Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Kay, What a fantastic letter. I feel you shared your experience in a thoughtful and responsible manner and the ultimate conclusion that I come to, is that because someone has a bad or good experience, it does not insure that my experience will be the same. I have recently gone through a similar situation in the way that my insurance papers were handled by my surgeons office. I guess the correct statement was how my insurance papers were never handled. Upon discovering that nothing had been done in the promised timeframe, I was then threatened and told I would be put at the bottom of all pending surgical requests. This was my experience, and I left that practice because working with those in charge corrected nothing. Since then, the situation has changed and hopefully, new patients will never experience what I and many others did because we had the " balls " or is that temerity, in polite circles, to speak up. I do not take anything away from those who were treated wonderfully. They SHOULD have been. However, the flame war that started because I shared my experience was enlightening. Somehow, I feel recent actions on behalf of my prior surgeon have vindicated me. Regardless, ultimately, I feel what happened to me was meant to be, because my current surgeon and his practice have reduced my anxiety level to zero, just in their efficiency, " bedside manner " and reliability. Thank you for sharing your story. The moral is, we are all entitled to a little support, and your experience does not invalidate mine and vice a versa. Hugs, theresa > This will be a long-winded post, because I've had two DS surgeons, > both of whom have generated some controversy. > > I've been bemused in recent months to see that both the surgeons with > whom I signed up for the operation–Hazem Elariny and > Ren–have proved to be less than committed to the BPD/DS. They're > both young surgeons who are still carving out identities for their > practices. Elariny seems uncomfortable with malabsorption as a means > to weight loss, as he is persuading more and more of those who come > to him for the BPD/DS to opt for Elariny's stand-alone sleeve > gastrectomy instead. Ren has become a proponent of the Lap Band > since the FDA approved that procedure recently. I thought that meant > that she too was beginning to prefer purely restrictive procedures to > malabsorptive ones, until the recent news that she's embracing the > BPD without the DS. > > Many people have asked me how I came to switch from Elariny to Ren. > Last winter, on the night before my scheduled BPD/DS, Elariny called > me at home to tell me that he had just reviewed the pre-op tests I > had taken nearly two weeks earlier. Though I had no history of heart > trouble, the EKG disclosed that I was a possible candidate for open- > heart surgery, he said. While I was still recovering from the shock > of this, Elariny went on that if by chance I got to have my operation > the next day, I'd have to agree to have it open, rather than lap, > because of adhesions. (I had had one previous abdominal surgery, so > I didn't realize until later in the conversation that he'd confused > me with a patient who'd had three Caesarean sections.) If I insisted > on having it done lap, Elariny said, I'd have to be willing to wake > up with " just the top " of the operation done–which was my > introduction to Elariny's stand-alone sleeve gastrectomy. He tried > to sell it to me as a " superior " operation to the DS, but I was in no > shape to process the information. > > Having received lots of sweet e-mails from fellow members of AMOS > wishing me well, I thought it was only fair that I let them know that > my surgery was canceled the next day as I lay on the table (Elariny > did not show up at the hospital, choosing to deal with the > anesthesiologist and the cardiologist by phone instead). It was > the " surgery canceled " post to AMOS that brought about my parting > from Elariny. He didn't appreciate my telling other pre-ops that he > had waited until the night before my surgery to review the pre-op > tests, and told me to find myself another surgeon. (He had also, by > the way, left me on my own, without map, suggestion, or referral, to > figure out whether in fact I had a heart problem. A stress test by a > cardiologist found no abnormality and cleared me for surgery, meaning > that had Elariny looked at my tests even a few days earlier, my > operation could have proceeded on schedule.) > > What continues to baffle me is the reaction of my fellow Elariny > patients to my news about Elariny. Many of the same people who had > embraced me so warmly before, with the empathy that is so evident on > this list and others, now attacked me–there's no other word for > it–for saying such mean things about their savior. Elariny > couldn't have acted like that, spoken like that; I must be a liar, I > must be crazy. I was called a psycho on more than one Internet > site. A member of this list with whom I had commiserated in a > private e-mail used the matter as an excuse to betray a confidence. > And then there were those who lined up to " take credit " for blowing > the whistle on me. Each Elariny loyalist was serenely certain that > it was her exposure of the " incriminating " Internet posting that had > put me out on the street to find another surgeon. I suppose they all > must have wanted me to post their names publicly, so that they could > win the applause of their fellow Elariny devotees. I denied them the > publicity; I didn't even respond to their e-mails. I simply deleted > their messages and blocked their addresses. > > This surgery is no mere operation; it's the Holy Grail. Between the > night of Elariny's dire pronouncement and the day I was cleared for > surgery, I daydreamed about digging my " defective " heart out of my > chest with a dull knife (if it was keeping me from having the > surgery, I wanted to be rid of it). How could anyone believe that I > had just " made up " a set of circumstances that caused me to have to > start this emotionally draining process all over again? > > I was ready to go to Dr. Baltasar in Spain on a raft if I had to, > rather than get in line for another U.S. surgeon. Dr. Ren's office > penciled me in immediately, and for that and much more I am and will > remain grateful to her. Some will say I should I have waited for a > more experienced surgeon, and maybe they're right; but at that point, > waiting was intolerable. To those who poo-poo the importance of > bedside manner, I must say that the warmth and empathy that my family > and I found in her was therapy in itself, a huge factor in getting us > all to and through the surgery. And the BPD/DS she performed on me > would appear at this point to be flawless. At nearly eight months > post-op, I have had no pains, no gastrointestinal distress, no > vitamin or mineral deficiencies, no problems of any sort, and my > weight loss is proceeding on schedule. > > Deb Mullen's surgery with Dr. Ren preceded mine, but I heard nothing > of her difficulties until well afterward. I'm not qualified to say > whether what happened during Deb's surgery was inevitable due to > Deb's anatomy, was the product of the surgeon's inexperience, or was > some combination of the two. I don't need to know the answer to that > to empathize with Deb's pain and feelings of betrayal and violation. > That my experience with Dr. Ren was almost the antithesis of Deb's > never led me to believe that Deb must be deluded, dishonest, or in > need of psychiatric care. I will never say that Dr. Ren " couldn't " > have made the statements Deb attributes to her, even though they were > so different from what Dr. Ren has said to me. Deb still has my best > wishes; Dr. Ren still has my gratitude. > > I am a firm believer in malabsorption as a means to permanent weight > loss and therefore no fan of any purely restrictive surgery. Dr. Ren > has taken heat on this list for advocating the Lap Band, but at least > it offers enough restriction to do some good to the more moderately > obese among us, it's adjustable, and its minimal invasiveness means > that it will be undergone by those who otherwise would be unwilling > to try any weight-loss surgery at all. I still doubt that it will > prove to be the answer for a significant percentage of the morbidly > obese. Dr. Elariny's stand-alone sleeve gastrectomy has come in for > comparatively little criticism on this list, even though it tries to > force the reduced stomach to carry the full burden of weight loss and > maintenance, a function the BPD/DS's creator says it can't carry by > itself. If we care that people who come to Drs. Ren and > for the BPD/DS will now be offered only the BPD instead, we should > care that Elariny is persuading increasing numbers of those who come > to him for the BPD/DS to opt for the unadorned sleeve gastrectomy. > Some of them (as I've seen on the Elariny list) even come away with > the impression that the sleeve gastrectomy is " minor " surgery, which > it is not. And if we care that the BPD leaves the patient without > the pylorus, we should care that Elariny is reported on the DS- > Elariny list to be offering his sleeve-gastrectomy patients the > option of intentionally disabling the pylorus. If there has been any > discussion of that on this list, I've missed it. > > Meanwhile, I'm loving malabsorption. It has set me free: free from > stuffing myself beyond satiation today because I must begin the diet- > to-end-all-diets tomorrow. No more dieting for me. I love the > feeling of being satisfied with little food. I love being able to > stop with " just one " of a sweet treat without feeling deprived. > I feel smug when a package of cookies or candy lasts for weeks or > just goes unopened. At eight months out, I've lost more than sixty > percent of my excess weight. Bones are bursting out all over me. > And I'm glorying in the unfamiliar lingering glances of men. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Thank you for your thoughtful, insightful post. I was not aware of the decision that Dr E made not to do the DS now. If this is true, then I trust that will remove his name from the DS list and his happy post op DS patients will not refer more patients to see him. I am glad you had a flawless surgery by Dr Ren. I wish you well and a long and thin life. , Seattle > This will be a long-winded post, because I've had two DS surgeons, > both of whom have generated some controversy. > > I've been bemused in recent months to see that both the surgeons with Quote Link to comment Share on other sites More sharing options...
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