More Latest News for May 2007

[Guest guest]

Please check "Latest News" of May 2007 again. There is a new announcement of yet another scientific study of LDN in the treatment of multiple sclerosis. The copy reads as follows:

"Second US Prospective Study of LDN in MS Announced. The MindBrain Consortium and the Department of Psychiatry of Summa Hospital System of Akron, Ohio, along with the nearby Oak Clinic for the treatment of Multiple Sclerosis, have announced a new scientific study of the effects of treating MS with low dose naltrexone. Psychologist Pincus and his colleagues are beginning the study immediately. It is a 16 week, double-blind, randomized, placebo-controlled, crossover-design analysis of 36 patients with either progressive or relapsing-remitting MS. The study will examine symptom severity as well as any changes in quality of life, sleep patterns, and affective states."

Another important step forward for LDN recognition.

www.ldninfo.org editors

[Guest guest]

I am trying to increase my dosage because I have been experiencing some progression--more problems with balance and walking and I want to see if 3.5 helps me in some way.

I do think that getting up to 3.5 might help--JoyceSee what's free at AOL.com.

[Guest guest]

Joyce, How long have you been on LDN and what dose are you on now, 3mg? What type of MS do you have? I'm curious because I just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and haven't noticed any change yet, but I know it takes time and I may NOT see improvement, but hopefully wont see deterioration either.JanetDollsEsq@... wrote: I am trying to increase my dosage because I have been experiencing some

progression--more problems with balance and walking and I want to see if 3.5 helps me in some way. I do think that getting up to 3.5 might help--JoyceSee what's free at AOL.com.

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[Guest guest]

Hi i am not that experienced with the ldn i was dx with rrms in oct 2006 istarted the ldn in april started with 4mg liquid then 2 weeks later started taking 4.5 mg. so far so good i hope that helps.

Re: [low dose naltrexone] Re: More "Latest News" for May 2007

Joyce, How long have you been on LDN and what dose are you on now, 3mg? What type of MS do you have? I'm curious because I just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and haven't noticed any change yet, but I know it takes time and I may NOT see improvement, but hopefully wont see deterioration either.JanetDollsEsqaol (DOT) com wrote:

I am trying to increase my dosage because I have been experiencing some progression- -more problems with balance and walking and I want to see if 3.5 helps me in some way.

I do think that getting up to 3.5 might help--Joyce

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[Guest guest]

Dumb question. What's the risk at starting at 3.0 or even 4.5 if alcoholics and addicts start at 50 mgs.? I'm thinking of just starting at 3.0 mg. Is this wise?

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Janet KunselmanSent: Tuesday, May 29, 2007 10:12 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: More "Latest News" for May 2007

Joyce, How long have you been on LDN and what dose are you on now, 3mg? What type of MS do you have? I'm curious because I just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and haven't noticed any change yet, but I know it takes time and I may NOT see improvement, but hopefully wont see deterioration either.JanetDollsEsqaol wrote:

I am trying to increase my dosage because I have been experiencing some progression--more problems with balance and walking and I want to see if 3.5 helps me in some way.

I do think that getting up to 3.5 might help--Joyce

See what's free at AOL.com.

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[Guest guest]

I started at 3mg with no problems. In my opinion, all of the talk about starting at a low amount and working up is just so confusing to some people. 4.5mg is low, but if one does have problems, just go a little lower. Mainstream medical doctors are used to 'one size fits all.' I think that all of the circumstantial questions tend to make doctors shy away from it. Marcie Ann Cherry <aberries@...> wrote: Dumb question. What's the risk at starting at 3.0 or even 4.5 if alcoholics and addicts start at 50 mgs.? I'm thinking of just starting at 3.0 mg. Is this wise? From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Janet KunselmanSent: Tuesday, May 29, 2007 10:12 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: More "Latest News" for May 2007 Joyce, How long have you been on LDN and what dose are you on now, 3mg? What type of MS

do you have? I'm curious because I just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and haven't noticed any change yet, but I know it takes time and I may NOT see improvement, but hopefully wont see deterioration either.JanetDollsEsqaol wrote: I am trying to increase my dosage because I have been experiencing some progression--more problems with balance and walking and I want to see if 3.5 helps me in some way. I do think that getting up to 3.5 might help--Joyce See what's free at AOL.com. Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

[Guest guest]

Ann,

Some people experience insomnia and stiffness so a typical approach has

been to start of slow to make sure you don't suffer badly from those

then build up. Many people who get their initial capsules made up as

1.5mg so they can easily shift between 3.0 and 4.5mg until they work out

what suits them best. In a " Chinese whispers " fashion this was

misconstrued by some who began starting at only 1.5mg, which I believe

Skip then began advocating as an option. Given posts from people who

have taken that approach it would seem it is potentially flawed as some

people who started at only 1.5mg had problems even getting to 3.0mg, let

alone the recommended 4.5mg. I have absolutely no medical training but

it would seem that some people's bodies get used to whatever dose they

start at and they have problems going up from there. I began well over

3 years ago when everybody was starting on either 3.0 or 4.5, with the

general approach being start at 3.0 and go to 4.5 ASAP once you know

your body can handle it - worked well for me and many others though in

retrospect maybe I should have just begun at 4.5 and been done with it.

Ann Cherry wrote:

> Dumb question. What's the risk at starting at 3.0 or even 4.5 if

> alcoholics and addicts start at 50 mgs.? I'm thinking of just

> starting at 3.0 mg. Is this wise?

>

> ------------------------------------------------------------------------

> **

[Guest guest]

Hi Ann,

I would start at 1.5 and work my way up. I write about this in the welcome e-mail. The 50mg is a whole different ball game and it is not being used on those with MS or other autoimmune disorders. It blocks your endorphins all day long.

My husband started at 4.5 and then went down to 3.0 because he had new areas of numbness and tingling. A year later he went up to 4.5 with no problem.

My mom started at 1.5 and then increase to 3.0 a week later, and again to 4.5 the next week. She had no side effects.

I believe the first that I heard about working your way up was from Skip at Skip's Pharmacy. Most people seem to have less side effects this way.

My best

Aletha

RE: [low dose naltrexone] Re: More "Latest News" for May 2007

Dumb question. What's the risk at starting at 3.0 or even 4.5 if alcoholics and addicts start at 50 mgs.? I'm thinking of just starting at 3.0 mg. Is this wise?

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Janet KunselmanSent: Tuesday, May 29, 2007 10:12 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: More "Latest News" for May 2007

Joyce, How long have you been on LDN and what dose are you on now, 3mg? What type of MS do you have? I'm curious because I just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and haven't noticed any change yet, but I know it takes time and I may NOT see improvement, but hopefully wont see deterioration either.JanetDollsEsqaol wrote:

I am trying to increase my dosage because I have been experiencing some progression--more problems with balance and walking and I want to see if 3.5 helps me in some way.

I do think that getting up to 3.5 might help--Joyce

See what's free at AOL.com.

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[Guest guest]

I started at 3.0 and saw some improvement overnight. I always recommend starting at 3.0. There is nothing to be afraid of with LDN.

JoyceSee what's free at AOL.com.

[Guest guest]

Aletha,

You've just reminded me of a question

I've been thinking of to ask....

The LDN is mean to work for about 18

hours, correct? I get that taking it at night ensures it starts it's

effect during your REM sleep, but I take mine at 9pm each night, so at 3pm the next

day, it's effectively stopped working? Am I more succeptable to having an

attack after 3pm then ??

I started on 3mg and will remain on this

until my next script when I'll go up to 4.5mg...I've experienced

no side effects since starting about 3 weeks ago which I'm happy about...

Anyone with information or thoughts on the

above??

Kelli

From:

Aletha Wittmann [mailto:Aletha@...]

Sent: Thursday, 31 May 2007 1:20

AM

low dose naltrexone

Subject: Re: [low dose naltrexone]

Re: More " Latest News " for May 2007

Hi Ann,

I would start at 1.5 and work my way up. I write about this

in the welcome e-mail. The 50mg is a whole different ball game and it is

not being used on those with MS or other autoimmune disorders. It blocks

your endorphins all day long.

My husband started at 4.5 and then went down to 3.0 because

he had new areas of numbness and tingling. A year later he went up to 4.5

with no problem.

My mom started at 1.5 and then increase to 3.0 a week later,

and again to 4.5 the next week. She had no side effects.

I believe the first that I heard about working your way up

was from Skip at Skip's Pharmacy. Most people seem to have less side

effects this way.

My best

Aletha

Re: [low dose naltrexone]

Re: More " Latest News " for May 2007

Joyce,

How long have you been on LDN and what dose are you on

now, 3mg? What type of MS do you have? I'm curious because I

just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and

haven't noticed any change yet, but I know it takes time and I may NOT see

improvement, but hopefully wont see deterioration either.

Janet

DollsEsqaol

wrote:

I am trying

to increase my dosage because I have been experiencing some progression--more

problems with balance and walking and I want to see if 3.5 helps me in some

way.

I do think

that getting up to 3.5 might help--Joyce

See what's free at AOL.com.

Be a better Heartthrob. Get

better relationship answers from someone who knows.

Answers - Check it out.

[Guest guest]

Hi Kelli,

It should do its job even at the 18 hour point. No one has suggested before that it wears off at a certain time.

One thing that is interesting though is that taking DLP helps keep the LDN going if you will through the day. DLP worked wonders for my husbands depression and he no longer needed any of the anti depressants. Some also experience pain relief and more energy. Dr. Bihari recommended taking DLP for some of his patients along with LDN. There are a few warnings (don't take with one kind of cancer and don't take if you have high blood pressure, and don't take if you have Parkinson's as it does not work well with one of the major meds taken for Parkinson's). Dr. Bihari recommends the Solaray brand.

I will forward a copy of DLP info for you.

My best

Aletha

RE: [low dose naltrexone] Re: More "Latest News" for May 2007

Dumb question. What's the risk at starting at 3.0 or even 4.5 if alcoholics and addicts start at 50 mgs.? I'm thinking of just starting at 3.0 mg. Is this wise?

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Janet KunselmanSent: Tuesday, May 29, 2007 10:12 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: More "Latest News" for May 2007

Joyce, How long have you been on LDN and what dose are you on now, 3mg? What type of MS do you have? I'm curious because I just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and haven't noticed any change yet, but I know it takes time and I may NOT see improvement, but hopefully wont see deterioration either.JanetDollsEsqaol wrote:

I am trying to increase my dosage because I have been experiencing some progression--more problems with balance and walking and I want to see if 3.5 helps me in some way.

I do think that getting up to 3.5 might help--Joyce

See what's free at AOL.com.

Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

[Guest guest]

Aletha, What's DLP and what does it do?? What did you mena by if you will go through the day? I'm on Lexapro and by 11:00 AM, need a nap. Does taking a nap hinder LDN benefits?? I don't sleep real well through the night, so my body's used to a mid-day nap.Still Learning,JanetAletha Wittmann <Aletha@...> wrote: Hi Kelli, It should do its job even at the 18 hour point. No one has suggested before that it wears off at a certain time. One thing that is interesting though is that taking DLP helps keep the LDN going if you will through the day. DLP worked wonders for my husbands depression and he no longer needed any of the anti depressants. Some also experience pain relief and more energy. Dr. Bihari recommended taking DLP for some of his patients along with LDN. There are a few warnings (don't take with one kind of cancer and don't take if you have high blood pressure, and don't take if you have Parkinson's as it does not work well with one of the major meds taken for Parkinson's). Dr. Bihari recommends the Solaray brand. I will forward a

copy of DLP info for you. My best Aletha RE: [low dose naltrexone] Re: More "Latest News" for May 2007 Dumb question. What's the risk at starting at 3.0 or even 4.5 if alcoholics and addicts start at 50 mgs.? I'm thinking of just starting at 3.0 mg. Is this wise? From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Janet KunselmanSent: Tuesday, May 29, 2007 10:12 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: More "Latest News" for May 2007 Joyce, How long have you been on LDN and what dose are you on now, 3mg? What type of MS do you have? I'm curious because I just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and haven't noticed any change yet, but I know it takes time and I may NOT see improvement, but hopefully wont see deterioration either.JanetDollsEsqaol wrote: I am trying to increase my dosage because I have been experiencing some progression--more problems with balance and walking and I want to see if 3.5 helps me in some way. I do think that getting up to 3.5 might help--Joyce See what's free at AOL.com. Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

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[Guest guest]

Janet,

I will e-mail you a copy of the chats I have on DLP. Also I wrote a small bit about it in the "welcome e-mail" regarding my husbands depression.

Aletha

RE: [low dose naltrexone] Re: More "Latest News" for May 2007

Dumb question. What's the risk at starting at 3.0 or even 4.5 if alcoholics and addicts start at 50 mgs.? I'm thinking of just starting at 3.0 mg. Is this wise?

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Janet KunselmanSent: Tuesday, May 29, 2007 10:12 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: More "Latest News" for May 2007

Joyce, How long have you been on LDN and what dose are you on now, 3mg? What type of MS do you have? I'm curious because I just went up from 1.5 (1 week) to 3 mg. (2 weeks). I have RRMS and haven't noticed any change yet, but I know it takes time and I may NOT see improvement, but hopefully wont see deterioration either.JanetDollsEsqaol wrote:

I am trying to increase my dosage because I have been experiencing some progression--more problems with balance and walking and I want to see if 3.5 helps me in some way.

I do think that getting up to 3.5 might help--Joyce

See what's free at AOL.com.

Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

Luggage? GPS? Comic books? Check out fitting gifts for grads at Search.