Re: Re: 16 weeks wearing helmet and no major change?

[Guest guest]

How often do you go in for adjustments ect? Please post a photo, I did a google search and could find nothing on sick kids helmets. You can use a helmet until your child is 24 months. I would switch providers, absolutely. It is a shame that Cranial tech doesn't have more locations. I think the Starband would be a good option. I found their phone number. Don't give up on treatment, It can get better.Best of luck!TOLL-FREE 800-446-6770 From: christineashok <christineashok@...>Subject: Re: 16 weeks wearing helmet and no major change?Plagiocephaly Date: Friday, October 3, 2008, 5:24 AM

Sorry your progress has been so slow. My general impression is that

the sick kids helmet is okay, but not great - but that is based on

reading here, and no real first-hand experience. I think a starband

could be more effective, but a lot would depend on getting a good

ortho. We had a good ortho, but that was in california (and my

daughter had a giant head). Also cranial tech has a very good

reputation (doc band) and their reputation is more consistent across

locations. If you can afford the travel it might be worth it.

If not I would think you can still wear the helmet you have. If your

son has had very little growth it should fit for a few more months. It

does rely on growth for any helmet/band to work so your son's head may

be part of the problem. Still in 4 mo he must have had some growth so

you should see improvement - more than it sounds like you have seen.

If you do decide to switch to another band I would try and do it

sooner rather than later since you're not getting much correction now.

Good luck and let us know what happens.

-christine

sydney 2.5 yrs starband grad

>

> Hi

> We're from Toronto, Canada and we obtained our helmet from Sick Kids

> Hospital - the only place here that makes them. My son's head was

> very flat at the back when we started 16 weeks ago (which also means

> the sides of his head are way out). He is a slow grower (low birth

> weight and he has stayed somewhere around the 3rd percentile on the

> growth chart). Yesterday we went in for our 4 week check in and I

> have to say I didn't see any change from the pictures they took at 12

> weeks or 8 weeks. My son will be 10 months next week and I was told

> that in about 2 months, maybe 3, the helmet will have done all it can

> do and we may just have to accept his head the way it is. There is a

> small bump at the back - its lumpy and not rounded and smooth but

> that's it. The sides are still way out in my opinion.

>

> Our helmet looks a lot different from the ones made in the US. Sick

> Kids hospital is a very big hospital so I am sure the helmets they

> use must be up to standard.... I'm so disappointed this isn't working

> after 22 hours a day for 16 weeks. I was wondering if the helmets

> made in the US actually push the head shape back into normal shape?

> My helmet holds onto the high spots and has a space at the back for

> the head to grow into. Since my son has been labeled a slow grower

> the back of his head isn't filling out as fast as I'd like. I'm

> wondering when our time is up if I should look into popping over the

> border and getting another helmet, is there any point at one year

> going into another helmet? Do the Star bands actually apply pressure

> to shape head or do they work similar to the one I already have? Is

> a one year old baby too late to make any changes?

>

> thanks for any advice, I know this was long.

> Marina

> I'll post a pic of Cal's helmet

>