Re: weight & exercise [2 Attachments]

[Guest guest]

> , I think that with the cultural emphasis on appearance & weight, we are

so programmed that it's very difficult to accept the weight gain, hair loss,

etc.

EXACTLY. Not just our families, but society at large makes it so hard to deal

with. I remember that Osbourne (Ozzy Osbourne's daughter) said that she

suffered more (socially) from from being overweight than she did from being a

drug addict!

> There is a wonderful little book called " When You Eat at the Refrigerator,

Pull Up a Chair: 50 Ways to Feel Thin, Gorgeous, and Happy (When You Feel

Anything But). " The author is Geneen Roth. It's small enough to carry around

in your purse & has about 50 little stories/chapters about eating & body image.

I've probably given away a dozen of them as gifts.

Thanks, I'll definitely check that out! I have the book " If Not Dieting, Then

What? " by the wonderful Aussie doctor Dr RIck Kausman (who even replies

personally to my emails!). But we're really behind the 8 ball when we have

trouble exercising, and the drugs actually make us put weight on!

At least my doctors have *all* said not to worry about the weight, I've got

enough to contend with without worrying about that as well, and it obviously

isn't on their radar as anything dreadful enough to have to do anything urgent

about ... it's really just me panicking about it all.

> It's not only humorous, but so insightful. She is also the author of When

Food is Love (I think that's the title), which has been very helpful to me. One

thing she said that stuck with me was in reference to our mealtime behavior &

the effects of tension, criticism, etc. during meals. She said that we swallow

our emotions along with our food & that's one thing that can lead to emotional

eating.

Yes, Dr Kausman talks about emotional eating too.

> I thought back to my childhood & it clicked. Mealtime was a stressful event

because of my dad's actions, rather than a relaxing way to connect with each

other. You can get the Refrigerator book on Amazon for just a few bucks; if you

order it, go ahead & get 2 or 3, because you'll want to share with others!

Sounds like good advice!

> Regarding exercise, I can't walk much due to the neuropathy in my feet & my

chronic back/leg pain. I go to the pool, but my favorite exercise is my

recumbent trike. I absolutely love riding it! Because my feet are not

dependent, they don't hurt. Nothing hurts, and it's just great fun. Also an

attention-getter. People stop their cars & ask me about it. The neighborhood

kids all like to ride it. Here are a couple of photos of my trike.

Oh, it looks like great fun! There's a guy in my suburb who rides one, too. I'd

feel nervous riding on the road (like he does) so low down ... but I guess if

you stick to the pathways, it wouldn't be dangerous.

> My dogs love to go triking! I really don't get much exercise when I take the

dogs because they pretty much pull me, at least the first mile.

Moosh moosh!

> So I usually take them for a run, then bring them home & ride up to the high

school & around the neighborhood. I can go 4-5 miles without getting too tired.

When I bought my trike, I think 4-5 years ago, I paid over $1200, but the price

has really come down as they've become more popular. Mine has one wheel in the

back & two in the front. You can also get them with the one wheel in the front;

those sit a bit higher & are easier to get up from. Sometimes I do have a

little trouble getting up, but it hasn't been a real issue. You might check it

out; I'll bet if you rode one at a bike shop you would be hooked! I even ride

in the winter, unless the streets are too icy. I don't ride it on busy streets

for fear drivers won't see me, even with my tall flags, but there are plenty of

places nearby. I've also taken it to parks; I have a bike carrier that's easy

to attach to my trunk.

I'll see if I can find a local bike shop to give one a try, thanks so much for

the suggestion.

xo

>

>

>

> Ramblin' Rose

> Moderator

>

> " I child-proofed my home and they STILL get in! " (Bumper sticker)

>

>

>

>

> > To: Neurosarcoidosis

> > From: denise@...

> > Date: Fri, 25 Mar 2011 09:31:23 +1100

> > Subject: Re: Re: Hair

> >

> > Here's to feeling sassy!! Unfortunately my hair was thin and fine to start

with, so this extra 'hit' from the meds isn't helping matters ... my hairdresser

recommended some 'leave in' conditioners, which I'm starting using today. Plus I

got some fancy pants colouring conditioner (Revlon Professional Nutri Colour

Creme) - if nothing else, it's a nice treat, LOL.

> >

> > And I've been agreeing with every recent comment about weight gain UGH. I've

put on about 12 kg (roughly 26 lb) since Oct last year, and I *wasn't* slender

to start with. I feel so horrible, I hate the way my face and neck look now,

especially. I just don't seem to be able to get over the mental hurdle involved

.... yes, I'm thrilled that the Pred gave me back my vision (well, almost all of

it), but I just can't handle the side effects, and how I look now.

> >

> > I've struggled to be happy with my body / appearance since I was a kid, got

a fair bit of criticism from my parents about my weight, snide comments etc, and

I've always been a curvy girl.

> > But now I wish I could get back to my 'curvy' size, and I'd be happy with

that - I guess it's all relative isn't it! I keep telling myself that my friends

and family don't care what I look like, and it's my personality that counts, but

my emotional reaction to the way I look is still stronger ... I'm starting to

think I should see a counsellor or something :/ Really quite depressed by it

all.

> >

> > I eat a pretty good diet, homecooked meals most nights, plenty of fruit and

veg, fairly low fat, etc etc. And my husband and I have started going for a swim

once a week - I can't walk for exercise any more because my feet hurt too much.

> >

> > xo

> >

> >

> >

> >

> >

> >

> > >

> > > ,

> > >

> > > I have very thick hair and it did dry out and break off. When I did iv

> > > cytoxan it really broke off. It was very long and I went to the hair

> > > dresser and had it cut off into a pixie. I decided I wanted to be sassy

> > > instead of watching it break off. I recently decided to do it again -

> > > not because of meds but because I needed a lift and wanted to feel sassy

> > > again!

> > >

> > > HTH - Terri G.

> > >

> > >

> > > >

> > > > Has anyone else got really dry hair when on immune suppressants? My

> > > hair is just horrible at the moment, and thinning ... I hope I don't go

> > > bald!! Eeeeeek! (I've been on Methotrexate, and have now swapped over to

> > > Imuran).

> > > >

> > > > xo

> > > >

> > >

> > >

> >

> >

> >

> > ------------------------------------

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Neurosarcoidosis Community

> >

> >

> >

> > Message Archives:-

> > http://groups.yahoo.com/group/Neurosarcoidosis/messages

> >

> > Members Database:-

> > Listings of locations, phone numbers, and instant messengers.

> > http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

> >

[Guest guest]

Book ordered (2 copies)

xo D

> [Attachment(s) from Rose included below]

> , I think that with the cultural emphasis on appearance & weight, we are

so programmed that it's very difficult to accept the weight gain, hair loss,

etc. There is a wonderful little book called " When You Eat at the Refrigerator,

Pull Up a Chair: 50 Ways to Feel Thin, Gorgeous, and Happy (When You Feel

Anything But). " The author is Geneen Roth. It's small enough to carry around

in your purse & has about 50 little stories/chapters about eating & body image.

I've probably given away a dozen of them as gifts. It's not only humorous, but

so insightful. She is also the author of When Food is Love (I think that's the

title), which has been very helpful to me. One thing she said that stuck with

me was in reference to our mealtime behavior & the effects of tension,

criticism, etc. during meals. She said that we swallow our emotions along with

our food & that's one thing that can lead to emotional eating. I thought back

to my childhood & it clicked. Mealtime was a stressful event because of my

dad's actions, rather than a relaxing way to connect with each other. You can

get the Refrigerator book on Amazon for just a few bucks; if you order it, go

ahead & get 2 or 3, because you'll want to share with others!

>

> Regarding exercise, I can't walk much due to the neuropathy in my feet & my

chronic back/leg pain. I go to the pool, but my favorite exercise is my

recumbent trike. I absolutely love riding it! Because my feet are not

dependent, they don't hurt. Nothing hurts, and it's just great fun. Also an

attention-getter. People stop their cars & ask me about it. The neighborhood

kids all like to ride it. Here are a couple of photos of my trike. My dogs

love to go triking! I really don't get much exercise when I take the dogs

because they pretty much pull me, at least the first mile. So I usually take

them for a run, then bring them home & ride up to the high school & around the

neighborhood. I can go 4-5 miles without getting too tired. When I bought my

trike, I think 4-5 years ago, I paid over $1200, but the price has really come

down as they've become more popular. Mine has one wheel in the back & two in

the front. You can also get them with the one wheel in the front; those sit a

bit higher & are easier to get up from. Sometimes I do have a little trouble

getting up, but it hasn't been a real issue. You might check it out; I'll bet

if you rode one at a bike shop you would be hooked! I even ride in the winter,

unless the streets are too icy. I don't ride it on busy streets for fear

drivers won't see me, even with my tall flags, but there are plenty of places

nearby. I've also taken it to parks; I have a bike carrier that's easy to

attach to my trunk.

>

>

>

> Ramblin' Rose

> Moderator

>

> " I child-proofed my home and they STILL get in! " (Bumper sticker)

>

>

>

>

> > To: Neurosarcoidosis

> > From: denise@...

> > Date: Fri, 25 Mar 2011 09:31:23 +1100

> > Subject: Re: Re: Hair

> >

> > Here's to feeling sassy!! Unfortunately my hair was thin and fine to start

with, so this extra 'hit' from the meds isn't helping matters ... my hairdresser

recommended some 'leave in' conditioners, which I'm starting using today. Plus I

got some fancy pants colouring conditioner (Revlon Professional Nutri Colour

Creme) - if nothing else, it's a nice treat, LOL.

> >

> > And I've been agreeing with every recent comment about weight gain UGH. I've

put on about 12 kg (roughly 26 lb) since Oct last year, and I *wasn't* slender

to start with. I feel so horrible, I hate the way my face and neck look now,

especially. I just don't seem to be able to get over the mental hurdle involved

.... yes, I'm thrilled that the Pred gave me back my vision (well, almost all of

it), but I just can't handle the side effects, and how I look now.

> >

> > I've struggled to be happy with my body / appearance since I was a kid, got

a fair bit of criticism from my parents about my weight, snide comments etc, and

I've always been a curvy girl.

> > But now I wish I could get back to my 'curvy' size, and I'd be happy with

that - I guess it's all relative isn't it! I keep telling myself that my friends

and family don't care what I look like, and it's my personality that counts, but

my emotional reaction to the way I look is still stronger ... I'm starting to

think I should see a counsellor or something :/ Really quite depressed by it

all.

> >

> > I eat a pretty good diet, homecooked meals most nights, plenty of fruit and

veg, fairly low fat, etc etc. And my husband and I have started going for a swim

once a week - I can't walk for exercise any more because my feet hurt too much.

> >

> > xo

> >

> >

> >

> >

> >

> >

> > >

> > > ,

> > >

> > > I have very thick hair and it did dry out and break off. When I did iv

> > > cytoxan it really broke off. It was very long and I went to the hair

> > > dresser and had it cut off into a pixie. I decided I wanted to be sassy

> > > instead of watching it break off. I recently decided to do it again -

> > > not because of meds but because I needed a lift and wanted to feel sassy

> > > again!

> > >

> > > HTH - Terri G.

> > >

> > >

> > > >

> > > > Has anyone else got really dry hair when on immune suppressants? My

> > > hair is just horrible at the moment, and thinning ... I hope I don't go

> > > bald!! Eeeeeek! (I've been on Methotrexate, and have now swapped over to

> > > Imuran).

> > > >

> > > > xo

> > > >

> > >

> > >

> >

> >

> >

> > ------------------------------------

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Neurosarcoidosis Community

> >

> >

> >

> > Message Archives:-

> > http://groups.yahoo.com/group/Neurosarcoidosis/messages

> >

> > Members Database:-

> > Listings of locations, phone numbers, and instant messengers.

> > http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

> >