Getting frustrated

[Guest guest]

So I took Jayden back to the orthotist last week because I felt that

his helmet was too big AND because the side burns of the helmet

rubbed his skin raw, made his head break out again and then the break

out traveled down his body. His orthotist is very nice but says the

helmet is the same size. I dont agree because it moved around alot

more than the first one. :/ THEN the second helmet was made with a

different foam, which was more plastic like and it actually held the

sweat in (like kept the sweat wet inside instead of drying like the

other one)which seemed to make him get more blisters by keeping his

head soaked all day and HOT. His ortho said since the break outs

spread to the rest of his body it " cant be the helmet " but I KNOW it

is because he never started any of these issues UNTIL he got the

helmet. NOBODY can explain why my son is breaking out in these

blisters and boils on his head. The ortho says no one has ever seen

that and that my son maybe her first case where he cant wear a

helmet. He's still taking his antibiotics but his head is still

covered in blisters. He had to have an antibiotic cream for his face

cause his skin was peeling off from the side burns of the second

helmet. I'm so frustrated. He had only had the first helmet two weeks

and already had some growth in length which is great. Now we have to

wait till everything clears to put the helmet back on and I feel like

time is ticking by. I'm so irritated by it all. How can my son be a

one in a million case?????? Why has this never been seen and why can

no one even begin to give me an explanation. I Mean...everything that

is being done right now is just a guesstimate so to speak.