RE: [SPAM]Re: Back to Square One

[Guest guest]

Will you be talking to the news crew before they come on

Thursday? If so, perhaps you can let them know that you don’t have

anything favourable to say about the company.

Molly

Novato, California

Nicolas, 3, tort & plagio, STARband (CIRS Oakland)

4/24/06-9/12/06, Graduate!

, 5.5

, 9

From: Plagiocephaly

[mailto:Plagiocephaly ] On Behalf Of L R

Sent: 14 October 2008 11:25

Plagiocephaly

Subject: [sPAM]Re: Back to Square One

,

We saw Dr. Terpenning on Friday and he told us that the

news crew should be contacting us sometimes this week. They will be in

his office on Thursday.

What would you do if you were in my shoes. I am so

ready to have them come over still and then tell them what's really been

going on...

Leila

From:

<nwilkens2275@...>

Subject: Re: Back to Square One

Plagiocephaly

Date: Tuesday, October 14, 2008, 2:17 PM

I totally forgot about the

news story! Leila, did that already

happen?

Jake-2 (DOCBand Grad 9/19/08)

Jordan-4.5

> From: L R <leilarem@.. .>

> Subject: Back to Square One

> Plagiocephaly@

groups. com

> Date: Monday, October 13, 2008, 7:32 PM

>

>

>

>

>

>

>

>

>

>

>

> Hello, it's me and we are back to square one.

>

> I don't know how much to write about it, I am so drained. For the

past two months I've had my doubts about the " progress " Maysa was

making in her helmet. For one, her ortho kept messing with her

beginning numbers every time we would go for a visit. What I

noticed just from looking at her and comparing her to her sister is

that although she grew a bit in the back, she also seemed to grow on

the sides. She mainly has brachy with a little plagio.

>

> Of course DH thinks I am impatient as usual. Of course he doesn't

see what I see. Of course he thinks that the ortho knows what

he is

doing and that we should just wait and see. Well I was off today

and last week, I decided to make an appointment and go back to

Orthoamerica in Columbia MD where Maysa had gotten an evaluation

scan of her head three and a half months ago.

>

> I will have to post the print out they gave me. It makes me sick

in my stomach. Maysa had amazing growth spurts during this time,

yet, she basically grew all around. Yes, on the sides, in the back

even a little bit up front. Her CI went from 97.9% to 98.2%. Her

asymmetry also went up by 1mm or so. I am infuriated beyond words.

>

> She will be 9 months old on Wednesday. She is a big baby and her

head circumference is already 48cm. The ortho we saw today said

that the average baby's head circumference is about 49mm which means

that a new band from a new provider would probably not do much

correction. She grew almost 4cm in circumference in three and a

half months. All wasted. I am so desperate.

>

> Somebody lift me up! Somebody tell me there is still time to do

something! Anybody out there going to Eastern Cranial Affiliates,

beware!

>

> Leila

>

[Guest guest]

Take care of you first!!!!!! Talk about prevention and all the helmet manufacturers, you can still produce a good message that people can take something away from. Call that ECA place and demand a full cash refund or you will expose that number fudging Orthotist for what he is on TV!!! I see this as a hand to play to your advantage.Mom to Elijah DOC Band Grad & undergoing CST

From:

<nwilkens2275>

Subject: Re: Back to Square One

Plagiocephaly

Date: Tuesday, October 14, 2008, 2:17 PM

I totally forgot about the

news story! Leila, did that already

happen?

Jake-2 (DOCBand Grad 9/19/08)

Jordan-4.5

> From: L R <leilarem@.. .>

> Subject: Back to Square One

> Plagiocephaly@

groups. com

> Date: Monday, October 13, 2008, 7:32 PM

>

>

>

>

>

>

>

>

>

>

>

> Hello, it's me and we are back to square one.

>

> I don't know how much to write about it, I am so drained. For the

past two months I've had my doubts about the "progress" Maysa was

making in her helmet. For one, her ortho kept messing with her

beginning numbers every time we would go for a visit. What I

noticed just from looking at her and comparing her to her sister is

that although she grew a bit in the back, she also seemed to grow on

the sides. She mainly has brachy with a little plagio.

>

> Of course DH thinks I am impatient as usual. Of course he doesn't

see what I see. Of course he thinks that the ortho knows what

he is

doing and that we should just wait and see. Well I was off today

and last week, I decided to make an appointment and go back to

Orthoamerica in Columbia MD where Maysa had gotten an evaluation

scan of her head three and a half months ago.

>

> I will have to post the print out they gave me. It makes me sick

in my stomach. Maysa had amazing growth spurts during this time,

yet, she basically grew all around. Yes, on the sides, in the back

even a little bit up front. Her CI went from 97.9% to 98.2%. Her

asymmetry also went up by 1mm or so. I am infuriated beyond words.

>

> She will be 9 months old on Wednesday. She is a big baby and her

head circumference is already 48cm. The ortho we saw today said

that the average baby's head circumference is about 49mm which means

that a new band from a new provider would probably not do much

correction. She grew almost 4cm in circumference in three and a

half months. All wasted. I am so desperate.

>

> Somebody lift me up! Somebody tell me there is still time to do

something! Anybody out there going to Eastern Cranial Affiliates,

beware!

>

> Leila

>

[Guest guest]

On Thursday they will go to his office. They haven't contacted us yet so I don't know when they are planning on seeing us. I sure won't have anything favorable to say about ECA.

From: <nwilkens2275>Subject: Re: Back to Square OnePlagiocephalyDate: Tuesday, October 14, 2008, 2:17 PM

I totally forgot about the news story! Leila, did that already happen? Jake-2 (DOCBand Grad 9/19/08)Jordan-4.5> From: L R <leilarem@.. .>> Subject: Back to Square One> Plagiocephaly> Date: Monday, October 13, 2008, 7:32 PM> > > > > > > > > > > > Hello, it's me and we are back to square one. > > I don't know how much to write about it, I am so drained. For the past two months I've had my doubts about the "progress" Maysa was making in her helmet. For one, her ortho kept messing with her beginning numbers every time we would go for a visit. What I noticed just from looking at her and comparing her to her sister is that although she grew a bit in the back, she also seemed to grow on the sides. She mainly has brachy with a little plagio.> > Of course DH thinks I am impatient as usual. Of course he doesn't see what I see. Of

course he thinks that the ortho knows what he is doing and that we should just wait and see. Well I was off today and last week, I decided to make an appointment and go back to Orthoamerica in Columbia MD where Maysa had gotten an evaluation scan of her head three and a half months ago. > > I will have to post the print out they gave me. It makes me sick in my stomach. Maysa had amazing growth spurts during this time, yet, she basically grew all around. Yes, on the sides, in the back even a little bit up front. Her CI went from 97.9% to 98.2%. Her asymmetry also went up by 1mm or so. I am infuriated beyond words.> > She will be 9 months old on Wednesday. She is a big baby and her head circumference is already 48cm. The ortho we saw today said that the average baby's head circumference is about 49mm which means

that a new band from a new provider would probably not do much correction. She grew almost 4cm in circumference in three and a half months. All wasted. I am so desperate.> > Somebody lift me up! Somebody tell me there is still time to do something! Anybody out there going to Eastern Cranial Affiliates, beware!> > Leila >