Re: New to the Banding Family and very mixed up about it!

[Guest guest]

From what I've read, almost all of the children adjust within a couple

of weeks. My son had excessive sweating, but that was his only issue,

other than occasional red spots.

My mother-in-law was also very uncomfortable with the helmet my son

had and she watches him twice a week. I think that her biggest problem

was that she was afraid of what other people would think. She also

felt that he was perfect the way he was and couldn't see his misshapen

head.

I printed out some info from cappskids.org and gave to her to read

over. I think that it made her a little more comfortable in case

anybody ever asked her about it, although nobody ever did. I think

that it did answer some of her questions about why he had to wear it.

It may also help with some of your own concerns. Best wishes!

-Noel

mom to Dillon, Hanger helmet July - August 2008

>

> My son is 5 months and has had the band on for 5days. He is doing ok

> but he is not himself. He does not sleep much and my Mom keeps him

> during the day and she is so uneasy with it. How can I make my

family

> comfortable when I don't think I am comfortable with it. He is so

> fussy. DOES IT GET ANY BETTER?

>

[Guest guest]

Here is a big virtual hug for you. My son is just ending his

treatment with a STARband. He was almost 5 months when the banding

started. We have been banded for 7 weeks now and am happy to say we

have just 2 weeks left! Remarkable.

Anyways, I dont have great advice. Im sorry to say it took my son a

week to sleep in his helmet for any length of time. He still wakes 2

or more times per night because he is uncomfortable (this was a sleep

through the night baby since 2 months old!!) It has been a big sleep

adjustment for my husband and I but IT IS WORTH IT! Just remember

that. Each night, each nap, remember what the end point is. It will

get better, it will take time.

Hope he adjusts quickly for you!!

>

> My son is 5 months and has had the band on for 5days. He is doing ok

> but he is not himself. He does not sleep much and my Mom keeps him

> during the day and she is so uneasy with it. How can I make my family

> comfortable when I don't think I am comfortable with it. He is so

> fussy. DOES IT GET ANY BETTER?

>

[Guest guest]

Good to hear you are only having to deal with the band for 9 weeks! I think I can handle that. If we do get a band I hope my son will only be in his for that long too. He is 5 months old but was a month early so he is technically 4 months. So I guess treatment right now would be the most optimal time to do it. I am VERY worried about the sleeping thing though. He has slept 12 hours at night since he was 2 months old. He is such a good sleeper. Im going to feel so bad for him knowing that he is uncomfortable. But maybe I will get lucky and he will continue to sleep right through the night....~ 5 month old with plagioFrom: jannabelle2121 <jannabelle2121@...>Plagiocephaly Sent: Tuesday, October 28, 2008 4:52:28 PMSubject: Re: New to the Banding Family and very mixed up about it!

Here is a big virtual hug for you. My son is just ending his

treatment with a STARband. He was almost 5 months when the banding

started. We have been banded for 7 weeks now and am happy to say we

have just 2 weeks left! Remarkable.

Anyways, I dont have great advice. Im sorry to say it took my son a

week to sleep in his helmet for any length of time. He still wakes 2

or more times per night because he is uncomfortable (this was a sleep

through the night baby since 2 months old!!) It has been a big sleep

adjustment for my husband and I but IT IS WORTH IT! Just remember

that. Each night, each nap, remember what the end point is. It will

get better, it will take time.

Hope he adjusts quickly for you!!

>

> My son is 5 months and has had the band on for 5days. He is doing ok

> but he is not himself. He does not sleep much and my Mom keeps him

> during the day and she is so uneasy with it. How can I make my family

> comfortable when I don't think I am comfortable with it. He is so

> fussy. DOES IT GET ANY BETTER?

>

[Guest guest]

I just wanted to chime in that, in my experience, it wasn't the

helmet that was causing the fussiness. Perhaps he is hot..? My boys

took about a week to get past the sweating stage, and then it was no

big deal. Have hope that things will get better very soon for you and

your little one... babies adjust surprisingly well to new things...

overall, i would say that the helmet therapy was more of an

adjustment for me (daily routine, etc) than it ever was for them.

And take comfort in knowing that you are doing the best thing for him

right now. Best wishes...

Shenelle

Katy, TX

> >

> > My son is 5 months and has had the band on for 5days. He is

doing ok

> > but he is not himself. He does not sleep much and my Mom keeps

him

> > during the day and she is so uneasy with it. How can I make my

family

> > comfortable when I don't think I am comfortable with it. He is so

> > fussy. DOES IT GET ANY BETTER?

> >

>

[Guest guest]

my daughter still sleeps through the night. she has had the band for 3 1/2 weeks

Tori-DOCband

From: Knapp <knapp1307@...>Subject: Re: Re: New to the Banding Family and very mixed up about it!Plagiocephaly Date: Thursday, October 30, 2008, 1:08 AM

Good to hear you are only having to deal with the band for 9 weeks! I think I can handle that. If we do get a band I hope my son will only be in his for that long too. He is 5 months old but was a month early so he is technically 4 months. So I guess treatment right now would be the most optimal time to do it. I am VERY worried about the sleeping thing though. He has slept 12 hours at night since he was 2 months old. He is such a good sleeper. Im going to feel so bad for him knowing that he is uncomfortable. But maybe I will get lucky and he will continue to sleep right through the night....~ 5 month old with plagio

From: jannabelle2121 <jannabelle2121>PlagiocephalySent: Tuesday, October 28, 2008 4:52:28 PMSubject: Re: New to the Banding Family and very mixed up about it!

Here is a big virtual hug for you. My son is just ending histreatment with a STARband. He was almost 5 months when the bandingstarted. We have been banded for 7 weeks now and am happy to say wehave just 2 weeks left! Remarkable.Anyways, I dont have great advice. Im sorry to say it took my son aweek to sleep in his helmet for any length of time. He still wakes 2or more times per night because he is uncomfortable (this was a sleepthrough the night baby since 2 months old!!) It has been a big sleepadjustment for my husband and I but IT IS WORTH IT! Just rememberthat. Each night, each nap, remember what the end point is. It willget better, it will take time. Hope he adjusts quickly for you!!>> My son is 5

months and has had the band on for 5days. He is doing ok> but he is not himself. He does not sleep much and my Mom keeps him> during the day and she is so uneasy with it. How can I make my family> comfortable when I don't think I am comfortable with it. He is so> fussy. DOES IT GET ANY BETTER?>

[Guest guest]

That is awesome. I can only hope I will have the same luck if we go forward with the band! Is there anyone out there that has received their DOCband from the phoenix location?~ 5 month old with plagioFrom: Migliore <heather_migliore@...>Plagiocephaly Sent: Thursday, October 30, 2008 6:08:58 PMSubject: Re: Re: New to the Banding Family and very mixed up about it!

my daughter still sleeps through the night. she has had the band for 3 1/2 weeks

Tori-DOCband

From: Knapp <knapp1307 (DOT) com>Subject: Re: Re: New to the Banding Family and very mixed up about it!PlagiocephalyDate: Thursday, October 30, 2008, 1:08 AM

Good to hear you are only having to deal with the band for 9 weeks! I think I can handle that. If we do get a band I hope my son will only be in his for that long too. He is 5 months old but was a month early so he is technically 4 months. So I guess treatment right now would be the most optimal time to do it. I am VERY worried about the sleeping thing though. He has slept 12 hours at night since he was 2 months old. He is such a good sleeper. Im going to feel so bad for him knowing that he is uncomfortable. But maybe I will get lucky and he will continue to sleep right through the night....~ 5 month old with plagio

From: jannabelle2121 <jannabelle2121>PlagiocephalySent: Tuesday, October 28, 2008 4:52:28 PMSubject: Re: New to the Banding Family and very mixed up about it!

Here is a big virtual hug for you. My son is just ending histreatment with a STARband. He was almost 5 months when the bandingstarted. We have been banded for 7 weeks now and am happy to say wehave just 2 weeks left! Remarkable.Anyways, I dont have great advice. Im sorry to say it took my son aweek to sleep in his helmet for any length of time. He still wakes 2or more times per night because he is uncomfortable (this was a sleepthrough the night baby since 2 months old!!) It has been a big sleepadjustment for my husband and I but IT IS WORTH IT! Just rememberthat. Each night, each nap, remember what the end point is. It willget better, it will take time. Hope he adjusts quickly for you!!>> My son is 5

months and has had the band on for 5days. He is doing ok> but he is not himself. He does not sleep much and my Mom keeps him> during the day and she is so uneasy with it. How can I make my family> comfortable when I don't think I am comfortable with it. He is so> fussy. DOES IT GET ANY BETTER?>

[Guest guest]

We started to do better early in the week; slept through the

night, he was joyful and happy and then Thursday hit and like a ton

of bricks squashing a grape...out of control...He wakes up every 3

hours, we have tried to adjust the band to see if it was irritaitng

him(can not find anything) he just cries and this went on again last

night. Unfortunatly, I still have to get up and go to work and be

alert and ready. We have tried everything it seems. Our next Ortho

appt is Friday the 7th should we wait until then to ask about this

with the Ortho? My mom seems to be having troubles keeping him

during the day because he will not sleep or lay down at all.

Thanks for the much needed advice and I am trying to be positive..I

rock Ry to sleep and comfort him when he wakes up..He's my little man

and I hate to see him so uncomfortable.

,

5mths, 2nd week in.

> > >

> > > My son is 5 months and has had the band on for 5days. He is

> doing ok

> > > but he is not himself. He does not sleep much and my Mom keeps

> him

> > > during the day and she is so uneasy with it. How can I make my

> family

> > > comfortable when I don't think I am comfortable with it. He is

so

> > > fussy. DOES IT GET ANY BETTER?

> > >

> >

>