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RE: LDN and progression

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Hello, this is .

I have been on LDN for 1 1/2 years now. 3.0 mg

compound. I had an MRI when I started LDN and just had

one last week. There are more lesions in the brain and

in the spinal cord. I was very disappointed. I know

physically I was doing a little worse walking and the

weakness in my legs was getting

worse, but I was hoping the MRI would be about the

same.

Maybe I should try a different filler, like

acidophilus or avicel. I think my filler now is

lactose.

should I try to bump the LDN TO 4.5 MG? Any

suggestions would be helpfull. Having MS NOW 18 years,

you will try anything. I am on a low saturated fat

diet, high polyunsaturated fat, with a bucketfull of

vitamins daily.

Any words of wisdom, let me know. Thanks

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Guest guest

>

> Hello, this is .

> I have been on LDN for 1 1/2 years now. 3.0 mg

> compound. I had an MRI when I started LDN and just had

> one last week. There are more lesions in the brain and

> in the spinal cord. I was very disappointed. I know

> physically I was doing a little worse walking and the

> weakness in my legs was getting

> worse, but I was hoping the MRI would be about the

> same.

> Maybe I should try a different filler, like

> acidophilus or avicel. I think my filler now is

> lactose.

> should I try to bump the LDN TO 4.5 MG? Any

> suggestions would be helpfull. Having MS NOW 18 years,

> you will try anything. I am on a low saturated fat

> diet, high polyunsaturated fat, with a bucketfull of

> vitamins daily.

> Any words of wisdom, let me know. Thanks

>

>

============

Where do you get your LDN filled? Bump to 4.5mg, do not change

filler. Eliminate gluten and dairy from your diet if you have not

done so and use stevia as a sweetener.

As a just-in-case get tested for lyme by IGeneX Labs.

Try detoxing your body of yeasts and try to lower your viral-load by

taking anti-virals L-Lysine 500mg twice daily for 6 months and no more

than 6 months and alternate to Virastop for 6 months(google Search

ViraStop) then back to L-Lysine. Alternate your anti-virals every 6

months.

Get some digestive enzymes and a good quality probiotic. Good for you

regardless if on LDN or not.

Make sure LDN source is top notch and then look into getting checked

for lyme(the great MS mimicker).

You may consider transdermal LDN. You may have a malabsorption

problem and may not be absorbing LDN through the gut properly. You

can get fast release transdermal LDN from Tyrus at Coastal

Compounding in Savannah, GA. If you are overseas your pharmacist can

call Tyrus for the special emu oil transdermal LDN formulation. Toll

free...1-866-354-5188

I'm probably forgetting something but I think this will give you some

suggestions to work with and that's all this is, suggestions.

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Hi ,

I don't know if changing fillers would be the answer, but have you

tried to go up to 4.5 before? I know that I wish that I had started

on 4.5 myself, when I first started taking LDN. I, like you, was on

3.0 for a year and a half before, with lactose filler also. I still

have the same filler.

>

> Hello, this is .

> I have been on LDN for 1 1/2 years now. 3.0 mg

> compound. I had an MRI when I started LDN and just had

> one last week. There are more lesions in the brain and

> in the spinal cord. I was very disappointed. I know

> physically I was doing a little worse walking and the

> weakness in my legs was getting

> worse, but I was hoping the MRI would be about the

> same.

> Maybe I should try a different filler, like

> acidophilus or avicel. I think my filler now is

> lactose.

> should I try to bump the LDN TO 4.5 MG? Any

> suggestions would be helpfull. Having MS NOW 18 years,

> you will try anything. I am on a low saturated fat

> diet, high polyunsaturated fat, with a bucketfull of

> vitamins daily.

> Any words of wisdom, let me know. Thanks

> Kei

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Hi ,

I think now would be a good time to increase your nightly dosage of LDN

to 4.5 mg.

Beside LDN, however, there are lots of things you can do to treat your

MS, like eliminatng from your diet gluten, dairy, sugar, saturated fat,

aspartame, fried food, soft drinks, microwaved food, food and drink to

which you are allergic, etc.

This site has some good advice for people with MS:

http://tinyurl.com/grpm9

This site features a book written by a physician which discusses--in

addition to LDN--thirty-nine other alternative therapies of potential

benefit to people with MS:

http://tinyurl.com/2zptgu

Best regards,

Cyberguy

cyberguy2_2006

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Hello My name is Ed Nole and live in Naugatuck Conn. I

hqve had MS for 20 years I have been on all the ABC

drugs i'm on rebiff for the last 3 years, I take pill

wise Zanaflex,neurontin,cellcept W#hen I do have a

excerbation I get IV with solumedrol so far so good

I'm 47,Married with 2 kids 18 & 13 boys.

Anyway you take care.

Ed Nole

m.s.support@...

--- Bren <b63powell@...> wrote:

>

> >

> > Hello, this is .

> > I have been on LDN for 1 1/2 years now. 3.0 mg

> > compound. I had an MRI when I started LDN and just

> had

> > one last week. There are more lesions in the brain

> and

> > in the spinal cord. I was very disappointed. I

> know

> > physically I was doing a little worse walking and

> the

> > weakness in my legs was getting

> > worse, but I was hoping the MRI would be about the

> > same.

> > Maybe I should try a different filler, like

> > acidophilus or avicel. I think my filler now is

> > lactose.

> > should I try to bump the LDN TO 4.5 MG? Any

> > suggestions would be helpfull. Having MS NOW 18

> years,

> > you will try anything. I am on a low saturated fat

> > diet, high polyunsaturated fat, with a bucketfull

> of

> > vitamins daily.

> > Any words of wisdom, let me know. Thanks

> >

> >

> ============

>

> Where do you get your LDN filled? Bump to 4.5mg, do

> not change

> filler. Eliminate gluten and dairy from your diet

> if you have not

> done so and use stevia as a sweetener.

>

> As a just-in-case get tested for lyme by IGeneX

> Labs.

>

> Try detoxing your body of yeasts and try to lower

> your viral-load by

> taking anti-virals L-Lysine 500mg twice daily for 6

> months and no more

> than 6 months and alternate to Virastop for 6

> months(google Search

> ViraStop) then back to L-Lysine. Alternate your

> anti-virals every 6

> months.

>

> Get some digestive enzymes and a good quality

> probiotic. Good for you

> regardless if on LDN or not.

>

> Make sure LDN source is top notch and then look into

> getting checked

> for lyme(the great MS mimicker).

>

> You may consider transdermal LDN. You may have a

> malabsorption

> problem and may not be absorbing LDN through the gut

> properly. You

> can get fast release transdermal LDN from Tyrus

> at Coastal

> Compounding in Savannah, GA. If you are overseas

> your pharmacist can

> call Tyrus for the special emu oil transdermal LDN

> formulation. Toll

> free...1-866-354-5188

>

> I'm probably forgetting something but I think this

> will give you some

> suggestions to work with and that's all this is,

> suggestions.

>

>

>

>

>

>

>

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Hi ,

There are an indefinite number of things that could impact the

success or otherwise of any treatment programme.

Could you please reflect on anything that may have changed in the

last few months, eg; new medications, ceased medications, changed

diet, new vitamin supplements or cessation of supplements, any new

stress, etc.

Also, what type of polyunsaturated oil/s do you ingest, how much, and

for how long? All oils are not created equal.

Regards,

Cris

>

> Hello, this is .

> I have been on LDN for 1 1/2 years now. 3.0 mg

> compound. I had an MRI when I started LDN and just had

> one last week. There are more lesions in the brain and

> in the spinal cord. I was very disappointed. I know

> physically I was doing a little worse walking and the

> weakness in my legs was getting

> worse, but I was hoping the MRI would be about the

> same.

> Maybe I should try a different filler, like

> acidophilus or avicel. I think my filler now is

> lactose.

> should I try to bump the LDN TO 4.5 MG? Any

> suggestions would be helpfull. Having MS NOW 18 years,

> you will try anything. I am on a low saturated fat

> diet, high polyunsaturated fat, with a bucketfull of

> vitamins daily.

> Any words of wisdom, let me know. Thanks

>

>

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LDN is not a cure for MS. There is no cure for MS. BUT it certainly is the

best treatment for stabilising the condition and yes (if used early enough)

improving Symptoms. LDN is a long term treatment, some peopld have reported

improvements after taking LDN for 6 years. Also if used in addition to the

correct diet and nutrient therapy it is the best treatment for MS.

>From: " g_gsled " <g_gsled@...>

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: [low dose naltrexone] LDN and progression

>Date: Mon, 07 May 2007 03:32:31 -0000

>

>

>To All,

>

>I have read many times on this group's postings that LDN will stop

>progression of MS in most cases. Is this the case in other diseases as

>well, ie, Cancers, CFS, IBS etc?

>

>I understand with some (not all) there is symptom improvement as well.

>Does anyone have knowlege of anybody ever obtaining " cure " status

>through the use of LDN?

>

>Please address one or both Questions, thanks, ~ Greg in California

>

_________________________________________________________________

The next generation of Hotmail is here! http://www.newhotmail.co.uk/

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Which is the correct diet and nutrient therapy? harry Joyce Brannigan <joycebrannigan@...> wrote: LDN is not a cure for MS. There is no cure for MS. BUT it certainly is the best treatment for stabilising the condition and yes (if used early enough) improving Symptoms. LDN is a long term treatment, some peopld have reported improvements after taking LDN for 6 years. Also if used in addition to the correct diet and nutrient therapy it is the best treatment for

MS.>From: "g_gsled" <g_gsled >>Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] LDN and progression>Date: Mon, 07 May 2007 03:32:31 -0000>>>To All,>>I have read many times on this group's postings that LDN will stop>progression of MS in most cases. Is this the case in other diseases as>well, ie, Cancers, CFS, IBS etc?>>I understand with some (not all) there is symptom improvement as well.>Does anyone have knowlege of anybody ever obtaining "cure" status>through the use of LDN?>>Please address one or both Questions, thanks, ~ Greg in

California>__________________________________________________________The next generation of Hotmail is here! http://www.newhotmail.co.uk/

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

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Hi Harry,

I my opinion, in addition to LDN, the " Best Bet Diet " is a must for

people with MS who want to maximize their chances of recovery. For more

information, visit

http://www.direct-ms.org/bestbet.html

Sincerely,

Cyberguy

cyberguy2_2006

Which is the correct diet and nutrient therapy? harry Joyce Brannigan <joycebrannigan@...> wrote: LDN is not a cure for MS. There is no cure for MS. BUT it certainly is the best treatment for stabilising the condition and yes (if used early enough) improving Symptoms. LDN is a long term treatment, some peopld have reported improvements after taking LDN for 6 years. Also if used in addition to the correct diet and nutrient therapy it is the best treatment for

MS.>From: "g_gsled" <g_gsled >>Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] LDN and progression>Date: Mon, 07 May 2007 03:32:31 -0000>>>To All,>>I have read many times on this group's postings that LDN will stop>progression of MS in most cases. Is this the case in other diseases as>well, ie, Cancers, CFS, IBS etc?>>I understand with some (not all) there is symptom improvement as well.>Does anyone have knowlege of anybody ever obtaining "cure" status>through the use of LDN?>>Please address one or both Questions, thanks, ~ Greg in

California>__________________________________________________________The next generation of Hotmail is here! http://www.newhotmail.co.uk/

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

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The use of Diet and Nutritional Therapy in Multiple Sclerosis

Fundamental to the effective treatment of MS is the need to follow a

restricted diet and take a range of nutrient supplements intended to

compensate the well-known and common deficiencies existing in MS.

The restricted diet requires the exclusion of all red meat, all dairy (cow’s

milk) products, all wheat products, caffeine, chocolate, citrus fruit, and

strong, spicy food.

Red meat includes beef, pork, mutton and lamb. Possibly, lean pork may be

eaten occasionally, perhaps once per month. Poultry of fish may be eaten

freely.

Cow’s milk, even skimmed milk, must be avoided completely. Sweetened soya

milk may be used as an alternative in milk puddings or cereals. Unsweetened

soya milk, to most people, is unpleasant and unpalatable. A non-dairy

coffee whitener may be used in decaffeinated tea or coffee.

Wheat appears to be a specific sensitivity in MS as the incidence of similar

sensitivity to other gluten cereals (inc oats, barley, and rye) is very low,

at about 10%, or less.

Caffeine, although used in small doses in the histamine therapy, is

detrimental in larger doses. Caffeine drinks, such as tea, coffee, or cola

should be decaffeinated. Avoid caffeine in such as analgesic tablets or

artificial stimulants.

Chocolate, in significant quantities, is detrimental. When the diet and

suitable therapy is found to be effective, small amounts may be eaten with

relative impunity.

There is an acute sensitivity to citric acid, contained in citrus fruit.

These include oranges, lemons, grapefruit, and limes. Citrus fruit must be

avoided completely.

Spicy food contains high levels of natural salicylates. Similar to aspirin,

these compounds block the conversion of essential fatty acids (EFAs) into

prostaglandins (PGs). PGs are vital cell mediators that provide a variety

of important functions throughout the body, including the function of the

immune system.

Some spices, such as turmeric, and possibly cumin, are found to be

beneficial in MS or other conditions. These are available as nutritional

supplements from various healthfood companies.

Occasionally, there may exist a sensitivity to the deadly nightshade family

of plants. This group includes tomatoes, potatoes, capsicums,(red or green

peppers), courgettes, and cucumbers. In this circumstance, exposure to

these foods will tend to increase certain symptoms of the MS, such as

fatigue or numbness of the hands or feet. If such symptoms occur, the foods

involved should be avoided.

Nutrients should include, most essentially, essential fatty acids (EFAs),

zinc, copper, and the basic range of antioxidants. Flavonoid antioxidants

(anthocyanidins) are also considered greatly beneficial in MS.

EFAs should include significant quantities of all three groups of essential

fats: omega 3 (N3); omega 6 (N6), and omega 9 (N9). It has been known for

over 60 years that people with MS lack many of the essential fats within

this group.

The N3 fats include the fish oils, or such as flaxseed oil, which contains a

predominance of the N3 fatty acids, including eicosapentaenoic acid (EPA)

and docosahexaenoic acid (DHA). Many people with MS find it difficult

converting flaxseed oil to EPA/ DHA. EPA concentrate (fish body oil) is

preferable.

These are essential in providing the basis for anti-inflammatory

leucotrienes (cell activators) that naturally reduce the level of

inflammation in the body.

N3 fats also contribute to the structure and regeneration of the brain. All

the cells of the brain consist predominantly of N3 fatty acids.

The N6 fats include such as evening primrose oil, borage seed oil

(Starflower oil) or, to a lesser extent, sunflower oil.

N6 fats contribute to the structure of all living cells, forming the cell

wall and certain internal structures of the cell. N6 fats provide the

building blocks forming, and permitting the regeneration of the myelin in

the brain.

They also may be converted to a range of vital prostaglandins (PGs). PGs

are active in maintaining a vast range of essential physiological functions

in the body, including the efficient activity of the immune system.

N9 fats are the monosaturated fats, most abundantly available as olive oil.

The N9 fats are heat-stable up to 400 deg C and are therefore preferable for

cooking. They are not denatured by the heating process when, under similar

circumstances, N6 fats are readily converted to saturated fats. N9 fats are

also useful in salad dressings.

N9 fats are effective in reducing cholesterol in the blood, thus benefiting

the heart and circulatory system. They also contribute to the structure and

integrity of the skin. In MS a deficiency of N9 fats will often result in

intense urticaria (itching) thus leading to further skin damage through

scratching. A regular daily supplement of N9 fats will prevent this.

Zinc is a vital element in the treatment of MS. It too is contributory to a

wide range of functions in the body including the activity of the immune

system and the conversion of N6 EFAs into prostaglandins.

Most importantly perhaps, is the action of zinc on the adrenal gland. The

adrenal gland is vital in maintaining both vigour and vitality; providing

protection against infection, and in defending the body from the effects of

stress.

Because MS is invariably accompanied by major zinc deficiency the adrenal

gland is equally underactive. This is why emotional or physical stress has

such a marked adverse effect on the disease process, often triggering a

relapse of the MS.

The provision of a suitable supplement of zinc each day, usually at least 50

to 100 mg, is effective in boosting adrenal function to diminish any such

adverse responses.

The precise estimation of zinc needs may be assessed by means of the zinc

taste test, an inexpensive, simple, and non-toxic test that may be repeated

frequently to assess the ongoing response to zinc therapy.

In addition, with high doses of zinc, a single low dose of copper (2 to 4

mg) should also be taken.

The basic range of antioxidants includes selenium (200 mcg); vitamin E (400

units); vitamin C (1000 mg) and beta carotene (15 mg).

These antioxidant nutrients are active in support of the antioxidant

enzymes, including superoxide dismutase; glutathione peroxidase; and

catalase, which together protect the body from the damaging effects of free

radicals.

It is the reactive increase in these antioxidant enzymes that provide the

benefits after hyperbaric oxygen treatment (HBO).

Free radicals are produced as a result of normal metabolism, from traffic

pollution, and from such abnormal abuses such as smoking tobacco. Smoking

cannabis, sometimes used in the treatment of MS, will increase the damage

due to smoking by about twenty times. Also considering the wide-ranging

side-effects of cannabis itself, this is why cannabis cannot be recommended

in the treatment of this disease.

The flavonoid antioxidants (anthocyanidins) are particularly effective in

reducing the symptoms of MS. These include such as grapeseed extract,

extracts of various dark berries, such as bilberry or bluberry, or pinebark

extract (pycnogenol - a patented product).

Flavonoids enhance the activity of the basic antioxidants, such as vitamin C

or E, by promoting their reactivation within the body. The recommended dose

is from 250 to 1000 mg/ day.

Vitamin D may also be found to be deficient in MS. If so, a maximum

supplement of 2000 international units (50 mcg) per day is recommended.

Doses higher than this have been recommended by some practitioners but,

because vitamin D preparations also contain high doses of vitamin A, these

high dose of vitamin A may be considered detrimental.

High doses of both vitamin D and vitamin A may be teratogenic in pregnancy.

This means that such high doses could cause developmental abnormalities in

the developing infant.

Thus, the maximum dose recommended in pregnancy is 1000 international units

(25 mcg) of Vit D, and 1000 international units of vitamin A.

Vitamin B12 is of particular importance as MS is occasionally associated

with auto-immune pernicious anaemia. In this condition the absorption of

B12 is prevented due to the deficiency or absence of gastric intrinsic

factor (a glyco-protein produced in the stomach).

Vitamin B12 (referred to as the extrinsic factor), is normally absorbed by

combining with the intrinsic factor in the stomach. It is then absorbed in

this combined form in the small bowel.

If the intrinsic factor is deficient or absent the absorption of B12 is

diminished and pernicious anaemia occurs. Because B12 is also essential for

the process of remyelination, repair of the myelin is impossible without

adequate vitamin B12.

It is thus essential to be given a regular, at least monthly, injection of

B!2, as hydroxycobalamin 1000 mcg, in order to prevent these problems.

To be most effective, vitamin B12 must be accompanied by a high-strength

vitamin B complex, either B50 or B100, containing an average dose of either

50 or 100 mg of each individual vitamin.

Also recently introduced is the use of Chromium picolinate. Chromium is a

mineral that increases the sensitivity of insulin, thus making it more

effective in the storage of blood sugar (glucose) as glycogen in the muscles

and liver. This increase in insulin sensitivity reduces the overall level

of insulin in the circulation and, because insulin has an inflammatory

action, this reduces the total level of inflammation in the body.

This information has been researched and evaluated by Dr Tom Gilhooley, of

the Centre for Nutritional Studies, Glasgow. The maximum recommended dose

of chromium suggested by Dr Gilhooley is one milligramme (1 mg). As the

standard dose of this mineral is 200 microgrammes, (200 mcg) this will

require a dose of five capsules each day.

The need for such a high dose is most ideally determined by testing but, in

the absence of such a test, it may be suggested that a somewhat lesser dose

might be suitable. Thus, two capsules or 400 mcg may be considered suitable

as an alternative.

Muscle spasm in MS is a common symptom. This is initially minimised by

taking an adequate dose of both calcium (1200 mg) and magnesium (500 mg).

Calcium is effective in maintaining a relaxed and appropriate muscle tone;

magnesium is essential in maintaining appropriate and efficient muscle

strength.

Vanadium is a rare mineral that is known to be deficient often in MS.

Vanadium deficiency (together with zinc deficiency) is specifically

associated with depression, a common MS symptom. The recommended dose, as

vanadyl sulphate, is 10 mg/ day.

>From: HARRY POTTER <harry2dog@...>

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: RE: [low dose naltrexone] LDN and progression

>Date: Sun, 13 May 2007 10:00:57 -0700 (PDT)

>

>Which is the correct diet and nutrient therapy?

> harry

>

>Joyce Brannigan <joycebrannigan@...> wrote:

> LDN is not a cure for MS. There is no cure for MS. BUT it

>certainly is the

>best treatment for stabilising the condition and yes (if used early enough)

>improving Symptoms. LDN is a long term treatment, some peopld have reported

>improvements after taking LDN for 6 years. Also if used in addition to the

>correct diet and nutrient therapy it is the best treatment for MS.

>

> >From: " g_gsled " <g_gsled@...>

> >Reply-low dose naltrexone

> >low dose naltrexone

> >Subject: [low dose naltrexone] LDN and progression

> >Date: Mon, 07 May 2007 03:32:31 -0000

> >

> >

> >To All,

> >

> >I have read many times on this group's postings that LDN will stop

> >progression of MS in most cases. Is this the case in other diseases as

> >well, ie, Cancers, CFS, IBS etc?

> >

> >I understand with some (not all) there is symptom improvement as well.

> >Does anyone have knowlege of anybody ever obtaining " cure " status

> >through the use of LDN?

> >

> >Please address one or both Questions, thanks, ~ Greg in California

> >

>

>__________________________________________________________

>The next generation of Hotmail is here! http://www.newhotmail.co.uk/

>

>

>

>

>

>

>---------------------------------

>Boardwalk for $500? In 2007? Ha!

>Play Monopoly Here and Now (it's updated for today's economy) at

>Games.

_________________________________________________________________

Txt a lot? Get Messenger FREE on your mobile.

https://livemessenger.mobile.uk.msn.com/

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Thank you so much!cyber_guy_2006@... wrote: Hi Harry,I my opinion, in addition to LDN, the "Best Bet Diet" is a must forpeople with MS who want to maximize their chances of recovery. For moreinformation, visithttp://www.direct-ms.org/bestbet.htmlSincerely,Cyberguycyberguy2_2006low dose naltrexone From: HARRY POTTER <harry2dog@...>Date: Sun, 13 May 2007 10:00:57 -0700 (PDT)Subject: RE: [low dose naltrexone] LDN and progression Which is the correct diet and nutrient therapy? harry Joyce Brannigan <joycebrannigan@...> wrote: LDN is not a cure for MS. There is no cure for MS. BUT it certainly is the best treatment for stabilising the condition and yes (if used early enough) improving Symptoms. LDN is a long term treatment, some peopld have reported improvements after taking LDN for 6 years. Also if used in addition to the correct diet and nutrient therapy it is the best treatment for MS.>From: "g_gsled" <g_gsled >>Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] LDN and progression>Date: Mon, 07 May 2007 03:32:31 -0000>>>To All,>>I have read many times on this group's postings that LDN will stop>progression of MS in most

cases. Is this the case in other diseases as>well, ie, Cancers, CFS, IBS etc?>>I understand with some (not all) there is symptom improvement as well.>Does anyone have knowlege of anybody ever obtaining "cure" status>through the use of LDN?>>Please address one or both Questions, thanks, ~ Greg in California>__________________________________________________________The next generation of Hotmail is here! http://www.newhotmail.co.uk/ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Autos' Green Center.

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