Re: Pediatrician and Neuro surgeon are not ready to give prescription f

[Guest guest]

Yes, I think it is worth switching your ped if needed. You don't want

to regret it later when you can't fix his head. It is really

frustrating how ignorand many docs are about banding and plagio.

You've been working on this one way or another for 4.5 mo - that is

long enough, it is time for a band!

-christine

sydney 2.5 yrs starband grad

> From: Sandy Ruff <sandysruff (DOT) com>

> Subject: Re: Pediatrician and Neuro surgeon are not ready

to give prescription for Helmet

> Plagiocephaly

> Date: Wednesday, August 13, 2008, 3:39 AM

>

> I am so sorry! What city are you in? If you are close to a Cranial

Technologies, I would suggest going for a free evaluation. They will

provide a photo study and measurements you can give to both your neuro

and ped. Perhaps the numbers and photos would convince them to

provide the referral. If not, I would ask Cranial Tech (or whatever

clinic you are close to - Star,

> Hanger, etc) for a list of a few pediatricians in your area who

have made previous referrals - and then I would SWITCH!

>

> You are doing the right thing by being a strong advocate for your

child. It sounds as though you have a couple of " old school " doctors

who believe the head will round itself out on its own. I believe this

may have been true twenty years ago when babies slept on

> their tummies most of the time, but I sadly hear case after case of

parents who were told it would remedy itself - and then it didn't.

Just tonight we were in a restaurant and a family stopped us to say

they were happy we had our baby in a band - because they listened to

their pediatrician and now it's too late to correct their son's flat head.

>

> Please list your city and perhaps someone else on this board can

refer you to their pediatrician so you can get the referral you need.

>

> Kindly,

> Sandy

> mom to Lyla - 8 months (10 weeks in DocBand)

> and Owen 4

>

> Pediatrician and Neuro surgeon are not ready to

give prescription for Helmet

>

> Hi

>

>

> My 6 1/2 month son has very bad flat head on his back and also has

>

> some flatness on his right side. We noticed it when he was 2 months

>

> old. Our pediatrician asked me to do aggressive repositioning . At

>

> that time, I was completely ignorant of this flat head problem and

>

> could not do aggressive repositioning. But I made sure he was not on

>

> his back in the day time. My baby started sleeping through the nights

>

> from his second month itself and this increased his flat head a lot.

>

> At his 4th month check up, the pediatrician referred him to a neuro

>

> surgeon. The neuro surgeon asked us to reposition the baby's head and

>

> see if it changes anything . We have been repositioning him at night

>

> times too. I have been making him sleep on his left side .

>

>

> Now he is 61/2 months old and we don't see any significant change in

>

> his head shape. He has severe flat head on the back and some flatness

>

> on the right. So we asked the neuro surgeon to give prescription for a

>

> helmet hoping that we will get our baby start on helmet ASAP and he

>

> would have a nice round head in 3-4 months. To our surprise, the neuro

>

> surgeon is not ready to put the baby on helmet. Moreover he says by

>

> the time the baby goes to school, the flat head would be unnoticeable.

>

> We are not convinced with it because he has severe flat head. So I

>

> contacted my pediatrician hoping she will understand and give

>

> prescription for helmet. But she said she would not do that and asked

>

> me to contact the neuro surgeon again to see he if he will agree this

>

> time. This is so frustrating .

>

>

> I don't have any family here for support . I am really frustrated and

>

> depressed. I want to do what ever I can do for my baby to help with

>

> his flat head. Has any of you guys ever had such a situation? Any

>

> advise would be very helpful.

>

>

> Thanks

>

[Guest guest]

my daughter got her band with a CI of 97% and was 85% at graduation.

Not perfect,but okay. With brachy the extra width/height doesn't go

away. You should get good results too, but you do need to band soon.

You can see Sydneys pics in Our Plagio Babies S/Sydney M.

-christine

Sydney 2.5 yrs starband grad

> From:

> Sandy Ruff <sandysruff@...>

>

> Subject: Re: Pediatrician and Neuro surgeon are not

ready to give

> prescription for Helmet

>

> Plagiocephaly

>

> Date: Wednesday, August 13, 2008, 3:39 AM

>

>

>

> I am so sorry! What city are you in? If you are close to

> a Cranial Technologies, I would suggest going for a free

evaluation.

> They will provide a photo study and measurements you can give to

both your

> neuro and ped. Perhaps the numbers and photos would convince

them to

> provide the referral. If not, I would ask Cranial Tech (or whatever

> clinic you are close to - Star, Hanger, etc) for a list of a few

> pediatricians in your area who have made previous referrals -

and then I

> would SWITCH!

>

>

>

> You are doing the right thing by being a strong advocate for your

> child. It sounds as though you have a couple of " old

> school " doctors who believe the head will round itself out on its

> own. I believe this may have been true twenty years ago when babies

> slept on their tummies most of the time, but I sadly hear case

after case

> of parents who were told it would remedy itself - and then it

didn't.

> Just tonight we were in a restaurant and a family stopped us to

say they

> were happy we had our baby in a band - because they listened to

their pediatrician

> and now it's too late to correct their son's flat head.

>

>

>

> Please list your city and perhaps someone else on this board can

refer you

> to their pediatrician so you can get the referral you need.

>

>

>

> Kindly,

>

> Sandy

>

> mom to Lyla - 8 months (10 weeks in DocBand)

>

> and Owen 4

>

>

>

>

> -----

> Original Message ----

>

> From: chandamamanunenu <chandamamanunenu@...>

>

> Plagiocephaly

>

> Sent: Tuesday, August 12, 2008 10:09:31 PM

>

> Subject: Pediatrician and Neuro surgeon are not ready

to give

> prescription for Helmet

>

> Hi

>

>

>

> My 6 1/2 month son has very bad flat head on his back and also has

>

> some flatness on his right side. We noticed it when he was 2 months

>

> old. Our pediatrician asked me to do aggressive repositioning . At

>

> that time, I was completely ignorant of this flat head problem and

>

> could not do aggressive repositioning. But I made sure he was not on

>

> his back in the day time. My baby started sleeping through the

nights

>

> from his second month itself and this increased his flat head a lot.

>

> At his 4th month check up, the pediatrician referred him to a neuro

>

> surgeon. The neuro surgeon asked us to reposition the baby's

head and

>

> see if it changes anything . We have been repositioning him at night

>

> times too. I have been making him sleep on his left side .

>

>

>

> Now he is 61/2 months old and we don't see any significant change in

>

> his head shape. He has severe flat head on the back and some

flatness

>

> on the right. So we asked the neuro surgeon to give prescription

for a

>

> helmet hoping that we will get our baby start on helmet ASAP and he

>

> would have a nice round head in 3-4 months. To our surprise, the

neuro

>

> surgeon is not ready to put the baby on helmet. Moreover he says by

>

> the time the baby goes to school, the flat head would be

unnoticeable.

>

> We are not convinced with it because he has severe flat head. So I

>

> contacted my pediatrician hoping she will understand and give

>

> prescription for helmet. But she said she would not do that and

asked

>

> me to contact the neuro surgeon again to see he if he will agree

this

>

> time. This is so frustrating .

>

>

>

> I don't have any family here for support . I am really

frustrated and

>

> depressed. I want to do what ever I can do for my baby to help with

>

> his flat head. Has any of you guys ever had such a situation? Any

>

> advise would be very helpful.

>

>

>

> Thanks

>

[Guest guest]

Chanda,

Your baby's measurement are kind of similar to my daughter's. Maysa was banded at 5 1/2 months with a CI of 100% and an asymmetry of 7mm. After 4 weeks of treatment, her CI went down to 96.6% and her asymmetry down to 3.29mm. She still has a long way to go but it is working. I know that her head is starting to fill out the helmet (our helmet has holes in the back so I can insert a Q-tip and see how much more she needs to grow and the distance is getting shorter and shorter). Maysa will be 7 months old tomorrow and I have no doubt that she will improve even more by her next scan in about two weeks from now.

So, good luck banding your baby and seeing results.

Leila, mother to Maysa 7 months old, 1 month and a half in ECA helmet

From: christineashok <christineashok@...>Subject: Re: Pediatrician and Neuro surgeon are not ready to give prescription fPlagiocephaly Date: Thursday, August 14, 2008, 4:05 AM

my daughter got her band with a CI of 97% and was 85% at graduation.Not perfect,but okay. With brachy the extra width/height doesn't goaway. You should get good results too, but you do need to band soon.You can see Sydneys pics in Our Plagio Babies S/Sydney M.-christineSydney 2.5 yrs starband grad > From:> Sandy Ruff <sandysruff@ ...>> > Subject: Re: Pediatrician and Neuro surgeon are notready to give> prescription for Helmet> > Plagiocephaly> > Date: Wednesday, August 13, 2008, 3:39 AM > > > > I am so sorry! What city are you in? If you are close to> a Cranial Technologies, I would suggest going for a freeevaluation. > They will provide a photo study and measurements you can give toboth your> neuro and ped. Perhaps the numbers and photos would convincethem to> provide the referral. If not, I would ask Cranial Tech (or whatever> clinic you are close to - Star, Hanger, etc) for a list of a few> pediatricians in your area who have made previous

referrals -and then I> would SWITCH!> > > > You are doing the right thing by being a strong advocate for your> child. It sounds as though you have a couple of "old> school" doctors who believe the head will round itself out on its> own. I believe this may have been true twenty years ago when babies> slept on their tummies most of the time, but I sadly hear caseafter case> of parents who were told it would remedy itself - and then itdidn't. > Just tonight we were in a restaurant and a family stopped us tosay they> were happy we had our baby in a band - because they listened totheir pediatrician> and now it's too late to correct their son's flat head.> > > > Please list your city and perhaps someone else on this board canrefer you> to their pediatrician so you can get the referral you need.> >

> > Kindly,> > Sandy> > mom to Lyla - 8 months (10 weeks in DocBand)> > and Owen 4 > > > > > -----> Original Message ----> > From: chandamamanunenu <chandamamanunenu@ ...>> > Plagiocephaly> > Sent: Tuesday, August 12, 2008 10:09:31 PM> > Subject: Pediatrician and Neuro surgeon are not readyto give> prescription for Helmet > > Hi > > > > My 6 1/2 month son has very bad flat head on his back and also has> > some flatness on his right side. We noticed it when he was 2 months> > old. Our pediatrician asked me to do aggressive repositioning . At> > that time, I was completely ignorant of this flat

head problem and> > could not do aggressive repositioning. But I made sure he was not on> > his back in the day time. My baby started sleeping through thenights> > from his second month itself and this increased his flat head a lot.> > At his 4th month check up, the pediatrician referred him to a neuro> > surgeon. The neuro surgeon asked us to reposition the baby'shead and> > see if it changes anything . We have been repositioning him at night> > times too. I have been making him sleep on his left side . > > > > Now he is 61/2 months old and we don't see any significant change in> > his head shape. He has severe flat head on the back and someflatness> > on the right. So we asked the neuro surgeon to give prescriptionfor a> > helmet hoping that we will get our baby start on

helmet ASAP and he> > would have a nice round head in 3-4 months. To our surprise, theneuro> > surgeon is not ready to put the baby on helmet. Moreover he says by> > the time the baby goes to school, the flat head would beunnoticeable.> > We are not convinced with it because he has severe flat head. So I> > contacted my pediatrician hoping she will understand and give> > prescription for helmet. But she said she would not do that andasked> > me to contact the neuro surgeon again to see he if he will agreethis> > time. This is so frustrating . > > > > I don't have any family here for support . I am reallyfrustrated and> > depressed. I want to do what ever I can do for my baby to help with> > his flat head. Has any of you guys ever had such a situation? Any>

> advise would be very helpful. > > > > Thanks>

[Guest guest]

Hi Chanda,

I wanted to mention something else about " severe " brachy. I have heard

the numbers Molly mentioned, but our doctor (cranio facial plastic

surgeon) recommends banding at 90% or above. So Although 88% is

considered " severe " by some, it doesn't mean that everyone agrees. I

think brachy is becoming more common with back sleeping, and doctors

don't necessarily agree about when it needs to be treated.

I would band at 100%, but don't wanted to give you a little more data.

-christine

sydney 2.5 yrs starband grad

> From:

> Sandy Ruff <sandysruff@...>

>

> Subject: Re: Pediatrician and Neuro surgeon are not

ready to give

> prescription for Helmet

>

> Plagiocephaly

>

> Date: Wednesday, August 13, 2008, 3:39 AM

>

>

>

> I am so sorry! What city are you in? If you are close to

> a Cranial Technologies, I would suggest going for a free

evaluation.

> They will provide a photo study and measurements you can give to

both your

> neuro and ped. Perhaps the numbers and photos would convince

them to

> provide the referral. If not, I would ask Cranial Tech (or whatever

> clinic you are close to - Star, Hanger, etc) for a list of a few

> pediatricians in your area who have made previous referrals -

and then I

> would SWITCH!

>

>

>

> You are doing the right thing by being a strong advocate for your

> child. It sounds as though you have a couple of " old

> school " doctors who believe the head will round itself out on its

> own. I believe this may have been true twenty years ago when babies

> slept on their tummies most of the time, but I sadly hear case

after case

> of parents who were told it would remedy itself - and then it

didn't.

> Just tonight we were in a restaurant and a family stopped us to

say they

> were happy we had our baby in a band - because they listened to

their pediatrician

> and now it's too late to correct their son's flat head.

>

>

>

> Please list your city and perhaps someone else on this board can

refer you

> to their pediatrician so you can get the referral you need.

>

>

>

> Kindly,

>

> Sandy

>

> mom to Lyla - 8 months (10 weeks in DocBand)

>

> and Owen 4

>

>

>

>

> -----

> Original Message ----

>

> From: chandamamanunenu <chandamamanunenu@...>

>

> Plagiocephaly

>

> Sent: Tuesday, August 12, 2008 10:09:31 PM

>

> Subject: Pediatrician and Neuro surgeon are not ready

to give

> prescription for Helmet

>

> Hi

>

>

>

> My 6 1/2 month son has very bad flat head on his back and also has

>

> some flatness on his right side. We noticed it when he was 2 months

>

> old. Our pediatrician asked me to do aggressive repositioning . At

>

> that time, I was completely ignorant of this flat head problem and

>

> could not do aggressive repositioning. But I made sure he was not on

>

> his back in the day time. My baby started sleeping through the

nights

>

> from his second month itself and this increased his flat head a lot.

>

> At his 4th month check up, the pediatrician referred him to a neuro

>

> surgeon. The neuro surgeon asked us to reposition the baby's

head and

>

> see if it changes anything . We have been repositioning him at night

>

> times too. I have been making him sleep on his left side .

>

>

>

> Now he is 61/2 months old and we don't see any significant change in

>

> his head shape. He has severe flat head on the back and some

flatness

>

> on the right. So we asked the neuro surgeon to give prescription

for a

>

> helmet hoping that we will get our baby start on helmet ASAP and he

>

> would have a nice round head in 3-4 months. To our surprise, the

neuro

>

> surgeon is not ready to put the baby on helmet. Moreover he says by

>

> the time the baby goes to school, the flat head would be

unnoticeable.

>

> We are not convinced with it because he has severe flat head. So I

>

> contacted my pediatrician hoping she will understand and give

>

> prescription for helmet. But she said she would not do that and

asked

>

> me to contact the neuro surgeon again to see he if he will agree

this

>

> time. This is so frustrating .

>

>

>

> I don't have any family here for support . I am really

frustrated and

>

> depressed. I want to do what ever I can do for my baby to help with

>

> his flat head. Has any of you guys ever had such a situation? Any

>

> advise would be very helpful.

>

>

>

> Thanks

>