Re: Hand washing

[Guest guest]

Hi everyone,

It has been awhile since I have posted last. The holiday's and the cold

season is apon us and I had a few questions , if anyone can help. What do you

do if you are invited to a birthday party where you know alot of children are

going to be there. Should you call ahead and see if everyone coming is well.

My son Cody is almost 2 years and was invited and a couple of people were at the

tail end of their colds and on medication, but I made the decicion not to go,

but felt really bad. Any opionions would be appriciated. Also if you are

invited to someone else X-mas party, should you ask them all to wash hands

before touching or should I just wash his hands afterwards. when they come to

my house there is a sign on door saying wash hands when entering? I am so

confused as to how far you should go. My son has had no lung symptoms of CF

yet, but other issues(liver and pancreas) so I must be doing something right?

Love and CHeer,

w/ Cody w/CF 22 months

how to make them wash their hands???

hi!!

yesterday we had a family party at my husband's aunts house. And no

one seem to understand that they need to wash their hands and to

make it really perfect his sister takes her niece that is sick on

antibiotics and say...she is taking medicine so it is ok...I believe

it is not. I would keep the baby far but she need to talk to the

girl to be far too...I don't know. And everybody was playing w/ the

girl and after wanting to hold my son...I gave up from waiting

people to wash their hands and decided to hold him myself all the

time. I even took some hand's sanitizer. No one care...seems like

they ignore me. And my husband is kinda slow about ask people to do

things or he forgets...i don't know. the thing is...soon it will be

the christimas party at his grandma's house...same people...I will

take the sanitizer and tryto make people use it...well...I am really

shy and the english don't help so much...so I was thinking to send

some material or give them some material to ready in the bigining of

the x-mas party...something fast and easy to read but that make them

understand that they need to wash their hands. they r crazy for

torin...but they don't understand that he is not cured since he left

the NICU. Anyone has any idea where I can find some material easy

and fast to them to ready about how it is inportant to them to wash

there hands and what can happen to a cf baby it they have a bad cold

or flu...how it is different from a normal baby...I am thinking

about print some e-mails...so if someone could help writing a post

so I can do so....Maybe I am overeacting...don't know...

val

mum to torin 11 months w/cf and coughing a lot today

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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[Guest guest]

THANKS JENNIFER,

DO YOU ASK OTHER PEOPLE TO USE THE SOAP OR YOUR SON? IT IS SO GREAT TO KNOW

THAT WE ARE JUST LIKE OTHER PARENTS WITH CHILDREN THAT HAVE CF, FULL OF

QUESTIONS AND INSECURETIES.

THANKS AGAIN

---- Original Message -----

From: Chastain

To: cfparents

Sent: Monday, December 21, 2026 12:42 PM

Subject: Re: Hand washing

Hello, ,

I think as parents of CF kids we all are a little scared of the roaming bugs

and germs ... smile!

We battle many of the same fears, and it's a balance between protecting them

from the germs and allowing them to be NORMAL kids.

We ALWAYS take a bottle of antibacterial soap with us when we attend

birthday parties, outings, etc., etc. And, if we get to a party and there

is a bad, junky nose or cough, I just make sure Henry is sitting at a less

" germ " party table ... smile.

It's very hard ... we battle the same germ phobia, but do lots and lots and

lots of handwashing ... and all folks coming to the house, playdates, etc.

wash their hands.

My son has started to play ice hockey, and we have to double educate the

coaches about Henry ONLY USING HIS WATER BOTTLE ... no sharing and no team

bottle for him ... smile.

Good luck to you and have a very happy and healthy holiday!

Mom of , , and Henry, 6-year-old with CF, just chronic

sinusitis so far and pancreatic insufficiency

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Hi,

I bring the hand sanitizer with me to parties and get togethers and offer it

around to anyone who may be likely to touch . If someone looks at me

funny I just say that I am a freak about the germs because they could get

sick enough to be hospitalized. It is a quick explanation and most people are

happy to use the hand sanitizer since I am offering it. I do explain a bit more

if the people don't know about 's CF or if they just don't know about CF

at all. That way, it is a way to raise awareness as well as keep her healthy.

Our Family ALWAYS lets us know ahead of time if one of the kids is sick. All

the kids know, and are reminded, to keep their distance if they are sick. I

also tell them to sneeze or cough into their elbow, instead of the hand since

they aren't opening doors and touching things with the inside of their elbow.

If they are just coming down with something or they are in the midst of a nasty

cold either we stay home or they do.

Mom of 5 with CF

Re: Hand washing

Hello, ,

I think as parents of CF kids we all are a little scared of the roaming bugs

and germs ... smile!

We battle many of the same fears, and it's a balance between protecting them

from the germs and allowing them to be NORMAL kids.

We ALWAYS take a bottle of antibacterial soap with us when we attend

birthday parties, outings, etc., etc. And, if we get to a party and there

is a bad, junky nose or cough, I just make sure Henry is sitting at a less

" germ " party table ... smile.

It's very hard ... we battle the same germ phobia, but do lots and lots and

lots of handwashing ... and all folks coming to the house, playdates, etc.

wash their hands.

My son has started to play ice hockey, and we have to double educate the

coaches about Henry ONLY USING HIS WATER BOTTLE ... no sharing and no team

bottle for him ... smile.

Good luck to you and have a very happy and healthy holiday!

Mom of , , and Henry, 6-year-old with CF, just chronic

sinusitis so far and pancreatic insufficiency

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Dave and ,

The antibacterial gel is awesome and very convenient. Doesn't feel

slimy after a few seconds at all - dries well. Very effective as it

is alcohol-based. We use Germ-X. Great when water isn't close by.

Joe

> THANKS JENNIFER,

>

> DO YOU ASK OTHER PEOPLE TO USE THE SOAP OR YOUR SON? IT IS SO

GREAT TO KNOW THAT WE ARE JUST LIKE OTHER PARENTS WITH CHILDREN THAT

HAVE CF, FULL OF QUESTIONS AND INSECURETIES.

>

> THANKS AGAIN

> ---- Original Message -----

> From: Chastain

> To: cfparents

> Sent: Monday, December 21, 2026 12:42 PM

> Subject: Re: Hand washing

>

>

> Hello, ,

>

> I think as parents of CF kids we all are a little scared of the

roaming bugs

> and germs ... smile!

>

> We battle many of the same fears, and it's a balance between

protecting them

> from the germs and allowing them to be NORMAL kids.

>

> We ALWAYS take a bottle of antibacterial soap with us when we

attend

> birthday parties, outings, etc., etc. And, if we get to a party

and there

> is a bad, junky nose or cough, I just make sure Henry is sitting

at a less

> " germ " party table ... smile.

>

> It's very hard ... we battle the same germ phobia, but do lots

and lots and

> lots of handwashing ... and all folks coming to the house,

playdates, etc.

> wash their hands.

>

> My son has started to play ice hockey, and we have to double

educate the

> coaches about Henry ONLY USING HIS WATER BOTTLE ... no sharing

and no team

> bottle for him ... smile.

>

> Good luck to you and have a very happy and healthy holiday!

>

>

> Mom of , , and Henry, 6-year-old with CF, just

chronic

> sinusitis so far and pancreatic insufficiency

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

,

I was actually wondering if you might be able to inlist some help from your

mum and your mother in law. Mine are both great about the handwashing and

keeping sick people away. I think it is easier because they are used to

bossing their own kids around. I don't even have to say anything and they

make everyone wash their hands. This is great because it takes some of the

burden off us, doesn't make us look like we are the nutty ones and helps me

out because I am usually chasing Jack all the time anyway.

Fiona

>

>Reply-To: cfparents

>To: <cfparents >

>Subject: Re: Hand washing

>Date: Sun, 21 Dec 2003 16:03:42 -0500

>

>Hi,

>I bring the hand sanitizer with me to parties and get togethers and offer

>it around to anyone who may be likely to touch . If someone looks at

>me funny I just say that I am a freak about the germs because they could

>get sick enough to be hospitalized. It is a quick explanation and

>most people are happy to use the hand sanitizer since I am offering it. I

>do explain a bit more if the people don't know about 's CF or if they

>just don't know about CF at all. That way, it is a way to raise awareness

>as well as keep her healthy. Our Family ALWAYS lets us know ahead of time

>if one of the kids is sick. All the kids know, and are reminded, to keep

>their distance if they are sick. I also tell them to sneeze or cough into

>their elbow, instead of the hand since they aren't opening doors and

>touching things with the inside of their elbow. If they are just coming

>down with something or they are in the midst of a nasty cold either we stay

>home or they do.

>

>Mom of 5 with CF

> Re: Hand washing

>

>

> Hello, ,

>

> I think as parents of CF kids we all are a little scared of the

>roaming bugs

> and germs ... smile!

>

> We battle many of the same fears, and it's a balance between

>protecting them

> from the germs and allowing them to be NORMAL kids.

>

> We ALWAYS take a bottle of antibacterial soap with us when we attend

> birthday parties, outings, etc., etc. And, if we get to a party and

>there

> is a bad, junky nose or cough, I just make sure Henry is sitting at a

>less

> " germ " party table ... smile.

>

> It's very hard ... we battle the same germ phobia, but do lots and

>lots and

> lots of handwashing ... and all folks coming to the house, playdates,

>etc.

> wash their hands.

>

> My son has started to play ice hockey, and we have to double educate

>the

> coaches about Henry ONLY USING HIS WATER BOTTLE ... no sharing and no

>team

> bottle for him ... smile.

>

> Good luck to you and have a very happy and healthy holiday!

>

>

> Mom of , , and Henry, 6-year-old with CF, just chronic

> sinusitis so far and pancreatic insufficiency

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

>TREATMENTS.

>

> ------------------------------------

>

>

>

>

>

>------------------------------------------------------------------------------

>