Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hey, my son was borderline and enough for us to be worried about it. All my family thought it was needed but when we got it they are not so sure. To be honest, it is hard but the past few weeks have flown by. My son is 5mths and 2wks. He has adjusted ok to it. Ash, ryan 3wks in starbandSent from my BlackBerry® smartphone with SprintSpeedFrom: "desiree_scorcia" <desiree_scorcia@...>Date: Sun, 09 Nov 2008 19:19:39 -0000<Plagiocephaly >Subject: new here and not sure yet if DD needs a helmet... hello everyone! i first want to say i'm so thankful for this group! i've browsed through past messages and the files and database, and it's already answered so many of my questions. thank you! so, my younger daughter (maggie, 5.5 months old) had a moderate case of torticollis (caused by an ear to shoulder position in utero). she's been in physical therapy since she was 3 months old and has done wonderfully, the tilt is almost gone (just returns when she's tired). however, the PT said she thought her plagiocephaly was borderline and that we should see a specialist. she had some mild (i thought) flattening, but it really hasn't improved at all (maybe mildly? i SO wish i had taken pictures at 2 months old). i got a second opinion from a PT friend and he agreed, borderline. so we're going to see the pediatrician on monday for a referral to a cranio-facial specialist. i have a few questions though. has anyone here been a borderline case and not gotten a helmet? or been a borderline case and gotten one? how did you make a decision? any special questions i should ask? also, i've made the mistake of telling family, and they are all telling me that she looks fine, everyone has some asymmetry, etc. does everyone get this from family? i obviously don't WANT her in a helmet, but i don't want her to have more asymmetry in her face than she should have, you know? what do you tell people who don't see the asymmetry ad think you're doing it for no good reason? thanks so much everyone, it's really nice to have this group! -desiree, mom to nina (3) and maggie (5.5 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 My daughter was a borderline case and we opted to get the band. When we went for our first appt so they could just check her out the woman said that we could go either way. the facial assymetry is why we went with it. its not as bad as it seems. Tori has had hers for 5 weeks and we are only expecting to have it for 1-2 more weeks. HOpe I helped. oh ya and for those of the family that have the negative comments about everyone having assymetry-i would just tell them that plagio can cause more than assymetry-sight problems,hearing problems,tmj etc From: desiree_scorcia <desiree_scorcia@...>Subject: new here and not sure yet if DD needs a helmet...Plagiocephaly Date: Sunday, November 9, 2008, 2:19 PM hello everyone! i first want to say i'm so thankful for this group!i've browsed through past messages and the files and database, andit's already answered so many of my questions. thank you!so, my younger daughter (maggie, 5.5 months old) had a moderate caseof torticollis (caused by an ear to shoulder position in utero). she'sbeen in physical therapy since she was 3 months old and has donewonderfully, the tilt is almost gone (just returns when she's tired). however, the PT said she thought her plagiocephaly was borderline andthat we should see a specialist. she had some mild (i thought)flattening, but it really hasn't improved at all (maybe mildly? i SOwish i had taken pictures at 2 months old). i got a second opinionfrom a PT friend and he agreed, borderline. so we're going to see thepediatrician on monday for a referral to a cranio-facial specialist.i have a few questions though. has anyone here been a borderline caseand not gotten a helmet? or been a borderline case and gotten one? howdid you make a decision? any special questions i should ask?also, i've made the mistake of telling family, and they are alltelling me that she looks fine, everyone has some asymmetry, etc. doeseveryone get this from family? i obviously don't WANT her in a helmet,but i don't want her to have more asymmetry in her face than sheshould have, you know? what do you tell people who don't see theasymmetry ad think you're doing it for no good reason?thanks so much everyone, it's really nice to have this group!-desiree, mom to nina (3) and maggie (5.5 months) Quote Link to comment Share on other sites More sharing options...
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