Re: question

[Guest guest]

>

> The recipe has been with my family for a long time. It came in the

> Osterizer blender but it calls for illegal cottage cheese and sugar instead

> of honey, so I just adapted it.

>

> Anya 3 yrs. 10 mo.

> >

>

> UC diagnosed 5/24/06

> SCD started 5/28/06

> Meds Mercaptopurine

>

Anya,

here is an official SCD legal New York Style Cheesecake recipe:

http://www.scdrecipe.com/recipes/r_007_00317.php

Carol F.

[Guest guest]

Hi Anya's family,

> Anya has a flare for the first time since we started SCD on May

28th. We do

> not know yet whether she ate something illegal or it is just a

flare. Doctor

> ordered blood and many stool analyses.

> We went back to intro diet and has been on it from Monday to

Friday, but

> although she does not go potty more than twice a day it is still

loose. We

> stopped giving her the Scdophilus.do you think we should continue

it or

> better wait till loose BM stops?

What foods is she eating?

Some find that during a flare they either go back to the intro for a

couple of days until the flare calms down or they eat very easy to

digest foods such as the intro and ripe banana, homemade applesauce

etc..

Was the SCDophilus a new supplement for her? Have you noticed any

improvement in symptoms since stopping the SCDophilus?

> We are still giving her every morning her fourth of a tablet of

Mp6 and

> Freeda's one fourth of a multivitamin,

>

> Another question with a recipe. I have this one that we all love

and wonder

> whether it is legal as it is not cooked, mayo isn't either but I

want to be

> sure.

>

> New York Cheesecake

>

> In the blender put one egg, one envelope unflavored gelatin, 1/4

cup honey,

> 2 to 3 Tbsp. lime juice and 1/4 cup hot yougurt. Mix well and add

2 cups

> Friendship brand farmers' cheese. If too thick, add some cold

yougurt.

> Refrigerate until gelatine sets.

This recipe sounds legal, as long as it is fresh lime juice

(squeezed at home) and legal honey (Pure and clear).

Sheila, SCD Feb. 2001, UC 22yrs

mom of and

[Guest guest]

No, the Scdophilus was not new to her but when she had the flare we stopped

iron and acidophilus, just in case and we put her on the intro diet for 5

days. It was not until yesterday that we started giving her banana and we

think it was good for her because this morning her BM was considerably

better.

She also has a bad cold, running nose and cough but no fever so we will give

her no medicine unless she develops a fever.

Our thanks for all your help.

Anya's family

UC diagnosed 5/24/06

Symptoms started 12/05

SCD started 5/28/06

Meds Mercaptopurine

[Guest guest]

Are you sure that your son has not found a way to eat junk food? My

daughter has an incredible ability to get into the wrong foods without

my knowledge. It is also possible that this is a temporary flare. Go

back and do the intro diet....mash up all the food...have him drink

the homeme made electrolyte drink.

Mimi

> My son has been SCD for around two years or so, I think. A couple of weeks

> ago he started having diarrhea again, but we have not changed anything in

> his diet. The diarrhea is continuing, along with obvious undigested food in

> his stools. What would cause this, without a diet change?

[Guest guest]

>

> My son has been SCD for around two years or so, I think. A couple of

weeks ago he started having diarrhea again, but we have not changed

anything in his diet. The diarrhea is continuing, along with obvious

undigested food in his stools. What would cause this, without a diet

change?

This happened to my son after a chelation challenge.

, mom to , age 11, ASD, SCD since April 23, 2004

[Guest guest]

What is the homemade electrolyte drink? What are its benefits?

Re: question

Are you sure that your son has not found a way to eat junk food? My

daughter has an incredible ability to get into the wrong foods without

my knowledge. It is also possible that this is a temporary flare. Go

back and do the intro diet....mash up all the food...have him drink

the homeme made electrolyte drink.

Mimi

> My son has been SCD for around two years or so, I think. A couple of weeks

> ago he started having diarrhea again, but we have not changed anything in

> his diet. The diarrhea is continuing, along with obvious undigested food in

> his stools. What would cause this, without a diet change?

[Guest guest]

The electrolyte drink recipe is on Elaine's website,

www.breakingtheviciouscycle.info But, here it is:

1 quart boiled water

2 tbsp. honey

1/4 tsp. of salt

1/4 tsp.baking soda

Can be kept in refrigerator for 24 hours, and then a new batch should be made.

It helps with die-off symptoms.... helps with hydration..... helps with

constipation.

And, I personally believe it helps to counteract acidity in the system. I would

suggest adding fresh lemon juice to it, too.

Patti

Re: question

What is the homemade electrolyte drink? What are its benefits?

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barbara jean

Subject: Re: Re: QuestionTo: Breathe-Support Date: Wednesday, January 20, 2010, 7:48 PM

Bruce I want to address this to you. Not sure this is the correct way. Diagnosis Pulmonary Fibrosis in June 09 on NAC: Diagnosed by pulmonary function test. cat scan and bronch biopsy. My only symptoms are shortness of breathe and slight cough and runny nose. I have a oxcimeter and my oxygen falls when I am exerting (walking, cleaning, etc.) Went through Pulmonary rehab and tolorated it well. Learned correct breathing excercises etc. I have had very few problems, no colds, chest pains = tiredness yes' I have just repeated my pulmonary function test and it had improved from about 45 to 65 I believe. Cat scan still shows fibrosis and he wants a lung biopsy this spring to see what type of PF I have. He did put me on predisone starting at 40 and tapering to 5 in three months to see the

results of a repeat Pulmonary Function test. He also put me on Advair. I have a sister who has PF and is on oxy 24/7 and not good at all. I asked him if that is what he could see for me and he said not necesarily He said there are 5 kinds of pf and he wants to find out what I have thus the biopsy. I have never heard of different kinds if Pulmonary Fibrosis could you fill me in barbt] Re: QuestionTo: Breathe-Support@ yahoogroups. comDate: Wednesday, January 20, 2010, 4:51 PM

PeggyYou're so cute and funny....I love following this:1-Read the information about your heating pad.2-Mine says don't use it in oxygen enriched area.3-I've been using it in the area for 4 years.4-Be carefulNow, I'm just wondering... ..why read the information? lol....I'm with you though. I'd use it and be careful. Basically they tell usnot to use anything around oxygen. I know an electric razor is one.Well, I do. I realize there is danger of a spark and problem and if soI'll get on the move out. It's just like cooking and some of the otherthings. They issue warnings to the extreme to cover their liability butif we followed them all, we'd end up living in bubbles.I'm glad the nebulizer and the morphine both help you. Every time I readone of your posts I just look hoping you're feeling comfortable andlooking for the smile in your voice. You seem to be balancing

thingsvery well and using the morphine in a way for it to help with the leastso that you're relieved of pain but having fun.So, have you run over anyone yet with the Hoveround? Been back out? Howis feeling today? I hope better. For him to let it knock him out ofaction, I know he was feeling pretty miserable.>> Hi , I do understand the SOB in your chest. I have had that for awhile. It started with a feeling that I couldn't get enough air eventhough my sats were mid 90's> I have quite a bit of that now and am using a nebulizer withalbuterol. That helps, then when it is muscle spasms I use the morphine.I am pretty sure what you are experiencing is an advancement of

thismonster.. My Dr. told me when my sats are good and my heart rate isgood, we know my heart is good.. It's the disease.. It can> be very scary. The only way I know to help is to get really quite andtry to breathe easy for 5 minutes or so. I am that way about all thetime now. I also turn my 02 up a little. I am about out of numbers onthis regulator.> I don't realize it because it is now my norm. "I HATE THIS DISEASE.">> Read information about your heating pad. Mine says don't use in oxygenenriched area... LOL I have been doing it for at least four years. Justbe careful.> I may be having a rough time breathing but I am having fun with my gofast....... I have to get pics but I have to get dressed---boooo.> lol Take care my friend>>>> Love & Prayers> Peggy> IPF,

2004>