have seen my Neurologust just this morning. The MRi did not show any changes (no ne lesions - no changes in existing lesions) - it does show some inhlammation of the optic nerve. My neurologist has arranged a Visual Evoked Potential Test for next week, so I;m goping she ( the brain-Dr) can come up with some better ideas to share with me. I do seem to be able to see a bit clearer now, but...> > > ...I still feel frustrated not being able to see with noth eyes (" oh darn - thats where that wall is !! )> > > hope everyone is managinf,> > > and hope all my fellow Canadjuns enjoyed the day long weekend> > > ms> > > > > > > > > > > > ------------------------------------> > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > > The Neurosarcoidosis Community> > > > > > > > > > > > Message Archives:-> > > http://groups.yahoo.com/group/Neurosarcoidosis/messages> > > > > > Members Database:-> > > Listings of locations, phone numbers, and instant messengers.> > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > > >