Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 , Do you know about Lyme-Teens at eGroups? It's a list just like only it has more young people involved in it. There are a few of us there who are either in college, been to college, or wanting to go to college. We may be able to relate to you in a different way than this list. You can join by sending a blank email to Lyme-Teens-SubscribeeGroups . Of course you DON'T have to join, and you DON'T have to leave even if you do join. I just wanted to let you know of the other option. =) About the insurance: I don't think you have much room there. They specifically set it up to try to get people off their policies as soon as possible. I too was on my parent's insurance until I could no longer go to college full-time. I then switched to my state's insurance plan, Oregon Heath Plan. This was an option for me because I had/have no income and filed for Social Security disability. I'm not really sure what options you have in your state. It's definitely worth calling whatever disability services you have and ask them about options. You may be able to qualify for some kind of short term insurance. About college - don't worry! You can easily go to a Community / Junior College for one or two years and then apply at somewhere else. MANY people go this way not because of poor grades in high school, but for a variety of other reasons. A girl on the Lyme-Teens list took a year off after high school and still was accepted into a four-year school this year as a freshman. You will have plenty of opportunities to get a college degree. I too, was subjected to too many drug tests. I mean afterall, a high school student who wears sunglasses all the time and is always tired must be doing drugs - right? It sucks. I'm glad you finally found the Lyme diagnosis. This doesn't mean all your problems are solved, but it will help you put things into the right perspective. Let me know if I can help in any other way. Think about the Lyme-Teens list okay? =) Robynn List Owner eGroupsLyme-DocumentseGroupsLyme-TeenseGroups [ ] hello there hi. my name is erika. i'm 18, living in connecticut. i was just diagnosed with lyme disease in may, after having withdrawn from college because i was so sick with what had been misdiagnosed as too much caffiene, mono, the flu, and just about everything else they could think of.my doctor now thinks that i have had lyme disease for over 3 years, during which time my grades dropped dramatically. now i fear that because i didn't know that i had lyme disease, i have blown my chance at getting a college education. my parent's insurance company is getting close to dropping me since i'm no longer in school and 18. does anyone know if there is some way i can talk to the insurance company, and to universities about giving me a second shot at things once i get better?i know that lyme disease is pretty much an unknown disease...i didn't even know much about it until i got the dreaded diagnosis. i had no clue what any symptoms were besides the bulls eye rash, which i never got. i looked back to when my academic and personal problems started in high school, and i had so many symptoms, i couldn't believe it. the entire time i kept getting written of as having an attitude or discipline problem, then they all thought i was on drugs...my doctor has been pretty helpless in getting me the treatment i need because of the crap my insurance company is putting him through. right now i'm only on 1500mg of amoxicillin a day. he originally started me with doxyciclene, but i had an allergic reation and had to go to the hospital. my doctor wants to send me to a specialist, as well as send me to a physical therapist, and a psychologist, but the insurance company won't let him.have any of you had to deal with such bad beurocratic nonesense from insurance companies? if so, what did you do to resolve the problem? i'd be thankful for any help that anybody may be able to give me.thank you so much,erika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 Dear , Your story is heartbreaking. Why don't you try calling your Attorney General's Office to find out about your rights regarding your parent's policyholder dropping you. The number is 860-808-5355 or 860-808-5318. Ask for , if he is still there. He was an Assistant Attorney General working on the denial of care for Lyme patients in 1999. Good luck. Eileen, NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 I was so tired all day yesterday - split a little wood, spread some gravel and crashed around 7:30. I feel good this morning. Nice day here but cool (38). Mom & dad are coming down this afternoon so I will be doing battle with the vacuum cleaner. :-) Have a good day everyone Dennis [ ] HELLO THERE Hey to all..It is 9:15 pm and I feel all alone in here tonight..Everyone is busy I guess...I just wanted you to know that I am thinking of everyone..Dave...enjoy your weekend........Talk more in here..I enjoy hearing from you...Diane...where are you at?? Did I miss you saying you would be somewhere and that's why you aren't on?? Dennis!!! Where are you at?? Vicky...I hope all is ok with you....Terri...I hope you are feeling better..Ok everyone get in touch ok... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Hi Jan I would talk more, but I have been really busy the past couple of week. We had the 95 year old gentleman that my wife and I take care of in the hospital. He has degenerative emphysema and was in pretty bad shape. Brought him home last Wednesday. He is in diapers and has to be on oxygen 24 hours a day. at least when we can get him to keep the canula in his nose. Poor old guy has hallucinations and thinks everyone is stealing all that he has. trust me he doesn't have anything that is of much value. He really needs to be somewhere where he can get 24 hour care. My wife and I are not really trained for this kind of stuff. Well I had better go for now. [ ] HELLO THERE Hey to all..It is 9:15 pm and I feel all alone in here tonight..Everyone is busy I guess...I just wanted you to know that I am thinking of everyone..Dave...enjoy your weekend........Talk more in here..I enjoy hearing from you...Diane...where are you at?? Did I miss you saying you would be somewhere and that's why you aren't on?? Dennis!!! Where are you at?? Vicky...I hope all is ok with you....Terri...I hope you are feeling better..Ok everyone get in touch ok... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Good luck, , it takes a special kind of person to do what you're doing. Don't be afraid to find other options for him, if he needs more care than you can give. You've got to take care of yourself too. I will pray for the 3 of you. -dz- --- <ralexan@...> wrote: > Hi Jan > > I would talk more, but I have been really busy the > past couple of week. We had the 95 year old > gentleman that my wife and I take care of in the > hospital. He has degenerative emphysema and was in > pretty bad shape. Brought him home last Wednesday. > He is in diapers and has to be on oxygen 24 hours a > day. at least when we can get him to keep the canula > in his nose. Poor old guy has hallucinations and > thinks everyone is stealing all that he has. trust > me he doesn't have anything that is of much value. > > He really needs to be somewhere where he can get 24 > hour care. My wife and I are not really trained for > this kind of stuff. > > Well I had better go for now. > > > [ ] HELLO THERE > > > Hey to all..It is 9:15 pm and I feel all alone in > here tonight..Everyone is busy I guess...I just > wanted you to know that I am thinking of > everyone..Dave...enjoy your > weekend........Talk more in here..I enjoy > hearing from you...Diane...where are you at?? Did I > miss you saying you would be somewhere and that's > why you aren't on?? Dennis!!! Where are you at?? > Vicky...I hope all is ok with you....Terri...I hope > you are feeling better..Ok everyone get in touch > ok... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Dennis even God tool one day off.....You need to also..Tell Mom and Dad hi for us!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 I wish you and your wife the best with the elderly man..He is at a very mature age but I do understand how it is when they get like that...Before my father passed away he thought mexicans were living with him...He'll be in my prayers... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 , You and your wife are in my prayers..... I don't think anyone can fully understand how much a person has to give of themself to be a caregiver, until you are in that position...... I have helped my girlfriend with her bedridden Mother who passed last year in her 90's... And I also did that type of work before I became disabled... You have to be a caring individual to give of yourself like that.... I used to be against nursing homes, but sometimes there is no other choice.... It takes a bigger person to admit that they just can't do it anymore and they don't have to be ashamed of saying it.... I give you credit where credit is due.. Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Dennis it is always a pleasure to be with your fols...Enjoy them while you can.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 how long have you been taking care of him..If you don't mind my asking...They can be a handful and you are right.Maybe you should contact his family...I know you and your wife are doing your best...Keep being patient and strong..We are here anytime you need us ok?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Thanks Jan. We had a good day. DH Re: [ ] HELLO THERE Dennis even God tool one day off.....You need to also..Tell Mom and Dad hi for us!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Thanks Dave He can really be a handful, but we are getting by so far [ ] HELLO THERE > > > > > > Hey to all..It is 9:15 pm and I feel all alone in > > here tonight..Everyone is busy I guess...I just > > wanted you to know that I am thinking of > > everyone..Dave...enjoy your > > weekend........Talk more in here..I enjoy > > hearing from you...Diane...where are you at?? Did I > > miss you saying you would be somewhere and that's > > why you aren't on?? Dennis!!! Where are you at?? > > Vicky...I hope all is ok with you....Terri...I hope > > you are feeling better..Ok everyone get in touch > > ok... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Hi Jan He thinks that there are a bunch of kids stealing everything from his room and I'm the gang leader. I'm afraid that if he doesn't get better we are going to have to call his son in Michigan. Even though we have taken care of him there isn't much that we can do since we are not actually family. Re: [ ] HELLO THERE I wish you and your wife the best with the elderly man..He is at a very mature age but I do understand how it is when they get like that...Before my father passed away he thought mexicans were living with him...He'll be in my prayers... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Thanks Diane We seem to be getting by right now. Re: [ ] HELLO THERE > , > You and your wife are in my prayers..... I don't think anyone can > fully understand how much a person has to give of themself to be a > caregiver, until you are in that position...... I have helped my > girlfriend with her bedridden Mother who passed last year in her 90's... > And I also did that type of work before I became disabled... You have to > be a caring individual to give of yourself like that.... I used to be > against nursing homes, but sometimes there is no other choice.... It > takes a bigger person to admit that they just can't do it anymore and > they don't have to be ashamed of saying it.... I give you credit where > credit is due.. > > Angel Hugs, > Diane > > May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Glad to hear it. Let it be a comfort to you that have given an old man a wonderful gift, even though he may not have the capacity to realize it. -dz- --- <ralexan@...> wrote: > Thanks Dave > > He can really be a handful, but we are getting by so > far > > > [ ] HELLO THERE > > > > > > > > > Hey to all..It is 9:15 pm and I feel all alone > in > > > here tonight..Everyone is busy I guess...I just > > > wanted you to know that I am thinking of > > > everyone..Dave...enjoy your > > > weekend........Talk more in here..I enjoy > > > hearing from you...Diane...where are you at?? > Did I > > > miss you saying you would be somewhere and > that's > > > why you aren't on?? Dennis!!! Where are you > at?? > > > Vicky...I hope all is ok with you....Terri...I > hope > > > you are feeling better..Ok everyone get in touch > > > ok... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Have you contacted his family yet??? Becareful and remember you need to think of yourselves also.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Hi Jan We have been taking care of him for 4 years. It has only been in the last 2 or 3 months that his health has started to decline. It wouldn't be so bad if we could get him to stay in bed like he is supposed to. Every time he gets up he falls and My wife or I have to lift him back to the bed. We don't get paid for taking care of him at all. we do it just to be kind. I'm beginning to worry that one of us will hurt our backs trying to lift him. Re: [ ] HELLO THERE how long have you been taking care of him..If you don't mind my asking...They can be a handful and you are right.Maybe you should contact his family...I know you and your wife are doing your best...Keep being patient and strong..We are here anytime you need us ok?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 That is so sad ..You know it is pitiful when a parent lives to be a ripe old age and what do they have to show for it?? Their family doesn't even care..It's like my daughter and I..She hasn't spoken to me in almost 2 years and when she has called it is to curse and try to degrade me..I was there for all of her life through good and bad and now she would rather me disappear off the face of the earth..What happens to our children..My father gave me away when I was 2 years old but you bet I was here for him in the end no matter what our differences were...He was able to see his grandchildren where i am not allowed to...My prayers are with you and your wife... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 His son doesn't seem to be too concerned. Re: [ ] HELLO THERE Have you contacted his family yet??? Becareful and remember you need to think of yourselves also.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 I'm sorry if I seemed out of line ..I didn't mean to talk about something i don't know..I do know what I have seen from those in nursing homes and such and it is just so sad... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Hi Jan At least his son comes down to visit at least once a year. I'm not sure that he really doesn't care. I think he just doesn't want to make an extra trip from Michigan if he doesn't have to. His health hasn't been very good the last couple of years either. Re: [ ] HELLO THERE That is so sad ..You know it is pitiful when a parent lives to be a ripe old age and what do they have to show for it?? Their family doesn't even care..It's like my daughter and I..She hasn't spoken to me in almost 2 years and when she has called it is to curse and try to degrade me..I was there for all of her life through good and bad and now she would rather me disappear off the face of the earth..What happens to our children..My father gave me away when I was 2 years old but you bet I was here for him in the end no matter what our differences were...He was able to see his grandchildren where i am not allowed to...My prayers are with you and your wife... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 thankyou but I have been having stomach pains for the past 2 days..Don't know what it is and have been very depressed lately..Personal problems...I think it's my nerves causing the pains..Hubby is causing the depression..I'm not going to burden the group with all the details just going to say it could be a whole lot better...Thanks for listening.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Jan You were not out of line at all. I don't like the way people are treated at nursing homes. It's a shame that most of them are put there and their family just abandons them. Many of the employees don't care much either. I hope that you are feeling good today. Re: [ ] HELLO THERE I'm sorry if I seemed out of line ..I didn't mean to talk about something i don't know..I do know what I have seen from those in nursing homes and such and it is just so sad... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 I had bad stomach pains for 4 days, yesterday I finally started feeling a little better. I'm sorry to hear of the problems on the domestic front, I hope that you're able to work things out. Feel free to share anything you feel comfortable with. -dz- --- Jannewilms42@... wrote: > thankyou but I have been having stomach pains > for the past 2 > days..Don't know what it is and have been very > depressed lately..Personal > problems...I think it's my nerves causing the > pains..Hubby is causing the > depression..I'm not going to burden the group with > all the details just going > to say it could be a whole lot better...Thanks for > listening.. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Dave thanks..I appreciate it..I probably will at a later time..I'm too upset right now.. Quote Link to comment Share on other sites More sharing options...
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