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Tammy,

I also have a 7 year old HFA/AS son. I think the person who coined this

" mild " never had one of these children to live with :)

For focus, I think you need to look at enzymes (www.houstonni.com) as well as

other nutritional avenues. Perhaps look at information about healing the gut

(Lipski books). Read Enzymes for Autism and other Neurological Conditions, by

DeFelice. Also, read other stuff like Right Brained Child in a Left

Brained World by Freed. I lent out my book about DHA to a friend and

cannot recall the name right now, but DHA supplementation can help with focus.

My

current experience is that these kids have a lot of ADD characteristics. I am

not one for traditional meds so I have no experience with things like Stratera

and Ritalin. I just keep re-focusing which admittedly is a bit aggravating at

times. My son is ultra distractible yet he is managing to do fairly well at

school--I know he will not be an " A " student and that's fine. I am so proud of

how hard he tries. Along with the AS, he has learning disabilities, CAPD,

visual processing issues. He is fully mainstreamed and doing well. (On average B

work). I know as things get more abstract, we may need to look at doing things

differently. Right now he is in first grade.

As you start this nutritional/biomed journey, remember it will take time to

absorb the information...start slowly. Good luck. This is an awesome board with

great support.

Robin K.

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Hi Tammy,

I just joined not to long ago as well, my daughter 15 years old was told she has

Neuroimmune Dysfunction, which is basically

Adult Autism(ASD). She had the hepatitis B vaccine in grade 7 and i'm

wondering???? She was a normal girl before then.

We have been struggling with her behaviours for 8-10 months now. I have been

getting the run around with gp, neuro pediatitrician and adolescent

physchiatrist that they say she has Teenage Physchosis and was given the only

course to go anti-physchotics, no diet no vitamins and no reason WHY she had

these symptoms. With my research i was not impressed with those meds and have

refused them so far, this is not nice cause you then have the school staff on

your ass for not using them as well as the CAS and anybody else they can get

involved to push you on these dam drugs. I've been doing alot of digging around

to get answers. The best thing that has ever happened was finding a Biological

Medical Doctor, last week and he spent 2 1/2 hours with my daughter and i(where

do you ever get a doctor these days to spend that much time with you)-so i was

needless to say EXTREMELY IMPRESSED. He asked me you want to know why right,

and i said yes, he said well that is what i am here for is to find out why too,

he said i came to the right place. He thought she showed signs of Adult Autism,

as he deals with alot of autism children and has made their life so much more

easier with his regime and he said he has reversed some alzheimers patients. He

is consulting a Dr. in Cal. and another Dr. in Fl. regarding my daughters case,

we live in Ontario, Canada. To make this shorter, he said she has a Brain

Allergy to Milk and Dairy products so we stopped that completely-BIG, BIG

improvement. He hasn't stopped the wheat yet, we will see what her symptoms lie

now being on wheat and no dairy's. Secondly he deals with orthomolecular

medicine(which is vitamins),

which i had her on but he fine tuned, added, and deleted some from her vitamin

plan and an hour after the first dosage i saw wonderful results for the good

too. She has been on this regime now for a week and she is now writing like

herself again, very neat and understandable, to her age and her old self,

previous to that she was writing like a sloppy, sloppy writer maybe like

somebody in grade 5-it was like not her writing ever ever, she has also gone

from School Academically passing and getting her credits to Locally developed

and even failing in that, the school said they have no stradgeties to help her

learn. She totally misperceived everything and that has really subsided

drastically, impressed again. Haven't seen a great deal of improvement in school

work as they are now out for exams. They are going to let her try an English

Exam hopefully she has gotten better to get a passing mark, but i am not sure if

she has gain her academic thinking their. I'm hoping. We having done any

chelating, but we go back in 3 weeks, with this on my list to ask about.

n

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We having done any chelating, but we go back in 3 weeks, with this on my list

to ask about.

....................Correction, " we haven't done " any chelating. But i will ask

about this. The hepatitis B shot was given in grade 7 and she showed these

symptoms 1 1/2 years later, is this possible for the vaccine to come to affect

this long afterwards???? Any insight on this guys. Thanks

n

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hep b is known for daamging the pancreas and causing blood sugar

issues

i guess digestive enzymes might be affected as well which could take

a while to create neural malnutrtion so yes and year and a half delay

could well be on the cards.

chromium gtf and iodine/microdose lithium might help.

the best doctors are only 40% so you have to be careful to fill in

the other 60% . bad doctors are minus several thousand percent.

if she responded to dairy then she has leaky gut and all the yeast

stuff.............in short the usual issues of this board.

stools ahve to be looked at i am afroad to get a fel for these issues.

it is important to get to a point where diary is tolerated again for

the nutrtional input it provides.

> We having done any chelating, but we go back in 3 weeks, with this

on my list to ask about.

>

> ...................Correction, " we haven't done " any chelating.

But i will ask about this. The hepatitis B shot was given in grade 7

and she showed these symptoms 1 1/2 years later, is this possible for

the vaccine to come to affect this long afterwards???? Any insight

on this guys. Thanks

>

> n

>

>

>

>

>

>

>

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what would support the pancreas? I guess enzymes? If this is the case

is their

specific enzymes to support the leaky gut, pancreas and blood sugar. Or one

will do all?

n

hep b is known for daamging the pancreas and causing blood sugar

issues

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lack of focus caa be a brain blood sugar issue which would indicate a

shortfall of a range of minerals(malabsorbtion) and some heavy metal

burden. chromium gft may help, but the whole mineralisation needs

looking at so a hair test would be a good idea.

www.houstonni.com enzymes help predigest the food in the stomach so

that no undenatured food molecules get across a leaky gut to cause

allergies or possibly create opiate issues.

parents by and large seem to make better progress without doctors.

> Hi, my name is Tammy. My son has Aspergers' Syndrome. He is seven

> yrs. old. The psychologist told us that he only has a small form

of

> AS. But, I homeshool him and I see it more then just a small

form.

> It's soooo difficult to get him to focus. I'm hoping you can give

> me more information on Enzymes for AS. I have no idea what they

are

> or do. I just heard about them through the

> group " HomeschoolingAspies " . Currently, I have our son on GF/CF

> diet. But it's only been one week of faithful, no cheating diet.

> Before this week, I was letting him eat whatever on the weekends,

> but found out that the diet is all or nothing. I also found out

> that there is supposedly long-term damage on the diet. So now, I'm

> scared and don't know where to turn. How do I find a doctor who

> will work with me on enzymes or just anything with AS diet?

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i guess digestive enzymes might be affected as well which could take

a while to create neural malnutrtion so yes and year and a half delay

could well be on the cards.

...............Yes i wouldn't doubt it, she dropped alot of weight and her

look on her face looked malnutrition and very sad, gives a phony smile, not like

her beautiful natural smile. But i have seen a beautiful natural smile come

back yesterday, havent' seen this in along, long time.

Her whole brain, was confused, disorganized, short term memory loss, no

concentration, forgetfullness, loose things, can't remember, misprecervied,

thinking thoughts in appropriate, inappropriate laughing and giggling, can read

but not comphrend what she was reading, and would barely push down pressure to

hold her pen and write. Would brush her teeth but barely touch them and would

only brush the front two and pretended she was brushing the rest but wasn't.

Brush the ends/tips of her hair and said she brushed her hair where she has long

hair and would previously brush her whole head of hair. She would cry when

people laughed at things that were funny and she would sneer when things on tv

would cry or laugh. Then sometimes she would laugh when people cried on TV. She

was in complete opposite of doing and thinking thoughts. You asked her a

question and she would give you an answer that was completely unrelated.

n

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I'm East Toronto too, Eastern Ontario, near Napanee. Where do you live?

Phone me 613-379-5340. Where do you get your Peptizide enzymes, any place close

to me and you.

n

Re: Just joined

we live in Ontario, Canada

Where in Ontario do you live?

I am east of Toronto.

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In a message dated 1/24/04 9:27:08 AM, alevin@... writes:

<< if she responded to dairy then she has leaky gut and all the yeast

stuff >>

,

Do you think dairy intolerance is always because of leaky gut? I have a lot

of friends with kids who can't have dairy, they're NT as far as anyone knows.

Nell

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  • 5 years later...

I am so happy to see this group. My baby, Mila is 10 weeks old and has

positional plagiocephaly with flattening on her left side. She has a tendency to

turn her head slightly to her left since birth. I noticed her positional

preference shortly after she was born and mentioned it to the doctor but she

didn't think it was significant and did not detect evidence of torticolis. I

then noticed the flattening when she was 6 weeks old and went back to the

pediatrician who referred us to a physical therapist at that time. The physical

therapist confirmed that Mila does NOT have torticollis and recommended a head

scan (we are waiting for this now).

I have been trying repositioning techniques, but Mila is very stubborn in her

preference to turn her head just slightly off center to the left. I have been

using the Infant Headbed for use in her car seat and bouncy seat to take the

pressure off. She inchworms herself all over the crib while she sleeps at night

(despite being swaddled) so it is hard to position her at all at that time.

I wonder if it makes sense to switch gears at this point and take Mila to one of

the specialists that are on the specialist list on this group site (we live in

MI). I also wonder that the next steps are. Do they wait until the child is

older to perscribe helmet or band therapy? Since Mila is so young, is there

anything they will or should do this early?

Thank you so much for your assistance!!

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Hi ,

That is interesting you mention the swaddling.  Both our boys were

horrible sleepers and we swaddled them extremely late.  After was

diagnosed, we wondered if that contributed to the plagio. 

Kathy, mom to , 15 months 

wrote:

 

That is about the same age that i noticed my daughter's flat head.

At that time, it was the right side.

 

At this age, repositioning is probably your best bet. Most helmet

places won't band younger than 3 to 4 months. One thing I did that i

believe restricted my daughter's ability to move her head in the crib

was the swaddling. Because she had reflux and milk allergy, she didn't

sleep well and swaddling helped so I swaddled her until she was 7

months old. I now believe that this prevented her from naturally moving

her head while sleeping. you might want to try not swaddling to see if

it helps the head position during sleep.

 

Here are some links on repositioning tips. I wish that someone had

given me these when my daughter was this young. Maybe we could have

avoided ever needing treatment.

 

http://www.cranialtech.com/images/stories/Files/positioningprotocol.pdf

 

http://www.minti.com/parenting-advice/8164/Repositioning-Therapy-to-Correct-Flat-Head-or-Plagiocephaly/

 

http://www.starcranialcenter.com/pdf/reposition_guide_dallas.pdf

 

Hope this helps.

 

, mom to , 2 years

STARband grad may 2009

land

       

 

Just Joined

 

I am so happy to see this group. My baby, Mila is 10 weeks old and

has positional plagiocephaly with flattening on her left side. She has

a tendency to turn her head slightly to her left since birth. I noticed

her positional preference shortly after she was born and mentioned it

to the doctor but she didn't think it was significant and did not

detect evidence of torticolis. I then noticed the flattening when she

was 6 weeks old and went back to the pediatrician who referred us to a

physical therapist at that time. The physical therapist confirmed that

Mila does NOT have torticollis and recommended a head scan (we are

waiting for this now).

I have been trying repositioning techniques, but Mila is very stubborn

in her preference to turn her head just slightly off center to the

left. I have been using the Infant Headbed for use in her car seat and

bouncy seat to take the pressure off. She inchworms herself all over

the crib while she sleeps at night (despite being swaddled) so it is

hard to position her at all at that time.

I wonder if it makes sense to switch gears at this point and take Mila

to one of the specialists that are on the specialist list on this group

site (we live in MI). I also wonder that the next steps are. Do they

wait until the child is older to perscribe helmet or band therapy?

Since Mila is so young, is there anything they will or should do this

early?

Thank you so much for your assistance!!

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We, too, swaddled our little girl. It was the only way she would sleep through

the night when she was little. She was swaddled from about 6 weeks to 4 months,

and I, too, am convinced that contributed to her moderate to severe

plagiocephaly. Once swaddled, she would sleep soundly through the night with no

awakenings. (Great at the time, but now I know better).

Jocelyn

ton, IL

Mom to Cora, 10 months, DOC Band since 6/25/09

> >

> >

> > That is about the same age that i noticed my daughter's flat head. At

> > that time, it was the right side.

> >

> >

> >

> > At this age, repositioning is probably your best bet. Most helmet

> > places won't band younger than 3 to 4 months. One thing I did that i

> > believe restricted my daughter's ability to move her head in the crib

> > was the swaddling. Because she had reflux and milk allergy, she didn't

> > sleep well and swaddling helped so I swaddled her until she was 7

> > months old. I now believe that this prevented her from naturally

> > moving her head while sleeping. you might want to try not swaddling to

> > see if it helps the head position during sleep.

> >

> >

> >

> > Here are some links on repositioning tips. I wish that someone had

> > given me these when my daughter was this young. Maybe we could have

> > avoided ever needing treatment.

> >

> >

> >

> > http://www.cranialtech.com/images/stories/Files/positioningprotocol.pdf

> > <http://www.cranialtech.com/images/stories/Files/positioningprotocol.pdf>

> >

> >

> >

> >

http://www.minti.com/parenting-advice/8164/Repositioning-Therapy-to-Correct-Flat\

-Head-or-Plagiocephaly/

> >

<http://www.minti.com/parenting-advice/8164/Repositioning-Therapy-to-Correct-Fla\

t-Head-or-Plagiocephaly/>

> >

> >

> >

> > http://www.starcranialcenter.com/pdf/reposition_guide_dallas.pdf

> > <http://www.starcranialcenter.com/pdf/reposition_guide_dallas.pdf>

> >

> >

> >

> >

> > Hope this helps.

> >

> >

> >

> > , mom to , 2 years

> >

> > STARband grad may 2009

> >

> > land

> >

> > Ticker id: IvP3

> > <http://sz0141.wc.mail.comcast.net/zimbra/public/blank.html#> Ticker

> > id: yZZP

> > <http://sz0141.wc.mail.comcast.net/zimbra/public/blank.html#>

> > Ticker id: lFno

> > <http://sz0141.wc.mail.comcast.net/zimbra/public/blank.html#>

> >

> >

> >

> >

> >

> > Just Joined

> >

> >

> >

> > I am so happy to see this group. My baby, Mila is 10 weeks old and has

> > positional plagiocephaly with flattening on her left side. She has a

> > tendency to turn her head slightly to her left since birth. I noticed

> > her positional preference shortly after she was born and mentioned it

> > to the doctor but she didn't think it was significant and did not

> > detect evidence of torticolis. I then noticed the flattening when she

> > was 6 weeks old and went back to the pediatrician who referred us to a

> > physical therapist at that time. The physical therapist confirmed that

> > Mila does NOT have torticollis and recommended a head scan (we are

> > waiting for this now).

> >

> > I have been trying repositioning techniques, but Mila is very stubborn

> > in her preference to turn her head just slightly off center to the

> > left. I have been using the Infant Headbed for use in her car seat and

> > bouncy seat to take the pressure off. She inchworms herself all over

> > the crib while she sleeps at night (despite being swaddled) so it is

> > hard to position her at all at that time.

> >

> > I wonder if it makes sense to switch gears at this point and take Mila

> > to one of the specialists that are on the specialist list on this

> > group site (we live in MI). I also wonder that the next steps are. Do

> > they wait until the child is older to perscribe helmet or band

> > therapy? Since Mila is so young, is there anything they will or should

> > do this early?

> >

> > Thank you so much for your assistance!!

> >

> >

>

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Thanks for the messages. I hadn't thought about the swaddleing until you both

mentioned it. Mila has been swaddled for night time sleep, though since seeing

your posts I have started positioning her to sleep on her side with a sleep

wedge. Hopefully this helps! Thanks again.

> >

> >

> >

> > That is about the same age that i noticed my daughter's flat head. At that

time, it was the right side.

> >

> >

> >

> > At this age, repositioning is probably your best bet. Most helmet places

won't band younger than 3 to 4 months. One thing I did that i believe restricted

my daughter's ability to move her head in the crib was the swaddling. Because

she had reflux and milk allergy, she didn't sleep well and swaddling helped so I

swaddled her until she was 7 months old. I now believe that this prevented her

from naturally moving her head while sleeping. you might want to try not

swaddling to see if it helps the head position during sleep.

> >

> >

> >

> > Here are some links on repositioning tips. I wish that someone had given me

these when my daughter was this young. Maybe we could have avoided ever needing

treatment.

> >

> >

> >

> > http://www.cranialtech.com/images/stories/Files/positioningprotocol.pdf

> >

> >

> >

> >

http://www.minti.com/parenting-advice/8164/Repositioning-Therapy-to-Correct-Flat\

-Head-or-Plagiocephaly/

> >

> >

> >

> > http://www.starcranialcenter.com/pdf/reposition_guide_dallas.pdf

> >

> >

> >

> >

> > Hope this helps.

> >

> >

> >

> > , mom to , 2 years

> >

> > STARband grad may 2009

> >

> > land

> >

> >

> >

> >

> > Ticker id: IvP3   Ticker id: yZZP     Ticker id: lFno

> >

> >

> >

> > Just Joined

> >

> >  

> >

> >

> >

> >

> > I am so happy to see this group. My baby, Mila is 10 weeks old and has

positional plagiocephaly with flattening on her left side. She has a tendency to

turn her head slightly to her left since birth. I noticed her positional

preference shortly after she was born and mentioned it to the doctor but she

didn't think it was significant and did not detect evidence of torticolis. I

then noticed the flattening when she was 6 weeks old and went back to the

pediatrician who referred us to a physical therapist at that time. The physical

therapist confirmed that Mila does NOT have torticollis and recommended a head

scan (we are waiting for this now).

> >

> > I have been trying repositioning techniques, but Mila is very stubborn in

her preference to turn her head just slightly off center to the left. I have

been using the Infant Headbed for use in her car seat and bouncy seat to take

the pressure off. She inchworms herself all over the crib while she sleeps at

night (despite being swaddled) so it is hard to position her at all at that

time.

> >

> > I wonder if it makes sense to switch gears at this point and take Mila to

one of the specialists that are on the specialist list on this group site (we

live in MI). I also wonder that the next steps are. Do they wait until the child

is older to perscribe helmet or band therapy? Since Mila is so young, is there

anything they will or should do this early?

> >

> > Thank you so much for your assistance!!

> >

>

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  • 1 month later...

Welcome to the group.

I don't find it odd at all to teach him to talk by teaching him to read.?? My

therapist has started doing this for my son.???? She draws letters on paper with

lines between them and has him make the sounds as her finger follows along the

paper.??? She does this with letters that don't make words so he will slowly

learn to gow from left to right ot read.????? I have used it with some success

on short words like " go " when he can't seem to get the words out right.?? I

think the visual helps him.

I don't know but I really think there was a post about a child who was tongue

tied.??? I don't recall it exactly but if you don't get? aresponse from someone

with a similar problem you may want to look through other posts and see if you

can find it and email that person.

Also, my son seems enamored with the leap frog videos.?? If your son knows all

of the letters he might like " The Letter Factory " and to help him learn how to

put them together ot make words you might try the Talking Words Factory.???? My

son also enjoys those fridge magnets by leap frog with the letters and they also

make one that does the animal sounds.

Best of luck to you in your endeavors.? My son has a lot of difficulty moving

his mouths in the right way because he has dysarthia (low muscle tone of the

face).??? For us, oral motor therapy which is a type of mouth massage and

pressure has helped tremendously in making him aware of how to move his face to

do things and also in strengthening the sounds.

Sue

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Also...if it is oral motor you can look up on beckmanoralmotor.com a list of

therapists trained in oral motor.???? The difficulty I have found in referring

people to that site is that a lot of them are using their skills for stroke

patients that need to recover the ability to talk.??? Good luck.

Sue

Re: [ ] just joined

it sounds like an oral motor issue.? My son has this and we see an oral motor

specialist--we are in Atlanta, let me know if you want the name, not sure where

you are).? She has worked with him for 6 weeks and he can now do things he could

never do--sip from a straw, lick a lollypop, etc.? Its amazing.? They just need

to be taught how to use all those muscles in coordination.?

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Our oldest son (now age 30) was a late talker. Spoke few words and pronounced

terribly. He was 3 when we were concerned about him but then an adult friend

told about him not talking till age 4 and as an adult was a great orator. So we

never worried back then. And sure enough our son learned to talk and now speaks

4 languages!

A little boy I knew (years ago) spoke pretty poorly and then had that operation

on his tongue - I suppose it's what you are referring to. That was key for him.

My other point here is to say it's good you're working on teaching him to read.

I used the Glenn Doman books (How To Teach Your Baby To Read) with our special

needs son and the method worked! He was 3 when I used the method. I think for

any kid it's a good idea to teach them to read early - especially our special

needs kids. According to this method, kids memorize easily up until age 6, so

it's worth pouring in the information while they're little and have brains that

are sponges!

(ny almost 12, non-verbal)

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He was evaluated by EI in July and they said b/c he understood language and he

was a picky eater, he's probably stubborn and controlling what factors he can in

his life. She also said there wasn't much more they could do than what I was

already doing. (using baby sign, teaching him letter sounds and names, talking

to him constantly, limiting TV and electronic game time, reading to him). He's

2 1/2 so the school district won't get involved until he's 3. I'm just not sure

if it's a delay or a disorder--either way he's definitely behind in his speech.

Liralen

>

> Have you had him evaluated by your school district?  Its free and they would

be able to give him free speech therapy or anything else he might need. 

>  

>

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Yes, I understand that maybe they can think this as he is in the " terrific

twos " , but

have they considered that he is a picky eater because he has sensory

difficulties?

It's hard as a parent to distinguish between the " he's just a late talker, give

him time "

or " he's just stubborn " or some students later on who are described as " lazy " .

While he might just be controlling his environment (and they gave good advice on

what

to do for that) if it's a sensory issue regarding textures, that's best

addressed now and is

not something that your son can control.

You might want to think of taking him to a private occupational therapist and

have her

look into this issue as well as a speech path. to see if he has oral motor

difficulties.

As mothers, we have a good understanding  (usually!) of what professionals are

telling us

is just normal or if we think there is something more. 

If your " mothers instinct " is telling you that they are just blowing you off,

get a second

opinion privately and then go back to them and ask for therapy

hth

sandy

________________________________

From: liralendoncov <liralendoncov@...>

Sent: Tue, October 13, 2009 11:26:21 AM

Subject: [ ] Re: just joined

 

He was evaluated by EI in July and they said b/c he understood language and he

was a picky eater, he's probably stubborn and controlling what factors he can in

his life. She also said there wasn't much more they could do than what I was

already doing. (using baby sign, teaching him letter sounds and names, talking

to him constantly, limiting TV and electronic game time, reading to him). He's 2

1/2 so the school district won't get involved until he's 3. I'm just not sure if

it's a delay or a disorder--either way he's definitely behind in his speech.

Liralen

>

> Have you had him evaluated by your school district?  Its free and they would

be able to give him free speech therapy or anything else he might need. 

>  

>

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One thing I've often wondered is when people on these posts say " Picky Eater " if

they mean the child refuses foods or if they put the food in their mouth and

then spit them out???? I say this because before my apraxic son always was

willing to try most things but was constantly spitting everything out.?? He

didn't really make a face or anything about it.??? After a while when he

recognized it was something he'd spit out several times before he would be

unwilling to try it.

What I found after a month or two of the oral motor was that he started eating

and swallowing more and more foods.???? Now he can even swallow things like meat

and breads that he didn't seem able to do before.??? He has pretty much stopped

spitting things out now.

When I think " Picky Eater " , I think more of my older son (who is not apraxic)

who complains about food, makes faces, spits it out with obvious dislike etc....

Just something I was wondering if it's a way to maybe distinguish those with

issues due to oral motor vs. just picky eaters.

[ ] Re: just joined

?

He was evaluated by EI in July and they said b/c he understood language and he

was a picky eater, he's probably stubborn and controlling what factors he can in

his life. She also said there wasn't much more they could do than what I was

already doing. (using baby sign, teaching him letter sounds and names, talking

to him constantly, limiting TV and electronic game time, reading to him). He's 2

1/2 so the school district won't get involved until he's 3. I'm just not sure if

it's a delay or a disorder--either way he's definitely behind in his speech.

Liralen

>

> Have you had him evaluated by your school district?? Its free and they would

be able to give him free speech therapy or anything else he might need.?

> ?

>

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