Re: Dextromethorphan? New member - 13 yr old daughter with Crohn's

[Guest guest]

Hi, if you are having problems finding an LDN source, you may want to

look at drug store cough syrrup, dextromethorphan DM. DM is also an

opioid receptor antagonist like naltrexone. There are some people in a

Parkinson's chat group which I belong who take one teaspoon (about

5mg) of DM nightly. There is one member who has been on DM for two

years and he says his PD has not progressed. You want to look for

cough syrrup with just DM as the active ingredient.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=retrieve & db=pubmed & list_uids=1\

2649371 & dopt=Abstract

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=retrieve & db=pubmed & list_uids=1\

5790998 & dopt=Abstract

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=retrieve & db=pubmed & list_uids=1\

5791005 & dopt=Abstract

Regards,

>

> 13-yr old daughter has had appendix and gallbladder removed and was

> finally diagnosed with Crohn's 2 years later...diagnosed in Dec 06.

> After going to 5 different children's hospitals, Cleveland Clinic

> finally found the white lesions during her third endoscopy. The

> lesions are in an odd location; a thin band on her upper duodenum

> right where the gall bladder, pancreas and liver ducts enter the

> duodenum. (Right where her pain is.) Her colon is not affected.

> Months of Nexium did not alleviate the painful right upper quadrant

> attacks, so diagnosed with Crohn's vs. ulcerative colitis as the

> cause. (Infections or viruses ruled out also.)

>

> I read Dr. Jill 's study on LDN treatment for Crohn's with

> interest and even contacted her to see when/if they would expand the

> study to pediatrics. Dr. said that she would like to expand

> the testing to adolescents, but she did not know when. She suggested

> that my daughter's Cleveland GI contact her. Cleveland GI dismissed

> LDN therapy outright and began steroid therapy and

> immunosuppressants. The immunosuppressant, Imuran, caused severe

> myalgia in her back, neck and shoulders and we are still dealing with

> it 4 weeks later. I have to help her out of bed, help her bathe and

> get dressed, etc. and she is in severe pain. The steroids caused

> weight gain and acne and what 13 year old girl wants to deal with

> that on top of the pain. In addition, they did not help the painful

> attacks.

>

> We really like the GI in Cleveland, but I know that she is planning

> on trying another immunosuppressant when 's back gets

> better...assuming that it will. We are terrified that similar side

> effects will occur that are again worse than the original problem.

>

> Any advice on convincing the GI to try LDN? Anyone out there deal

> with a pediatrician or pediatric specialist who has prescribed LDN

> for an auto-immune disease?

>

> Any assistance is appreciated.

>