Aiden has Graduated!!!!

[Guest guest]

Hi everyone,

It's been a long (and at times very frustrating!!!) haul. Aiden was

born on November 18, 2006 with severe Plagio (5 weeks premature). The

end of May 2007 he was fitted with his first helmet with a cephalic

index of 116. At first he received some really good correction; I

believe his cephalic index went down to 96, but by

August/September/October absolutely no more improvements. His ortho

(one of 3 that we saw alternately) pointed to the growth chart and

said: " You can't expect much improvement anymore at his age " . Early

November 2007 he was fitted with his second helmet. It was an

absolute disaster: red spots, squished eyes and ears, rotating on his

head. It was so bad, that I questioned if maybe we had received some

other baby's helmet. At his appointment on January 3, 2008, the

clinician pronounced him " graduated " and advised to " just keep his

hair longer, don't give him a buzz cut..... " . Well, by that point he

would simply pull his ill-fitting helmet off his head, so there was no

more hope for help at the local orthotic lab.

January went by February and my heart was just breaking looking at his

little head that was just so terribly disproportioned. Early March we

took some pictures and sent them to Cranial Technologies in Oakbrook

Gerrace, Illinois; quite a distance for us, since we live in St.

Louis, Missouri.

So, to make a long story short, our first trip to Oakbrook was on the

31 March, first helmet fitting on the 14th of April and now he has

GRADUATED. His improvements are remarkable - all the 'corners' (for a

lack of a better description) have been 'knocked off'. Before, it

seemed like his head had angles everywhere, now it is nice and rounded

and I don't believe that anyone who does not know about Plagio will

notice the remaining imperfection. No, his head is not 'perfect', but

we did not expect or try to achieve that at his age. What has been

achieved is a nice little-boy-looking rounded out head.

So, now I come to thank all who have inspired us to go forward to

achieve what seems like a miracle for out little guy.

All the members and moderators who gave advice and guided us in the

right direction.

Ginny and the wonderful staff at Oakbrook Terrace who gave our little

boy his wonderful looking head and lovingly worked with us.

The people at Angelflight Central and all the amazing pilots who flew

us to appointments.

Two friends who endured the trip by car twice with me (six hours each

way with a toddler is a loooong trip).

So, once again, thank you all,

Heidrun,

Aiden's proud Grandma

Postscript: There will be a posting forthcoming featuring Abbey,

Aiden's little sister, but she deserves her own page.

[Guest guest]

Heidrun,

I'm so glad to see this graduation announcement!! I'm really glad you

and your daughter persevered and got a Docband for Aiden. I'm really

looking forward to seeing his pictures. Congratulations!

-christine

sydney 2.5 yrs starband grad

>

> Hi everyone,

> It's been a long (and at times very frustrating!!!) haul. Aiden was

> born on November 18, 2006 with severe Plagio (5 weeks premature). The

> end of May 2007 he was fitted with his first helmet with a cephalic

> index of 116. At first he received some really good correction; I

> believe his cephalic index went down to 96, but by

> August/September/October absolutely no more improvements. His ortho

> (one of 3 that we saw alternately) pointed to the growth chart and

> said: " You can't expect much improvement anymore at his age " . Early

> November 2007 he was fitted with his second helmet. It was an

> absolute disaster: red spots, squished eyes and ears, rotating on his

> head. It was so bad, that I questioned if maybe we had received some

> other baby's helmet. At his appointment on January 3, 2008, the

> clinician pronounced him " graduated " and advised to " just keep his

> hair longer, don't give him a buzz cut..... " . Well, by that point he

> would simply pull his ill-fitting helmet off his head, so there was no

> more hope for help at the local orthotic lab.

> January went by February and my heart was just breaking looking at his

> little head that was just so terribly disproportioned. Early March we

> took some pictures and sent them to Cranial Technologies in Oakbrook

> Gerrace, Illinois; quite a distance for us, since we live in St.

> Louis, Missouri.

> So, to make a long story short, our first trip to Oakbrook was on the

> 31 March, first helmet fitting on the 14th of April and now he has

> GRADUATED. His improvements are remarkable - all the 'corners' (for a

> lack of a better description) have been 'knocked off'. Before, it

> seemed like his head had angles everywhere, now it is nice and rounded

> and I don't believe that anyone who does not know about Plagio will

> notice the remaining imperfection. No, his head is not 'perfect', but

> we did not expect or try to achieve that at his age. What has been

> achieved is a nice little-boy-looking rounded out head.

> So, now I come to thank all who have inspired us to go forward to

> achieve what seems like a miracle for out little guy.

> All the members and moderators who gave advice and guided us in the

> right direction.

> Ginny and the wonderful staff at Oakbrook Terrace who gave our little

> boy his wonderful looking head and lovingly worked with us.

> The people at Angelflight Central and all the amazing pilots who flew

> us to appointments.

> Two friends who endured the trip by car twice with me (six hours each

> way with a toddler is a loooong trip).

> So, once again, thank you all,

> Heidrun,

> Aiden's proud Grandma

>

> Postscript: There will be a posting forthcoming featuring Abbey,

> Aiden's little sister, but she deserves her own page.

>

[Guest guest]

Congratulations!!!!!!!! I hope you will show before and after pictures.

Angie

Aiden has Graduated!!!!

Hi everyone,It's been a long (and at times very frustrating!!!) haul. Aiden wasborn on November 18, 2006 with severe Plagio (5 weeks premature). Theend of May 2007 he was fitted with his first helmet with a cephalicindex of 116. At first he received some really good correction; Ibelieve his cephalic index went down to 96, but byAugust/September/October absolutely no more improvements. His ortho(one of 3 that we saw alternately) pointed to the growth chart andsaid: "You can't expect much improvement anymore at his age". EarlyNovember 2007 he was fitted with his second helmet. It was anabsolute disaster: red spots, squished eyes and ears, rotating on hishead. It was so bad, that I questioned if maybe we had received someother baby's helmet. At his appointment on January 3, 2008, theclinician pronounced him "graduated" and advised to "just keep hishair longer, don't give him a buzz cut.....". Well, by that point hewould simply pull his ill-fitting helmet off his head, so there was nomore hope for help at the local orthotic lab.January went by February and my heart was just breaking looking at hislittle head that was just so terribly disproportioned. Early March wetook some pictures and sent them to Cranial Technologies in OakbrookGerrace, Illinois; quite a distance for us, since we live in St.Louis, Missouri.So, to make a long story short, our first trip to Oakbrook was on the31 March, first helmet fitting on the 14th of April and now he hasGRADUATED. His improvements are remarkable - all the 'corners' (for alack of a better description) have been 'knocked off'. Before, itseemed like his head had angles everywhere, now it is nice and roundedand I don't believe that anyone who does not know about Plagio willnotice the remaining imperfection. No, his head is not 'perfect', butwe did not expect or try to achieve that at his age. What has beenachieved is a nice little-boy-looking rounded out head.So, now I come to thank all who have inspired us to go forward toachieve what seems like a miracle for out little guy.All the members and moderators who gave advice and guided us in theright direction.Ginny and the wonderful staff at Oakbrook Terrace who gave our littleboy his wonderful looking head and lovingly worked with us.The people at Angelflight Central and all the amazing pilots who flewus to appointments.Two friends who endured the trip by car twice with me (six hours eachway with a toddler is a loooong trip).So, once again, thank you all,Heidrun,Aiden's proud GrandmaPostscript: There will be a posting forthcoming featuring Abbey,Aiden's little sister, but she deserves her own page.