Re: Should we even bother?

[Guest guest]

There are quite a few parents on here that treated after the year mark and had good results. As for if it's worth it, that's up to you. Were I in your shoes I'd go a head with it after fighting so long to get it. It can only help and if I had any question I would go a head instead of regretting not doing it down the road.

Mom to Elaine & Amelia 4 1/2 mos Elly one week in her Danmar Cranial Shaping Helmet

On Mon, Oct 13, 2008 at 3:29 PM, <shannonwind@...> wrote:

One of my twins, Austin, was diagnosed with plagio and tort in May 2008. After 3 denials, I finally got the approval from my insurance companyat the beginning of September. (I was going to pay out of pocket, but he met all of the criteria and they told me (wrongly, I found out, after the fact) that they wouldn't pay for it at all if they didn't approve it first, since there were no helmet places in network--which there were)

We had an appointment with Hanger on September 15, but because of Hurricane Ike, it was rescheduled until September 26th, which we went to. The helmet was supposed to be ready Friday (10/10), but I hadn't received a call, so I called them. Apparently, the scan didn't take and they have to redo it. They said this was a possibility and would call me if it were the case, but they never did. I gave them 3 numbers I could be contacted at. I am so angry, ya'll can't even imagine. It's just one thing after another. I'm beginning to think this is God's way of telling me he shouldn't get it!

So, should we even bother at this point? He'll be one next Monday (10/20). Will it even do any good now? Any thoughts or experiences are appriciated. We're supposed to get the re-scan done Wednesday. His assyms in May were 17mm for his cranial vault and 12mm for his skull base. Here's a couple of pics that I sent to my insurance company.

Thanks in advance.

R.

http://img.photobucket.com/albums/v147/shannonrodriguez/148.jpg

http://img.photobucket.com/albums/v147/shannonrodriguez/142.jpg

Here's one from the front. (He's on the right)

http://img.photobucket.com/albums/v147/shannonrodriguez/132.jpg

[Guest guest]

The headshape doesn't look all that bad. But there could be some mild asymmetry in the eyes that may become more apparent when he is older. Sounds like Hanger gets an "F" on service and professionalism. If this is any indication on the competency of the staff I would go somewhere else. I would not forgo treatment all together, What about Starband, or CT? Also look into seeing an Osteopath, you may be able to resolve it at that level. From: <shannonwind@...>Subject: Should we even bother?Plagiocephaly Date: Monday, October 13, 2008, 12:29 PM

One of my twins, Austin, was diagnosed with plagio and tort in May 2008. After 3 denials, I finally got the approval from my insurance companyat the beginning of September. (I was going to pay out of pocket, but he met all of the criteria and they told me (wrongly, I found out, after the fact) that they wouldn't pay for it at all if they didn't approve it first, since there were no helmet places in network--which there were)

We had an appointment with Hanger on September 15, but because of Hurricane Ike, it was rescheduled until September 26th, which we went to. The helmet was supposed to be ready Friday (10/10), but I hadn't received a call, so I called them. Apparently, the scan didn't take and they have to redo it. They said this was a possibility and would call me if it were the case, but they never did. I gave them 3 numbers I could be contacted at. I am so angry, ya'll can't even imagine. It's just one thing after another. I'm beginning to think this is God's way of telling me he shouldn't get it!

So, should we even bother at this point? He'll be one next Monday (10/20). Will it even do any good now? Any thoughts or experiences are appriciated. We're supposed to get the re-scan done Wednesday. His assyms in May were 17mm for his cranial vault and 12mm for his skull base. Here's a couple of pics that I sent to my insurance company.

Thanks in advance.

R.

http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/148. jpg

http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/142. jpg

Here's one from the front. (He's on the right)

http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/132. jpg

[Guest guest]

Yes, get the helmet. In most cases a childs skull bones do not fuse completely until they are 18 months old. It is worth a try, just think of your son.

Candy

From: <shannonwind@...>Subject: Should we even bother?Plagiocephaly Date: Monday, October 13, 2008, 2:29 PM

One of my twins, Austin, was diagnosed with plagio and tort in May 2008. After 3 denials, I finally got the approval from my insurance companyat the beginning of September. (I was going to pay out of pocket, but he met all of the criteria and they told me (wrongly, I found out, after the fact) that they wouldn't pay for it at all if they didn't approve it first, since there were no helmet places in network--which there were)

We had an appointment with Hanger on September 15, but because of Hurricane Ike, it was rescheduled until September 26th, which we went to. The helmet was supposed to be ready Friday (10/10), but I hadn't received a call, so I called them. Apparently, the scan didn't take and they have to redo it. They said this was a possibility and would call me if it were the case, but they never did. I gave them 3 numbers I could be contacted at. I am so angry, ya'll can't even imagine. It's just one thing after another. I'm beginning to think this is God's way of telling me he shouldn't get it!

So, should we even bother at this point? He'll be one next Monday (10/20). Will it even do any good now? Any thoughts or experiences are appriciated. We're supposed to get the re-scan done Wednesday. His assyms in May were 17mm for his cranial vault and 12mm for his skull base. Here's a couple of pics that I sent to my insurance company.

Thanks in advance.

R.

http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/148. jpg

http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/142. jpg

Here's one from the front. (He's on the right)

http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/132. jpg

[Guest guest]

Just to clarify one thing, the sutures of the skull do not FULLY

fuse until our late teens, early 20s. They only BEGIN to fuse after

1 year old, which can slow down progress. I will always say it's

worth trying to band well before you get to the " what do we do now "

stage. I think it's worth moving forward, although it definitely

stinks that they didn't alert you to the bad scan sooner. I think

you're the second person that I've heard that happen to. If you're

not happy with Hanger and can go somewhere else, I might consider

that. But I do think banding would be beneficial. Good luck! Please

keep us posted!

Jake-2 (DOCBand Grad 9/19/08)

Jordan-4.5

>

> From: <shannonwind@...>

> Subject: Should we even bother?

> Plagiocephaly

> Date: Monday, October 13, 2008, 2:29 PM

>

>

>

>

>

>

>

> One of my twins, Austin, was diagnosed with plagio and tort in May

2008.  After 3 denials, I finally got the approval from my insurance

companyat the beginning of September.  (I was going to pay out of

pocket, but he met all of the criteria and they told me (wrongly, I

found out, after the fact) that they wouldn't pay for it at all if

they didn't approve it first, since there were no helmet places in

network--which there were)

> We had an appointment with Hanger on September 15, but because of

Hurricane Ike, it was rescheduled until September 26th, which we

went to.  The helmet was supposed to be ready Friday (10/10), but I

hadn't received a call, so I called them.  Apparently, the scan

didn't take and they have to redo it.  They said this was a

possibility and would call me if it were the case, but they never

did.  I gave them 3 numbers I could be contacted at.  I am so angry,

ya'll can't even imagine.  It's just one thing after another.  I'm

beginning to think this is God's way of telling me he shouldn't get

it!

> So, should we even bother at this point?  He'll be one next Monday

(10/20).  Will it even do any good now?  Any thoughts or experiences

are appriciated.  We're supposed to get the re-scan done Wednesday. 

His assyms in May were 17mm for his cranial vault and 12mm for his

skull base.  Here's a couple of pics that I sent to my insurance

company.

> Thanks in advance.

> R.

> http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/148. jpg

> http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/142. jpg

> Here's one from the front. (He's on the right)

> http://img.photobuc ket.com/albums/ v147/shannonrodr iguez/132. jpg

>

[Guest guest]

I would say - yes, you should... but can you go to a different facility? Is there a DOC provider nearby?

I'd be concerned about the care you will recieve if they don't even call to do a 2nd scan.

Jen and Luli - almost 3 years old

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

Should we even bother?

One of my twins, Austin, was diagnosed with plagio and tort in May 2008. After 3 denials, I finally got the approval from my insurance companyat the beginning of September. (I was going to pay out of pocket, but he met all of the criteria and they told me (wrongly, I found out, after the fact) that they wouldn't pay for it at all if they didn't approve it first, since there were no helmet places in network--which there were)

We had an appointment with Hanger on September 15, but because of Hurricane Ike, it was rescheduled until September 26th, which we went to. The helmet was supposed to be ready Friday (10/10), but I hadn't received a call, so I called them. Apparently, the scan didn't take and they have to redo it. They said this was a possibility and would call me if it were the case, but they never did. I gave them 3 numbers I could be contacted at. I am so angry, ya'll can't even imagine. It's just one thing after another. I'm beginning to think this is God's way of telling me he shouldn't get it!

So, should we even bother at this point? He'll be one next Monday (10/20). Will it even do any good now? Any thoughts or experiences are appriciated. We're supposed to get the re-scan done Wednesday. His assyms in May were 17mm for his cranial vault and 12mm for his skull base. Here's a couple of pics that I sent to my insurance company.

Thanks in advance.

R.

http://img.photobucket.com/albums/v147/shannonrodriguez/148.jpg

http://img.photobucket.com/albums/v147/shannonrodriguez/142.jpg

Here's one from the front. (He's on the right)

http://img.photobucket.com/albums/v147/shannonrodriguez/132.jpg

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